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    • 1 hour, 25 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 1 hour, 25 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 1 hour, 28 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I was shocked that so many people haven't heard about it. It is all over social media. It looks promising to me. Of course the trial participants need to be followed for awhile as no drug gets approved by the FDA in short time, but so far all of the first 12 trial participants are insulin free and the 1st participant has been insulin free for over 1-1/2 years with no complications that I've heard of.
    • 3 hours, 31 minutes ago
      Anita Stokar likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 3 hours, 32 minutes ago
      Anita Stokar likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 4 hours, 14 minutes ago
      Ahh Life likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      This question is an advertisement. In my opinion it is a misleading advertisement. Tegoprupart is an immunosuppressant. A trial investigating using the drug with islet cell recipients has barely gotten started. 90-ish percent of all phase 3 drug trials fail. Drug development is hard. I wish them luck at the same time I wish they weren't misleading people about the investigational use of their drug.
    • 5 hours, 17 minutes ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 5 hours, 17 minutes ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 6 hours, 57 minutes ago
      Gerald Oefelein likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      AI Overview Tegoprubart, an anti-CD40L antibody, is generally safe and well-tolerated, with a cleaner safety profile than traditional calcineurin inhibitors (like tacrolimus) in early trials, specifically showing lower risks of kidney toxicity and diabetes. Common side effects reported include fatigue, headaches, muscle spasms, and potential infections. National Institutes of Health (.gov) National Institutes of Health (.gov) +4 Common Side Effects and Adverse Events In clinical trials, the most frequent treatment-emergent adverse events (TEAEs) observed included: National Institutes of Health (.gov) National Institutes of Health (.gov) +2 Fatigue (approx. 25.9%) Falls (approx. 22.2%) Headaches (approx. 20.4%) Muscle spasms (approx. 11.1%) Upper respiratory tract infections Sleepiness Key Safety Advantages Over Standard Care (Tacrolimus) Tegoprubart aims to avoid the, often, severe, long-term side effects of standard anti-rejection meds like tacrolimus
    • 6 hours, 58 minutes ago
      Lawrence S. likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      No thanks.
    • 1 day, 2 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 1 day, 2 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 1 day, 2 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day, 2 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 1 day, 2 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 2 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 2 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      If it requires immunosuppressive medication I have no interest. I'll continue to manage with insulin.
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely, especially if stem-cell generated islet cells are transplanted without the need for immunosuppressants. If tegoprubart is needed and is found safe after the trials are complete, then likely.
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely. Although the simplicity of spifflicating is often overrated. 🤓☝️
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
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    If you were to request the next available appointment with your T1D healthcare provider, which of these options best describes when that next available appointment would be?

    Home > LC Polls > If you were to request the next available appointment with your T1D healthcare provider, which of these options best describes when that next available appointment would be?
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    If you have experienced complications related to T1D, which of these words most accurately describe the effect of complications on your quality of life?

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    Over the past 12 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, etc.?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    27 Comments

    1. Molly Jones

      Other
      It depends on the urgency of what I needed to be seen for was. In my current state of health it would be 3-4 months as my Endo desires to see me quarterly.
      I can call or text the hospital clinic to speak with my doctor’s team or nurse on call and receive answers twenty four hours a day. They would determine if I needed to come in right away or resolve a problem over the phone. Just calling to make an appointment without the desire of my Endo or another doctor is difficult as they are incredibly busy.

      1
      4 years ago Log in to Reply
    2. Clare Fishman

      It would obviously depend on the urgency of the situation. I make my appointments 6 months ahead of time but if it was emergent my endo would make room for me ASAP.

      3
      4 years ago Log in to Reply
    3. Kristine Warmecke

      I have my appointment’s scheduled until either July or September of 2022. If I had something come up before my next one, the office and my endo would work to fit me in somewhere. I’ve also seen her in her research lab office, when nothing else was available. One of the many reason’s I’ve stayed with her/gone back to her, for the past 30 years.

      4 years ago Log in to Reply
    4. Gary Taylor

      I answered “other” because I really don’t know how quickly I could get in.

      1
      4 years ago Log in to Reply
    5. LizB

      3 months is usually the earliest the next appointments are available whenever I’ve called. That’s been true with both my past endo and my current one.

      4 years ago Log in to Reply
    6. Greg Felton

      I’m guessing 1-2 months, because I have never tried it and I believe the clinic is very busy. I normally schedule checkups 3-4 months in advance, and it’s never an issue to find a slot. If I had a pressing need I would either contact the clinic with a question via their online portal, or see my primary care physician.

      2
      4 years ago Log in to Reply
    7. Patricia Kilwein

      Because it is so hard to get in I make my 3 month app 6 months out. So I have an appt every 3 months. If there’s an urgent matter they make time to see me.

