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    • 13 hours, 29 minutes ago
      Lawrence S. likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      shortly after I was diagnosed at age 43, went on a date with a T1D who had had it forever. she criticized what I ate, how much insulin I was taking for it (MDI) and when I ordered a Corona, I thought that her head would explode! needless to say there was no second date.
    • 13 hours, 29 minutes ago
      Lawrence S. likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered NO, but on reflection, I'm not certain that is correct. Of the many girls/women I dated in the 1950s and early 1960s, the only one I ever told that I have diabetes [Type One naming didn't exist for another 40 years] is the woman to whom I've been married for an eternity. And not one of my many dates told me that she has/had diabetes [of any of the many kinds].
    • 13 hours, 31 minutes ago
      Lawrence S. likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      At the time we dated and were married my wife was not diabetic. She was diagnosed as T1D during/after her first pregnancy. We shared T1D through the next 37 years and a second pregnancy!
    • 14 hours, 36 minutes ago
      Ahh Life likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered NO, but on reflection, I'm not certain that is correct. Of the many girls/women I dated in the 1950s and early 1960s, the only one I ever told that I have diabetes [Type One naming didn't exist for another 40 years] is the woman to whom I've been married for an eternity. And not one of my many dates told me that she has/had diabetes [of any of the many kinds].
    • 1 day, 5 hours ago
      Anita Stokar likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 6 hours ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I put "Never" because I'm 85 and stable. Why change a good thing?
    • 1 day, 6 hours ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      Ten years ago when I first started seeing her I asked her to work with me as an equal partner in all treatment decisions. She agreed and made a definite effort at every appointment to maintain that commitment. That was a decade ago. Healthcare has changed dramatically along with her caseload. At my 90 day appointment next week I hope she will have the uninterrupted time to allow for an actual pro/con discussion on several issues.
    • 1 day, 6 hours ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      the best one was when he recommended a CGM (Libre 2) for the first time. I said to him, "am I gonna scan myself like a can of peaches at the supermarket"? he got a laugh out of that one
    • 1 day, 6 hours ago
      Janis Senungetuk likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      I said “No.” Perhaps I’m the luckiest person alive since I’ve navigated the diabetic road for 74 years. Have never had DKA, although symptomatic twice. Have had numerous hypoglycemic affairs, but no hospitalizations. I am also a bit determined. They may hospitalize me for dementia or other old age conditions. But not for T1D. ✨.•*¨*.¸.•*¨*.¸¸.•*¨`*• ¨*.¸.•*¨`*. ¸.•*¨*.¸¸.•*¨`*•.✨
    • 1 day, 8 hours ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      Ten years ago when I first started seeing her I asked her to work with me as an equal partner in all treatment decisions. She agreed and made a definite effort at every appointment to maintain that commitment. That was a decade ago. Healthcare has changed dramatically along with her caseload. At my 90 day appointment next week I hope she will have the uninterrupted time to allow for an actual pro/con discussion on several issues.
    • 1 day, 8 hours ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      My first one always pushed me towards new tech, letting me try it and then letting me decide. When I moved from Baltimore, a better place to be sick besides NYC you probably can’t find, to Florida, I asked for an Endo recommendation. He suggested USF but that’s a 45 min drive from me, on a good traffic day. So this one is convenient but he is more interested in not being inconvenienced. We got into it the last time I was there and were pretty honest with each other and he told me my insurance was the major problem. I have Medicare and a gap, like I’m not going to use that…I paid for it! Medicare is good paying for most things but you have to fight with them to get even normal prescriptions filled, here at least. So, to drone on, we’ve cleared the air and he and his staff have worked hard this past 3 months to get me what I need. I’m grateful for that. It’s not easy being a doc.
    • 1 day, 8 hours ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      To paraphrase a famous Ernest Hemingway line, it would be pretty to think so. 🧠
    • 1 day, 10 hours ago
      ChrisW likes your comment at
      Do you check your blood glucose before driving a car?
      Kind of a bad question, “check” means what, CGM and meter both are used to “check” BG, so it would appear that 60%+ “check”. Maybe it should have been, “How do you check BG before driving?” To get a more specific assessment of the BG checking task.
    • 1 day, 10 hours ago
      ChrisW likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      She recommended having the latest incarnation of Glucagon on hand and Lantus pens in case I have a pump problem.
    • 1 day, 12 hours ago
      kristina blake likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I am usually the one who asks about new tech. Or I explain the new tech that I am using to my endo.
    • 1 day, 12 hours ago
      kristina blake likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      To paraphrase a famous Ernest Hemingway line, it would be pretty to think so. 🧠
    • 1 day, 13 hours ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      the best one was when he recommended a CGM (Libre 2) for the first time. I said to him, "am I gonna scan myself like a can of peaches at the supermarket"? he got a laugh out of that one
    • 1 day, 13 hours ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I think I stay more up-to-date than my doc on what’s available for T1 treatment, but then I’m retired, have more time and more stake in the result than my doc does; further, he has to stay up-to-date on numerous other conditions/treatments, though an argument is true, it is his job. We still discuss settings/treatments/new offerings/changes in formulary of insurance coverage at each appointment a few times a year to go over blood work, update scripts, and check current treatments.
    • 1 day, 13 hours ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 14 hours ago
      Sarah Berry likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I think I stay more up-to-date than my doc on what’s available for T1 treatment, but then I’m retired, have more time and more stake in the result than my doc does; further, he has to stay up-to-date on numerous other conditions/treatments, though an argument is true, it is his job. We still discuss settings/treatments/new offerings/changes in formulary of insurance coverage at each appointment a few times a year to go over blood work, update scripts, and check current treatments.
    • 1 day, 14 hours ago
      Sarah Berry likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 14 hours ago
      Vicki Andersen likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I am usually the one who asks about new tech. Or I explain the new tech that I am using to my endo.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      My first one always pushed me towards new tech, letting me try it and then letting me decide. When I moved from Baltimore, a better place to be sick besides NYC you probably can’t find, to Florida, I asked for an Endo recommendation. He suggested USF but that’s a 45 min drive from me, on a good traffic day. So this one is convenient but he is more interested in not being inconvenienced. We got into it the last time I was there and were pretty honest with each other and he told me my insurance was the major problem. I have Medicare and a gap, like I’m not going to use that…I paid for it! Medicare is good paying for most things but you have to fight with them to get even normal prescriptions filled, here at least. So, to drone on, we’ve cleared the air and he and his staff have worked hard this past 3 months to get me what I need. I’m grateful for that. It’s not easy being a doc.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
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    If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.

