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    • 40 minutes ago
      Daniel Bestvater likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 10 hours, 14 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      I oftentimes give myself a little insulin for when I go unplugged while changing pods, depending on what my current sensor reading is.
    • 10 hours, 14 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Always, until I began to increase the "cannula fill" amount. I found I need a good bit more than the (1.3u) to "prime the site" to have the next blood sugars be in goal. Just remember "every body is different". Darn than OmniPod does not let you change that amount, have to use "fake carbs". Something to consider.....
    • 10 hours, 14 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 10 hours, 15 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 14 hours, 30 minutes ago
      KSannie likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      **cannula
    • 20 hours, 48 minutes ago
      Kathleen Juzenas likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I find a using the T-Connect app I have the main features needed, CMG, bolus, battery level and remaining insulin.
    • 1 day ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 1 day ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Mostly pump because I want to quickly see insulin on board. Tandem on IPhone when holding my great-niece while she sleeps since getting my pump out of my pocket always wakes her ☺️. Dexcom app if not in need of insulin.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      usually the pump; sometimes my phone.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump (Tandem X2). Since I have to carry a work phone close to 247, I don't want to deal with two phones (device overload!). As I go about my day, looking at my pump meets my needs, I can decide to bolus etc - and edit the bolus. For more in depth data review and analysis, I use the TConnect.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I read it from my pump.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      On my insulin pump
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump. Keep it simple.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      How much of this is intentionally misleading? My mail order prescription service says that can’t possibly know the cost of a medication until after it’s been shipped, which is too late to cancel or return, of course, and makes it impossible to comparison shop.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 1 day, 22 hours ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
    • 1 day, 23 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      One nice thing about a watch for readings is that, while it is normally redundant, you can be separated from your phone. For example, when you are in water.
    • 1 day, 23 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 2 days ago
      Kathy Hanavan likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 2 days ago
      John Barbuto likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 2 days, 1 hour ago
      Gerald Oefelein likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
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    If you have T1D, have you also been diagnosed with gastroparesis?

    Home > LC Polls > If you have T1D, have you also been diagnosed with gastroparesis?
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    If you use a device, how satisfied are you with the process of ordering replacement supplies for your sensors/sites that do not last their full standard duration?

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    Do you currently use any of the following insulin pumps?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. 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    34 Comments

    1. Ahh Life

      Gastroparesis is one of those challenging issues that seems to show up only after a number of years with T1D.

      It is like Don Quixote tilting at windmills. It is a nerve in the digestive tract (are there such things?) acting like the worst employee or volunteer in an organization – sometimes it shows up for work and sometimes it doesn’t.

      You use the best technologies known to man, Control IQ, etc. You practice the best behaviors known to mankind. And then, mother nature says, “Wait a minute. I get a say here also.” I guess mother nature tells the digestive nerve when to work and when not to, proving once again, that Don Quixote had more success tilting at windmills than all of mankind in all of its delusions of technological brilliance. (☛´∀`*)☛

      10
      4 years ago Log in to Reply
      1. Michelle Tepley

        This. I was dx’ed with it 30 years ago. Tried their yucky medicine that made me sleep all day so stopped taking it. I learned that if I consume no food after dinner then all symptoms go away. Problem solved.

        4 years ago Log in to Reply
      2. Kathy Hanavan

        I look forward to your great and humorous responses! Thanks Ahh Life!

        1
        4 years ago Log in to Reply
      3. Joan Fray

        So true! You follow ‘best practices ‘ and coast along for a spell, and then Mother Nature points at you and laughs.

        4 years ago Log in to Reply
    2. Diana Miller

      I do have it, but have never been truly diagnosed.

      4 years ago Log in to Reply
      1. cynthia jaworski

        That is my situation, too.

        4 years ago Log in to Reply
      2. Liz Avery

        Mine as well. I have taken Reglan or other medication ( remember propulsid?) for years. I developed some vomiting issues as well, but good control and use of Reglan have helped.

        4 years ago Log in to Reply
    3. Patricia Dalrymple

      Don’t have it yet. Mother did and it contributed to her death. She was 86 and was not diabetic.

      4 years ago Log in to Reply
    4. Amanda Barras

      No but I’m concerned I may have beginning stages as larger meals take hours to digest.

      4 years ago Log in to Reply
      1. Joan Fray

        The first line of defense is smaller meals with more liquids, like soups…….

        1
        4 years ago Log in to Reply
    5. Henry Renn

      After 62 yr of T1.

      4 years ago Log in to Reply
      1. Sherrie Johnson

        61 years for me 👍

        4 years ago Log in to Reply
    6. Trish Seidle

      I am currently having tests done for this.

      4 years ago Log in to Reply
    7. Joan Fray

      I put yes. In 1990 after 27 years of T1d. But once I got my bgs under better control, and stopped eating raw veggies and red meat it got better. They gave me somekind of rx that is now banned. I still have it, but now its no worse than t1d or celiac, which I also developed in 2010. Ah life, What a hoot!

      2
      4 years ago Log in to Reply
      1. Miriam Gordon

        Diagnosed with TD1 id 1960. Gastroparesis in about 1985-86. Also got an Rx (Cisapride) thru a pharmacy in Canada. Stopped taking it after a while when I switched Endos. Gastro has definitely improved with better BG’s but still a factor sometimes especially if I take a nap after a big(ish) meal. It’s a pain in the ___ complication to have.

