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    • 13 hours, 50 minutes ago
      Greg Felton likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 14 hours, 21 minutes ago
      ConnieT1D62 likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      One time I was explaining that a new pump would be too expensive at the time because my deductible had just started over.. and she asked if I had insurance and I said yes….. then she said “then it should be free with insurance.” 🤦‍♀️ She may know a little about the challenges of living with diabetes, but she knows nothing about how insurance works or how costly T1D supplies are.
    • 14 hours, 40 minutes ago
      Steve Rumble likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 15 hours, 11 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I am an RN. Been going to same doctor for about ten years. Took me six years to train him. I am very well read when it comes to my LADA. He trusts my judgement and gives me excellent parameters to make decisions. Recently had a bad case of Covid. Insulin needs changed dramatically. Getting back to normal but he made sure I had scripts to cover my ups and downs with insulin needs.
    • 15 hours, 11 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Mine acknowledges the struggles and challenges that go along with managing T1D in my daily life. She gives suggestions as to what may or may not help and has often asked me I how I handle situations so she can give suggestions to other T1D patient's.
    • 15 hours, 12 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 15 hours, 37 minutes ago
      Jubin Veera likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      The hard spots are fairly frequent with the pump infusion sets. Especially if I go past 3 days which I try to avoid! I don’t think I ever got one from injections. I try heat and massaging to treat them and they normally go away after a day or so. Once I had a large area that I had to treat with antibiotics.
    • 15 hours, 39 minutes ago
      Magnus Hiis likes your comment at
      Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes, or having diabetes-related complications?
      I’m 79. My last orgasm was springtime about 3 or 4 years ago. When I complained of ED, my PCP Rxd 3 to 5 (60-100 mg) sildenafil tablets by mouth about one hour prior to sexual activity. This alone hasn’t worked to bring me up to former sexual capacity that I had 10 years years ago. I’m still considering consulting finding a doctor who’ll prescribe a safe but effective way of administering testosterone or an anabolic steroid in a dose low enough to avoid causing cardiovascular problems but high enough to restore normal ability that I had up to my sixties. My present doctors say it can’t be done, but there are doctors who advertise otherwise. Analogs of the hormone insulin can be delivered in small safe doses, why not testosterone?
    • 1 day, 7 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      We are all so very different, and trying to say that all of us with T1 understand what it's like for another who has the same hill to climb is unproductive. Having a health care provider with T1 may often be helpful just because there's apt to be more knowledge about the specifics. How we respond to the disease is such a personal matter, that I really don't think there are any guaranteed benefits beyond the grasp of the factual. Finding a doc with the same general attitude about the disease does feel good, and sometimes that's all I hope for after working hard to make peace with the disease for 70 years. Asking my doc to "get it" used to be almost my mantra, but I've come to realize that the ones who don't just see us as unruly childrenchildren
    • 1 day, 7 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Both my endocrinologist and my nurse practitioner are great. They compliment me on the way I take care of my life and health and make aure I get all the supplies I need managing all the paperwork Medicare and insurance requires. My nurse practitioner who works with me on managing the pump has her own opinion about the pump settings based on her technical knowledge which is different than what I do with my settings based on living with them. She has thru the years learned to respect what I do and is surprised with how my settings work. So we are now at peace. Both very supportive.
    • 1 day, 10 hours ago
      pru barry likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 10 hours ago
      mojoseje likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I said yes but that refers to my nurse practitioner who sees me every other visit, if not more often. The doctor may know how hard I try but perhaps takes my efforts for granted.
    • 1 day, 13 hours ago
      Anneyun likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      How can someone without the disease really understand what it is to live with it? I have never had a doctor with T1D in 60 years.
    • 1 day, 13 hours ago
      Bruce Schnitzler likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 13 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My endo is young, very empathetic, thorough, always asks for my input, and does research. I am blessed too. have him, and the one before for over 25 yrs.
    • 1 day, 13 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 14 hours ago
      lis be likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 1 day, 14 hours ago
      Daniel Bestvater likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      TEH likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I have no clue what my T1D health care provider understands about my daily challenges and I don’t know about his daily challenges either. Not sure why I should care as long as I have access to information how to best take care of myself.
    • 1 day, 15 hours ago
      Jeff Marvel likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      Richard Wiener likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Hi Connie, I still have my glass syringe and show it off occasionally. We boiled the needle and syringe every morning and sharpened the needle with a file. I was diagnosed at age 6 in 1963. Life is so different now! Then, my diet was extremely limited as was my exercise. Now, I am very active and eat pretty much as I please. I maintain an A1C in the low 6s (6.2 was my last).
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Connie and Beth, I was diagnosed in Nov 1962, age 10. During the early years I developed lumps and indentations on my upper thighs from my injections. In fact, I was able t o spot other t1 kids in my junior high school based upon the lumps in their upper arms.. (I eventually met up with them and learned that I was correct.) By the time I reached my twenties, these indentations had more or less disappeared, but I still have remnants of the lumps. I wish I could say that the layers of tissue now deposited on my legs disguises them, but they don't. I think the changes in insulin have been responsible for this improvement: the isolation and purification of animal insulins were refined, and then the various human clones were game changers in many ways.
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Yes in my upper arms when I was a petite and skinny child in the 1960s with T1D. In those days we used glass syringes with stainless steel 1/2 inch long heavy gauge needles. My mother would jab me in the upper arms, it hurt like the dickens, and I developed several hard nodules. I was diagnosed at age 8 in December 1962 and after the initial two months of her jabbing me in the upper arms, I took over giving my own "shots" and started self injecting via site rotation in my thighs for several years. Eventually the lipohypertrophy in my upper arms resolved and I never injected there again until many years later as an adult on MDI using disposable syringes with very short and fine gauge needle tips. Periodically I would give my tired pin cushion thighs a rest and take a break for a few months or a couple of years and rotate injections in my abdomen or upper arms. Have been using a pump for over 20 years now and rarely use MDI unless I am taking a pump break for a short period of time. Happily, I no longer have lumpy sites.
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    If you were to request the next available appointment with your T1D healthcare provider, which of these options best describes when that next available appointment would be?

