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    • 6 hours, 17 minutes ago
      KCR likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 6 hours, 57 minutes ago
      TEH likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 21 hours, 40 minutes ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 21 hours, 40 minutes ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 21 hours, 41 minutes ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 5 hours ago
      Marty likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 1 day, 5 hours ago
      D-connect likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 7 hours ago
      atr likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 2 days, 2 hours ago
      KarenM6 likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 6 hours ago
      Natalie Daley likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 7 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      Often? Try Always! I only see my doc 1x a year to legally fill Rx. Otherwise I manage 100% on my own and make all my own dosing adjustments.
    • 2 days, 7 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 3 hours ago
      Amanda Barras likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 5 hours ago
      kristina blake likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 3 days, 6 hours ago
      Marty likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 7 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      This is one of those times when I want to ask T1DExchange “what is the motivation behind this question”? What are you trying to learn from it?
    • 3 days, 7 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 3 days, 18 hours ago
      Bekki Weston likes your comment at
      If you use a CGM, is it accurate on day 1?
      It takes a few hours to get close.
    • 3 days, 18 hours ago
      Bekki Weston likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
    • 4 days, 2 hours ago
      lis be likes your comment at
      How often do you adjust a planned physical activity because of how your glucose is trending?
      If I am above 150mg/dl don't need to carb up. If I am around 100mg/dl I definitely need to carb up. Aren't we always evaluating where we are and anticipating where we might land. That is part of active management.
    • 4 days, 6 hours ago
      Phyllis Biederman likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      For me it's compression lows - and that's it. I see that most complaints are about connection to phones. I don't (won't) use my phone. I have to have a work phone with me at least 60 hours a week, and I'm not interested in carrying (or wearing) two phones. I rarely lose connection between my Tandem X2 pump and the sensor/transmitter. Sometimes I will walk away while it's charging and take myself out of range, but that's on me.
    • 4 days, 7 hours ago
      Derek West likes your comment at
      What is the best spot for CGM accuracy
      Dexcom is ok with other locations if approved by your doctor.
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    In addition to T1D, how many other autoimmune diseases do you have?

    Home > LC Polls > In addition to T1D, how many other autoimmune diseases do you have?
    Previous

    If you have T1D, have any of your family members listed below also had T1D? Select all that apply.

    Next

    Health care providers may prescribe medications for other illnesses or indications (like type 2 diabetes medications) that might be helpful for a person’s concern or problem with T1D - commonly called 'off-label use'. Does your provider prescribe you any type 2 diabetes medications 'off-label'? Select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    34 Comments

    1. LizB

      I also have Hashimoto’s, which seems to be pretty common among those with Type 1.

      4
      4 years ago Log in to Reply
    2. Britni

      Hashimoto’s and celiac

      4 years ago Log in to Reply
    3. mbulzomi@optonline.net

      One is enough!

      4 years ago Log in to Reply
    4. Louise Robinson

      Thyroid disease—diagnosed about 10 years after 1976 Type 1 diagnosis. Have been taking levothyroxine ever since.

      4 years ago Log in to Reply
    5. Lori Lorsch

      4

      4 years ago Log in to Reply
    6. Don P

      65+ a few years T1 without any other issues.

      2
      4 years ago Log in to Reply
      1. sweet charlie

        70

        1
        4 years ago Log in to Reply
    7. Lawrence S.

      At least 4 autoimmune diseases, plus T1D. It’s good to be alive.

      1
      4 years ago Log in to Reply
    8. Trisha Oldenkamp

      I’m surprised others don’t tend to have more! I have had 4 autoimmune diseases but fortunately T1 is the only major one currently. Two could be treated successfully. I have Scandinavian heritage which I know is prone to autoimmune issues.

