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    • 13 hours, 53 minutes ago
      Greg Felton likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 14 hours, 25 minutes ago
      ConnieT1D62 likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      One time I was explaining that a new pump would be too expensive at the time because my deductible had just started over.. and she asked if I had insurance and I said yes….. then she said “then it should be free with insurance.” 🤦‍♀️ She may know a little about the challenges of living with diabetes, but she knows nothing about how insurance works or how costly T1D supplies are.
    • 14 hours, 43 minutes ago
      Steve Rumble likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 15 hours, 14 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I am an RN. Been going to same doctor for about ten years. Took me six years to train him. I am very well read when it comes to my LADA. He trusts my judgement and gives me excellent parameters to make decisions. Recently had a bad case of Covid. Insulin needs changed dramatically. Getting back to normal but he made sure I had scripts to cover my ups and downs with insulin needs.
    • 15 hours, 15 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Mine acknowledges the struggles and challenges that go along with managing T1D in my daily life. She gives suggestions as to what may or may not help and has often asked me I how I handle situations so she can give suggestions to other T1D patient's.
    • 15 hours, 16 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 15 hours, 41 minutes ago
      Jubin Veera likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      The hard spots are fairly frequent with the pump infusion sets. Especially if I go past 3 days which I try to avoid! I don’t think I ever got one from injections. I try heat and massaging to treat them and they normally go away after a day or so. Once I had a large area that I had to treat with antibiotics.
    • 15 hours, 43 minutes ago
      Magnus Hiis likes your comment at
      Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes, or having diabetes-related complications?
      I’m 79. My last orgasm was springtime about 3 or 4 years ago. When I complained of ED, my PCP Rxd 3 to 5 (60-100 mg) sildenafil tablets by mouth about one hour prior to sexual activity. This alone hasn’t worked to bring me up to former sexual capacity that I had 10 years years ago. I’m still considering consulting finding a doctor who’ll prescribe a safe but effective way of administering testosterone or an anabolic steroid in a dose low enough to avoid causing cardiovascular problems but high enough to restore normal ability that I had up to my sixties. My present doctors say it can’t be done, but there are doctors who advertise otherwise. Analogs of the hormone insulin can be delivered in small safe doses, why not testosterone?
    • 1 day, 7 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      We are all so very different, and trying to say that all of us with T1 understand what it's like for another who has the same hill to climb is unproductive. Having a health care provider with T1 may often be helpful just because there's apt to be more knowledge about the specifics. How we respond to the disease is such a personal matter, that I really don't think there are any guaranteed benefits beyond the grasp of the factual. Finding a doc with the same general attitude about the disease does feel good, and sometimes that's all I hope for after working hard to make peace with the disease for 70 years. Asking my doc to "get it" used to be almost my mantra, but I've come to realize that the ones who don't just see us as unruly childrenchildren
    • 1 day, 7 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Both my endocrinologist and my nurse practitioner are great. They compliment me on the way I take care of my life and health and make aure I get all the supplies I need managing all the paperwork Medicare and insurance requires. My nurse practitioner who works with me on managing the pump has her own opinion about the pump settings based on her technical knowledge which is different than what I do with my settings based on living with them. She has thru the years learned to respect what I do and is surprised with how my settings work. So we are now at peace. Both very supportive.
    • 1 day, 10 hours ago
      pru barry likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 10 hours ago
      mojoseje likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I said yes but that refers to my nurse practitioner who sees me every other visit, if not more often. The doctor may know how hard I try but perhaps takes my efforts for granted.
    • 1 day, 13 hours ago
      Anneyun likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      How can someone without the disease really understand what it is to live with it? I have never had a doctor with T1D in 60 years.
    • 1 day, 13 hours ago
      Bruce Schnitzler likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 14 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My endo is young, very empathetic, thorough, always asks for my input, and does research. I am blessed too. have him, and the one before for over 25 yrs.
    • 1 day, 14 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 14 hours ago
      lis be likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 1 day, 14 hours ago
      Daniel Bestvater likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      TEH likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I have no clue what my T1D health care provider understands about my daily challenges and I don’t know about his daily challenges either. Not sure why I should care as long as I have access to information how to best take care of myself.
    • 1 day, 15 hours ago
      Jeff Marvel likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      Richard Wiener likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Hi Connie, I still have my glass syringe and show it off occasionally. We boiled the needle and syringe every morning and sharpened the needle with a file. I was diagnosed at age 6 in 1963. Life is so different now! Then, my diet was extremely limited as was my exercise. Now, I am very active and eat pretty much as I please. I maintain an A1C in the low 6s (6.2 was my last).
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Connie and Beth, I was diagnosed in Nov 1962, age 10. During the early years I developed lumps and indentations on my upper thighs from my injections. In fact, I was able t o spot other t1 kids in my junior high school based upon the lumps in their upper arms.. (I eventually met up with them and learned that I was correct.) By the time I reached my twenties, these indentations had more or less disappeared, but I still have remnants of the lumps. I wish I could say that the layers of tissue now deposited on my legs disguises them, but they don't. I think the changes in insulin have been responsible for this improvement: the isolation and purification of animal insulins were refined, and then the various human clones were game changers in many ways.
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Yes in my upper arms when I was a petite and skinny child in the 1960s with T1D. In those days we used glass syringes with stainless steel 1/2 inch long heavy gauge needles. My mother would jab me in the upper arms, it hurt like the dickens, and I developed several hard nodules. I was diagnosed at age 8 in December 1962 and after the initial two months of her jabbing me in the upper arms, I took over giving my own "shots" and started self injecting via site rotation in my thighs for several years. Eventually the lipohypertrophy in my upper arms resolved and I never injected there again until many years later as an adult on MDI using disposable syringes with very short and fine gauge needle tips. Periodically I would give my tired pin cushion thighs a rest and take a break for a few months or a couple of years and rotate injections in my abdomen or upper arms. Have been using a pump for over 20 years now and rarely use MDI unless I am taking a pump break for a short period of time. Happily, I no longer have lumpy sites.
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    If you use a CGM, how many times in the past month have you had to change your sensor more than 24 hours before its session expired?

