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    • 1 hour, 32 minutes ago
      kristina blake likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all technical advancements there are good things and bad things. The bad things (unforseen consequences) could be deadly like Hallucinations for the user, getting over doses of insulin. So, carefully thought out guard rails need to be developed and thoroughly tested. A good thing must be the accumulation of scenarios that KSannie mentioned. However it can not be completely autonomous. The current accuracy of Dex G7 and other sensors introduce error in to the calculations. This is similar to "self driving cars." The Robo taxi experiments have shown the unusual events that could become dangerous. Either audible situation commands or textual inputs like "goin to bed" or "driving" or "exercising" may be required at the beginning for a new user. As an example, after wearing my smart watch for a year now, it recognizes exercising without me having to tell it I'm exercising. This drives a more advanced and improved user interface. The other perceivable advantage might be accumulating changes over time, such as sicknesses, weight gain or loss, or changes in activity. Changes in food intake might be difficult to overcome. Something like "Under my Fork" app. Personally, I would like to see a reminder to bolis before eating! With all that said, we do we need all that? Probably not. Evolution of modified closed loop control may eliminate the need for AI control. The reality may be somewhere in-between the two.
    • 1 hour, 34 minutes ago
      kristina blake likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
    • 1 hour, 34 minutes ago
      kristina blake likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 1 hour, 35 minutes ago
      kristina blake likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I’m uncomfortable not knowing when and when it isn’t being used, but I’m not sure why really. A “singer” named Benny Rivers popped up in one of my feeds. I really liked the music, until I found out it was a total AI fabrication. Then I was uncomfortable. Why? I felt “taken”, like someone pulled a fast one on me, pulled the wool over my eyes. I liked the music less then. I didn’t like that I couldn’t find a tour date, things like that. But I was most uncomfortable not truly understanding why it made me uncomfortable. The music was still enjoyable.
    • 3 hours, 10 minutes ago
      Natalie Daley likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Having recently dealt with ongoing tech issues involving our heat and electrical-use notifications for more than six months — and it’s still not fully resolved — I’m not always a fan of too much technology. That said, I am interested in advances like the Twist Insulin Pump potentially detecting scar tissue or helping with infusion-site issues. But then reality kicks in: taking devices off for MRIs, replacing failed equipment, and navigating Medicare when it’s primary insurance can become a nightmare of paperwork and delays. And honestly, AI in some call centers has been pretty frustrating. Sometimes it feels like no one can answer a real-world question anymore. I think we should tread lightly and make sure technology actually makes life easier for people living with T1D — especially older adults who already manage enough complexity every day. Some days I think about a less stress free life and going back to a syringe and insulin. over 45 years of doing that, and now 25+ of devices, I'm tired of the challenges in getting replacements, and scar tissue, and mail order supplies and on and on.
    • 3 hours, 11 minutes ago
      Natalie Daley likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all technical advancements there are good things and bad things. The bad things (unforseen consequences) could be deadly like Hallucinations for the user, getting over doses of insulin. So, carefully thought out guard rails need to be developed and thoroughly tested. A good thing must be the accumulation of scenarios that KSannie mentioned. However it can not be completely autonomous. The current accuracy of Dex G7 and other sensors introduce error in to the calculations. This is similar to "self driving cars." The Robo taxi experiments have shown the unusual events that could become dangerous. Either audible situation commands or textual inputs like "goin to bed" or "driving" or "exercising" may be required at the beginning for a new user. As an example, after wearing my smart watch for a year now, it recognizes exercising without me having to tell it I'm exercising. This drives a more advanced and improved user interface. The other perceivable advantage might be accumulating changes over time, such as sicknesses, weight gain or loss, or changes in activity. Changes in food intake might be difficult to overcome. Something like "Under my Fork" app. Personally, I would like to see a reminder to bolis before eating! With all that said, we do we need all that? Probably not. Evolution of modified closed loop control may eliminate the need for AI control. The reality may be somewhere in-between the two.
    • 3 hours, 12 minutes ago
      Natalie Daley likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Sorry. I'm not sold on AI. I don't trust the people making it. There are too many reasons it could go wrong and be disasterous (just read the above comments). I'm not opposed to computers helping with things such as Control IQ, but when the computer starts doing the thinking, I think we've crossed the line. An aside: I've listened to AI music, and I think it sounds impersonal. It lacks a humanness. I don't find it pleasant to listen to. I've heard horror stories about AI being used by the military, with the end result being nuclear holocaust. I am a hard NO to AI. I gave it a "5".
    • 3 hours, 15 minutes ago
      Natalie Daley likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I am comfortable using AI as a helpful tool, while fully cognizant of hallucinatory tendencies. If I may paraphrase a famous writer about a week ago analyzing universities (as well as AI): “the over-intellectualized nature of academic culture—the idea that all inquiry should be depersonalized, dispassionate, data-driven, objective. Being a good person is more about having the right emotions, perceptions, and intentions toward others in the concrete circumstances of life than it is about logic-chopping games and dry dissertations.” 𐚁
