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    • 1 hour, 33 minutes ago
      ConnieT1D62 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 2 hours, 15 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I always bring extra infusion sets and CGM sensors in case of accidental tear out. With Tandem pump, a charger is also essential. I forgot mine in my last weekend away. I use a Dexcom G6, so don't need to finger stick, but always bring my meter & strips just in case, and extra lancets as sometimes my non-diabetic family members like me to check their BG. I always take a vial and syringes in case of pump failure. For overnight trips also bring juice boxes/ glucose tabs and glucagon in case for lows. Hard to travel light as a T1D, especially with those GIANT Dexcom sensor inserters! 🧳🧳🧳
    • 2 hours, 32 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 2 hours, 32 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 2 hours, 48 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 2 hours, 49 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 2 hours, 49 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 2 hours, 51 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 4 hours, 11 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 4 hours, 11 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 4 hours, 13 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
    • 4 hours, 14 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 4 hours, 14 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 4 hours, 15 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      A while back I went to the UK for a choir tour. I had just acquired a CGM, a G4 Platinum, specifically as a safety measure for the trip. I don't bring second meter any more, but this was before the Dexcom was trusted for bolusing, so I was still meter-dependent and felt I needed an extra just in case. As it turned out I DID need it, but not for myself. There was another, newly dx'd, T1 on the trip and she lost her meter when she left her bag on the bus or some such. So I was able to come to the rescue. It was possible to buy a replacement of course but European/Brit ones are calibrated in moles rather than mL so that was still a glitch--she used mine for the remainder of the trip.
    • 4 hours, 15 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 4 hours, 17 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 7 hours, 13 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Skin prep pads.
    • 7 hours, 13 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 7 hours, 13 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Additional (i.e. beyond what I usually carry with me) glucose tablets and a dose of Baqsimi.
    • 7 hours, 14 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 8 hours ago
      Flo Bachrach likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 8 hours, 28 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 8 hours, 29 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 8 hours, 29 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I agree that it depends on where the trip is. My decision point is how long would it take to get replacement supplies and what are the effects of a delay. I’m MDI Tresiba which lasts >24 hours, which significantly reduces the urgency to replace background insulin. For NYC, I brought nothing extra. For my trip to a third world country- I brought one, and only one, extra of each supply including a CGM receiver. Dexcom wasn’t available where I went and I worried if something happened to my phone, I wouldn’t be able to download the software if I bought a replacement phone.
    • 8 hours, 30 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
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    If you have experienced complications related to T1D, which of these words most accurately describe the effect of complications on your quality of life?

    Home > LC Polls > If you have experienced complications related to T1D, which of these words most accurately describe the effect of complications on your quality of life?
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    From which healthcare provider do you receive the majority of your diabetes care?

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    If you were to request the next available appointment with your T1D healthcare provider, which of these options best describes when that next available appointment would be?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    33 Comments

    1. Elle

      52yrs T1 since age 4. Aging with T1 is progressive negative due to vital organs break down. The decades before cgms and synthetic insulin catch up now. My retinas! Glaucoma due to the vitrectomies. Then the dry eye disease due to drops used for glaucoma! Only maintaining what I have. No cure. No reversing damage. But- I lived a long and very athletic life as T1. M T1 motivated me to look for careers that forced me to be physically active. And I got rewarded with new technologies with devices and creation of vitreoctemies! High BGs permanently destroy organs. MDIs permanently scar tissue. Lows permanently destroy brain cells. Living in balance every moment of every day is extremely difficult thus stressful thus can raise BGs- realizing this too late is risking your life. Overwhelmed with fear of how I will grow older- total loss of eyesight? Heart problems? Kidneys? Limbs? Living in a resthome due to 0 independence? Isolated and alone. In fear health insurance will stop covering what is keeping me healthy today or will cover future needs in time to save me

      5
      2 years ago Log in to Reply
      1. Wanacure

        Yeah, Elle, I still worry about the same. BUT seek refuge in Buddhism. Worrying about the future distracts us from living in the PRESENT.

        2 years ago Log in to Reply
    2. Ahh Life

      Being a focus group of one, it’s easy to thrive on the smell of one’s own sulfur and portray life as a sadistic lottery. 😡

      Evolution of the human species has placed it in an eternally awkward position and it has done so with messianic intensity rendering the human body a craven weakling and submitting it to abject degradation. Then pile on retinopathy, neuropathy, and nephropathy. Nice job, mother nature. 😕

      But I choose not to do that. It may be periwinkle-hued optimism, but you white-knuckle through whatever you have to do only to discover, hey, life ain’t so bad. 70 years of T1D since age 4 can be dealt with and even enjoyed. ✍(◔◡◔)

      7
      2 years ago Log in to Reply
      1. Mig Vascos

        👌

        2 years ago Log in to Reply
      2. Wanacure

        I always enjoy your comments. Thank you.

        2 years ago Log in to Reply
    3. Kim Murphy

      Painful would be the word I would have used. I have had to have four surgeries due to complications from the diabetes and recovery was long and painful.