    Home > LC Polls > If you use a CGM, how many times in the past month have you had to change your sensor more than 24 hours before its session expired?
    Previous

    If you use a glucagon-like peptide (GLP-1) receptor agonist such as semaglutide, exenatide, dulaglutide, liraglutide, or lixisenatide, have you experienced difficulties refilling your prescription due to product shortages? (Some brand name examples of GLP-1 medications include Ozempic, Trulicity, Rybelsus, etc.)

    Next

    Are there certain times of the day during which you consistently need more insulin than your average amount of insulin? Please select all the timeframes during which you routinely need more insulin to avoid high blood glucose levels.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    35 Comments

    1. sweet charlie

      once, had to have x-ray of lungs. did not want to ruin transmitter..

      4 months ago Log in to Reply
    2. gary rind

      had to have a MRI so I had to remove the sensor. I guess that should be one time. I was thinking along the lines of sensor failure and not just removing it.

      4 months ago Log in to Reply
    3. Joan McGinnis

      i dont think I ever had to change before the session expired, except for an MRI once or twice

      1
      4 months ago Log in to Reply
      1. Sue Martin

        I have an MRI this week and scheduled it to be on the day I need to replace the sensor anyway.

        4 months ago Log in to Reply
    4. Tom Caesar

      Amazing technology and very dependable, accurate. Wish they were invented 50 years ago! The few times they missed 10 day mark was my fault, ran into a doorway, went surfing and sensor was worn off, or accidentally pulled one off while undressing.❤Dexcom 6

      1
      4 months ago Log in to Reply
    5. Kathy Hanavan

      I have had 2 sensors fail in a couple of days. Very frustrating as I was traveling and had brought an extra one, but not 2 extras, so went 5 days without one. Dexcom is great about replacing them but the online form does not work that well, so I end up having to call and spend a bunch more time dealing with being on hold, etc.

      2
      4 months ago Log in to Reply
      1. Lee Johnson

        Those supposed tech support people in the Phillipines for Dexcom are only a cheap source for replacement items. They do not know or understand the needs of T1D people. What is worse is that HQ in San Diego do not want to be bothered with our calls. It is a terribly run company, just look at the stocks horrible PE ratio.

        1
        4 months ago Log in to Reply
      2. Marty

        Dexcom support went through a terrible period right after the G6 was introduced and they couldn’t keep up with the demand. Lately though, all of my experiences with them have been terrific. I usually use the online form to report problem sensors because it’s easiest, but my recent person-to-person interactions have been very helpful and efficient. If you gave up on them before, you might consider trying them again. I live a few minutes away from their headquarters and was able to pick up a replacement sensor in an emergency once. The people in reception were lovely!

        4 months ago Log in to Reply
    6. Lee Johnson

      What is T3D?

      4 months ago Log in to Reply
      1. Jennifer Bounds

        I Google searched your question and found this… Type 3 diabetes is a proposed term to describe the interlink association between Type 1 and Type 2, and Alzheimer’s disease. This term is used to look into potential triggers of alzheimer’s disease in people with diabetes.
        Wikipedia-

        2
        4 months ago Log in to Reply
      2. beth nelson

        Alzheimer’s disease

        4 months ago Log in to Reply
    7. Jane Cerullo

      I have used Dexcom for years except for a year when insurance made me switch to FSL. Honestly have never had a problem with either. Knocked off a FSL once. Never for Dexcom. Both devices lasted the full 10 or 14 days. Sometimes Dexcom a little off on the ninth day. Have been so satisfied with both. Like Dexcom better as shows on Apple Watch. Also don’t have to manually scan. Waiting patiently for the G7.

      4 months ago Log in to Reply
    8. Ahh Life

      Sometimes you move Mohamed closer to the mountain. And occasionally you have to nudge the mountain an inch or two closer to Mohamed. CGM’s near the end of their life spans are like the later. I hate to do it and hate to replace a tad early, but sometimes you just gotta do it.

