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    • 9 hours, 26 minutes ago
      KCR likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 10 hours, 6 minutes ago
      TEH likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 1 day ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 8 hours ago
      Marty likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 1 day, 9 hours ago
      D-connect likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 10 hours ago
      atr likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 2 days, 5 hours ago
      KarenM6 likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 9 hours ago
      Natalie Daley likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 10 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      Often? Try Always! I only see my doc 1x a year to legally fill Rx. Otherwise I manage 100% on my own and make all my own dosing adjustments.
    • 2 days, 10 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 6 hours ago
      Amanda Barras likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 9 hours ago
      kristina blake likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 3 days, 9 hours ago
      Marty likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 10 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      This is one of those times when I want to ask T1DExchange “what is the motivation behind this question”? What are you trying to learn from it?
    • 3 days, 10 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 3 days, 21 hours ago
      Bekki Weston likes your comment at
      If you use a CGM, is it accurate on day 1?
      It takes a few hours to get close.
    • 3 days, 22 hours ago
      Bekki Weston likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
    • 4 days, 5 hours ago
      lis be likes your comment at
      How often do you adjust a planned physical activity because of how your glucose is trending?
      If I am above 150mg/dl don't need to carb up. If I am around 100mg/dl I definitely need to carb up. Aren't we always evaluating where we are and anticipating where we might land. That is part of active management.
    • 4 days, 9 hours ago
      Phyllis Biederman likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      For me it's compression lows - and that's it. I see that most complaints are about connection to phones. I don't (won't) use my phone. I have to have a work phone with me at least 60 hours a week, and I'm not interested in carrying (or wearing) two phones. I rarely lose connection between my Tandem X2 pump and the sensor/transmitter. Sometimes I will walk away while it's charging and take myself out of range, but that's on me.
    • 4 days, 11 hours ago
      Derek West likes your comment at
      What is the best spot for CGM accuracy
      Dexcom is ok with other locations if approved by your doctor.
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    In the past 7 days, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

    Home > LC Polls > In the past 7 days, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?
    Previous

    If you have a child with T1D (or at some point, you were a child with T1D) who goes trick-or-treating, do you use any strategies to manage insulin, blood glucose levels, and candy? Share what works for you in the comments!

    Next

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of July through the end of September 2022?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    42 Comments

    1. Lawrence S.

      It’s difficult to remember, since I’m sleeping. I seem to remember about 3 this week. Maybe more, maybe less.

      3 years ago Log in to Reply
    2. sayounger@verizon.net

      My fault as I changed my Omnipod 5 and forgot to put it in Auto mode. Ugh

      3 years ago Log in to Reply
    3. karolinamalecki7@gmail.com

      I put 4 but it’s typically less than that. I’ve had a slew of bad dexcoms, I’ve gotten 4 replacements in 3 days. Constant low alarms that were false kept me up all night and interrupted meetings all day.

      1
      3 years ago Log in to Reply
      1. Lawrence S.

        Me too. I’ve had the last three or four Dexcom G6 sensors go “—“. I just called for a replacement yesterday. Must be a bad batch, maybe?

        1
        3 years ago Log in to Reply
      2. karolinamalecki7@gmail.com

        Sorry to hear that! I have five replacements on the way, I made a little excel spreadsheet to keep track of them all! I made sure to use different lot numbers after the 3rd sucked but I’m now just chalking it up to bad luck & grateful for my current working one!

        2
        3 years ago Log in to Reply
      3. Jeanne McMillan-Olson

        Do you know what the lot number was so we can check to see if we have it too? Thanks

        3 years ago Log in to Reply
      4. Lawrence S.

        I don’t have the lot numbers for all of mine that went – – – , but the most recent one was lot number: 5311136, expiration date 10/31/23

        3 years ago Log in to Reply
      5. karolinamalecki7@gmail.com

        Lot #7310059 & #7310865

        3 years ago Log in to Reply
    4. john36m

      Hey. Better an interruption than not. Fix a low or a high. My disturbances are almost always due to user (me) error.

      1
      3 years ago Log in to Reply
    5. Annie Wall

      Every single night! I’m still trying to get back to normal after my 6th Covid shot. Although I’d rather get my sleep, I’m determined not to get Covid.

      2
      3 years ago Log in to Reply
      1. Rae999333

        My sugars went nuts too afyer tge Covid vaccine…took at least a full week to normalize….but I agree, haven’t gotten it yet and don’t plan on it! Hang in there, you’re not alone

        3 years ago Log in to Reply
    6. Ernie Richmann

      Not sure disturbed is the right word- I am glad to get the alert.

