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    • 9 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      I oftentimes give myself a little insulin for when I go unplugged while changing pods, depending on what my current sensor reading is.
    • 10 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Always, until I began to increase the "cannula fill" amount. I found I need a good bit more than the (1.3u) to "prime the site" to have the next blood sugars be in goal. Just remember "every body is different". Darn than OmniPod does not let you change that amount, have to use "fake carbs". Something to consider.....
    • 10 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 10 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 10 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      "Slightly," I think, maybe. Insurance companies change their policies, constantly. Prescription coverage changes every time I look at it. Medicare is a huge question mark. Honestly, Health insurance has become a big money making business, for them. I get different answers every time I call, depending upon whom I am talking with. I say it's time for socialized medicine.
    • 10 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 4 hours, 25 minutes ago
      KSannie likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      **cannula
    • 10 hours, 43 minutes ago
      Kathleen Juzenas likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I find a using the T-Connect app I have the main features needed, CMG, bolus, battery level and remaining insulin.
    • 11 hours, 36 minutes ago
      Kathy Hanavan likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 14 hours, 37 minutes ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 14 hours, 37 minutes ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 14 hours, 46 minutes ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 14 hours, 47 minutes ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 15 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Mostly pump because I want to quickly see insulin on board. Tandem on IPhone when holding my great-niece while she sleeps since getting my pump out of my pocket always wakes her ☺️. Dexcom app if not in need of insulin.
    • 15 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      usually the pump; sometimes my phone.
    • 15 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump (Tandem X2). Since I have to carry a work phone close to 247, I don't want to deal with two phones (device overload!). As I go about my day, looking at my pump meets my needs, I can decide to bolus etc - and edit the bolus. For more in depth data review and analysis, I use the TConnect.
    • 15 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I read it from my pump.
    • 15 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      On my insulin pump
    • 15 hours, 1 minute ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump. Keep it simple.
    • 15 hours, 3 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      Do you realize what you have just said: "Obscurantism, gobbledegook, and pointillism used not as an art form but as a 'Gotcha!' of legal/financial determinism?"
    • 15 hours, 4 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      How much of this is intentionally misleading? My mail order prescription service says that can’t possibly know the cost of a medication until after it’s been shipped, which is too late to cancel or return, of course, and makes it impossible to comparison shop.
    • 15 hours, 6 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 15 hours, 7 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 15 hours, 21 minutes ago
      Lawrence S. likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 1 day, 12 hours ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
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    If you’re a person with T1D, after having a rollercoaster day with multiple highs and lows, how affected do you most often feel – physically and emotionally – once your blood glucose levels are stable?

    Home > LC Polls > If you’re a person with T1D, after having a rollercoaster day with multiple highs and lows, how affected do you most often feel - physically and emotionally - once your blood glucose levels are stable?
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    Has your career path been influenced by living with T1D or having a loved one with T1D?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. 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    34 Comments

    1. Juha Kankaanpaa

      I feel pretty bad and tired if my bg goes above 160. Luckily this doesn’t happen too often. Once I get back to my normal 85-95 range, it doesn’t take too long to feel “normal”.

      4 years ago Log in to Reply
    2. LizB

      I’m hypo unaware so my lows are easy to treat and I don’t really feel any different. I don’t go high often but recently I had a faulty pump reservoir that leaked and my BG went over 350 and I felt horrible. It took me a little while to recover even after I was back in range.

      4 years ago Log in to Reply
    3. Ahh Life

      Not at all. I’ve been on this roller coaster or merry go round — pick your ride — all my life. Control IQ tried its best ot get the ride slowed down. Then gastroparesis shows up and says, “I’ll show you!”, throws in a monkey wrench, and we’re all back on the ride. Just for the fun of it. Do we ever stop having fun? ( ̄个 ̄)

      5
      4 years ago Log in to Reply
    4. Jane Cerullo

      Physically fine. Just pissed at myself because usually my fault. Although FSL has been giving me false lows for a couple of days. Going back to Dexcom G6 and am happy. Don’t remember this problem when was on before. FSL likes to say I am always 57.

      4 years ago Log in to Reply
    5. Melinda Lipe

      Since when does having T1 not give you rollercoaster days? It’s something I’ve learned to live with over 55 years with this disease.
      Seriously, as the years have passed, it’s taking me longer to recover from lows. I have to sit and wait even after my bg has returned to normal to resume activities.

