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    • 14 hours, 38 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 14 hours, 40 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 14 hours, 41 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 14 hours, 42 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 14 hours, 50 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 16 hours, 42 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 16 hours, 43 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 16 hours, 45 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 20 hours, 45 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 22 hours, 48 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 23 hours, 33 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 23 hours, 57 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 23 hours, 58 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 23 hours, 58 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 23 hours, 59 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 23 hours, 59 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 12 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
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    If you have a child with T1D (or at some point, you were a child with T1D) who goes trick-or-treating, do you use any strategies to manage insulin, blood glucose levels, and candy? Share what works for you in the comments!

    Home > LC Polls > If you have a child with T1D (or at some point, you were a child with T1D) who goes trick-or-treating, do you use any strategies to manage insulin, blood glucose levels, and candy? Share what works for you in the comments!
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    43 Comments

    1. Ahh Life

      The strategy that worked/didn’t work was to boil the test tube and watch it turn brown. Not recommended. This is an old timer’s inside joke. 😖

      4
      3 years ago Log in to Reply
    2. Britni

      I was a child with T1D who went trick-or-treating in the 90’s. When I was little I wasn’t allowed to eat any candy while trick-or-treating (unless we suspected my blood sugar was going low). When we got home I was allowed to save my favorites and then the rest my parents counted and traded for money (I think pennies or nickels; I can’t remember). The next weekend my dad would take me to the toy store so I could buy something with the money. I assume my parents ate the candy. Af for what I’d saved, I was generally allowed one piece per day, again unless my blood sugar went low. When I got older I was allowed to keep all my candy, but was still only allowed to eat a couple pieces per day.

      3 years ago Log in to Reply
    3. DiabetesC

      Increased temp basal, periodic correction boluses early as needed, encourage faster walking to help keep BG under control.

      3 years ago Log in to Reply
    4. GLORIA MILLER

      I lived in a small village with only 86 people so everyone knew I was diabetic. Everyone would either give me coins, gum or fruit when I would go trick or treating as a young child in the late 1950s.

      3
      3 years ago Log in to Reply
    5. Jana Venditte

      Don’t stop living; check blood glucose throughout the day and night. Correct the highs as needed.

      2
      3 years ago Log in to Reply
    6. Vivian Moon

      I did not have T1D as a child.

      3 years ago Log in to Reply
    7. Nevin Bowman

      I never ate candy as a kid, and today I’m extremely thankful my parents never allowed me to.

      3 years ago Log in to Reply
    8. Greg Felton

      I didn’t eat the candy. I don’t think that counts as a strategy.

      3 years ago Log in to Reply
    9. Beckett Nelson

      As a kid, I would trade some of my sugary treats for my sister’s trident gum. The treats left over would be eaten in moderation, so no crazy spikes

      3 years ago Log in to Reply
    10. Richard Vaughn

      I was diagnosed in 1945. There were no strategies back then because there were no guidelines for controlling blood sugar. Take your pig insulin and don’t eat sugar. Those were the only rules I had to follow.

      2
      3 years ago Log in to Reply
    11. mojoseje

      I went Trick-or-Treating but had to give all my candy to my brothers and sisters. It was terrible.

      1
      3 years ago Log in to Reply
      1. Bill Williams

        Same for me. I stopped going.

        3 years ago Log in to Reply
      2. AnitaS

        Sorry you had to give all of your candy away. My parents weren’t that strict so I never really felt deprived.

        3 years ago Log in to Reply
    12. Debra Nance

      As a chid I out to keep Al chips, apples an oranges. We didn’t count carbs in 1063 but calories. I also got a piece of candy. My neighbors who knew I was a diabetic gave me sugar free candy or gum.

      3 years ago Log in to Reply
    13. HMW

      I had diabetes as a child, and it has been over 20 years since I have gone trick-or-treating so the protocols were very different then. I would eat a fairly large dinner before going out. Our half-way point was a relative’s house 3 blocks away where I could have a snack if I felt my BG was dropping (no cgm, no checking glucose–yes, it was pretty inaccurate). My mom would offer to pay me for about half of my candy (5 cents a piece) to lessen the temptations. Then I was allowed 1 or 2 pieces as a treat after dinner daily, taking into account the Exchanges counting technique I used back then (instead of carb counting, I was supposed to eat a predetermined amount from certain food groups each meal, plus up to 5 “extras” = sugary things, diet soda pop, etc, while having the same amount of insulin twice daily).