    Home > LC Polls > If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you're reluctant, or obstacles you’ve encountered? Please select all that apply.
    Previous

    If you use an insulin pump, have you ever used expired pump supplies (e.g., infusion sets, reservoirs, pods, etc.)? If so, did you notice any issues with the supplies?

    Next

    Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    50 Comments

    1. sweetcharlie

      when theese things first became available, I wwas doing fine without them !!! so why add problems and devices to complicate things ?? I went from pee sticks to finger sticking when insurance covered cost… I got first CGM [ G6 ] 2 years ago [and dont fully trust it ] …. 70 years T1D…..

      2 years ago Log in to Reply
    2. Randy Reed

      I’ve been on the Medtronic pumps for over 20 yrs. great tech and support

      1
      2 years ago Log in to Reply
      1. Randy Reed

        T1 for 50 yrs

        2
        2 years ago Log in to Reply
    3. Ahh Life

      Luddites just may be the most comfortable people on earth. 🙃 

      2
      2 years ago Log in to Reply
    4. Brian Vodehnal

      The constant refilling and site changes…doesn’t seem worth it.

      4
      2 years ago Log in to Reply
    5. Eva

      To start, I like to be in control and I have done very well. Second, from a liability standpoint, who is responsible if the machine incorrectly gives my body too much insulin based on algorithm that was developed/trained/tested on people that weren’t me.
      I’m unique and my needs are very, very, different. I don’t need the added worry cause insulin is deadly.
      I don’t want to risk my life on a new device with the stated objective of controlling me rather than me controlling it.

