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    • 3 minutes ago
      KSannie likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      I understand enough to decide not to participate in the study ... sometimes.
    • 40 minutes ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 1 day, 1 hour ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 1 day, 11 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 1 day, 11 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 1 day, 19 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 1 day, 19 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 1 day, 19 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 1 day, 19 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 1 day, 23 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 1 day, 23 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 2 days, 1 hour ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 2 days, 1 hour ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 1 hour ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 2 days, 2 hours ago
      Beckett Nelson likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 16 hours ago
      Bruce Schnitzler likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 2 days, 17 hours ago
      Ahh Life likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds matter to a surprising degree. The zip code you live in is better predictor of your heart disease risk than your LDL cholesterol level.
    • 2 days, 20 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds don’t matter, but ages and races should be considered as those would be factors that could affect outcomes of study. Not diversity for diversity sake, but testing to make sure therapies can work on everyone.
    • 2 days, 20 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 2 days, 20 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Even though we are all one in the human race, we all have a unique physiology. The more people with diverse genders, ages, and races will be the most informative.
    • 2 days, 23 hours ago
      Laurie B likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      It depends on the research. Some research questions deal with youth and T1D. More needs to be done with aging populations with T1D, and LADA. Most all the research should have diversity of gender and race unless the question is involved with a particular race or gender. But what is the control? The question of inclusion of diversity should always be a part of the development of the study and its what is desired in its findings.
    • 2 days, 23 hours ago
      Marty likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
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    If you were to request the next available appointment with your T1D healthcare provider, which of these options best describes when that next available appointment would be?

    Home > LC Polls > If you were to request the next available appointment with your T1D healthcare provider, which of these options best describes when that next available appointment would be?
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    If you have experienced complications related to T1D, which of these words most accurately describe the effect of complications on your quality of life?

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    Over the past 12 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, etc.?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    27 Comments

    1. Molly Jones

      Other
      It depends on the urgency of what I needed to be seen for was. In my current state of health it would be 3-4 months as my Endo desires to see me quarterly.
      I can call or text the hospital clinic to speak with my doctor’s team or nurse on call and receive answers twenty four hours a day. They would determine if I needed to come in right away or resolve a problem over the phone. Just calling to make an appointment without the desire of my Endo or another doctor is difficult as they are incredibly busy.

      1
      4 years ago Log in to Reply
    2. Clare Fishman

      It would obviously depend on the urgency of the situation. I make my appointments 6 months ahead of time but if it was emergent my endo would make room for me ASAP.

      3
      4 years ago Log in to Reply
    3. Kristine Warmecke

      I have my appointment’s scheduled until either July or September of 2022. If I had something come up before my next one, the office and my endo would work to fit me in somewhere. I’ve also seen her in her research lab office, when nothing else was available. One of the many reason’s I’ve stayed with her/gone back to her, for the past 30 years.

      4 years ago Log in to Reply
    4. Gary Taylor

      I answered “other” because I really don’t know how quickly I could get in.

      1
      4 years ago Log in to Reply
    5. LizB

      3 months is usually the earliest the next appointments are available whenever I’ve called. That’s been true with both my past endo and my current one.

      4 years ago Log in to Reply
    6. Greg Felton

      I’m guessing 1-2 months, because I have never tried it and I believe the clinic is very busy. I normally schedule checkups 3-4 months in advance, and it’s never an issue to find a slot. If I had a pressing need I would either contact the clinic with a question via their online portal, or see my primary care physician.

      2
      4 years ago Log in to Reply
    7. Patricia Kilwein

      Because it is so hard to get in I make my 3 month app 6 months out. So I have an appt every 3 months. If there’s an urgent matter they make time to see me.

      1
      4 years ago Log in to Reply
    8. Mary Dexter

      That’s if they don’t laugh at me.

      1
      4 years ago Log in to Reply
    9. Beckett Nelson

      I put “other” as I’m not sure. When I have an appointment, we always book the next one out 3-4months later. Years ago I ran into problems and they got me in same or next day after hours. Like others have said, I’m sure it depends on urgency?

      1
      4 years ago Log in to Reply
    10. Sherolyn Newell

      I am guessing based on making my regular appointments. I haven’t had any urgent needs, I would certainly hope they would make an effort to fit me in if necessary.