    • 4 hours, 20 minutes ago
      Kathy Hanavan likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all the deliberately misleading information out there, AI cannot discriminate. And, each patient is completely different in their rate of things like food digestion or insulin absorption. AI really is not up to this. And it cannot differentiate between highs due to stress of traveling, which go down as soon as I arrive, and highs due to illness, which can stay high for days, and gradually taper to normal at some variable rate. Once I was high due to illness, got better and then worse. I am afraid of getting too much insulin. It lasts 5 hours in the blood, including the basal amount. And the AI not being able to correct fast enough.
    • 4 hours, 20 minutes ago
      Kathy Hanavan likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
    • 4 hours, 21 minutes ago
      Kathy Hanavan likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I am comfortable using AI as a helpful tool, while fully cognizant of hallucinatory tendencies. If I may paraphrase a famous writer about a week ago analyzing universities (as well as AI): “the over-intellectualized nature of academic culture—the idea that all inquiry should be depersonalized, dispassionate, data-driven, objective. Being a good person is more about having the right emotions, perceptions, and intentions toward others in the concrete circumstances of life than it is about logic-chopping games and dry dissertations.” 𐚁
    • 4 hours, 58 minutes ago
      John Barbuto likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Sorry. I'm not sold on AI. I don't trust the people making it. There are too many reasons it could go wrong and be disasterous (just read the above comments). I'm not opposed to computers helping with things such as Control IQ, but when the computer starts doing the thinking, I think we've crossed the line. An aside: I've listened to AI music, and I think it sounds impersonal. It lacks a humanness. I don't find it pleasant to listen to. I've heard horror stories about AI being used by the military, with the end result being nuclear holocaust. I am a hard NO to AI. I gave it a "5".
    • 4 hours, 59 minutes ago
      John Barbuto likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all the deliberately misleading information out there, AI cannot discriminate. And, each patient is completely different in their rate of things like food digestion or insulin absorption. AI really is not up to this. And it cannot differentiate between highs due to stress of traveling, which go down as soon as I arrive, and highs due to illness, which can stay high for days, and gradually taper to normal at some variable rate. Once I was high due to illness, got better and then worse. I am afraid of getting too much insulin. It lasts 5 hours in the blood, including the basal amount. And the AI not being able to correct fast enough.
    • 5 hours, 2 minutes ago
      John Barbuto likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
    • 5 hours, 2 minutes ago
      John Barbuto likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 5 hours, 4 minutes ago
      Mike S likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 5 hours, 26 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      Sure, if you can call it a plan to flush with liquids and take electrolytes and insulin as needed.
    • 5 hours, 27 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      Inject. Inject. Inject. All other considerations are secondary, tertiary, or way down the list. Why would anyone ever rearrange the deck chairs on the Titanic? Might as well strike up the band to play Nearer My God to Thee!. ☹
    • 5 hours, 28 minutes ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all the deliberately misleading information out there, AI cannot discriminate. And, each patient is completely different in their rate of things like food digestion or insulin absorption. AI really is not up to this. And it cannot differentiate between highs due to stress of traveling, which go down as soon as I arrive, and highs due to illness, which can stay high for days, and gradually taper to normal at some variable rate. Once I was high due to illness, got better and then worse. I am afraid of getting too much insulin. It lasts 5 hours in the blood, including the basal amount. And the AI not being able to correct fast enough.
    • 5 hours, 28 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      It would depend on the symptoms and vary.
    • 5 hours, 29 minutes ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I am comfortable using AI as a helpful tool, while fully cognizant of hallucinatory tendencies. If I may paraphrase a famous writer about a week ago analyzing universities (as well as AI): “the over-intellectualized nature of academic culture—the idea that all inquiry should be depersonalized, dispassionate, data-driven, objective. Being a good person is more about having the right emotions, perceptions, and intentions toward others in the concrete circumstances of life than it is about logic-chopping games and dry dissertations.” 𐚁
    • 5 hours, 29 minutes ago
      Lawrence S. likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all the deliberately misleading information out there, AI cannot discriminate. And, each patient is completely different in their rate of things like food digestion or insulin absorption. AI really is not up to this. And it cannot differentiate between highs due to stress of traveling, which go down as soon as I arrive, and highs due to illness, which can stay high for days, and gradually taper to normal at some variable rate. Once I was high due to illness, got better and then worse. I am afraid of getting too much insulin. It lasts 5 hours in the blood, including the basal amount. And the AI not being able to correct fast enough.
    • 5 hours, 30 minutes ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      2 It already is. But needs to be checked occasionally. I don't want a person inside me every five minutes.
    • 5 hours, 33 minutes ago
      KCR likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 5 hours, 39 minutes ago
      Lawrence S. likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
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    In a typical week, how often are you woken up by your CGM or other diabetes-related alarms (such as, for a low or a high alert)?

