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    • 4 hours, 53 minutes ago
      Lenora Ventura likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 6 hours, 28 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      same here. I was able to get a neurologist to diagnose it as that.
    • 6 hours, 29 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I have developed this very weird numbness and pain in my left outer thigh which I attribute to neuropathy, although there has been no official diagnosis. Of course, like every good diabetic, I did my own research and found that it is called meralgia paresthetica. It only comes on intermittently and rarely interferes with daily functions. Rest remedies it. Having lived with T1D for 56 years so far, I consider myself to be pretty lucky...so far.
    • 6 hours, 30 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I feel the same way. I'm never sure who to believe or how to get a valid assessment.
    • 6 hours, 30 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 12 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      Gastroparesis
    • 9 hours, 13 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      In late summer of 2017 I lost all feeling in both lower extremities to my hips and both upper extremities to my shoulders. It was not all diabetic related though. Lowered the drug in my chemo regimen but didn't reverse by next treatment, so that drug was stopped. Slowly I regained feeling in my arms and legs; left with no sensation in hands & feet up to ankles & wrist. I'm thankful that my oncologist realized that it wasn't just a diabetic thing.
    • 12 hours, 3 minutes ago
      Sandra Rosborough likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 12 hours, 51 minutes ago
      KSannie likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 58 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      My feet were killing me when I started taking insulin. Saw on another website that alpha lipoic acid (ALA) was good for neuropathy. Once I started taking it, the pain was gone within a week! Still using it 20 years later, still pain free
    • 15 hours, 59 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 18 minutes ago
      magoo likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 19 minutes ago
      Mike S likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 32 minutes ago
      Dennis Dacey likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 1 day, 5 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      I spend a bit of time in my garden, yardwork , the animal shelter. Days I'm not with the Shelter my herd gets walked.
    • 1 day, 5 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      avid cyclist for many years now ........... OK ..... add in resident year around maintenance yard work
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Walking and hiking.
    • 1 day, 13 hours ago
      Steven Gill likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Try pausing insulin on your pump if you are below 150mg/dl.
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 16 hours ago
      Dennis Dacey likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 16 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 16 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 16 hours ago
      TEH likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 2 days, 13 hours ago
      Bonnie Lundblom likes your comment at
      What event(s) prompt you to calibrate your CGM? Select all that apply.
      I always do 3 successive finger sticks about 1 day after applying a new G7 sensor. I'm amazed at how much variability there is among sensors. Some are spot on, and remain so during the entire 10 days, while the worst I saw was off 100 mg/dl at the start (reading half of the actual level) (I demanded -- and got -- a replacement for that outlier, since I did't want to have to trust it for days and go through piles of strips just to see if it was as bad as it seemed). I generally also do another batch of 3 tests several days later, just to check. I care about accuracy. I've found that it is essential to do multiple sequential finger sticks to get an accurate number from strips, since they too are far more variable than I am comfortable with. If the variability in strips is too great, I do 4 tests rather than 3, and throw out one, averaging the rest. I love my CGM, but it doesn't completely replace strips.
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    From which healthcare provider do you receive the majority of your diabetes care?

    Home > LC Polls > From which healthcare provider do you receive the majority of your diabetes care?
    Previous

    For people who have experience with both an insulin pump and CGM: If you could only choose to use one of these devices, which one would you use? Share why in the comments!

    Next

    If you have experienced complications related to T1D, which of these words most accurately describe the effect of complications on your quality of life?

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    43 Comments

    1. Katie L

      I haven’t seen my official MD in 2 or 3 years. I see an NP but really get all my care from my CDE.

      1
      4 years ago Log in to Reply
    2. Mary Dexter

      But all they do is renew my insulin prescription and file the paperwork for my G6. And I have to fight for them. So basically pushing buttons on a screen. I would probably be happier with a trained bird.

      6
      4 years ago Log in to Reply
    3. Annie Wall

      I said endo but it’s really the team of my endo ( who is also my primary care doc) and nurse practitioner. I see each one alternating about 3-4 months.

