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    • 14 hours, 5 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 14 hours, 6 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 14 hours, 57 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 15 hours, 24 minutes ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 15 hours, 37 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 16 hours, 29 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 16 hours, 36 minutes ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 16 hours, 58 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 17 hours ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 17 hours, 7 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 18 hours, 32 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 9 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 14 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 15 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 17 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 17 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    If you have been hospitalized for a reason unrelated to T1D, how satisfied were you with the hospital’s protocols for managing your blood glucose and insulin levels during your most recent hospital stay? Please share more about your experiences in the comments.

    Home > LC Polls > If you have been hospitalized for a reason unrelated to T1D, how satisfied were you with the hospital’s protocols for managing your blood glucose and insulin levels during your most recent hospital stay? Please share more about your experiences in the comments.
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    24 Comments

    1. Ahh Life

      For the past quarter century, the hospitals have allowed me and my experience and expertise to manage my own BG. That included two ACL repairs, a meniscus tear repair, two separate cataract surgeries, two vitrectomies, two heart catheterization tests, and probably a few other procedures I have difficulty remembering. Mainly it involved TSlim X2 pump settings and underlying basal rates.

      However. There’s always a big, giant however. In 1997 at the Antelope Valley Hospital in Lancaster, CA I had neck disk replacement on the C5-C6 disk. Post op, the martinet that brought me post op supplies refused to give me a test stip. This is prior to CGM’s being available and common place. She insisted that patients are ignorant and lazy and that only highly educated and duly authorized physicians were capable of deciding whether I needed a test strip or not.

      Now I know where Nazi organizations get their willing recruits. I only wonder why such incidents continue to gnaw on me a quarter century later? Any suggestions or insights?

      2
      1 month ago Log in to Reply
      1. Wanacure

        😎❤️! And now I understand why so many people distrust western medicine, added to its history of racism, misogyny, eugenics, forced sterilizations, use of electroshock and insulin shock to cure depression, the use of icepick thru the eye as cure for mental illness, etc. YET I’d be dead if it were not for western medicine!

        1 month ago Log in to Reply
    2. Thomas Cline

      I was hospitalized most recently (2017) for a replacement of an artificial aortic heart valve that had reached its sell-buy date. Even though I was in one of the best cardiac hospitals in the country (and the surgery itself was excellent) I was struck by how much poorer the service was in 2017 than in the time of the original valve replacement at the same hospital in 2004. Everyone was more harried and overworked and consequently mistake-prone. We got off to a bad start when my wife had to draw their attention to the fact that I was a Type I diabetic. It was in my file but they hadn’t noticed. I did most of the sugar level management myself but I found that my CGM did not work in the hospital (too much electrical interference I suspect) so I had to rely entirely on finger sticks (no real problem). My main problem with sugar management was the diet they tried to force on me — inappropriate as well as unappetizing (but carbs of course are the cheapest source of calories). They seemed absolutely clueless about what a Type I should eat. I discovered that they were only used to dealing with Type IIs, but even that wouldn’t excuse the food or the fact that the endocrinologist believed that only by eating carbohydrates could you get glucose to your brain! To their credit, I was so upset about my second experience with heart valve replacement that they allowed me to meet with a collection of doctors and nurses after the fact to describe my problems directly to them and suggest changes.

      1 month ago Log in to Reply
    3. Liadona

      Eventually my hospitalizations were related to my diabetes. I was admitted 3 times for spontaneous acute idiopathic pancreatitis because I was trying to treat T1D like it was T2D because of a misdiagnosis. My sugar was never checked before I ate, only an hour after and then I was scolded for high sugars and given insulin. Note – I was eating their food on a low carb, low salt, low fat diet. Sometimes my entire meal would be protein broth or eggs.

      I have not been hospitalized since my diagnosis correction and am not sure how the protocols would differ.

      1 month ago Log in to Reply
    4. Janice B

      Since they let me keep my pump and manage my own blood sugar I was very satisfied.

      1 month ago Log in to Reply
    5. Sue Martin

      I received a kidney transplant 1.5 years ago. The Univ. of Washington Hospital in Seattle is really really great. Besides having an Endro oversee my care, they would have my insulin-to-carb ratio in my chart. The kitchen would send a receipt with every meal that would list the carbs for each item. The nurse would take my BG and figure out how much insulin to give me per meal. They would take my BG multiple times a day as well. I was on IV insulin, so they monitored things very closely.
      This hospital has the best care in the state. I am really glad that I have been in their system for many years.

      2
      1 month ago Log in to Reply
      1. PamK

        That is great Sue! You are very lucky to have such great care! I’m wondering, will I see you at the T1 United Adult Retreat this Spring?

        1 month ago Log in to Reply
    6. Natalie Daley

      The dietician would not send me juice or food when I had a critical low blood sugar. They wouldn’t let me manage insulin on my own, and the doctor who was supposed to help didn’t know what to do. That was the first hip replacement 18 years ago. The second one, 16 years ago, I made sure I was solely in charge of my diabetes, meds, etc. This went much better.

      1 month ago Log in to Reply
    7. LZ

      I was actually quite impressed with the results of my hospital’s IV insulin protocol in May 2021 during and for a couple days after my cardiac bypass surgery. Once I was eating and back on my pump, they let me manage things.

      1 month ago Log in to Reply
    8. Steven Gill

      I’ve been so very lucky. Never been hospitalized for anything in 63 years (been told I probably should’ve gone to the ER a few times?). Meant the next 5 or 6 will stay the same?