    Home > LC Polls > If you were to request the next available appointment with your T1D healthcare provider, which of these options best describes when that next available appointment would be?
    Previous

    If you have experienced complications related to T1D, which of these words most accurately describe the effect of complications on your quality of life?

    Next

    Over the past 12 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, etc.?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    27 Comments

    1. Molly Jones

      Other
      It depends on the urgency of what I needed to be seen for was. In my current state of health it would be 3-4 months as my Endo desires to see me quarterly.
      I can call or text the hospital clinic to speak with my doctor’s team or nurse on call and receive answers twenty four hours a day. They would determine if I needed to come in right away or resolve a problem over the phone. Just calling to make an appointment without the desire of my Endo or another doctor is difficult as they are incredibly busy.

      1
      2 years ago Log in to Reply
    2. Clare Fishman

      It would obviously depend on the urgency of the situation. I make my appointments 6 months ahead of time but if it was emergent my endo would make room for me ASAP.

      3
      2 years ago Log in to Reply
    3. Kristine Warmecke

      I have my appointment’s scheduled until either July or September of 2022. If I had something come up before my next one, the office and my endo would work to fit me in somewhere. I’ve also seen her in her research lab office, when nothing else was available. One of the many reason’s I’ve stayed with her/gone back to her, for the past 30 years.

      2 years ago Log in to Reply
    4. Gary Taylor

      I answered “other” because I really don’t know how quickly I could get in.

      1
      2 years ago Log in to Reply
    5. LizB

      3 months is usually the earliest the next appointments are available whenever I’ve called. That’s been true with both my past endo and my current one.

      2 years ago Log in to Reply
    6. Greg Felton

      I’m guessing 1-2 months, because I have never tried it and I believe the clinic is very busy. I normally schedule checkups 3-4 months in advance, and it’s never an issue to find a slot. If I had a pressing need I would either contact the clinic with a question via their online portal, or see my primary care physician.

      2
      2 years ago Log in to Reply
    7. Patricia Kilwein

      Because it is so hard to get in I make my 3 month app 6 months out. So I have an appt every 3 months. If there’s an urgent matter they make time to see me.

      1
      2 years ago Log in to Reply
    8. Mary Dexter

      That’s if they don’t laugh at me.

      1
      2 years ago Log in to Reply
    9. Beckett Nelson

      I put “other” as I’m not sure. When I have an appointment, we always book the next one out 3-4months later. Years ago I ran into problems and they got me in same or next day after hours. Like others have said, I’m sure it depends on urgency?