      4 years ago Log in to Reply
    9. Rob Smith

      Celiac

      4 years ago Log in to Reply
    10. Karen Newe

      0. But I test positive for 1 of 2 genes tested that are associated with celiac.

      1
      4 years ago Log in to Reply
    11. Karen DeVeaux

      Celiac

      4 years ago Log in to Reply
    12. Jane Cerullo

      Graves’ disease with TED
      Skin lupus

      4 years ago Log in to Reply
    13. jo

      I have Celiac Disease, Autoimmune Leukopenia, Alopecia, and the way my thyroid blood test are going I’m sure Hashimoto’s Disease soon. And of course the pièce de résistance Type 1

      4 years ago Log in to Reply
    14. Valentina Potempa

      Graves Disease

      4 years ago Log in to Reply
    15. Mark Schweim

      I said 0 because “How would I know” wasn’t an answer option.
      I was diagnosed with IBSDC (Irritable Bowel Syndrome with Diarrhea and Constipation) in 2017 and I have been told both that it IS another autoimmune disease and that it ISN’T anything autoimmune related, so I have been unable to get any definite answer whether my autoimmune disease count stands at 1 or if it should be increased to 2.

      4 years ago Log in to Reply
    16. pru barry

      One IS enough, but my second one, now that the thyroid has been removed, just means one pill a day, and no diet circus involved :*) ! Hard not to love Graves Disease!

      4 years ago Log in to Reply
    17. Kim Davis

      Fibromyalgia, autoimmune hepatitis, T1D, hypothyroid, IGA~, psoriasis, kidney disease.

      4 years ago Log in to Reply
    18. Lynn Green

      In addition to
      T1D, just dx with psoriatic arthritis and fibromyalgia.

      4 years ago Log in to Reply
    19. Janis Senungetuk

      No others that I’m aware of. The low thyroid I was dx with in 2005 was not considered autoimmune.

      4 years ago Log in to Reply
      1. Jneticdiabetic

        1 more = Hashimoto’s thyroiditis

        4 years ago Log in to Reply
    20. Pauline M Reynolds

      Hashimoto’s thyroiditis and enteropathic arthritis.

      4 years ago Log in to Reply
    21. AnitaS

      I have been on levothyroxine for about 47 years for my low thyroid which came on about 2-3 years after being diagnosed with T1. Not sure if I have ever heard of Hiroshimoto disease being mentioned for me though. I’ll have to check my medical records to see if my low thyroid is Hiroshimotos or not.

      4 years ago Log in to Reply
      1. AnitaS

        All my medical records say hypothyroidism, not Hashimoto disease

        4 years ago Log in to Reply
    22. sweet charlie

      Old age !!

      2
      4 years ago Log in to Reply
    23. Jan Masty

      Hypothyroid, rheumatoid arthritis, vitiligo. Doing fine

      1
      4 years ago Log in to Reply
    24. Ahh Life

      Dang! With so many mortality and comorbidities associated with the diabetic condition, I scored zero on this one. ╮(╯_╰)╭

      I feel like I just swung the sledge hammer and rang the bell. Whoo-hoo! c( O.O )ɔ

      5
      4 years ago Log in to Reply
    25. Bekki Weston

      I had a goiter removed when I was 15 or so (am 65 now), and been on thyroid pills ever since. Was Dx’d w/T1D when I was 58. Tried to get my goiter records, but learned they had been destroyed long ago. Might not have been called Hashimoto’s back then, but those are my symptoms.

      4 years ago Log in to Reply
    26. Molly Jones

      I have been diagnosed with Hashimoto’s, microscopic colitis, epilepsy due to extremely high GAD 65 antibodies. Autoimmune conditions run in my mother’s family, and I am grateful not to have more of them.

      4 years ago Log in to Reply
    27. Sherolyn Newell

      Rheumatoid arthritis.

      4 years ago Log in to Reply
    28. PamK

      Within the last 10 years I have been diagnosed with two other autoimmune diseases. First, Ulcerative Colitis and more recently, Psoriasis.

      4 years ago Log in to Reply
    29. Wanacure

      An endoscopy revealed I have gluten intolerance.

      4 years ago Log in to Reply
      1. Wanacure

        Gluten intolerance = celiac disease. And I forgot my minor arthritis is also auto-immune. If you count occasional pollen allergies as autoimmune, then I’ve got 3 autoimmune diseases in addition to T1D.

        4 years ago Log in to Reply
    30. Chiharu

      Graves’ disease
      I was diagnosed with Graves’disease and T1D almost at the same time in 1995 and now don’t need any medicine for Graves’disease.

      4 years ago Log in to Reply

    In addition to T1D, how many other autoimmune diseases do you have? Cancel reply

    You must be logged in to post a comment.




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