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    • 1 hour, 31 minutes ago
      Ahh Life likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 2 hours, 53 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 2 hours, 53 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      Only what is reported at conferences and covered by e-zines like DiaTribe.
    • 6 hours, 27 minutes ago
      Lawrence S. likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      It's sometimes difficult shift through. I get a lot of spam redirections. I'm also only really interested in autoimmune type diabetes. Right now GLP-1 interest is all the rage. I'm not a candidate for those type of drugs. Funny how these drugs which became so popular with the rich people mostly non diabetic have taken over by all the drug companies.
    • 1 day, 4 hours ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 1 day, 4 hours ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 1 day, 4 hours ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 23 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 23 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 23 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 23 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 3 days, 1 hour ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 5 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 5 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 6 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 7 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 3 days, 8 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 8 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 8 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 8 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 3 days, 8 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 8 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 23 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 23 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 4 days, 2 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
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    If you use an insulin pump, how often do you experience a “bad site” after putting on a new pump or infusion site?

    Home > LC Polls > If you use an insulin pump, how often do you experience a “bad site” after putting on a new pump or infusion site?
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    If you currently use a hybrid closed loop system, which of these potential benefits of these systems has been the most impactful for you? Select all that apply!

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    34 Comments

    1. Nevin Bowman

      I used to have frequent problems, so I switched to a needle and I have never had a problem since.

      2 years ago Log in to Reply
      1. Nevin Bowman

        For the pump that is, not MDI.

        1
        2 years ago Log in to Reply
    2. Mary Dexter

      This is precisely why I do not use a pump.

      2 years ago Log in to Reply
    3. Lawrence S.

      I said, “rarely.” I’ve always rotated my sites. But, it seems that years ago, I often experienced bad sites. But, in more recent years, it has been rare. The only thing I can think of that changed was that I went from a 17mm length cannula to a 13mm length cannula. Otherwise, I don’t know why. Oh, also, I stopped putting cannulas in my legs and arms, where I had many “bad sites.”

      2 years ago Log in to Reply
    4. Katherine Kettig

      I do not use an insulin pump.

      2 years ago Log in to Reply
    5. Janice B

      Once I switched to the verisoft steel infusion set no mor kinked cannulas. Now on OmniPod 5 and have not had a bad site yet.

      2 years ago Log in to Reply
    6. Yaffa Steubinger

      There wasn’t a response for ‘I don’t use an insulin pump.’ That would be my answer.

      0
      2 years ago Log in to Reply
    7. Jordan Harshman

      Don’t use a pump

      2 years ago Log in to Reply
    8. Amanda Barras

      Bad sites, when they do happen, are 99% skin absorption issues and 1% set issues.

      3
      2 years ago Log in to Reply
    9. Bret Itskowitch

      I do not use an insulin pump

      0
      2 years ago Log in to Reply
    10. Chris Albright

      Most often it is a site location that effects the performance of the infusion set as opposed to a bent cannula.

      5
      2 years ago Log in to Reply
      1. KCR

        Agree! I use pods and have more problems on my thighs than other places on my body.

        2 years ago Log in to Reply
      2. Anita Stokar

        Yep. I had very frequent bent cannulas until I switched to Tru-steel after 3 months of starting the pump.

        2 years ago Log in to Reply
    11. TEH

      After pumping into my abdomen for 21 years, it’s hard to find a good site. I still have a few. I feel around for bumps to avoid. Subcontainous injections is suboptimal.

      2 years ago Log in to Reply
      1. TEH

        I am a brittle T1d. MDI did not work for me. I did MDI for 10 years. I ended up in the hospital 3 times with extreme lows. Come on stem cell research!

        1
        2 years ago Log in to Reply
    12. William Bennett

      The longer I’ve been pumping, the more often it happens. Getting to be a problem. I use abdomen and thighs. I’ve tried moving to other places but with a tubed pump there are only so many places that don’t get hung up on your clothing or get yanked out or irritated by your movements, sitting/sleeping position, etc. Not keen to go back to MDI though. Fewer failure points but a lot of problems in terms of not having any control of your basal insulin, can’t program a higher rate to deal with dawn phenomenon, exercise etc. After 40 years with T1, pumping is still the best regimen for me. Even when it sucks.

      3
      2 years ago Log in to Reply
    13. Gary Taylor

      I’ve stopped using the front of my abdomen and now am exclusively on the sides of the abdomen above the belt line. There is more fatty tissue which is less scarred. This has eliminated the bent cannula issues I was having.

      3
      2 years ago Log in to Reply
    14. mlettinga

      It is frustrating. Especially if I hit a bleeder or a nerve. Nerve is worst as every time you bolus it hurts.

