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    • 3 hours, 15 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 3 hours, 18 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 3 hours, 19 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 3 hours, 19 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 3 hours, 27 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 5 hours, 20 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 5 hours, 20 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 5 hours, 23 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 9 hours, 23 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 11 hours, 25 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 12 hours, 7 minutes ago
      Anita Stokar likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 12 hours, 11 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 12 hours, 34 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 12 hours, 35 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 12 hours, 35 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 12 hours, 36 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 12 hours, 37 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 12 hours, 40 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 12 hours, 41 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 12 hours, 44 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 12 hours, 44 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 12 hours, 57 minutes ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 13 hours, 10 minutes ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 13 hours, 26 minutes ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    If you have ever used a CGM, in what year did you first begin using a CGM?

    Home > LC Polls > If you have ever used a CGM, in what year did you first begin using a CGM?
    Previous

    Have you experienced any life transitions during which it has been particularly difficult to manage T1D? Select all that apply to you.

    Next

    Were you experiencing DKA (diabetes-related ketoacidosis) when you were diagnosed with T1D?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    29 Comments

    1. Sharon Gerdik

      I was in the first couple of test groups for Dexcom.

      1
      3 years ago Log in to Reply
      1. KarenM6

        Thank you, Sharon, for being in a test group!! 🙂

        3 years ago Log in to Reply
    2. LizB

      I started using Medtronic’s original SofSensors when they integrated the receiver into the pump (I think it was the 522/722 models). I think it was around 2007.

      3 years ago Log in to Reply
    3. rick phillips

      I started with the Medtronic sofsense with a dumb little device. Thank good was MEDT is nsmin outstanding CHM products these days

      3 years ago Log in to Reply
    4. Richard Vaughn

      I made a mistake, I thought the question involved using a pump. I started using a CGM in 2015, not 2007.

      3 years ago Log in to Reply
    5. Nichole Pleisch

      I started using a cgm when I was diagnosed in October 2021

      1
      3 years ago Log in to Reply
    6. Jeanne McMillan-Olson

      I was in a test group for the Dexcom for a year back in 2009 and then wore another one in a kidney reseach project a couple times. My Medicare insurance finally started covering CGMs a few years ago. 😊

      2
      3 years ago Log in to Reply
      1. KarenM6

        Thank you, Jeanne, for being in a test group! 🙂

        3 years ago Log in to Reply
    7. Joan Fray

      Oddly enough, I can’t remember……best guess, 2016. Too late to help my memory, apparently!

      2
      3 years ago Log in to Reply
      1. pru barry

        I can relate!
        pru

        3 years ago Log in to Reply
    8. Lawrence S.

      Most of you have heard this story before, but it’s worth telling again.
      In 2006, I had a low blood glucose at work. It was around 8:00am after riding for 1 1/2 in a car pool to work. I stopped on the way to my office, collapsed like a marionette with the strings broken. I fell, breaking my right ankle.
      At the time, I was doing about a dozen blood tests daily. I had just heard about CGM’s from Medtronic, but my health insurance did not cover the cost for CGM’s.
      As I sat at home in a cast, I telephoned and wrote to my health insurance company. I told them that if I had a CGM, I probably would not be sitting at home for weeks, and the insurance company not paying all of the medical costs.
      Soon afterward, I was approved by my insurance company for a Medtronic CGM. I don’t know for sure, but I think I may have been the first T1D to be approved for a CGM by my insurance company.
      I am now using a Tandem X2 pump, with Control IQ, and a Dexcom G6 sensor.

      4
      3 years ago Log in to Reply
      1. Don (Lucky) Copps

        Excellent story, continue telling it. I started the G6 about the same time as you. When are you going to delve into the G7, I’m anxious to do it. But, I’d like to see how others like it/or not first.

        1
        3 years ago Log in to Reply
      2. Lawrence S.

        Thanks, Don. I have not heard much about the G7. But, I will have to wait until Medicare approves it. Also, I must make sure it is compatible with my current Tandem X2 pump, and has Control IQ.

        3 years ago Log in to Reply
    9. Kristen Clifford

      The first time I ever used a CGM was in 2010. I had a new endocrinologist and was in the process of switching from syringes to insulin pens. She wanted me to try out a CGM as a means of getting to know my condition better. I only had to wear it for a week. Three years later, at which point I had a pump, I did another CGM demo. I didn’t start using a CGM permanently until fall 2016.

