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    • 9 hours ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      "It's a forever learning curve" - so very true
    • 9 hours, 7 minutes ago
      KarenM6 likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      I hesitate to bring this up but I am quite sure this happens more than people realize. I use a tubed pump and small amounts of total daily insulin and have checked the tubing for YEARS for bubbles. YES, they are difficult to "notice" unless you have a good light behind the clear tubing because the insulin is also colorless. I detach and check the tubing in the morning and before bedtime if not before the evening meal...I'm talking about significant bubbles----8-10-or12 inches in length can appear and you would NOT notice them unless you were looking. I wonder how many people wonder why their blood sugar is occasionally high and it's being caused by a significant bubble...NO, not the champagne sized version that's often mentioned to "ignore." The pump company I deal with tried to get me to switch to injections instead but I am an EXPERT with the bubble situation. Also, comments over the years that I am probably not filling the reservoir correctly, etc....just plain silly. I am NOT new at this...LOL!!!
    • 9 hours, 33 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 14 hours, 9 minutes ago
      Janis Senungetuk likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 14 hours, 9 minutes ago
      Richard Wiener likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 14 hours, 29 minutes ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I began playing Pickleball last year in March. When the temperatures started to rise the extra effort my body was experiencing because of the heat got my body hormones out of balance and I began experiencing nausea, higher heart rates and feeling very uncomfortable. I soon realized that I cannot play when is too hot or I’ll end up with ketones. Any new activity when on. Insulin requires adjustments. It’s a forever learning curve. Adding to the heat, last year I was having some absorption problems by the overuse of my abdomen. I have now move the infusion sites to my upper front side and it’s working much better.
    • 14 hours, 30 minutes ago
      Kristine Warmecke likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 14 hours, 30 minutes ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I answered no, but I do experience nausea and/or vomiting, usually on a daily basis, but this is because I have gastroparesis. I have rarely been able to eat breakfast over the last 20+ years as I end up vomiting it all back up ... try explaining that to ward staff in hospital(s). ;-)
    • 14 hours, 50 minutes ago
      Becky Hertz likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 62 years I have skin issues everywhere. I am an avid at rotating every time I change my infusion set. When I was on multiple daily injections, up to 9 per day, I had massive skin hardening. Since on the pump it’s not nearly as bad that’s been 33 years. I take very little insulin my daily basal comes out to 9 units over 24 hours I eat two meals that I count carbs for and try to keep at a minimum of 30-40 per day. Everything is going well. Rotation is key
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I use a pump and have had issues with insulin absorbtion. It seems I have a lot of them on the side I primarily use for infusion sets. I recently switched to the other side of my abdomen and dropped more than one point on my a1c.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      When I first started with my current Endo we would discuss the released and upcoming products and I would tell her about the 'off-market' applications and devices, we both learned from each other. But she was so good with helping me transition to the Dexcom and then the Tandem after Animas was pulled from the Market. She followed my Dex and even finer tuned my Basals and early this year I got an "unbeleivable" 5.4 A1c and we are both extremely happy!
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Yes. But then I self-selected when choosing an endocrinology clinic that pursues cutting-edge advances 40 years ago. Cutting-edge is a phrase that is also often called bleeding-edge because it is often experimental, hit or miss on results, and very expensive. I am convinced the “bleeding” refers to $$$.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      not anymore, and I am happy about it! Most of the time they were recommending things that had been recently pitched to them by a pharmaceutical salesperson or a durable medical supplier. The doctors would give patients the "free samples" and it was often not the best fit, then after the "free" supply ran out, the prices were exorbitant. Maybe it still happens, but I haven't seen it for a while.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The need for better CGM accuracy is a big consideration for me. Also my control is pretty good right now (a1c in the low 6 range). Although I am tempted by the sleep and exercise modes which would be very helpful since I’m getting back in to exercise. So…I keep sitting on the fence…
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I don’t want to change from the Omnipod Dash to Omnipod 5 because the minimum target blood glucose is level is higher than where I like to keep it. My A1C is currently 5.0.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      For the last 5 years, the highest HbA1C I've had was 5.3. For the last 3 years the high, low, & average have been 5.2, 4.7, & 4.9. I'm not willing to go to an AID that sets a target of 6 to 7.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I do MDI. For the last 7 years my A1C has averaged around 4.8. I have no reason to believe that a closed loop automated system could do that well.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      There are many reasons, as well as "something else." My arthritic fingers do not serve me well with a cell phone. I have trouble putting the needle covers back on to my insulin pen needles. If I had to take care of all the fine muscle issues associated with setting a pump up, I would probably require assistance. I am also not drawn to the issues I hear about tissue damage at the infusion sites, or knowing whether everything is seated properly and the insulin is actually flowing. Finally, I just have some kind of negative karma with electronics. I have worked as a lab biochemist. Somehow, I find the weaknesses of every machine in the lab. (the ideal industrial beta-tester) Having said that, what I hear about the numbers achieved with the tandem CIQ gives me pause to consider.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Like others, the "closed loop" runs me too high - even the target bg is too high for me. I use the TandemX2 with BIQ integrated wqith my Dexcom G6. I also appreciate - and use - the temp basal function often. I would lose that with CIQ. L:ike Nilla Eckstrom (I think?) I like to be between 80-90, with maybe up to 120 after I eat.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The constant refilling and site changes...doesn't seem worth it.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Luddites just may be the most comfortable people on earth. 🙃 
    • 1 day, 9 hours ago
      Antsy likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      Holy cow! 8 to 10” bubbles? There is definitely something wrong if that is happening to you. I occasionally get 1/4” inch 10” is excessive. Have you gone in and shown your pump instructor how you’re doing it so that they can help you figure out the problem?
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
      When I was put on insulin, the first dietitian I payed to see said I could eat whatever I wanted as long as I followed the set number of macros (carbs, protein, fats). The stupid diet had my blood sugars all over the map. She didn't care/listen when I told her milk, bread/pasta made me feel really sick. She said because I was on insulin I need to eat a high carb, low protein and low fat diet. What bad advice! Thankfully, I came to my senses and starting reading the experiences of other T1D's who were following the The Bernstein diet.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
      Saw one, recently out of school, when I was first diagnosed ten years ago. She insisted I needed 150 grams of carbs per day minimum and handed me a sheet with meal plans. She explained that I needed those carbs to keep my brain functioning properly. GEEZ. I can only hope she's learned a thing or two since then.
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    From which healthcare provider do you receive the majority of your diabetes care?