      7
      4 months ago Log in to Reply
    9. Jennifer Bounds

      None

      4 months ago Log in to Reply
    10. Lawrence S.

      I said “zero” this month. But, the truth is that I limped to the finish line with two or three of the sensors, with frequent disconnection notices, and a few “—” messages the last few days in the 10 day cycle.

      4
      4 months ago Log in to Reply
    11. cynthia jaworski

      That has never happened with a libre for me.

      4 months ago Log in to Reply
    12. eherban1

      I have to do this maybe two times per year, max. I use Dexcom G6.

      1
      4 months ago Log in to Reply
    13. KCR

      My previous sensor gave me a lot of wacky readings—weird BG drops and signal losses—but I used it the entire 10 days.

      2
      4 months ago Log in to Reply
    14. Mary Dexter

      Both times were before imaging scans, not sensor failures.

      4 months ago Log in to Reply
    15. Kathy Morison

      I’m usually good up until the last day of my dexcom G6 sensor. I have had to put a new sensor on the start of the 10th day because of erroring out 3 hours at a time throughout that last day. This happens with just about all the sensors. They only last 9 days instead of the 10 they’re supposed to last.

      4 months ago Log in to Reply
    16. Rick Martin

      I’ve had a few bad sensors that had to be replaced over the 15+ years I’ve worn them, but those were replaced. Otherwise never had to remove one – in fact, I’ve been able to get 20-30 days per sensor with my G6 most of the time.

      1
      4 months ago Log in to Reply
    17. Merry Woolsey

      I have the Eversense and it’s changed every 6 months.

      1
      4 months ago Log in to Reply
    18. Joan Benedetto

      Once. Prior to that, it had probably been six months since we lost one early.

      4 months ago Log in to Reply
    19. Carol Meares

      This was an unusual month. One CGM was replaced because of it constantly being way off and having to calibrate again and again. Very unusual and frustrating for me. The second one I had to replace because I had just had a cardiology test and I was ripping off some electrode stickies on my abdomen and accidentally pulled off my cgm. It was working beautifully. My bad. Sigh

      3
      4 months ago Log in to Reply
    20. Pauline M Reynolds

      “Once” but it was because I accidentally pulled it off.

      4 months ago Log in to Reply
    21. Natalie Daley

      Skin Tac and placement on my upper abdomen have helped.

      4 months ago Log in to Reply
    22. Stephen Woodward

      Hmm…got to love social media, the voices are too loud to see the real world. Seem CGMs are quite reliable.

      4 months ago Log in to Reply
    23. KarenM6

      I hit the wrong button… I hit 3, but it should have been 2.
      The last one only lasted 5 days. The numbers were wildly off and kept going into “sensor error” mode.
      The one before that lasted 8 days before “erroring”.
      Dexcom has been fantastic about sending replacements when I ask for them.

      2
      4 months ago Log in to Reply
    24. AnitaS

      I think I did 2 times this past month, but usually it is zero.

      2
      4 months ago Log in to Reply
    25. Jen Farley

      None in the past month. I have had many times where I get blood that comes in where it pokes in. The one I put on today was a bleeder but it seems to be reading good. I will just have to verify the reading when it gives a reading I believe is off. Wish there was a way to put a tiny sensor under your skin to last for 5 to 10 years and then have it replaced. What a dream.

      1
      4 months ago Log in to Reply
    26. RegMunro

      I forgot to obtain a replacement G6 sensor when away on holiday over New Year so I “fixed” the sensor for another ten days (advised by Google)
      The extra ten days worked excellently, but the sticker failed after about 18 days in total.
      My experience suggests that sensors could be safely used for double the recommended time!
      Obviously, if used with a pump, things would be different

      2
      4 months ago Log in to Reply
    27. mbulzomi@optonline.net

      I selected the wrong answer. I have two sensors out of the three I get that expire at least 2-3 days before there due date, every three-pack box (Medicare Box). I ‘m good friends with Tandem support.
      They have replaced them. I made them understand when you are on Medicare Part “B” you are on a strict timeline to reorders.
      You just can’t lose two to three days a failed sensor. Thats 18 days for a Medicare Part “B” order.

      4 months ago Log in to Reply
    28. ConnieT1D62

      Had never happened my experience until earlier this month. Transmitter nearing end of its life died on day four of a new sensor start. Fortunately I had a new transmitter and extra sensors on hand. Called Dexcom to report my issue and they sent a replacement that arrived via FedEx three days later. Dexcom has always been extremely responsive, helpful and efficient in my experience with them.

      1
      4 months ago Log in to Reply
    29. Mike Plante

      Quite the opposite. I regularly wear mine twice as long as its official expiration date.

      4 months ago Log in to Reply
    30. T1D4LongTime

      My G6s always last 10 days. Only if I ripped the sensor off by accident, do I change it early

      4 months ago Log in to Reply

    If you use a CGM, how many times in the past month have you had to change your sensor more than 24 hours before its session expired? Cancel reply

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