      1
      2 years ago Log in to Reply
      1. sweetcharlie

        I agree…. we are not all the same !!!

        2 years ago Log in to Reply
    6. Barbara Bubar

      I think I use too little insulin to be able to use an automated system easily….a few hours in the evening with no basal delivery and generally around 12 Daily Total units. I diluted the insulin in my first insulin pump back in 2000 but I’m not really thrilled with the idea of returning to that although I’m sure small children still dilute. Also, I have tight control now and apparently the current automated delivery systems have a wider range of flexibility that I think would bother me. I would love to hear from people who use small insulin doses AND are on an automated insulin delivery system.

      1
      2 years ago Log in to Reply
    7. Lawrence S.

      Just a small diversion. Did you see Katie Bone, 15 yr old T1D, win the women’s American Ninja Warriors last night? Go Girl !!!! Yeah!

      6
      2 years ago Log in to Reply
      1. Lawrence S.

        She was wearing an Omnipod and a G6 Dexcom sensor on her arms.

        5
        2 years ago Log in to Reply
    8. George Lovelace

      I’ve been on a Pump for 25+ years, now using Tandem CIQ w/Dex 6, have eliminated almost ALL lows below 80 and even got to an A1c of 5.4 but always in Low 6

      3
      2 years ago Log in to Reply
    9. Jane Cerullo

      I am very happy with MDI using the InPen. The pen gives me all the data a pump does. Calculates dose, IOB etc. I do not trust a pump to make decisions for me. And the big reason for me is that I am sick of being attached to a device.

      2
      2 years ago Log in to Reply
    10. Elizabeth Jones

      I have high insulin resistance, so I use too much. I’d have to change it out a couple times a day. It wouldn’t be efficient for me.

      2 years ago Log in to Reply
    11. PamK

      I chose “Something else” because I use an insulin pump that offers automated insulin delivery, but I do not use the hybrid closed-loop because my blood sugar ran too high when i tried it. Setting just my basals and then inputting my bolus at meal times works much better for me. If/when the FDA allows for lower settings on the hybrid closed-loop systems, I might be willing to try it again.

      3
      2 years ago Log in to Reply
      1. Gustavo Avitabile

        Non FDA cleared DIY systems do allow to set any target the user wants.

        2 years ago Log in to Reply
    12. Nilla Ekstroem-Rypka

      I don’t like the automated feature as it keeps me a little on the higher side than I like. I like to be at 80-90, not 110-120.

      2
      2 years ago Log in to Reply
    13. Nevin Bowman

      Something else – I use an automated system, but the sensors are not nearly as accurate as advertised, or as accurate as is needed for the type of control I aim for. I end up doing most of the corrections myself even when on the automated system.

      4
      2 years ago Log in to Reply
    14. Richard Vaughn

      It is integrated with the Dexcom CGM, and my glucometer output is frequently as much as 40 points different from the CGM. That might cause me to receive insulin when I do not need it, or not getting insulin when I do need it.

      2
      2 years ago Log in to Reply
      1. Lori Lehnen

        Yes! For the first 24 hours after I put on a new CGM sensor, finger prick and CGM readings can be dangerously different. Plus now that I’ve fine tuned the MDI, I get good, consistent results without a lot of effort.

        2
        2 years ago Log in to Reply
      2. sweetcharlie

        thats what scares me !!

        2 years ago Log in to Reply
    15. Trina Blake

      Like others, the “closed loop” runs me too high – even the target bg is too high for me. I use the TandemX2 with BIQ integrated wqith my Dexcom G6. I also appreciate – and use – the temp basal function often. I would lose that with CIQ. L:ike Nilla Eckstrom (I think?) I like to be between 80-90, with maybe up to 120 after I eat.

      1
      2 years ago Log in to Reply
    16. Amanda Barras

      I currently use one but having the CGM talking to the pump has been cost prohibitive in the past.