      3
      3 years ago Log in to Reply
    7. ELYSSE HELLER

      I’d rather get interrupted sleep than the alternative. I do, however, find that the Dexcom sensors do not last 10 days as claimed. The sensors seem to start having issues 3 to 5 days prior to the sensor’s expiration day. That does get annoying.

      1
      3 years ago Log in to Reply
      1. Annie Wall

        Dexcom was the game changer for me. I’ll never forget waking up in the middle of the night with several men standing around my bed, including my husband (who I called Dad!). My blood glucose was so low my husband couldn’t get it to rise as he usually could, so he had to call the ambulance. Those days are long gone with Dexcom.

        3 years ago Log in to Reply
    8. Mary Dexter

      Pain in my hips wakes me before the alarms. Some strange combination of scoliosis and LADA, my numbers wander out of range, too far up or down, and I am in pain. Crick, crack, click, clack.

      1
      3 years ago Log in to Reply
      1. Rae999333

        I Totally understand as my hands have all of a sudden been Severely in pain which causes me to wake up, plus my drops around 330am…ughhh…hope you feel better!

        3 years ago Log in to Reply
    9. Sherolyn Newell

      I put 0, but last week it would have been 5 or 6. I go through periods of BG going up around midnight. Last week was one of those.

      1
      3 years ago Log in to Reply
    10. Paul Madden

      My last HbA1c was 5.6. I do wish the disposable pens had 1/2 unit capabilities. It seems that less of them have this possibility compared to 15 years ago. OR maybe it is just the insulins that I use that do not have this capability. It would make blood sugar management easier and safer!

      2
      3 years ago Log in to Reply
      1. Annie Wall

        You could try the InPen. While I was on a pump vacation, I used the InPen for two years with Dexcom. It does shoot 1/2 units and has really good software reports. You have the one pen for a year at a time and you buy insulin cartridges for it.

        3 years ago Log in to Reply
    11. Joan Fray

      Zero for those reasons. Every night because my body gets so “ twitchy”. Don’t know what to do about it. It’s Not caffeine.

      2
      3 years ago Log in to Reply
    12. Rae999333

      About 4, I think I developed arthritis so tgat may account for it as well…seeing rheumatologist on Thursday

      3 years ago Log in to Reply
    13. Chrisanda

      It just happened I had a low alert once this past week. I can go many weeks, sometimes months, without a nighttime alarm.

      1
      3 years ago Log in to Reply
    14. Bruce Ross

      My upper and lower settings for my 770G pump are 175 and 90 respectively. I’m awakened nightly at about 3:00 am average. Very frustrating.

      3 years ago Log in to Reply
    15. Janis Senungetuk

      Over the weekend had very high numbers close to midnight that continued into early morning even after replacing my infusion set and injecting a correction dose. Must have been my choice of a new recipe for dinner.

      3 years ago Log in to Reply
    16. Thomas Cline

      I said 7 but that’s not entirely fair, since aging has caused me to get up one or more times during my sleep period to use the bathroom. The good news is that this allows me to use my CGM to check sugar levels in the night and correct as needed even before any alarms go off. On the other hand, my CGM does often disturb me even above and beyond this source of waking. Fortunately, I always drop back to sleep very rapidly. I’ve taken to putting my CGM receiver in a glove to muffle it a bit to avoid disturbing my wife’s sleep, since she has much more difficulty going back to sleep.

      3 years ago Log in to Reply
    17. lis be

      having sudden high spikes at night and it wakes me up several times a night, but not regularly enough to change my basal. Can’t figure out why. I have my alerts set at 70 for low and 160 for high. I cant wait until my insurance will cover a tandem IQ

      2
      3 years ago Log in to Reply
      1. Karen Taylor

        The Tandem t:slim X2 has been a real life changer for me. I love it. I changed because of the cost of omnipod through Medicare and really didn’t want to. But now I realize how beneficial it is along with the Dexcom. And I won’t have the cost of paying for the pods anymore

        3 years ago Log in to Reply
    18. Jeff Balbirnie

      I reject being that obsessive/compulsive about testing period. That amount of anxiety is severely problematic and IMHO is diagnosable regardless of our good intent.

      Night time is for sleeping not testing!