    Home > LC Polls > In a typical week, how often are you woken up by your CGM or other diabetes-related alarms (such as, for a low or a high alert)?
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    On a scale of 1-5, how much are your personal relationships (social and intimate) affected by living with T1D? (5 = the most affected, 1 = the least affected)

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    If you’re a caregiver of a child living with type 1, how often do you wake your child up when they need a low snack in the middle of the night?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    26 Comments

    1. Trina Blake

      Every “night” – sometimes I sleep during the day, other times my schedule allows me to be a regular person and sleep at night. I also have my alarms set to a very narrow range – 60 for low alerts and 120 for high alerts (I like to nip highs in the bud)

      2 years ago Log in to Reply
    2. A Montalbano

      Used to be almost every night, multiple hours of management even on closed loop. Most common was compression lows that led to turning off basal and subsequent highs OR poor communication between devices putting it in limited mode.

      2 years ago Log in to Reply
    3. Janice B

      For highs or lows rarely woken up.
      However I am woken up every 3 days at 2:00am by OmiPod telling me my pod is about to expire. Wish this was an alarm that could be disabled!

      2
      2 years ago Log in to Reply
      1. Kathy Hanavan

        You can change how far ahead the alarm will beep you I think

        2 years ago Log in to Reply
    4. Jane Cerullo

      Can’t win. On MDI. Was injecting long acting in the morning but kept waking up with rising glucose. So switched to night time. Now having lows. Working on it. In process of switching to a tandem pump. Lots of paperwork. Even want a c peptide.

      2 years ago Log in to Reply
      1. cynthia jaworski

        Before tresiba, I would split my long-acting dose to a morning plus an evening dose. That worked pretty well, but tresiba is better. Good luck with the pump.

        2 years ago Log in to Reply
    5. TEH

      I have gotten into the habit of checking my BG at bedtime. If it is approaching low I will eat a snack before going to bed. This has helped avoid night time lows for me.

      2
      2 years ago Log in to Reply
    6. Carol Evans

      I use Medtronic 770G with Guardian 4 and over 90% of my nights are very stable between 95-115.

      2
      2 years ago Log in to Reply
    7. spencercarter1

      I have used Dexcom for years and every night I get woken up from alarms, usually 1-3 times. A few months ago, I removed Dexcom and went back to finger pokes, ~20-30 times a day. My sleep has significantly improved. Perhaps the cost of this is a high in the night that I don’t correct for and we’ll see how my HbA1c has changed. I have a feeling it will be slightly higher, but not by much. I’m wondering if it’s better to get a good night’s sleep or better glucose control. I’m in a sleep study right now for T1Ds and I have come to appreciate the value and benefits that come from better quality sleep. A few months ago I would have never considered not using Dexcom and thought that was crazy. But, I’m really starting to like not using it because my sleep has improved significantly and as a result my health should too. I would be interested in what other’s thoughts are on this and whether you think I should go back to using Dexcom.