      1 month ago Log in to Reply
    9. PamK

      In my experience, hospitals have wanted to take control of my diabetes even though I am well controlled on my pump. The last time I was hospitalized I refused to “turn off” my pump as requested. I informed the staff that I would not remove my pump. They argued. I pointed out that I know my body better than they did. I also assured them that I would let my blood sugars run a little higher than I normally do so they didn’t have to worry about lows. I did this because I know from previous experience that hospitals do this. One nurse explained to me that the wanted my blood glucose to run a “little higher” so they didn’t have to worry about it dropping too low. This worked. They let me keep my pump and decide how much insulin to take throughout the day. It was so much better than my previous experiences!!

      1
      1 month ago Log in to Reply
    10. Bob Durstenfeld

      I was hospitalized for coronary bypass surgery four years ago and the management of my T1D in the ICU was amazingly good. In the last few months, I have had two overnight stays in the hospital for additional heart work, but I was parked in the general surgery recovery and the food and management were sub-par.

      1 month ago Log in to Reply
    11. Molly Jones

      I have been hospitalized for quite a few things in the past twenty years, and hospital seem to be improving their protocols for managing type 1 diabetes, especially with the newer sensors that were allowed to take place of a fingerstick by the FDA and then the control-IQ. After those were approved, my pump stayed in place during hospital visits and surgeries both.

      1 month ago Log in to Reply
    12. Wanacure

      I was shocked and really angry that my bg went way over 200 mg/dl during recent surgery for broken ankle. Anesthesiologist and I talked for 40’ prior to surgery day and they KNEW I had a Dexcom 6 which they could have used. High blood glucose levels anytime but especially during surgery increase risk for infections and blood clots and strokes. I was so angry I discharged myself the day after surgery against advice of nurse in charge, and they wanted me to sign a paper releasing them from legal culpability in case I died.

      1 month ago Log in to Reply
    13. Wanacure

      I’m not sure my surgery for broken ankle was unrelated to T1D. Isn’t there a correlation between diabetes and osteoporosis/osteopenia?

      1 month ago Log in to Reply
    14. Jan Masty

      My hospital experiences have actually been decent. During my stays after a heart attack and another with pneumonia, I was taking care of it all myself with their approval. My stay in a couple nursing facilities for rehab, was a whole different story. They know NOTHING about type 1. A nurse even told me one morning I wouldn’t need any insulin that day because my glucose was “really good “ that morning. Geez!!! Thank goodness I was with it enough to take care of it myself!

      1 month ago Log in to Reply
    15. LizB

      I was hospitalized twice as a young child but those were before my T1 diagnosis. Have not been hospitalized since. I’ve had some ER visits (all but one were due to severe lows). The one ER visit that was unrelated to diabetes was horrible. They never even checked my BG, I had to pull out my meter and do it myself.

      1 month ago Log in to Reply
    16. Lawrence S.

      I have not had any overnight stays in the past 30 years or so. I have gone in for surgeries, colonoscopies, and endoscopies as an outpatient. I have been allowed to keep my insulin pump connected. On time, I was asked to lower my basal rate by half. Overall I’ve been satisfied. No problems regarding my diabetes care.

      1 month ago Log in to Reply
    17. jlofstrom

      I can say that I have been hospitalized twice for C-sections, where for the second one, the nurses were shocked that I asked to test my blood sugar and recommended what I should take insulin-wise. This is before insulin pumps (1983). Then, 12 years ago (2011), I was at a major medical center for a mastectomy. The anesthesiologist told me to take off my pump. She didn’t know what to do with it. I did – big mistake. I wound up under anesthesia for more than 24 hours as they – now a cardiology team – did every test possible because they thought I had a heart attack, which I did not. No one monitored my blood sugar, and it went up too high. Please note as well I had an appointment with the anesthesiology department a week before this surgery, where my diabetes was discussed and documented. Never take off your pump and advocate for what you need…I learned and my advice.

      1
      1 month ago Log in to Reply
    18. Cristina Jorge Schwarz

      I stayed in the same research hospital network as my Endo. She spoke to the team, all were aware of my CGM and pump, she was on call. Except they didn’t make the floor nurses aware! So the nurses were trying to get me to take it all off, not use my CGM readings, tried to have me drink juices (?!), called me non-compliant…it was eventually sorted out, but wow, the stress. I had to keep repeating “check with the surgeon and my Endo, this is not the protocol”

      1
      1 month ago Log in to Reply
    19. Randy Campbell

      Pre surgery, I was to use apple juice for a morning low. Sure enough I had a low. The apple juice wasn’t very effective at raising my glucose level. The Anesthesiologist was freaked out that I drank apple juice. Explained that glucose tabs didn’t work well for me. He made me sign a special waiver about aspirating. Th nurse that prepped me for the surgery was T1D & explained about using apple juice. I felt inches tall. They need to communicate.

      1 month ago Log in to Reply
    20. Mary Ann Sayers

      I’m a Joslin Clinic patient and they leave me alone to care for my pump regulations. I live in Boston where world renowned Joslin Clinic is located.

      1 month ago Log in to Reply
    21. Bonnie Lundblom

      I had 3 cervical discs replaced and spent 4 days in the hospital. I had discussed my T1D with the neurosurgeon and explained that I’d need to manage my diabetes using my Dexcom and Tandem insulin pump which he said was fine. The day of surgery until the anesthesia and sedation wore off my husband gave me a few small boluses, my Dexcom reading remained stable throughout my hospital stay. Endocrine department also consulted and made no changes. I was very surprised that so many RN’s and patient care assistants had never seen CGM’s or insulin pumps.

      1 month ago Log in to Reply
    22. Debbie Knowles

      It was managed fairly well, although I was a bit uneasy because they removed my CGM.

      3 weeks ago Log in to Reply

    If you have been hospitalized for a reason unrelated to T1D, how satisfied were you with the hospital’s protocols for managing your blood glucose and insulin levels during your most recent hospital stay? Please share more about your experiences in the comments. Cancel reply

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