      1
      2 years ago Log in to Reply
    10. Sherolyn Newell

      I am guessing based on making my regular appointments. I haven’t had any urgent needs, I would certainly hope they would make an effort to fit me in if necessary.

      1
      2 years ago Log in to Reply
    11. Henry Renn

      Scheduled every 3 months per Medicare. On needs basis much sooner.

      2 years ago Log in to Reply
    12. John Sanford

      Depends why I wanted to talk to my doctor. I can actually make an appointment it would probably be a few weeks or so or I can do a video visit but if I just had a question I have an app I can talk to any doctor and they’ll get back to me when they can.

      1
      2 years ago Log in to Reply
    13. Patricia Dalrymple

      Said other because I have never needed an emergency appt. I know that it is best if I schedule my next 4 month appt before I leave the current one. Have never had a problem.

      2
      2 years ago Log in to Reply
    14. HMW

      I said “within a month” which would be for a regular followup. However, my endo has seen me or spoken to me on the phone within a few days for an acute issue (illness with severe hypo or hyper-glycemia) or when I needed to see her more often, such as when I was pregnant.

      2 years ago Log in to Reply
    15. Sahran Holiday

      Have only had one telehealth visit and one in person visit with current endocrinologist. She wants me to see the diabetes educator first who wants me to upload my Omnipod records. It’ll be a while.

      2 years ago Log in to Reply
      1. Wanacure

        Always read your comments, girl-friend. Yeah, upload those records. You may be surprised how good your control is!

        2 years ago Log in to Reply
    16. ConnieT1D62

      NA as in Unknown. Depends on what the circumstance is. However, since she is booked out several months ahead I doubt if I could see her anytime sooner than later, but I may be able to see one of the newer provider colleagues that have joined the practice. I book my q 3 month appointments with her a year in advance.

      2 years ago Log in to Reply
    17. Donald Cragun

      I have never needed to ask for an unscheduled appointment with my current T1D healthcare provider. I would expect to be able to walk in and be seen (after waiting a while), but I have no way of knowing until I need to try it.

      2 years ago Log in to Reply
      1. Wanacure

        Donald, if it’s an emergency call your free 24-hr 365-day nurse. And/or pay $20 to taxi cab for ride to Urgent Care. Be prepared for exorbitant charge if you go to KP Urgent Care. Emergency Rooms in US are waste of your time. Take a book to read. Just speaking from my experience.

        2 years ago Log in to Reply
    18. Joan Fray

      Depends on the severity of my problem.

      2 years ago Log in to Reply
    19. PamK

      I am guessing 2 – 3 months from now only because I know when I have to reschedule an appointment it is usually @ 6 weeks out. When I’ve had a question or a problem they call me, but they don’t schedule an appointment. I’m not sure under what circumstances they would.

      2 years ago Log in to Reply
    20. Bonnie Lundblom

      I just started this week with a new endocrinologist and it took me 2 months to get in to be seen. From this point on if I stay with him I’ll be seen every 3 months with my next appointment made at the end of each visit. If my previous endocrinologist joins another local practice I’d want to go back to her.

      2 years ago Log in to Reply
    21. AnitaS

      I put 2-3 months but I am taking a guess because whenever I see my endo, she just schedules me to see her in 4 months because my control is good. If I was having not-so-good results, she would see me more often.

      2 years ago Log in to Reply
    22. Gemma Matoesian

      Within a few weeks to see my NP, 4-6 months to see MD.

      2 years ago Log in to Reply
    23. Bea Anderson

      I’ve never had a need to be seen on a next available basis. Insurance required every 6 months initially, Medicare requires 3 months, which is ridiculous for otherwise healthy, capable person. Oh well…

      2 years ago Log in to Reply
    24. T1D5/1971

      I have a very good Endo and she is very popular because she is good. Most of my Endo appointments have to be scheduled 6 months in advance in order to keep Medicare happy with the 90 day rule. Unfortunately, that has the effect of having to frequently reschedule the 4x/year required appointments because noone can predict what’s going to happen 6 months from now. Silly rules make our lives harder than necessary and create unnecessary burdens on healthcare systems.

      2 years ago Log in to Reply
    25. Cheryl Seibert

      Depends on how serious my request is. If I need next available, the ideal time would be that day or the next day. I would not request next available if not a serious situation.

      2 years ago Log in to Reply

    If you were to request the next available appointment with your T1D healthcare provider, which of these options best describes when that next available appointment would be? Cancel reply

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