      1
      2 years ago Log in to Reply
      1. MT

        I stopped using Guardian sensor for this very same reason. Also gave up the pump and now use Libre 3 with MDI. Way better sleep, way less expensive and still good control. 86% in range after some trial/error.

        1
        2 years ago Log in to Reply
      2. Bob Durstenfeld

        Tim in range matters and the
        cgm is better for that. Seems you need to have some help adjusting your basal rates so you alarm less.

        2 years ago Log in to Reply
      3. Marty

        I also value a good night’s sleep. Cognitive behavioral therapy and a CPAP machine helped me overcome sleep apnea and chronic insomnia. On my endo’s advice, I turned off the high and low alarms on my pump (Tandem with Control IQ). I rely exclusively on my phone alarms, which are set to vibrate. Unless something unusual is going on, my BGs stay within range through the night and CGM alarms almost never wake me up. The benefit has been lower blood pressure, higher energy, and a general sense of well being.

        1
        2 years ago Log in to Reply
    8. Patricia Kilwein

      Didn’t have an option for how many times a night….

      2
      2 years ago Log in to Reply
      1. mojoseje

        Yes, some nights are bad.

        1
        2 years ago Log in to Reply
    9. Steve Rumble

      I answered 5 or 6 times, but that is not exclusively glucose level alerts, many are “loss of signal” alerts from my G7 sensor.

      1
      2 years ago Log in to Reply
    10. Lawrence S.

      I answered “3 or 4 nights per week,” but could have easily been “5 or 6 nights per week.” Recently, I’ve been making adjustments to my basal rates after having lots of lows. But, when my alarms go off during the night, it usually doesn’t even measure in my mind unless I’m going very low or very high.

      2 years ago Log in to Reply
    11. Katherine Kettig

      I do not have alarms on my CGM but do keep it beside me at night and check myself during the night.

      2 years ago Log in to Reply
    12. John McHenery

      Most common wake up is due to loss of contact with sensor.

      1
      2 years ago Log in to Reply
    13. Janis Senungetuk

      I have the alarms set on vibrate because they were disturbing my spouse and our cat. When they wake me it’s rarely because of a high or low alert.My bg level 3 hours ago is not of any value in the middle of the night. Fortunately CIQ works well to keep me around 110 most of the night. I check CGM before going to bed and either take a correction bolus or eat a small snack to prevent a low while sleeping.

      2
      2 years ago Log in to Reply
    14. KCR

      I answered 3-4 times a week but 2-3 times is more typical. I love those weeks with no alarms at all so I sleep better!

      2 years ago Log in to Reply
    15. Chris Albright

      If I go to bed without a bunch of Basel insulin on board, the Tandem algorithm will stop/decrease my Basel insulin so I stay between 90 and 110(ish) all night

      2 years ago Log in to Reply
    16. Dylan Sutton

      Typically for compression lows rather than real low BG. Depending on sensor placement, this may happen once or twice a week or 5 times in the one night.

      1
      2 years ago Log in to Reply
    17. Russell Buckbee

      When I take my hearing aids out I can’t hear them.

      2 years ago Log in to Reply
    18. Steven Gill

      I’m an extremely light sleeper (wake when my cat comes in the pet door across the house), so waking comes easily. My alarms are set 70-130, kind of tight and while Medtronic’s algorithm does great one thing consistent with diabetes is change…

      I clicked 3-4 times a weekly, sometimes for a low (lemonade is on the nightstand), or a trending rise (count the “autobolus, do an easy correction with a pump and roll over).

      2 years ago Log in to Reply
    19. Jian

      maybe there is something wrong with me but my CGM alarm goes off more than 6 times a week, I think

      2 years ago Log in to Reply
    20. Elizabeth T.

      Of course there’s no such thing as a typical week living with T1D! I can have weeks with no alarms waking me now I’m using Guardian 4s but
      occasionally I’ll have a bad night with 5 or 6 alarms.

      1
      2 years ago Log in to Reply

    In a typical week, how often are you woken up by your CGM or other diabetes-related alarms (such as, for a low or a high alert)? Cancel reply

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