      2 years ago Log in to Reply
    17. Steve Rumble

      My private insurance carrier will not cover either a CGM or pump, but I am now receiving my CGM from the Veterans Administration and am exploring receipt of a pump from the VA.

      2
      2 years ago Log in to Reply
    18. Sue Martin

      My spouse has been skittish about me getting a pump. I think I’m finally at the place where I need to keep my bg TIR steady to support my kidney transplant.

      2 years ago Log in to Reply
      1. sweetcharlie

        read all the comments first … and others on this site !! some good and some not !!

        2 years ago Log in to Reply
    19. cynthia jaworski

      There are many reasons, as well as “something else.”

      My arthritic fingers do not serve me well with a cell phone. I have trouble putting the needle covers back on to my insulin pen needles. If I had to take care of all the fine muscle issues associated with setting a pump up, I would probably require assistance.
      I am also not drawn to the issues I hear about tissue damage at the infusion sites, or knowing whether everything is seated properly and the insulin is actually flowing.
      Finally, I just have some kind of negative karma with electronics. I have worked as a lab biochemist. Somehow, I find the weaknesses of every machine in the lab. (the ideal industrial beta-tester)
      Having said that, what I hear about the numbers achieved with the tandem CIQ gives me pause to consider.

      2
      2 years ago Log in to Reply
      1. sweetcharlie

        Good reasoning !!

        2 years ago Log in to Reply
    20. Dahne Rodriguez

      I want an AIP that I can set my own targets and settings that I know will give me enough insulin.

      1
      2 years ago Log in to Reply
      1. Gustavo Avitabile

        A DIY hybrid system, like AndroidAPS, allows its user to set any target and many more settings. The drawback is that such freedom is not easy to manage and wrong parameters may make control worse.

        2 years ago Log in to Reply
    21. Lynn Smith

      I am on the Omnipod 5 but I don’t use it in the auto mode. I tried it, but their algorithm is terrible and the requirements for my Dexcom to connect with the pod don’t work for me. So I just use the manual mode. I now only use the pump for my basal anyway because I have switched to using Afrezza inhaled insulin for my meals/highs.

      2 years ago Log in to Reply
    22. Jeanne McMillan-Olson

      I use the Tandem t slim X2 pump that has the option of CIQ but don’t use it much unless my bg is going down. It usually runs me too high so I just make corrections etc myself. My TIR and A1c are fine. 68 years T1D.

      1
      2 years ago Log in to Reply
    23. Dave Akers

      I stand by this answer: THE INSULIN IS TOO SLOW! It’s not the device, it’s the insulin. Pre planing my bolus is the most difficult part. Busy father and full time employee makes meal planning a challenge. Also I was on a pump for many years and I DO NOT miss the complexities of a pump in general. Tubes, pods, filling, priming, batteries, occlusion and other alerts, lypohypertrophy, etc…

      Using inhaled insulin is easier, more flexible, and I don’t have to preplan my dose because it works so dam fast! Basal insulins are significantly better and I took a shot and LOVED IT! Very stable.

      Bottom line, I have as good if not better control than when I was on pumps w/o the complexities from being on Pumps.

      Get me an algorithm and system that will predict when I’m going to eat and gets me to 90%+ TIR (90-130) and I’ll consider a pump.

      Otherwise, inhaled insulin, CGM, longer-acting basal for life! 😊

      2
      2 years ago Log in to Reply
      1. sweetcharlie

        Good for you!! sounds like you have a good handle on it !! how many years have you had T1D and what is your age ??

        2 years ago Log in to Reply
    24. Anneyun

      Not available in Canada yet

      2 years ago Log in to Reply
    25. Eilis Gambill

      Pregnancy

      2 years ago Log in to Reply
    26. NANCY NECIA

      Try it! The user can monitor closely and, if uncomfortable with what the pump is doing, disconnect. My A1c went from 7.3% to 6.8% after a year of getting used to the automatic delivery of basal and corrective doses.

      2 years ago Log in to Reply
    27. sdimond

      I do MDI. For the last 7 years my A1C has averaged around 4.8. I have no reason to believe that a closed loop automated system could do that well.