    Home > LC Polls > From which healthcare provider do you receive the majority of your diabetes care?
    Previous

    For people who have experience with both an insulin pump and CGM: If you could only choose to use one of these devices, which one would you use? Share why in the comments!

    Next

    If you have experienced complications related to T1D, which of these words most accurately describe the effect of complications on your quality of life?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    43 Comments

    1. Katie L

      I haven’t seen my official MD in 2 or 3 years. I see an NP but really get all my care from my CDE.

      1
      2 years ago Log in to Reply
    2. Mary Dexter

      But all they do is renew my insulin prescription and file the paperwork for my G6. And I have to fight for them. So basically pushing buttons on a screen. I would probably be happier with a trained bird.

      6
      2 years ago Log in to Reply
    3. Annie Wall

      I said endo but it’s really the team of my endo ( who is also my primary care doc) and nurse practitioner. I see each one alternating about 3-4 months.

      2 years ago Log in to Reply
    4. Elizabeth Lessard

      I am a CDCES, so actually I manage myself. But I put my endocrinologist. It is good 2 times a year to have someone else to look at data with me. And an expert.

      2 years ago Log in to Reply
    5. Steven Gill

      For the risk of sounding arrogant I’m my own caretaker. My endocrinologist helped me obtain this pump, the company assigned a DE (in a classroom environment) to help set it up. But especially when I “fell out” a year ago I readjusted my pump insulin output, then my diet, my a1C went room 7.9 to 7.1. I obtained this new 770G setup, set it up, and just now did some major troubleshooting.