      4
      4 years ago Log in to Reply
    6. Anthony Angel

      I feel very very tired. I don’t always have the luxury of stopping and taking a break so I try to keep going especially at work. I usually manage okay but feel horrible for about a day.

      4 years ago Log in to Reply
    7. Patricia Dalrymple

      I feel awful with unexpected highs. Lows I usually handle fine. I feel a little shameful, like I shouldn’t have had that ice cream or extra helping. I absolutely hate it when I forget to bolus! HOW can I forget when I have to take insulin every time I eat? SMH! Fall off the wagon. Get back on.

      4 years ago Log in to Reply
    8. Ken Raiche

      Doesn’t happen that often but when it does the lows make me feel tired and depressed. The highs make me feel quite upset, so a real swing of emotions to say the least.

      1
      4 years ago Log in to Reply
    9. Lawrence S.

      I sometimes feel awful while I’m having a low, and sometimes a high. But, I’m usually fine after I’ve stabilized. There are many reason for my highs and lows, but I don’t beat myself up about it.

      2
      4 years ago Log in to Reply
    10. AnitaS

      I don’t think it affects me physically too much unless I have had a very low number which is not really a problem with a CGM, but mentally I just am aggravated as I like to be in range as much as possible. I feel relieved once my sugars seem to be on an even keel.

      4 years ago Log in to Reply
    11. Mary Dexter

      Wiped, physically and emotionally. I soldier on, but inside, I want to sit on the floor and cry.

      5
      4 years ago Log in to Reply
      1. Quadgirl

        Amen, Mary. Same here.

        4 years ago Log in to Reply
    12. Natalie Daley

      How I feel depends on how high or how BG was. Really low, 40s, is hard to recover from and can take the rest of the day; 42 is my crash point. Otherwise roller coaster days are annoying, but I’ve handled them by necessity.

      2
      4 years ago Log in to Reply
    13. Tod Herman

      Sometimes I end up feeling very tired and need a nap. Of course other times, without the rollercoaster ride, I just feel like taking a nap.

      1
      4 years ago Log in to Reply
    14. Lynn Smith

      To me, this is more than one question. After a roller coaster day, sometimes more than one day in a row, I feel wiped out. But, taking a break is rarely an option and even if it is an option, I don’t.

      2
      4 years ago Log in to Reply
      1. Janis Senungetuk

        I agree with you. I don’t physically recover as quickly as I have in the past. Lows below 50 are exhausting and may take the rest of the day to recover, but taking a break is not an option.

        1
        4 years ago Log in to Reply
    15. TomH

      There’s both physical and mental components. Physically, recovery from a low is fairly quick, highs for me take longer, though I feel a low recovery well before it shows up on CGM. Mentally, its just tiring to go through. Moving to Loop and getting accurate Basal Rate(s), Carb Ratio(s), Correction Factor(s), greatly reduces both the number of lows, highs, and roller-coastering plus the levels of them. Experience helps you realize how much of either insulin or carb is needed so as not to overtreat either one.

      3
      4 years ago Log in to Reply
      1. karolinamalecki7@gmail.com

        I couldn’t have said it better myself. 100% agree with Tom’s feelings.

        1
        4 years ago Log in to Reply
    16. Lenora Ventura

      There is no formula or pattern. You get what you get and learn to not throw a fit. Roll with the punches & take it as it comes. Tomorrow is always a new day – thank the Lord!!!!

      2
      4 years ago Log in to Reply
    17. sdimond

      I have been low carb for 22 years and I don’t have rollercoaster days. It is unusual for me to get as high as 125 and not swinging high means no lows from overcompensating.

      1
      4 years ago Log in to Reply
      1. Quadgirl

        Hi. Could you share exactly the number of carbs you aim for each meal or in a day? I have rollercoasters and eat a max of 40-45 per meal, no snacks. I also exercise every day at least an hour, but may need to lower carbs. Thanks if you can help. Woke up to 140 this am and not happy about it. Ugh.

        4 years ago Log in to Reply
    18. Gustavo Avitabile

      I physically recover fast, but I cannot fully revert to my routine activities, because I am overwhelmed by analyzing the causes and my faults, and planning how to prevent it next time.