      1
      4 years ago Log in to Reply
    8. Mary Dexter

      That’s if they don’t laugh at me.

      1
      4 years ago Log in to Reply
    9. Beckett Nelson

      I put “other” as I’m not sure. When I have an appointment, we always book the next one out 3-4months later. Years ago I ran into problems and they got me in same or next day after hours. Like others have said, I’m sure it depends on urgency?

      1
      4 years ago Log in to Reply
    10. Sherolyn Newell

      I am guessing based on making my regular appointments. I haven’t had any urgent needs, I would certainly hope they would make an effort to fit me in if necessary.

      1
      4 years ago Log in to Reply
    11. Henry Renn

      Scheduled every 3 months per Medicare. On needs basis much sooner.

      4 years ago Log in to Reply
    12. John Sanford

      Depends why I wanted to talk to my doctor. I can actually make an appointment it would probably be a few weeks or so or I can do a video visit but if I just had a question I have an app I can talk to any doctor and they’ll get back to me when they can.

      1
      4 years ago Log in to Reply
    13. Patricia Dalrymple

      Said other because I have never needed an emergency appt. I know that it is best if I schedule my next 4 month appt before I leave the current one. Have never had a problem.

      2
      4 years ago Log in to Reply
    14. HMW

      I said “within a month” which would be for a regular followup. However, my endo has seen me or spoken to me on the phone within a few days for an acute issue (illness with severe hypo or hyper-glycemia) or when I needed to see her more often, such as when I was pregnant.

      4 years ago Log in to Reply
    15. Sahran Holiday

      Have only had one telehealth visit and one in person visit with current endocrinologist. She wants me to see the diabetes educator first who wants me to upload my Omnipod records. It’ll be a while.

      4 years ago Log in to Reply
      1. Wanacure

        Always read your comments, girl-friend. Yeah, upload those records. You may be surprised how good your control is!

        4 years ago Log in to Reply
    16. ConnieT1D62

      NA as in Unknown. Depends on what the circumstance is. However, since she is booked out several months ahead I doubt if I could see her anytime sooner than later, but I may be able to see one of the newer provider colleagues that have joined the practice. I book my q 3 month appointments with her a year in advance.

      4 years ago Log in to Reply
    17. Donald Cragun

      I have never needed to ask for an unscheduled appointment with my current T1D healthcare provider. I would expect to be able to walk in and be seen (after waiting a while), but I have no way of knowing until I need to try it.

      4 years ago Log in to Reply
      1. Wanacure

        Donald, if it’s an emergency call your free 24-hr 365-day nurse. And/or pay $20 to taxi cab for ride to Urgent Care. Be prepared for exorbitant charge if you go to KP Urgent Care. Emergency Rooms in US are waste of your time. Take a book to read. Just speaking from my experience.

        4 years ago Log in to Reply
    18. Joan Fray

      Depends on the severity of my problem.

      4 years ago Log in to Reply
    19. PamK

      I am guessing 2 – 3 months from now only because I know when I have to reschedule an appointment it is usually @ 6 weeks out. When I’ve had a question or a problem they call me, but they don’t schedule an appointment. I’m not sure under what circumstances they would.

      4 years ago Log in to Reply
    20. Bonnie Lundblom

      I just started this week with a new endocrinologist and it took me 2 months to get in to be seen. From this point on if I stay with him I’ll be seen every 3 months with my next appointment made at the end of each visit. If my previous endocrinologist joins another local practice I’d want to go back to her.

      4 years ago Log in to Reply
    21. AnitaS

      I put 2-3 months but I am taking a guess because whenever I see my endo, she just schedules me to see her in 4 months because my control is good. If I was having not-so-good results, she would see me more often.

      4 years ago Log in to Reply
    22. Gemma Matoesian

      Within a few weeks to see my NP, 4-6 months to see MD.

      4 years ago Log in to Reply
    23. Bea Anderson

      I’ve never had a need to be seen on a next available basis. Insurance required every 6 months initially, Medicare requires 3 months, which is ridiculous for otherwise healthy, capable person. Oh well…

      4 years ago Log in to Reply
    24. T1D5/1971

      I have a very good Endo and she is very popular because she is good. Most of my Endo appointments have to be scheduled 6 months in advance in order to keep Medicare happy with the 90 day rule. Unfortunately, that has the effect of having to frequently reschedule the 4x/year required appointments because noone can predict what’s going to happen 6 months from now. Silly rules make our lives harder than necessary and create unnecessary burdens on healthcare systems.

      4 years ago Log in to Reply
    25. Cheryl Seibert

      Depends on how serious my request is. If I need next available, the ideal time would be that day or the next day. I would not request next available if not a serious situation.

      4 years ago Log in to Reply

    If you were to request the next available appointment with your T1D healthcare provider, which of these options best describes when that next available appointment would be? Cancel reply

    You must be logged in to post a comment.




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