      While we need active medical care I’ve been taught from day 1 the doc doesn’t cook for us, doesn’t exercise for us, nor isn’t there when levels go askew.

      Only once had a “hand in” team. Was taught it was up to me.

      7
      2 years ago Log in to Reply
      1. Louise Robinson

        I agree with you that we have a responsibility to ourselves to learn as much as we can about managing our diabetes. We have to understand what we need to do and have the determination to make the needed lifestyle changes in diet and excercise to help achieve those ends. I’ve learned enough to be able to make changes and adjustments in my pump’s insulin delivery as well in order to do that. My endo is part of my team to help and guide me, but ultimately, the larger responsibility lies with me.

        5
        2 years ago Log in to Reply
      2. AnitaS

        I may be mistaken, but it sounds like you don’t go to any type of medical person? I am sure I must be wrong as not only does a medical person order blood testing for other hormones/enzymes besides glucose. But yes, diabetes is definitely a disease that the day-to-day management is done by the person who has this disease.

        2 years ago Log in to Reply
    6. Louise Robinson

      When I first retired to Florida nearly 20 yrs ago, I used my PCP to handle my Type 1 diabetes. (Dx’d Type 1 in 1976.) That PCP nearly killed me with his advice/suggestions. I was on MDI at the time. It was evident that he was treating me as a Type 2 (despite my telling him I was a Type 1). To handle my increasingly occurring hypoglycemic episodes he increased my Lantus dose and suggested I not bolus for my meals. I self-referred to an endo (nearest one was over an hour away) who reduced my Lantus and re-educated me about carb to insulin ratios. Within 6 months of seeing the endo, I was on an insulin pump (which I had resisted for years…foolish me!)

      2 years ago Log in to Reply
    7. connie ker

      I saw an endocrinologist in a large city practice. Since then, I have seen NPs in this practice. Now one drives to my hometown, so that’s what I am doing now for convenience. After years of living with this disease, you become your own medical advisor, not by choice but by living with this T1D full time job.

      2
      2 years ago Log in to Reply
      1. n6jax@scinternet.net

        I agree after 68 years of this.. BTW I am “sweet charlie”..

        1
        2 years ago Log in to Reply
    8. Gerald Oefelein

      Diobetologist

      2 years ago Log in to Reply
    9. Kevin McCue

      I go to the endocrinologist office. Never know who will walk through the door. Sometimes it’s a nurse practitioner or physician’s assistant instead of the doc.

      1
      2 years ago Log in to Reply
    10. TEH

      I see my Nurse practitioner 80% and Endo 20%. The NP nows alot more about the pump, where the Endo knows the physiological stuff.

      2 years ago Log in to Reply
    11. Lawrence Stearns

      When I lived up north and went to Joslin, Syracuse, I always saw the same doctor, Endocrinologist. However, since I’ve lived in the south, I go to an Endocrinologist department in a major hospital. However, I have not seen an Endocrinologist in many years. The person I see is either a NP or a PA, I really don’t know her title, but she is not a doctor of Endo.

      2 years ago Log in to Reply
    12. AnitaS

      I have a physician’s assistant who specializes in diabetes. I had an endocrinologist who moved out of state and the hospital system where I get my care for all of my medical needs (more than I care to count and the others are not diabetes related) suggested a few endos and also my physician assistant. I find her as thorough as my past endocrinologist and since my PA works in the same office as the endos, if she would need counseling on a patient’s treatment, she can talk with the endocrinologists

      2 years ago Log in to Reply
    13. Britni

      I put Certified Diabetes Care and Education Specialist. I usually alternate between an Endocrinologist and a Certified Diabetes Educator every 3 months, but when I need a little extra help it’s the CDE I write to or schedule extra visits with.