      4 years ago Log in to Reply
    4. Elizabeth Lessard

      I am a CDCES, so actually I manage myself. But I put my endocrinologist. It is good 2 times a year to have someone else to look at data with me. And an expert.

      4 years ago Log in to Reply
    5. Steven Gill

      For the risk of sounding arrogant I’m my own caretaker. My endocrinologist helped me obtain this pump, the company assigned a DE (in a classroom environment) to help set it up. But especially when I “fell out” a year ago I readjusted my pump insulin output, then my diet, my a1C went room 7.9 to 7.1. I obtained this new 770G setup, set it up, and just now did some major troubleshooting.

      While we need active medical care I’ve been taught from day 1 the doc doesn’t cook for us, doesn’t exercise for us, nor isn’t there when levels go askew.

      Only once had a “hand in” team. Was taught it was up to me.

      7
      4 years ago Log in to Reply
      1. Louise Robinson

        I agree with you that we have a responsibility to ourselves to learn as much as we can about managing our diabetes. We have to understand what we need to do and have the determination to make the needed lifestyle changes in diet and excercise to help achieve those ends. I’ve learned enough to be able to make changes and adjustments in my pump’s insulin delivery as well in order to do that. My endo is part of my team to help and guide me, but ultimately, the larger responsibility lies with me.

        5
        4 years ago Log in to Reply
      2. AnitaS

        I may be mistaken, but it sounds like you don’t go to any type of medical person? I am sure I must be wrong as not only does a medical person order blood testing for other hormones/enzymes besides glucose. But yes, diabetes is definitely a disease that the day-to-day management is done by the person who has this disease.

        4 years ago Log in to Reply
    6. Louise Robinson

      When I first retired to Florida nearly 20 yrs ago, I used my PCP to handle my Type 1 diabetes. (Dx’d Type 1 in 1976.) That PCP nearly killed me with his advice/suggestions. I was on MDI at the time. It was evident that he was treating me as a Type 2 (despite my telling him I was a Type 1). To handle my increasingly occurring hypoglycemic episodes he increased my Lantus dose and suggested I not bolus for my meals. I self-referred to an endo (nearest one was over an hour away) who reduced my Lantus and re-educated me about carb to insulin ratios. Within 6 months of seeing the endo, I was on an insulin pump (which I had resisted for years…foolish me!)

      4 years ago Log in to Reply
    7. connie ker

      I saw an endocrinologist in a large city practice. Since then, I have seen NPs in this practice. Now one drives to my hometown, so that’s what I am doing now for convenience. After years of living with this disease, you become your own medical advisor, not by choice but by living with this T1D full time job.

      2
      4 years ago Log in to Reply
      1. n6jax@scinternet.net

        I agree after 68 years of this.. BTW I am “sweet charlie”..

        1
        4 years ago Log in to Reply
    8. Gerald Oefelein

      Diobetologist

      4 years ago Log in to Reply
    9. Kevin McCue

      I go to the endocrinologist office. Never know who will walk through the door. Sometimes it’s a nurse practitioner or physician’s assistant instead of the doc.

      1
      4 years ago Log in to Reply
    10. TEH

      I see my Nurse practitioner 80% and Endo 20%. The NP nows alot more about the pump, where the Endo knows the physiological stuff.

      4 years ago Log in to Reply
    11. Lawrence Stearns

      When I lived up north and went to Joslin, Syracuse, I always saw the same doctor, Endocrinologist. However, since I’ve lived in the south, I go to an Endocrinologist department in a major hospital. However, I have not seen an Endocrinologist in many years. The person I see is either a NP or a PA, I really don’t know her title, but she is not a doctor of Endo.

      4 years ago Log in to Reply
    12. AnitaS

      I have a physician’s assistant who specializes in diabetes. I had an endocrinologist who moved out of state and the hospital system where I get my care for all of my medical needs (more than I care to count and the others are not diabetes related) suggested a few endos and also my physician assistant. I find her as thorough as my past endocrinologist and since my PA works in the same office as the endos, if she would need counseling on a patient’s treatment, she can talk with the endocrinologists

      4 years ago Log in to Reply
    13. Britni

      I put Certified Diabetes Care and Education Specialist. I usually alternate between an Endocrinologist and a Certified Diabetes Educator every 3 months, but when I need a little extra help it’s the CDE I write to or schedule extra visits with.