      1
      4 years ago Log in to Reply
    11. Henry Renn

      Scheduled every 3 months per Medicare. On needs basis much sooner.

      4 years ago Log in to Reply
    12. John Sanford

      Depends why I wanted to talk to my doctor. I can actually make an appointment it would probably be a few weeks or so or I can do a video visit but if I just had a question I have an app I can talk to any doctor and they’ll get back to me when they can.

      1
      4 years ago Log in to Reply
    13. Patricia Dalrymple

      Said other because I have never needed an emergency appt. I know that it is best if I schedule my next 4 month appt before I leave the current one. Have never had a problem.

      2
      4 years ago Log in to Reply
    14. HMW

      I said “within a month” which would be for a regular followup. However, my endo has seen me or spoken to me on the phone within a few days for an acute issue (illness with severe hypo or hyper-glycemia) or when I needed to see her more often, such as when I was pregnant.

      4 years ago Log in to Reply
    15. Sahran Holiday

      Have only had one telehealth visit and one in person visit with current endocrinologist. She wants me to see the diabetes educator first who wants me to upload my Omnipod records. It’ll be a while.

      4 years ago Log in to Reply
      1. Wanacure

        Always read your comments, girl-friend. Yeah, upload those records. You may be surprised how good your control is!

        4 years ago Log in to Reply
    16. ConnieT1D62

      NA as in Unknown. Depends on what the circumstance is. However, since she is booked out several months ahead I doubt if I could see her anytime sooner than later, but I may be able to see one of the newer provider colleagues that have joined the practice. I book my q 3 month appointments with her a year in advance.

      4 years ago Log in to Reply
    17. Donald Cragun

      I have never needed to ask for an unscheduled appointment with my current T1D healthcare provider. I would expect to be able to walk in and be seen (after waiting a while), but I have no way of knowing until I need to try it.

      4 years ago Log in to Reply
      1. Wanacure

        Donald, if it’s an emergency call your free 24-hr 365-day nurse. And/or pay $20 to taxi cab for ride to Urgent Care. Be prepared for exorbitant charge if you go to KP Urgent Care. Emergency Rooms in US are waste of your time. Take a book to read. Just speaking from my experience.

        4 years ago Log in to Reply
    18. Joan Fray

      Depends on the severity of my problem.

      4 years ago Log in to Reply
    19. PamK

      I am guessing 2 – 3 months from now only because I know when I have to reschedule an appointment it is usually @ 6 weeks out. When I’ve had a question or a problem they call me, but they don’t schedule an appointment. I’m not sure under what circumstances they would.

      4 years ago Log in to Reply
    20. Bonnie Lundblom

      I just started this week with a new endocrinologist and it took me 2 months to get in to be seen. From this point on if I stay with him I’ll be seen every 3 months with my next appointment made at the end of each visit. If my previous endocrinologist joins another local practice I’d want to go back to her.

      4 years ago Log in to Reply
    21. AnitaS

      I put 2-3 months but I am taking a guess because whenever I see my endo, she just schedules me to see her in 4 months because my control is good. If I was having not-so-good results, she would see me more often.

      4 years ago Log in to Reply
    22. Gemma Matoesian

      Within a few weeks to see my NP, 4-6 months to see MD.

      4 years ago Log in to Reply
    23. Bea Anderson

      I’ve never had a need to be seen on a next available basis. Insurance required every 6 months initially, Medicare requires 3 months, which is ridiculous for otherwise healthy, capable person. Oh well…

      4 years ago Log in to Reply
    24. T1D5/1971

      I have a very good Endo and she is very popular because she is good. Most of my Endo appointments have to be scheduled 6 months in advance in order to keep Medicare happy with the 90 day rule. Unfortunately, that has the effect of having to frequently reschedule the 4x/year required appointments because noone can predict what’s going to happen 6 months from now. Silly rules make our lives harder than necessary and create unnecessary burdens on healthcare systems.

      4 years ago Log in to Reply
    25. Cheryl Seibert

      Depends on how serious my request is. If I need next available, the ideal time would be that day or the next day. I would not request next available if not a serious situation.

      4 years ago Log in to Reply

    If you were to request the next available appointment with your T1D healthcare provider, which of these options best describes when that next available appointment would be? Cancel reply

    You must be logged in to post a comment.




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