      1
      2 years ago Log in to Reply
    14. Patricia Kilwein

      The Endocrinologist I go to has a whole team. Diabetic educator, dietician, PA’s, all trained in diabetic care. They are all in the same offices and all are my care team. I mostly see the Doctor, then have the others involved when needed.

      2 years ago Log in to Reply
    15. M Fedor

      I used to see an endo once per year, mainly to review lab results. We never discussed blood sugar management details and I stayed >95% in range. Now that I’m on Medicare, I can’t get insulin or supplies unless I see someone every 90 days. To avoid wasting too much of my endo’s time, I now alternate visits between my endo and a CDE. They’re both great, but I can’t say that all the extra medical attention has improved my control.

      2
      2 years ago Log in to Reply
    16. LizB

      For many years I saw the NP who worked alongside the endo. The NP was mostly in charge of patients on insulin pumps. Then I was back to seeing the endo. For the past year I had to switch practices due to insurance and the place I go to now doesn’t have others on staff so I’ve only seen the endo.

      2 years ago Log in to Reply
    17. kflying1@yahoo.com

      Myself. I use the PCP or endo NP for prescription support, yet my 11 years with t1 has taught me the “professionals” have no interest in how the answers for diabetics varies so widely per each diabetic, and their canned answers are useless at best, harmful at worst.

      1
      2 years ago Log in to Reply
      1. Christina Trudo

        It’s a shame you haven’t encountered one of the good ones.

        2 years ago Log in to Reply
      2. n6jax@scinternet.net

        After 68 years T1D, I say MYSELF also !!!

        2 years ago Log in to Reply
    18. Ahh Life

      In football, quarterbacks and wide receivers get the glory for scoring touchdowns, but the battle is won in the trenches by the meat-and-potatoes linemen. We all know who those guys are. It is us doing the blocking and tackling with T1D on every play.

      An excellent article on shortcomings on dealing with chronic illnesses describes how the U.S. health care system undervalues human relationships, connections, and longitudinal primary care, so it’s unsurprising that it falls short so frequently . . .

      https://www.nejm.org/doi/full/10.1056/NEJMp2112063?query=endocrinology

      2
      2 years ago Log in to Reply
    19. Mig Vascos

      I take turns with my endocrinologist and nurse practitioner every 3 months I meet with one of them. Their advice is always the same: avoid the lows. Occasionally I get some suggestions about pump adjustments or discuss new devices but there isn’t that much more right now we can change to what I’m doing. They’re both very good about writing my prescriptions and following Medicare guidelines.

      1
      2 years ago Log in to Reply
    20. Stephen Woodward

      Diabetologist, missing from list oops.

      2 years ago Log in to Reply
    21. Sealani Weiner

      It really helps that my endo is a type one. For many of the rest, it just an intellectual activity. He is compassionate and kind around the issues that we all struggle with.

      2
      2 years ago Log in to Reply
    22. Keli Godin

      Nurse practitioner at endocrinologist office. She is type 1 and always knows what’s being developed and coming out soon, which I really like.

      1
      2 years ago Log in to Reply
    23. Christina Trudo

      I said endocrinologist, but most years it is 2 appointments with my MD in that office and 2 with one of the Nurse practitioners/ Physicians assistant (I forget which he is but those are fairly equivalent designations). They are usually interspersed evenly. I also see a CDE once or twice a year and every couple of years I may get a nutritionist refresher. There are often new perspectives to learn from (and discoveries/inventions). This seems much more sound to me than listening to strangers or diabetes “influencer” doctors on the internet. (BTW I haven’t read other comments so please don’t read this as a critique of others’ choices, which are entirely theirs to make. )

      2 years ago Log in to Reply
    24. Ehamilton0722

      NP at an endocrinologist’s office. I’ve actually never been more satisfied with my care and sugars!

      2 years ago Log in to Reply
    25. Lynn Smith

      I said Other. I see my endocrinologist 50% of my appointments and the nurse practitioner the other half.