      2
      3 years ago Log in to Reply
    14. Kathryn Keller

      My daughter usually actually runs low during trick-or-treating from all the running around. We let her keep all the candy that she can as she also has celiac disease but only let her have a few pieces that night and just bolus for them as needed. Then they generally have one piece a day with a meal till they run out.

      3 years ago Log in to Reply
    15. Joan Benedetto

      My son goes low as he walks as much as three miles with his dad and friends. He eats a piece or two of fast acting, then, later a piece of chocolate. After he has fun sorting all the rest, most is donated to a dentist who sends to the troops. We keep some of the small fast acting pieces for occasional use for lows. Small chocolate bars, kisses, are good for stabilizing a ↘️. Peppermint Pattie’s are diced up and used on top of chocolate almond flour muffins (Simple Mills) which makes a nice “frosting “. Side note: just found candy from last Halloween, Valentines Day and Easter!

      3 years ago Log in to Reply
    16. Joan Fray

      Got it when i was 12. Trick or treated that year, then stopped. Did I eat the candy? No memory…..

      3 years ago Log in to Reply
    17. Aimee Martin

      Feed a low carb dinner right before, and we trade out traditional candy for low carb alternatives when he gets back. If he gets low during trick or treating, he can eat certain candies he got!

      3 years ago Log in to Reply
    18. Melissa Childers

      As a child with T1D, I did not like how candy made me feel, so I kept lifesavers, skittles and jolly ranchers as low treatmentsvand my parents and I worked out a “buy back” program for the rest.

      3 years ago Log in to Reply
    19. GiGi

      I was diagnosed when I was ten years old in 1972. All we had during my childhood was urine testing. It didn’t give an exact number to give correction boluses, and we didn’t have the technology to carb count, so for me, I did what my Dr advised and ate the candy during the day when I was active. I wasn’t put on a restricted diet because my Dr felt it would lead to rebellion and feelings of resentment towards my T1D, and my family.

      3
      3 years ago Log in to Reply
    20. Lisa Vaas

      As others have mentioned, there really wasn’t much of anything in the way of strategies to manage glucose before the past few decades. When I was diagnosed in 1965 at the age of 3, there was only urine testing, which was a feeble alternative to try to discern blood glucose levels. My mother was never strict with my diet, but I wasn’t allowed to drink sugary soft drinks. I remember eating quite a bit of candy growing up, and Halloween was similar to the highest of holy holidays in my world view. Lord knows what I would do now with a child during Halloween: Probably try to ration it a bit, at the very least. Parents of T1Ds, you have my sympathy. Good luck getting through the sugar bacchanalia!

      3 years ago Log in to Reply
    21. Janis Senungetuk

      Halloween was my favorite holiday because of the costumes/makeup I could design. I was 8 when dx in 1955 and allowed to go with neighborhood kids but couldn’t accept or eat any of the candy offered. My treat bag filled with pennies, nickels, apples and gum. By the next Halloween I had experienced a year + filled with “no you can’t do that because of your diabetes” and decided not to go. Thinking back all of those years the memory still stings. It was definitely not a good solution.

      1
      3 years ago Log in to Reply
    22. Marla Peaslee

      We gave legos in exchange for candy collected. Sugar free candy and gum are what our sweet neighbors gave our child. Also allowing a pick of one or two candies and adjusted insulin as needed.

      3 years ago Log in to Reply
    23. Becky Hertz

      Oops, I answered no, but was 14 when diagnosed so part trick-or-treating.

      3 years ago Log in to Reply
    24. Bruce Schnitzler

      I was diagnosed at 6 years of age, in 1951, lived in a rural area, and simply did not go trick-or-treating.

      3 years ago Log in to Reply
    25. Pauline M Reynolds

      Oops, answered other. Should have been I have no children with nor myself have T1 as a child. Over the years, though, I have given out individual packets of pretzels and pencils rather than candy. My problem was staying away from my children’s stash of chocolate!

      3 years ago Log in to Reply
    26. cynthia jaworski

      Halloween was more than candy. I loved the costumes and the fun we had running around at night. I was dx in 1962 at the age of 10, so there were few reliable tools. I ate a bit of candy, bu I was very choosy. Most of it was given away to a children’s center.