      1
      2 years ago Log in to Reply
    4. Mig Vascos

      I’m very fortunate not to have any of the complications after almost 50 years of insulin use.

      2 years ago Log in to Reply
    5. Sahran Holiday

      Tiny bit of retinopathy. Continuing struggle with endocrinologist, ophthalmologist and primary care, they say my A1c goal less than 5.6 are too strident. Nothing about this condition interferes with any part of my life anymore than taking care of my teeth and moisturizing my skin.

      1
      2 years ago Log in to Reply
      1. Nevin Bowman

        5.6 is a great target if you’re not having wild swings in your blood glucose levels.

        1
        2 years ago Log in to Reply
      2. Wanacure

        After over 60 years as T1 I have some neuropathy in feet. Any other problems I have are NOT caused by diabetes but who knows? Things like depression mainly caused by lower testosterone levels (which maybe I could increase by going to Longevity Medical Clinic ($5000 per year but cheaper if you avoid all the other supplement pills & cosmetic shit) & maybe dysfunctional family during Cold War. My Impending dementia in my family is maternal genetic. But frequent hypoglycemic episodes probably did not help. Was it neuropathy or Extra Strength Tylenol that caused my loss of balance & some hearing loss? I still can walk briskly but not ride bike. Maybe I could afford an electric trike to handle Seattle hills? Maybe a chopped Harley trike? No doubt genetics have contributed to my long life + aerobics, weight-lifting, yoga, low carb diet.

        2 years ago Log in to Reply
    6. Nevin Bowman

      Life-altering/motivation. I lost over 80% of my vision in one eye around the age of 30 after believing that I was doing ok with my diabetes. I made drastic changes, had corrective surgery, and I now have my sight restored for more than 15 years, and I intend to keep it that way!

      3
      2 years ago Log in to Reply
    7. Amanda Barras

      Bearable: hypothyroidism is bearable due to only a slight inconvenience of taking an additional medication and following up with labs.
      Motivating: insulin resistance has caused me to start eating better for weight loss, better control, and less insulin usage.

      2 years ago Log in to Reply
    8. GLORIA MILLER

      T1 for 64 years, I know I am fortunate to have no complications to date. Pumps and CGMs make life much easier today.

      3
      2 years ago Log in to Reply
    9. Louise Robinson

      When my ophthalomoloist said he noticed the beginnings of diabetic retinopathy in the late 1980’s and I began to feel numbness in my toes around the same time, it was a wake-up call for me to tighten my diabetes control. By doing that I have been able to forestall and delay the progression of both of these conditions. More than 20 years later, by keeping my A1c in the low 6’s, and by beginning to use an insulin pump (2011) and CGM (2019), I have been successful it preventing the progression of these conditions and do not require any medication or treatment for them. I’ve begun to use the extended bolus feature of my pump because I suspect incipient gastroparesis. and the extended bolus helps me to avoid lows. Fear of losing my eyesight is a HUGE motivator, especially given the history of macular degeneration in my family…a double whammy for a person with diabetes. After 45 years as a Type 1, I am grateful for the tools and technology available to us to help us better manage our diabetes. But, with diabetes, there are no guarantees.

      1
      2 years ago Log in to Reply
    10. StPetie

      I was informed I was diabetic when I awakened from a 5 day hyperglycemic coma (bg 1500+). When I was found my temp was 82 and resperations were 6. The resultant organ damage required removal of my gall bladder, 50% of my colon (permanent colostomy) and 2 chunks of small intestine. Pancreatic atrophy, splenic infarction, various strictures and multiple jp drains in my abdomen for 6 months due to abcesses were the cherry on top. So yeah, it’s had an impact. Woops, forgot to mention the stroke. LMAO! I just read the previous sentence!

      2 years ago Log in to Reply
    11. JuJuB

      I have had significant joint damage over the years, resulting from inflammation of surrounding tissue (trigger fingers, carpal tunnel syndrome, and frozen shoulders) and when those things are going on, it is consuming. But since taking tighter control of my blood sugars (with a target of 90% in range, and target A1C of 5.0%), I have been unaffected by complications.

      2 years ago Log in to Reply
      1. Karen Brady

        Is carpal tunnel related to T1D?

        2 years ago Log in to Reply
    12. Karen Brady

      I would add “stressful” and/or “anxiety provoking” to the list, because the complication (retinopathy) is not very serious, I had one surgery in 2009 to fix the issue and haven’t had a problem since… but it’s absolutely hanging over my head that I might have more eye issues in the near future. So I worry a lot about it, which affects my mental health greatly.

      4
      2 years ago Log in to Reply
    13. Mary Dexter

      But according to my HMO, they don’t exist.