      3 years ago Log in to Reply
    10. KCR

      I read Think Like a Pancreas a few months after diagnosis in 2014 and talked to my doctor about prescribing a CGM after that. I remember the first insertion: that gigantic syringe terrified me! 🙂

      3 years ago Log in to Reply
    11. Joan Benedetto

      Mid 2014 at age of 26mos. Would have been sooner, but very nasty insurance appeal!

      3 years ago Log in to Reply
    12. Marty

      My earliest experience with CGM was wearing a device that stored data for my doctor to analyze later without giving me information in real time. I can’t remember exactly when that was but I do remember getting my own Medtronic CGM as soon as possible after meeting a student at a conference who was using the first Dexcom CGM system. It was a life changer!

      3 years ago Log in to Reply
    13. E24murph@gmail.com

      I got a cgm shortly after being diagnosed which was a year ago.

      3 years ago Log in to Reply
    14. Mark Schweim

      Dexcom released their first CGM system in Late Summer/Early Fall 2007 and I started using CGM (Dexcom) soon after initial release but don’t remember if I started using CGM in late Fall/early Winter (October – December) 2007 or mid Winter (January – March) 2008.

      3 years ago Log in to Reply
    15. qachemist

      I started within a month of diagnosis of LADA.

      3 years ago Log in to Reply
    16. Trina Blake

      I think it was around 2007. It was the Dexcom Seven (not the G7!). I was doing 15-20 fingersticks and loved having the data in an easier way (of course back then it was still fingersticks). I found it to be such a useful tool, that after moving and having to change insurance, I continued using Dexcom (in it’s various iterations) paying out of pocket. SO glad my insurance finally got with the program

      1
      3 years ago Log in to Reply
    17. Don (Lucky) Copps

      I intentionally waited for the Dexcom G6 as the improvements in MARD were important to me. Diabetes is hard enough, and until the MARD became less of an issue, that’s when I did it. Fall of 2016. FDA approved the G7, looks like worthwhile update, we’ll see?

      3 years ago Log in to Reply
    18. beth nelson

      Vanity kept me from begging to use a pump, and boy do I regret it! I was diagnosed in 1963. I’m not sure when pumps first hit the market. Luckily, my first pump, Medtronic with a Dexcom sensor, didn’t stick out like a sore thumb. Bt when the Tandem closed loop system was released, I jumped on it quickly! So easy, and my health is improved vastly [for my age, at least 🙂 ]

      1
      3 years ago Log in to Reply
    19. Becky Hertz

      I actually don’t remember when I started. Mid-2010’s. I was tardy to the party. Resisted wearing another thing in my body and was on Medicare by then so when my endo first started mentioning it to me it was SOP in Medicare’s mind. Now, I wouldn’t live without it. Not the best as far as accuracy for me, but love being able to track trends, and have an idea of where my bg is at a glance. Started with the G5.

      1
      3 years ago Log in to Reply
    20. Bob Durstenfeld

      I used an experimental CGM in 1977 at UCLA. It then took 30 years to achieve a commercial product.

      2
      3 years ago Log in to Reply
      1. KarenM6

        Thank you, Bob, for being the participant who helped CGMs come to fruition!! 🙂

        3 years ago Log in to Reply
    21. KarenM6

      I have 2 or 3 “start” dates because I had two false starts. My first experiences with the CGM were not positive and I hated it.
      BUT, around 2012-ish (I really don’t remember the exact year, but it was around then), I had a Physician’s Assistant who reeeeeeeaaaalllyyyyy helped me and the 3rd one stayed up! (Didn’t have to get to the 4th one… sorry… silly joke… Monty Python reference… my brain is all over the board right now.)
      Anyway, CGM is SO awesome. It is not a perfect tool for me, but it is better for me than not having it. 🙂

      3 years ago Log in to Reply
    22. Jneticdiabetic

      I put 2005-2007, but don’t remember exactly. I recall trying an early Medtronic CGM for a short period then trying again in 2008 during my first pregnancy. These earlier versions didn’t work very well for me, so didn’t stick with it until reliability improved with the Dexcom 4, then Medtronic guardian with 670g pump and now Dexcom 6 with Tandem.

      3 years ago Log in to Reply
    23. PamK

      I chose “other,” because I don’t remember what year it was. I know I started on Medtronic, but didn’t use their CGM for long. I then started on Dexcom about 6 months later. This was the G4, with a free upgrade to the then soon to be released G5.

      3 years ago Log in to Reply

    If you have ever used a CGM, in what year did you first begin using a CGM? Cancel reply

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