      1
      3 years ago Log in to Reply
    19. Kristine Warmecke

      My DAD woke me from a deep sleep once, and then 2 other times. When she woke me from the deep sleep, I thought she needed to go outside. She let me put her leash on but wouldn’t go out only to the fridge . So I got a piece of cheese thinking she wanted a treat, still wouldn’t go out, she jumped and got a juice from counter and stood by me until I took and drank it. She got lots of praise and the cheese. lol. My G6 never alerted until I was back in bed, and it kept alarming.

      2
      3 years ago Log in to Reply
      1. Patricia Dalrymple

        I assume you mean your DOG but that is awesome. Is your dog especially trained to do that?

        3 years ago Log in to Reply
      2. Kristine Warmecke

        @Patrica Dalrymple I mean DAD (Diabetic Alert Dog or service dog) Yes she is specially trained.

        3 years ago Log in to Reply
    20. Becky Hertz

      I said 3, but I really don’t know cause I don’t keep track. My sleep has been more disturbed by insomnia this past week. Not sure what that’s all about.

      3 years ago Log in to Reply
    21. Pauline M Reynolds

      My pet peeve is when the alarm wakes me up to tell me that I had a high reading two hours ago!

      4
      3 years ago Log in to Reply
    22. Patricia Dalrymple

      I don’t use a CGM so I said 0. My Endo helped me adjust my basal rate so I don’t go low while sleeping like I did. Usually I will wake up hot when I am low or have very strange dreams when high, so I guess I have a built in CGM.

      1
      3 years ago Log in to Reply
    23. mbulzomi@optonline.net

      I get warnings every time I do a set change. (Two in seven days) As I have sated many times before, when I change a set, I always have to make changes to my Basels. As you all know, site absorption problems. I’m starting into my 55th T1D year. Still much to active to use my thighs or rear. You may be able to put a sensor under your arms, but not a “Q” set.

      3 years ago Log in to Reply
    24. Mark Schweim

      It becomes difficult to honestly answer such questions since I work 12+ hour night shift so I’m awake literally all night long most nights anyway and even on my nights off work I do most of my sleeping during the daylight hours.

      3 years ago Log in to Reply
    25. Gustavo Avitabile

      I wake up at least twice per night because I need the bathroom or because of alarms. If I go to the bathroom, I also check, and correct if necessary, my blood glucose; if an alarm wakes me up, I also go to the bathroom. In no case this is disturbing: I fall asleep again as soon as I return to bed.

      3 years ago Log in to Reply
    26. Jan Masty

      It was at least 3 nights mostly due to dexcom issues. The dexcom is great WHEN it works right, I’ve had a few lately that tell me I have a crashing low when it absolutely is not and it has nothing to do with “ compression lows”.

      1
      3 years ago Log in to Reply
    27. Chip Brookes

      I am awakened by the alarm stating a lost CGM connection. I Have rolled onto my Tandem pump so that it is not receiving a signal. I rarely am awakened by low alerts. If I am, then it is usually accurate. It does seem that the Dexcom G6 does sometimes in the first 24 hours or so of a new installation the G6 will give false low alerts.

      3 years ago Log in to Reply
    28. Steven Gill

      Generally 3-4 nights a week I get woke up, my alarms are set for 70-125 which is pretty tight. I’m a super light sleeper (can hear my cat go out the doggy door) and can return to sleep as easily. Plan to tighten them up again after next doc’s visit.

      3 years ago Log in to Reply
    29. T1D4LongTime

      A few months ago, alarms at night were seldom. Now, my schedule and eating patterns have been chaotic, so I’m going low just as I go to bed…. having to remember to monitor my BG closer 30 mins prior to bedtime. I answered 5 times out of 7

      3 years ago Log in to Reply
    30. William Bennett

      COMPRESSION LOWS!!! AGGGH!

      Like karolinamalecki7@gmail.com, it seems like the recent formulation of Dexcom sensor filaments is way more susceptible to the compression-low phenom, and man if you’re a side-sleeper is it a PITA. Upper arms just aren’t an option for me any more unless I want to wake up multiple times in the night with breaking-glass Urgent LOW!!! alarms when my actual BG is like 90. Even belly locations, same thing, unless I place them way in next to my navel but even that’s not totally preventative. And it uses real estate I need for my infusion sets.

      This is definitely a new thing, within the last 6-9 months. For years I heard the expression “compression low” and only thought was “Gee, sure glad I don’t have that problem.” Oh, it’s a problem now.

      3 years ago Log in to Reply

    In the past 7 days, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low? Cancel reply

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