        4 years ago Log in to Reply
    8. Sherolyn Newell

      Is this why sometimes my glucose goes high long after my food should be digested and my insulin is used up? I will go for days with no problems and then hit a few days to a week with delayed highs.

      2
      4 years ago Log in to Reply
      1. mentat

        It can be. Sometimes gastroparesis can be inconsistent or unpredictable. It could also be changes in your insulin absorption rate or various other factors though. Definitely talk to a doctor if you think this may be affecting you.

        4 years ago Log in to Reply
    9. Kim Rehtus

      A small dose of metaclopramide before breakfast and dinner helps me manage my gastroparesis successfully.

      4 years ago Log in to Reply
    10. Lawrence S.

      I’ve had gastroparesis for many years. Don’t remember when it started. I find that it’s not usually a problem in the mornings. But, as the day goes on, my digestive system slows more after each meal. Sometimes it takes 4, 5 or 6 hours for food to make my blood sugar rise. It’s very frustrating because I love to run. Sometimes I have to wait several hours to run. Sometimes I have to skip the run because my blood sugar will not rise. Then, it skyrockets up when it’s too late to go running. I also find that my blood sugars drop like a rock when I run. Years ago, I would drink juice when I run to replenish my glucose. Can’t do that now. I’ve tried eating more protein to keep my blood sugars from dropping so fast. That seems to be helping. But, it still takes forever to get my blood sugars up.

      4 years ago Log in to Reply
    11. Edward Geary

      Some early signs.

      4 years ago Log in to Reply
    12. Tom Caesar

      Yes unfortunately, terrible issue! Has taken me to the hospital many times. However for the past three years haven’t experienced the problem, even stopped taking reglan. Blessings!

      4 years ago Log in to Reply
    13. lis be

      I said other, I do get day blocks of high sugars, but it’s not diagnosed yet. Jury is out on whether it is that or inflammation. Separate, I was recently diagnosed with autoimmune atrophic gastritis (Stomach won’t absorb B12 anymore). would be curious to know if this is common for long term type 1’s.

      4 years ago Log in to Reply
    14. Tracy Jean

      I was tested for it, but it turns out, I have the opposite, gastric dumping.

      4 years ago Log in to Reply
    15. Kathy Morison

      I had been diagnised with gastroparesis early on but the medicine they put me on for gave horrible chronic severe diarrhea. Another doctor said I didnt have it. My main digestive issues started with the removal of my gall bladder without any instruction on replacing the lack of digestive enzymes that aid in normal digestion processes.

      4 years ago Log in to Reply
    16. Angela Langway

      Yep, 12 years now

      4 years ago Log in to Reply
    17. John Vicars

      Yes for 20 years. Helped me realize the impact of fat and protein on bgl. Decreased intace7 of fat and protein. For the past 24 years, I have had stellar control. Before Isulins and technology control was impossible for me. 52 years as diabetic. No amount of good work can overcome the sins of my past. About 6 years ago, I went to a plant based diet and started taking digestive enzymes. This really helped. Unfortunately an all carb is harder to control. Recently worked and don’t know when food is going to kick in. I made a comment on another site. I said that insulin dosing should be based on calories not carbs. Gastroparesis has allowed me to see the impacts of carbs and protein and fat separately. Members all disagreed with me.

      4 years ago Log in to Reply
    18. Molly Jones

      My father with no autoimmune problems and I had similar lifelong issues of having a “cow’s digestion”. I learned early on to chew my food well and not eat too quickly otherwise regurgitation would occur.
      I was diagnosed with gastroparesis a few years after my dx of T1D as I asked for testing, hoping to understand my BG control. I do not think this was due to high glucose levels as it was already occurring before diabetes but has continued to worsen over time.
      Fat is a limited substance in my diet and desires. Miralax is taken daily and sometimes my diet is liquids only, depending on constipation and appetite. I tried domperidone with no results.

      4 years ago Log in to Reply
      1. Joan Fray

        I feel your pain! Semi liquid diet does help. Can’t remember the last time I ate red meat. Over time, it even looks awful…

        4 years ago Log in to Reply
    19. Beckett Nelson

      Officially, no I haven’t been diagnosed, but when I went for a scope for other reasons, it was suggested as I still had food in my stomach from 12hours earlier

      1
      4 years ago Log in to Reply
    20. Kandy Gonzalez

      Gastroparesis makes it extremely difficult to keep my numbers where they should be.

      1
      4 years ago Log in to Reply
    21. mbulzomi@optonline.net

      Not yet, but I do feel signs that it’s coming.

      4 years ago Log in to Reply
    22. Bob Durstenfeld

      Yes, and I wish that Cisapride was still available, it worked MUCH better than Reglan.

      4 years ago Log in to Reply
    23. RegMunro

      No symptoms yet except very slow rise in bg as shown by cgm

      4 years ago Log in to Reply
    24. Buddy Hobbs

      no

      4 years ago Log in to Reply

    If you have T1D, have you also been diagnosed with gastroparesis? Cancel reply

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