      1
      4 years ago Log in to Reply
    14. Patricia Kilwein

      The Endocrinologist I go to has a whole team. Diabetic educator, dietician, PA’s, all trained in diabetic care. They are all in the same offices and all are my care team. I mostly see the Doctor, then have the others involved when needed.

      4 years ago Log in to Reply
    15. M Fedor

      I used to see an endo once per year, mainly to review lab results. We never discussed blood sugar management details and I stayed >95% in range. Now that I’m on Medicare, I can’t get insulin or supplies unless I see someone every 90 days. To avoid wasting too much of my endo’s time, I now alternate visits between my endo and a CDE. They’re both great, but I can’t say that all the extra medical attention has improved my control.

      2
      4 years ago Log in to Reply
    16. LizB

      For many years I saw the NP who worked alongside the endo. The NP was mostly in charge of patients on insulin pumps. Then I was back to seeing the endo. For the past year I had to switch practices due to insurance and the place I go to now doesn’t have others on staff so I’ve only seen the endo.

      4 years ago Log in to Reply
    17. kflying1@yahoo.com

      Myself. I use the PCP or endo NP for prescription support, yet my 11 years with t1 has taught me the “professionals” have no interest in how the answers for diabetics varies so widely per each diabetic, and their canned answers are useless at best, harmful at worst.

      1
      4 years ago Log in to Reply
      1. Christina Trudo

        It’s a shame you haven’t encountered one of the good ones.

        4 years ago Log in to Reply
      2. n6jax@scinternet.net

        After 68 years T1D, I say MYSELF also !!!

        4 years ago Log in to Reply
    18. Ahh Life

      In football, quarterbacks and wide receivers get the glory for scoring touchdowns, but the battle is won in the trenches by the meat-and-potatoes linemen. We all know who those guys are. It is us doing the blocking and tackling with T1D on every play.

      An excellent article on shortcomings on dealing with chronic illnesses describes how the U.S. health care system undervalues human relationships, connections, and longitudinal primary care, so it’s unsurprising that it falls short so frequently . . .

      https://www.nejm.org/doi/full/10.1056/NEJMp2112063?query=endocrinology

      2
      4 years ago Log in to Reply
    19. Mig Vascos

      I take turns with my endocrinologist and nurse practitioner every 3 months I meet with one of them. Their advice is always the same: avoid the lows. Occasionally I get some suggestions about pump adjustments or discuss new devices but there isn’t that much more right now we can change to what I’m doing. They’re both very good about writing my prescriptions and following Medicare guidelines.

      1
      4 years ago Log in to Reply
    20. Stephen Woodward

      Diabetologist, missing from list oops.

      4 years ago Log in to Reply
    21. Sealani Weiner

      It really helps that my endo is a type one. For many of the rest, it just an intellectual activity. He is compassionate and kind around the issues that we all struggle with.

      2
      4 years ago Log in to Reply
    22. Keli Godin

      Nurse practitioner at endocrinologist office. She is type 1 and always knows what’s being developed and coming out soon, which I really like.

      1
      4 years ago Log in to Reply
    23. Christina Trudo

      I said endocrinologist, but most years it is 2 appointments with my MD in that office and 2 with one of the Nurse practitioners/ Physicians assistant (I forget which he is but those are fairly equivalent designations). They are usually interspersed evenly. I also see a CDE once or twice a year and every couple of years I may get a nutritionist refresher. There are often new perspectives to learn from (and discoveries/inventions). This seems much more sound to me than listening to strangers or diabetes “influencer” doctors on the internet. (BTW I haven’t read other comments so please don’t read this as a critique of others’ choices, which are entirely theirs to make. )

      4 years ago Log in to Reply
    24. Ehamilton0722

      NP at an endocrinologist’s office. I’ve actually never been more satisfied with my care and sugars!