      1
      2 years ago Log in to Reply
    15. ConnieT1D62

      Some times .. as once in awhile. Early last year I was experiencing repeated episodes of poor delivery and occlusions at insertion sites in my lower abdomen (below the belt line) where I had been injecting MDI and then inserting pump sites for years and years and years. Endo took me off pump and had me do MDI for 3-4 months to give sites a rest … BG control was not as smooth as with CIQ but it did give my tissues a break and a chance to heal. Went back on pump in late September and have been using upper outer thighs, and posterior of hip bones in fleshy buttocks area as pump insertion sites. So far, so good. A1C dropped by 1.5 points!

      1
      2 years ago Log in to Reply
    16. Janis Senungetuk

      After 8 years of pump use I’m starting to have site problems. Arthritis in both shoulders has severely limited my mobility and site selection. I use my front mid-abdominal area above my waist. If I leave the site in for more than three days it gets very irritated and from many years of MDI using my abdomen there’s lots of scar tissue. Considering the 68 total years of insulin injections , I’m grateful there are still some available sites left.

      2 years ago Log in to Reply
    17. Bob Durstenfeld

      I might have said never, but I got a bad site this week. Just really slow to absorb the insulin. BG was stuck between 180-200 regardless of the bolus.

      2 years ago Log in to Reply
    18. Pauline M Reynolds

      By “Rarely” I mean super rarely. Maybe two or three times in over 35 years.

      2 years ago Log in to Reply
    19. Daniel Bestvater

      Sometimes. I have found the steel cannulas to have much fewer issues.

      1
      2 years ago Log in to Reply
    20. Robin Melen

      Used to be more common for me but once I gained a little weight, it’s much less so LOL 🙂

      1
      2 years ago Log in to Reply
    21. Gary Rind

      no insulin pump for me

      2 years ago Log in to Reply
    22. Donna Condi

      I had used the left abdomen for my pump site for four years straight until I started having problems. I now use above my waistband and have not had any more problems.

      2 years ago Log in to Reply
    23. George Lovelace

      T1 60 yrs Pump 25 yrs Varisoft 17 mm, only when I’m sleepy and it’s dark do I get bad insertions about 4 times a year, A1c Low 6’s was 5.4 Feb 2023 – WHY do so many answer “Dont Use Pump” Read People

      1
      2 years ago Log in to Reply
    24. Steve Rumble

      I do not use an insulin pump!

      2 years ago Log in to Reply
    25. Anita Stokar

      I only had infusion site issues (bent cannulas) with the soft cannulas. Since switching to the steel cannulas, I have never had that problem. I believe only once have I ever had to switch my infusion site to another area because the absorption wasn’t as effective as it should have been.

      2 years ago Log in to Reply
    26. Becky Hertz

      Sometimes would be my one word answer. But, my right side absorbs better than my left side. Send as though if I have one bad site chances are I’ll have a free more. I use TruSteel for this reason. Able to move the insertion site without having to do a full change.

      2 years ago Log in to Reply
    27. T1D4LongTime

      Sometimes….. I have lots of scar tissue after 57 years of T1D. If site is initially ‘bad’ or ‘stubborn’, a hot shower or exercise will make it ‘settle in’. Walking or stationary bike will work nicely if the site is in my hip. Stretching and housework are better if site is in my belly.

      2 years ago Log in to Reply
    28. Nicholas Argento

      I said rarely because I am pretty careful to rotate sites, and change every 3 days. I use 6 areas sequentially and move within those areas as well. I think a good rule of thumb is ‘2 inches, 2 weeks’- don’t be within 2 inches of prior site within 2 weeks. Using 6 areas accomplishes this well. That will also vary with the person- some people are much more prone to develop local site inflammation, which over time leads to scar tissue, than are others. Most of the local inflammation likely represents immune reaction to the insulin solution infused in a pump. The fact that the Medtronic extended infusion sets really do work better is at least partially due to a filter that removes insulin microaggregates, which don’t cause occlusion, but they do trigger local immune/inflammatory response.

      2 years ago Log in to Reply
    29. KarenM6

      I don’t really feel like I’ve got “good sites” to use. It kinda feels like my body rejects all the poking that it has to deal with. :/

      2 years ago Log in to Reply
    30. Glenda Schuessler

      I use 17mm Varisoft and Trusteel 8mm infusion sets. I find that I don’t often have a “bad site” following insertion, but that from time to time it takes the Varisoft infusion set a few hours to begin absorbing insulin. After 27 years of placing infusion sets I find I am looking beyond the lower and upper abdomen for eligible territory. I’m a bit confused by “putting on a new pump”, but perhaps this refers to a new pod or a pump system I’m not yet familiar with.

      2 years ago Log in to Reply

    If you use an insulin pump, how often do you experience a “bad site” after putting on a new pump or infusion site? Cancel reply

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