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  • Activity
    • 4 hours, 16 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 4 hours, 17 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 6 hours, 13 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 6 hours, 29 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 17 hours, 39 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 28 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 21 hours, 31 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours, 12 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 22 hours, 13 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 22 hours, 15 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 22 hours, 20 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours, 21 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 22 hours, 22 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 22 hours, 23 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 22 hours, 23 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 22 hours, 59 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 23 hours, 10 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 23 hours, 22 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 23 hours, 23 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    Clear All
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    If you use a CGM, how many times in the past month have you had to change your sensor more than 24 hours before its session expired?

    Home > LC Polls > If you use a CGM, how many times in the past month have you had to change your sensor more than 24 hours before its session expired?
    Previous

    If you use a glucagon-like peptide (GLP-1) receptor agonist such as semaglutide, exenatide, dulaglutide, liraglutide, or lixisenatide, have you experienced difficulties refilling your prescription due to product shortages? (Some brand name examples of GLP-1 medications include Ozempic, Trulicity, Rybelsus, etc.)

    Next

    Are there certain times of the day during which you consistently need more insulin than your average amount of insulin? Please select all the timeframes during which you routinely need more insulin to avoid high blood glucose levels.

    Sarah Howard

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    35 Comments

    1. sweet charlie

      once, had to have x-ray of lungs. did not want to ruin transmitter..

      2 weeks ago Log in to Reply
    2. gary rind

      had to have a MRI so I had to remove the sensor. I guess that should be one time. I was thinking along the lines of sensor failure and not just removing it.

      1 week ago Log in to Reply
    3. Joan McGinnis

      i dont think I ever had to change before the session expired, except for an MRI once or twice

      1
      1 week ago Log in to Reply
      1. Sue Martin

        I have an MRI this week and scheduled it to be on the day I need to replace the sensor anyway.

        1 week ago Log in to Reply
    4. Tom Caesar

      Amazing technology and very dependable, accurate. Wish they were invented 50 years ago! The few times they missed 10 day mark was my fault, ran into a doorway, went surfing and sensor was worn off, or accidentally pulled one off while undressing.ā¤Dexcom 6

      1
      1 week ago Log in to Reply
    5. Kathy Hanavan

      I have had 2 sensors fail in a couple of days. Very frustrating as I was traveling and had brought an extra one, but not 2 extras, so went 5 days without one. Dexcom is great about replacing them but the online form does not work that well, so I end up having to call and spend a bunch more time dealing with being on hold, etc.

      2
      1 week ago Log in to Reply
      1. Lee Johnson

        Those supposed tech support people in the Phillipines for Dexcom are only a cheap source for replacement items. They do not know or understand the needs of T1D people. What is worse is that HQ in San Diego do not want to be bothered with our calls. It is a terribly run company, just look at the stocks horrible PE ratio.

        1
        1 week ago Log in to Reply
      2. Marty

        Dexcom support went through a terrible period right after the G6 was introduced and they couldn’t keep up with the demand. Lately though, all of my experiences with them have been terrific. I usually use the online form to report problem sensors because it’s easiest, but my recent person-to-person interactions have been very helpful and efficient. If you gave up on them before, you might consider trying them again. I live a few minutes away from their headquarters and was able to pick up a replacement sensor in an emergency once. The people in reception were lovely!

        1 week ago Log in to Reply
    6. Lee Johnson

      What is T3D?

      1 week ago Log in to Reply
      1. Jennifer Bounds

        I Google searched your question and found this… Type 3 diabetes is a proposed term to describe the interlink association between Type 1 and Type 2, and Alzheimer’s disease. This term is used to look into potential triggers of alzheimer’s disease in people with diabetes.
        Wikipedia-

        2
        1 week ago Log in to Reply
      2. beth nelson

        Alzheimer’s disease

        1 week ago Log in to Reply
    7. Jane Cerullo

      I have used Dexcom for years except for a year when insurance made me switch to FSL. Honestly have never had a problem with either. Knocked off a FSL once. Never for Dexcom. Both devices lasted the full 10 or 14 days. Sometimes Dexcom a little off on the ninth day. Have been so satisfied with both. Like Dexcom better as shows on Apple Watch. Also don’t have to manually scan. Waiting patiently for the G7.

      1 week ago Log in to Reply
    8. Ahh Life

      Sometimes you move Mohamed closer to the mountain. And occasionally you have to nudge the mountain an inch or two closer to Mohamed. CGM’s near the end of their life spans are like the later. I hate to do it and hate to replace a tad early, but sometimes you just gotta do it.

      7
      1 week ago Log in to Reply
    9. Jennifer Bounds

      None

      1 week ago Log in to Reply
    10. Lawrence S.