      4 years ago Log in to Reply
    25. Lynn Smith

      I said Other. I see my endocrinologist 50% of my appointments and the nurse practitioner the other half.

      4 years ago Log in to Reply
    26. n6jax@scinternet.net

      Myself !!

      1
      4 years ago Log in to Reply
    27. Molly Jones

      I chose Endo.
      The PA or NP (unsure of their title) comes in to every appt to help set up data, current meds and my current questions, but the majority of time is spent with my Endo to make any major changes to my care. (pump changes, major insulin sensitivities, carb ratios, ….)

      4 years ago Log in to Reply
    28. Megan W

      I see the NP or PA at the endocrinology clinic. I have very good control so they just ask if I want to speak with the endo also, but I usually don’t because I don’t need to.

      4 years ago Log in to Reply
    29. n6jax@scinternet.net

      I said MYSELF and I tried to explain, but I seemed to be cut off from making my comment ??

      4 years ago Log in to Reply
    30. Wanacure

      An endocrinologist was nec for me to get my CGM. I had to be referred by my primary care physician. For advice I can email endocrinologist or PCP or dietician, et al & get response w/i 24 hours. I have 24 hr/365 phone access to nurse. When I was first diagnosed an excellent endocrinologist was really helpful. Over the years I’ve relied on New England Journal of Medicine, books, peer-reviewed research, etc.. Bernstein was right: cut the addiction to carbs! I took the initiative on getting a booster for COVID-19, before my health care provider suggested it. I stopped taking baby aspirin, notified my primary care physician of the NEJM and British Journal of Medicine articles, and the health care provider credited HIM for eliminating baby aspirin!

      4 years ago Log in to Reply
    31. ConnieT1D62

      I have been under the care of a dynamic Nurse Practitioner who specializes in diabetes care and management in an endocrinology practice and who is also a long time CDE/CDCES. I have been with her for for over 17 years and only see an MD endocrinologist on very rare occasions.

      4 years ago Log in to Reply
      1. ConnieT1D62

        I am also a RN, CDCES with a MSN in diabetes nursing as a clinical specialty. Over the years I have had the privilege of being a patient of, and working along side some pretty dynamic and influential diabetes care providers. As a result I have learned to manage myself (as several others have mentioned in their replies), advocate for others living with diabetes, and educate/teach/instruct uninformed health care providers about up-to-date and relevant issues in diabetes care.

        4 years ago Log in to Reply
    32. Jneticdiabetic

      I see my Endo must often, but feel I get the most practical advice from my visits with my NP/CDCES, especially in terms of technology adjustments.

      4 years ago Log in to Reply
    33. NancyT

      My clinic is dedicated to diabetes care. I see both my endocrinologist and her physcian’s assistant s needed but generally that is appointments every 90 days, alternating between, Doc and PA.

      4 years ago Log in to Reply
    34. Lenora Ventura

      Over the past 36+ years, I have seen an Endocrinologist the majority of the time but the past 11 years I have been seeing a Nurse Practitioner who is by far the BEST specialist I have ever had. He is more knowledgeable and on the cutting edge of all new therapies. Position & title mean nothing.

      4 years ago Log in to Reply
    35. James Cheairs

      Quite honestly, having had T1D for 26 years and being committed to stay up to date with the latest evidence, I get little value seeing an endo other than getting my prescriptions filled. I was finally able to find an internal medicine doc who was willing to help me manage T1D and be PCP. I initially had to provide guidance on how to write the pump, CGM and insulin scripts but it is working fantastically and am in healthy control. However, I understand the value that endos provide to many so by no means am I down playing the importance of this specialty to the T1D community.

      4 years ago Log in to Reply
    36. Chris Deutsch

      My visits to discuss my diabetes care are alternately with an endocrinologist and a nurse or dietician CDE. I see each three times a year.

      4 years ago Log in to Reply
    37. Donna Clemons

      Endo. Has more knowledge about Diabetes than the regular MD. He will ask if I need training on anything. Being a cgm or pump.

      3 years ago Log in to Reply

    From which healthcare provider do you receive the majority of your diabetes care? Cancel reply

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