      2 years ago Log in to Reply
    26. n6jax@scinternet.net

      Myself !!

      1
      2 years ago Log in to Reply
    27. Molly Jones

      I chose Endo.
      The PA or NP (unsure of their title) comes in to every appt to help set up data, current meds and my current questions, but the majority of time is spent with my Endo to make any major changes to my care. (pump changes, major insulin sensitivities, carb ratios, ….)

      2 years ago Log in to Reply
    28. Megan W

      I see the NP or PA at the endocrinology clinic. I have very good control so they just ask if I want to speak with the endo also, but I usually don’t because I don’t need to.

      2 years ago Log in to Reply
    29. n6jax@scinternet.net

      I said MYSELF and I tried to explain, but I seemed to be cut off from making my comment ??

      2 years ago Log in to Reply
    30. Wanacure

      An endocrinologist was nec for me to get my CGM. I had to be referred by my primary care physician. For advice I can email endocrinologist or PCP or dietician, et al & get response w/i 24 hours. I have 24 hr/365 phone access to nurse. When I was first diagnosed an excellent endocrinologist was really helpful. Over the years I’ve relied on New England Journal of Medicine, books, peer-reviewed research, etc.. Bernstein was right: cut the addiction to carbs! I took the initiative on getting a booster for COVID-19, before my health care provider suggested it. I stopped taking baby aspirin, notified my primary care physician of the NEJM and British Journal of Medicine articles, and the health care provider credited HIM for eliminating baby aspirin!

      2 years ago Log in to Reply
    31. ConnieT1D62

      I have been under the care of a dynamic Nurse Practitioner who specializes in diabetes care and management in an endocrinology practice and who is also a long time CDE/CDCES. I have been with her for for over 17 years and only see an MD endocrinologist on very rare occasions.

      2 years ago Log in to Reply
      1. ConnieT1D62

        I am also a RN, CDCES with a MSN in diabetes nursing as a clinical specialty. Over the years I have had the privilege of being a patient of, and working along side some pretty dynamic and influential diabetes care providers. As a result I have learned to manage myself (as several others have mentioned in their replies), advocate for others living with diabetes, and educate/teach/instruct uninformed health care providers about up-to-date and relevant issues in diabetes care.

        2 years ago Log in to Reply
    32. Jneticdiabetic

      I see my Endo must often, but feel I get the most practical advice from my visits with my NP/CDCES, especially in terms of technology adjustments.

      2 years ago Log in to Reply
    33. NancyT

      My clinic is dedicated to diabetes care. I see both my endocrinologist and her physcian’s assistant s needed but generally that is appointments every 90 days, alternating between, Doc and PA.

      2 years ago Log in to Reply
    34. Lenora Ventura

      Over the past 36+ years, I have seen an Endocrinologist the majority of the time but the past 11 years I have been seeing a Nurse Practitioner who is by far the BEST specialist I have ever had. He is more knowledgeable and on the cutting edge of all new therapies. Position & title mean nothing.

      2 years ago Log in to Reply
    35. James Cheairs

      Quite honestly, having had T1D for 26 years and being committed to stay up to date with the latest evidence, I get little value seeing an endo other than getting my prescriptions filled. I was finally able to find an internal medicine doc who was willing to help me manage T1D and be PCP. I initially had to provide guidance on how to write the pump, CGM and insulin scripts but it is working fantastically and am in healthy control. However, I understand the value that endos provide to many so by no means am I down playing the importance of this specialty to the T1D community.

      2 years ago Log in to Reply
    36. Chris Deutsch

      My visits to discuss my diabetes care are alternately with an endocrinologist and a nurse or dietician CDE. I see each three times a year.

      2 years ago Log in to Reply
    37. Donna Clemons

      Endo. Has more knowledge about Diabetes than the regular MD. He will ask if I need training on anything. Being a cgm or pump.

      1 year ago Log in to Reply

    From which healthcare provider do you receive the majority of your diabetes care? Cancel reply

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