      1
      3 years ago Log in to Reply
    27. Henry Renn

      I’m 71 but when I was a child my Dad would give me cash for my candy. I think he was generous to lessen the hurt of trick or treating for candy which I couldn’t eat. I would keep peanuts & any little boxes of pretzels.

      3
      3 years ago Log in to Reply
    28. Liz Johnson

      When our son came home after trick or treating we sorted the candy into pieces he could use to treat lows, those he could work into his meal plan and those that were problematic. We would buy the candy that was problematic and mete out the rest appropriately. He liked getting the money. In school also when he answered a question and won a treat he would auction it off to his classmates.

      3 years ago Log in to Reply
      1. Kristine Warmecke

        I like the auctioning off of his treats won in school. Wish I’d have thought of that.

        3 years ago Log in to Reply
    29. ConnieT1D62

      I went trick or treating as a child with T1D in the 1960s. Neighborhood kids got dressed up in homemade Halloween costumes, with or without character masks, and my younger brother and I went out as part of the gang. When I got home my mom would go through the trick or treat bag and allow me to keep the little boxes of raisins, bags of Fritos or chips, apples, peanuts, and popcorn that were given out. All the candy treats I collected were distributed to my brother and other kids in the neighborhood and I was given $5.00 for giving my candy away.

      1
      3 years ago Log in to Reply
      1. AnitaS

        It is sort of funny how many people even today think that raisins will raise your blood sugar less than candy (although I do consider them more healthful than candy). People offered me raisins too. Nowadays I use raisins to raise my blood sugar in case of hypoglycemia.

        3 years ago Log in to Reply
    30. Kristine Warmecke

      There was no blood glucose testing when I was young to go treat or treating. Our parent’s allowed us chose the candy we wanted to keep for low’s and they bought the rest from us. My Dad then took it to work to share. We also had neighbors that made homemade treats to hand out, got to love living in a very small town in the 70’s, who make special ones for us.

      3 years ago Log in to Reply
    31. AnitaS

      I had diabetes as a child but that was in the 1970’s. Only urine testing then, so what my blood sugar numbers were is just a presumption. I tried staying away from pixie sticks and candies that are basically pure sugar, but I know I did eat a few pieces of chocolate now and then.

      3 years ago Log in to Reply
    32. Jeff Perzan

      Two Strategies: 1. Give daughter ‘option’ of 1 or 2 pieces/day (make candy last, give decision-making ability and accountability, and forcing prioritization of options); and 2. purchasing candy from daughter – especially helpful for culling out stuff she didn’t like AND having her evaluate on a ‘business case’ basis priorities, saving, and long-term approach.

      3 years ago Log in to Reply
    33. Jeff Balbirnie

      Never learned to like candy, so it was not relevant for me.

      I traded my candy to my siblings for cards, games stickers and stamps. They were old games (: z

      3 years ago Log in to Reply
    34. Teri Morris

      As a child my mom drove me to the neighbours who had saved me an apple 🍎

      3 years ago Log in to Reply
    35. Amy Schneider

      When I was a child with T1D (40+ years ago), the neighbors all bought sugar-free candies for me.

      3 years ago Log in to Reply
    36. T1D4LongTime

      T1D since 1966 so majority of my childhood meant not eating a lot of the candy I was given trick-or-treating. I saved all the candy for when I had ‘insulin reactions’ (was we called them back in the day). Back in my childhood, I took one shot in the morning and had no clue what my current BG was, so no strategies other than lots of exercise so my urine sample wasn’t the dreaded bright orange 4+

      3 years ago Log in to Reply
    37. KarenM6

      When I was a kid, I trick-or-treated, but the candy was taken away and given to me piece-meal (one or two per day.)

      3 years ago Log in to Reply
    38. Mary Ann Sayers

      I loved dressing up for Halloween and trick or treating as a child, but I didn’t eat the candy. One house gave me apples, so I didn’t feel different.

      3 years ago Log in to Reply
    39. brettsmith115

      I was a lucky kid back in the 80s/90s. I used to bring a pillowcase full of candy home and trade it in with my parents for toys. It was way better, and more fun, than just a bunch of candy.

      3 years ago Log in to Reply

    If you have a child with T1D (or at some point, you were a child with T1D) who goes trick-or-treating, do you use any strategies to manage insulin, blood glucose levels, and candy? Share what works for you in the comments! Cancel reply

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