      I said “zero” this month. But, the truth is that I limped to the finish line with two or three of the sensors, with frequent disconnection notices, and a few “—” messages the last few days in the 10 day cycle.

      4
      1 week ago Log in to Reply
    11. cynthia jaworski

      That has never happened with a libre for me.

      1 week ago Log in to Reply
    12. eherban1

      I have to do this maybe two times per year, max. I use Dexcom G6.

      1
      1 week ago Log in to Reply
    13. KCR

      My previous sensor gave me a lot of wacky readings—weird BG drops and signal losses—but I used it the entire 10 days.

      2
      1 week ago Log in to Reply
    14. Mary Dexter

      Both times were before imaging scans, not sensor failures.

      1 week ago Log in to Reply
    15. Kathy Morison

      I’m usually good up until the last day of my dexcom G6 sensor. I have had to put a new sensor on the start of the 10th day because of erroring out 3 hours at a time throughout that last day. This happens with just about all the sensors. They only last 9 days instead of the 10 they’re supposed to last.

      1 week ago Log in to Reply
    16. Rick Martin

      I’ve had a few bad sensors that had to be replaced over the 15+ years I’ve worn them, but those were replaced. Otherwise never had to remove one – in fact, I’ve been able to get 20-30 days per sensor with my G6 most of the time.

      1
      1 week ago Log in to Reply
    17. Merry Woolsey

      I have the Eversense and it’s changed every 6 months.

      1
      1 week ago Log in to Reply
    18. Joan Benedetto

      Once. Prior to that, it had probably been six months since we lost one early.

      1 week ago Log in to Reply
    19. Carol Meares

      This was an unusual month. One CGM was replaced because of it constantly being way off and having to calibrate again and again. Very unusual and frustrating for me. The second one I had to replace because I had just had a cardiology test and I was ripping off some electrode stickies on my abdomen and accidentally pulled off my cgm. It was working beautifully. My bad. Sigh

      3
      1 week ago Log in to Reply
    20. Pauline M Reynolds

      “Once” but it was because I accidentally pulled it off.

      1 week ago Log in to Reply
    21. Natalie Daley

      Skin Tac and placement on my upper abdomen have helped.

      1 week ago Log in to Reply
    22. Stephen Woodward

      Hmm…got to love social media, the voices are too loud to see the real world. Seem CGMs are quite reliable.

      1 week ago Log in to Reply
    23. KarenM6

      I hit the wrong button… I hit 3, but it should have been 2.
      The last one only lasted 5 days. The numbers were wildly off and kept going into “sensor error” mode.
      The one before that lasted 8 days before “erroring”.
      Dexcom has been fantastic about sending replacements when I ask for them.

      2
      1 week ago Log in to Reply
    24. AnitaS

      I think I did 2 times this past month, but usually it is zero.

      2
      1 week ago Log in to Reply
    25. Jen Farley

      None in the past month. I have had many times where I get blood that comes in where it pokes in. The one I put on today was a bleeder but it seems to be reading good. I will just have to verify the reading when it gives a reading I believe is off. Wish there was a way to put a tiny sensor under your skin to last for 5 to 10 years and then have it replaced. What a dream.

      1
      1 week ago Log in to Reply
    26. RegMunro

      I forgot to obtain a replacement G6 sensor when away on holiday over New Year so I ā€œfixedā€ the sensor for another ten days (advised by Google)
      The extra ten days worked excellently, but the sticker failed after about 18 days in total.
      My experience suggests that sensors could be safely used for double the recommended time!
      Obviously, if used with a pump, things would be different

      2
      1 week ago Log in to Reply
    27. mbulzomi@optonline.net

      I selected the wrong answer. I have two sensors out of the three I get that expire at least 2-3 days before there due date, every three-pack box (Medicare Box). I ‘m good friends with Tandem support.
      They have replaced them. I made them understand when you are on Medicare Part “B” you are on a strict timeline to reorders.
      You just can’t lose two to three days a failed sensor. Thats 18 days for a Medicare Part “B” order.

      1 week ago Log in to Reply
    28. ConnieT1D62

      Had never happened my experience until earlier this month. Transmitter nearing end of its life died on day four of a new sensor start. Fortunately I had a new transmitter and extra sensors on hand. Called Dexcom to report my issue and they sent a replacement that arrived via FedEx three days later. Dexcom has always been extremely responsive, helpful and efficient in my experience with them.

      1
      1 week ago Log in to Reply
    29. Mike Plante

      Quite the opposite. I regularly wear mine twice as long as its official expiration date.

      7 days ago Log in to Reply
    30. T1D4LongTime

      My G6s always last 10 days. Only if I ripped the sensor off by accident, do I change it early

      4 days ago Log in to Reply

    If you use a CGM, how many times in the past month have you had to change your sensor more than 24 hours before its session expired? Cancel reply

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