      3
      2 years ago Log in to Reply
    28. Donald Cragun

      For the last 5 years, the highest HbA1C I’ve had was 5.3. For the last 3 years the high, low, & average have been 5.2, 4.7, & 4.9. I’m not willing to go to an AID that sets a target of 6 to 7.

      2
      2 years ago Log in to Reply
    29. ellencherry

      I don’t want to change from the Omnipod Dash to Omnipod 5 because the minimum target blood glucose is level is higher than where I like to keep it. My A1C is currently 5.0.

      1
      2 years ago Log in to Reply
    30. Becky Hertz

      On tslim, I’ve found that the Dexcom CGM is way too slow on picking up my lows as well as rarely registering as low as my glucose meter (out if parameters). I’m going to give CIQ a try when I get my new pump, hopefully this week. We shall see. My last A1c was 6.2 and I’m usually in the upper 80’s-more 90’s time in range. I’d love to not have to think so hard though.

      1
      2 years ago Log in to Reply
    31. Steven Gill

      Using the Medtronic 770G system found the algorithm was great for preventing hypoglycemia, but was too slow and not aggressive enough for lower glucose levels. Some of the reasons include the speed of insulin and rate of detection of glucose by the CGM. For one prone for hypoglycemia, has unawareness (especially a child), or lacks skill in carb counting any algorithm is a good deal. Right now with pens and the Libre3 due to retirement (cost) it’s going well but plan on a pump again and will definitely give it a try.

      2 years ago Log in to Reply
    32. Jordan Harshman

      Following others who have posted similar responses: I’m on MDI and doubt that regulators will allow target ranges to go low enough to achieve sub 6.0 A1C (I’m no more than 5.3 normally). Cheaper, more efficient to be on MDI for me, but glad hybrid closed loop works for others.

      2 years ago Log in to Reply
    33. TS

      I have been wanting to get on a hybrid pump system for a few years now. When I went on the OmniPod , they said that since it goes through the pharmacy, the warrenty rule (5 years) wouldn’t be a problem. Well, my insurance won’t switch so I’m stuck with this one even though an automated pump would help regulate me much better.

      2 years ago Log in to Reply
    34. Cristina Jorge Schwarz

      The upper and lower limits, and target range, are all too high for me! I need to customize, which isn’t allowed.

      2 years ago Log in to Reply
    35. Carlie Trepanier

      I’m using the FreeAPSx system with my omnipod dash pods! I’m loving it – no PDM necessary, all controlled through my iPhone, and it has taken such a mental load off of managing my diabetes.

      2 years ago Log in to Reply
    36. mbulzomi@optonline.net

      I use as Tandem X2 Pump and a Dexcom G6 Sensor. I believe Control IQ is too slow to respond. Exercise mode is useless, along with the Extended Bolous, only get 3 hours max. Not good when eating Fatty stuff or Grazing at a Wedding. (Dual wave for those Metronic Pumpers) Not being able to set a long temporary Basel. Very difficult when told to fast for at least 6-12 hours.

      2 years ago Log in to Reply
    37. KCR

      The need for better CGM accuracy is a big consideration for me. Also my control is pretty good right now (a1c in the low 6 range). Although I am tempted by the sleep and exercise modes which would be very helpful since I’m getting back in to exercise. So…I keep sitting on the fence…

      1
      2 years ago Log in to Reply
    38. Wanacure

      That T1Ds on this site report report achieving consistent normal blood glucose levels using pumps makes them attractive to me. I rarely get below 6.0 on MDI. Pump disincentives are cost and the extra time it takes to use a pump.

      2 years ago Log in to Reply
    39. Brad Larson

      Just waiting for more data. I am scheduled for a closed loop system in September ’23. Have to determine the cost yet. That may be a determining factor.

      2 years ago Log in to Reply
    40. Jeff Balbirnie

      Financial issues prevented it period. However, I have fundamental issues with pump tech.

      2 years ago Log in to Reply

    If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you're reluctant, or obstacles you’ve encountered? Please select all that apply. Cancel reply

    You must be logged in to post a comment.




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