      2 years ago Log in to Reply
    14. Bea Anderson

      I well remember life before t1. After diagnoses I determined to maintain independence and handle self care with excellence. Diet change and realizing I shouldn’t run/bicycle without letting someone know. Great. Complications or rather fear of complications, has motivated me to time consuming BG monitoring and everything else attached to having t1. Evaluating my autoimmune damages(pancreas and thyroid) and trying to discern normal aging processes (WMD, osteoporosis, arthritis)it gets complicated. Quality of life? Health awareness. Aforementioned independence? Ha! In my world I’m the fixer, caregiver, strong one. But t1 has humbled me. A complication and a blessing to have/need a few people who can help when that rare low BG befuddlement interferes with finding my own glucose!! Not all t1’s have that.

      3
      2 years ago Log in to Reply
    15. Patricia Dalrymple

      For me, motivating. I had an awful diet before LADA T1D diagnosis. I am much healthier today with it than I would’ve been without the diagnosis. Plus, I had irritable bowel before and a change in my diet completely cured that. Quite frankly, THAT disease was life-altering. I’m happy to be rid of that. I’m grateful for insulin. I worry about growing old. No children. A spouse older. But, all-in-all, still feel luckier than most.

      2 years ago Log in to Reply
    16. Patricia Kilwein

      Some stress attached because T1D is life changing. Experiencing some other health issues that are related to it. The insulin pump is great along with cgm….. Also a lot to learn and get used to. But all in all thankful for the advances that have been made. Also very thankful for my doc and his team!

      1
      2 years ago Log in to Reply
    17. Janis Senungetuk

      Life-altering. Diabetic retinopathy hit and was misdiagnosed during the three years I was working on my Master of Fine Arts thesis show. The loss of visual clarity, color distortion and loss of sight in my left eye definitely changed my long term plans.

      2
      2 years ago Log in to Reply
    18. Sarah Austin

      I selected Other because the only complication I’ve had so far was frozen shoulder after surgery for a torn rotator cuff. At the time and through the 18 months it took to recover, it was life altering, negative. Consuming, burdensome, and debilitating. Now that it’s over, though all is well again, I’m very fortunate

      1
      2 years ago Log in to Reply
    19. M C

      Frustrating!

      2
      2 years ago Log in to Reply
    20. Daniel Bestvater

      Life-Impacting
      Most of my large joints have frozen or become very stiff and painful.
      My endocrinologist has had this happen to several of his patients. Started with frozen shoulders about 10 years ago and then gradually effected all of my larger joints. Shoulders, hips, knees, elbows and now my hands and feet.

      1
      2 years ago Log in to Reply
    21. Lauren Carey

      Frustrating

      3
      2 years ago Log in to Reply
    22. Molly Jones

      I learned that you need to have your answers decided with multiple choice. I had burdensome chosen and was thinking if there were any other aspects and the time ran out. That was decided to be my only answer by this website.
      Gastroparesis / and or irritable bowel is a problem that I have that has been attributed to T1D. I’m not sure if I had it before T1D or not, but it has progressed and makes eating and digesting not so easy anymore. It also plays big on my BG with some foods at different times.

      1
      2 years ago Log in to Reply
    23. ConnieT1D62

      Progressive neuropathic joints in my hands and feet has had an effect on how I do things. Had to give up an active semi-professional career as a dance performer due to neuropathic joint changes in my feet affecting my balance and flexibility. But hey, I studied and performed, and later taught and choreographed all kinds of dance styles from early childhood – even before being with “juvenile” diabetes nosed at age 8 – until age 55. I am now 67 and enjoying retirement doing meaningful activities and things that give me pleasure and joy even with neuropathic joints and cardiomyopathy (regulated with a pacemaker) secondary to a long life with T1D. Had early retinopathy treated with lasers back in 1982 and my eyes have been quiet and stable and ever since.

      2 years ago Log in to Reply
    24. Lawrence Stearns

      Very, very frustrating. I have worked hard from day one to maintain a healthy lifestyle with a steady meal plan and lots of aerobic exercise (running). However, my T1D and messed up autoimmune system have challenged me throughout my life. I have severe calcium deposits on both of my shoulders, that a doctor told me was common with diabetics. I have had two surgeries, and still live in significant pain every day. Also gastroparesis, irritable bowel. Celiac disease. And, a host of other related maladies. Now, my eyes are giving me problems. A1c at 6.1, usually below 6. Go figure.

      2 years ago Log in to Reply
    25. Bill Williams

      Irritating.

      2 years ago Log in to Reply
    26. Phyllis Lewis

      I have recently been diagnosed with Stage 3 kidney disease and am now seeing a nephrologist. Changes to my meds, increased hydration and decreased sodium in my diet.

      2 years ago Log in to Reply
    27. Cheryl Seibert

      I answered “Deteriorative”. A year ago with 54 yrs T1D, I could have answered “N/A”, but I’ve suddenly developed a diabetic “snowflake” cataract which will deteriorate my quality of life until I have surgery. It is more irritating I can’t see perfectly than interfering with quality of life at this point.

      2 years ago Log in to Reply

    If you have experienced complications related to T1D, which of these words most accurately describe the effect of complications on your quality of life? Cancel reply

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