      2
      4 years ago Log in to Reply
    19. Cheryl Seibert

      Roller-coaster BG days affect me a lot more now than they have in 56 yrs of T1D. Stress now has a huge effect on my BGs. I am caregiving a very elderly relative and dealing with increasing health issues with my husband. I’m needing cataract surgery too, so the ups and downs drive me nuts and I feel exhausted. It’s harder to bounce back now with everyone else’s health issues taking priority.

      2
      4 years ago Log in to Reply
      1. James Hoare

        Hey Cheryl ! That is an amazing reality you have shared: managing your own T1D of such long duration and being a caregiver for TWO others. Best wishes for your stout heart and iron will, also for upcoming cataract surgery. I am scheduled for that in July and with vision in only that eye I am worried for sure.

        1
        4 years ago Log in to Reply
    20. Chris Albright

      A day in the life of a T1 diabetic….. Do your best snd move on, can’t change the past……

      1
      4 years ago Log in to Reply
    21. Molly Jones

      I chose very little. Who knows, if I had a clone, I could test it and see for real!
      It depends on the severity and length of the rollercoaster ride.
      I can end up feeling emotionally irritated once more that I haven’t found the causes for theses ups and downs.
      Rarely I feel physically affected, usually tired.

      1
      4 years ago Log in to Reply
    22. Becky Hertz

      I answered somewhat as I rarely spend a day on the glucoaster. As with everything else T1D related, how I feel just depends on the day. Sometimes it’s no big deal and sometimes it takes me out for the rest of the day.

      1
      4 years ago Log in to Reply
    23. Sasha Wooldridge

      I said somewhat, but it really depends on the day – each rollercoaster event is different. Sometimes I can get back to normal like nothing happened, other times I’m nursing a headache or feel completely drained (physically), other times I’m so irritated that it happened that I can’t focus on anything else (this usually goes hand-in-hand with feeling physical symptoms though).

      2
      4 years ago Log in to Reply
    24. Mary Ann Sayers

      I feel very tired. Probably it’s more of “I’m tired of trying to understand what my body is doing with the insulin I’m giving it and WHY CHANGE WHAT IT NEEDS!!!” I’m tired of the rollercoaster that I/we live with.
      Some time ago I read something about “smart” insulin? Is there anything that?

      2
      4 years ago Log in to Reply
    25. ConnieT1D62

      Ach, the emotional stress of roller coaster BG levels is more distressing for me than the physical aspects by themselves. Although the physical body reactions & results are quite a pain in the ass when and after I have a series of BG lows and subsequent rollercoaster highs, it is just plain frustrating and emotionally draining to be going through roller coaster swings especially with smart pump algorithms set to regulate and prevent the swings from happening in the first place. Diabetes self-care vigilance never lets you let your guard down.

      1
      4 years ago Log in to Reply
    26. Cheryl Weaver

      I get frustrated

      4 years ago Log in to Reply
    27. Cheryl Weaver

      Low BG makes me feel wiped out, and so does high BG. I’m on the Tandem tx2 slim pump now, as well as Dexcom G6, so it’s nice to have them communicating. It makes it a little easier to stabilize my blood sugars now. I have to watch where I place the insulin cannula though. I’ve had Type 1 for 62 years, and have given myself many, many injections. I think I have developed some scar tissue, because in some areas my insulin just doesn’t seem to absorb as well.

      4 years ago Log in to Reply
    28. Jneticdiabetic

      I chose ” Very little – I feel a little affected but I can easily get back to what I need to do.” I usually am able to push through and do what I need to do, but “very little” and “easily” are not adjectives I would have chosen. Truth is the rollercoasters are exhausting, but I get back to what I need to do anyway.

      4 years ago Log in to Reply
    29. Velika Peterson

      Our T1D tween daughter is somewhat affected by a rollercoaster day. But I – as the primary caretaker – am very strongly affected by rollercoaster days or even high events (especially “sticky” highs). It is extremely stressful and overwhelming to be dealing with it and significantly affects all other areas of my day and wellbeing.

      4 years ago Log in to Reply

    If you’re a person with T1D, after having a rollercoaster day with multiple highs and lows, how affected do you most often feel - physically and emotionally - once your blood glucose levels are stable? Cancel reply

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