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    • 4 hours, 16 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 4 hours, 17 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 4 hours, 19 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 5 hours, 32 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 5 hours, 38 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 5 hours, 38 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 5 hours, 38 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 5 hours, 38 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 5 hours, 42 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 5 hours, 43 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 5 hours, 43 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 5 hours, 43 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 5 hours, 43 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 5 hours, 44 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 5 hours, 44 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 6 hours, 4 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 6 hours, 5 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 6 hours, 25 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 6 hours, 34 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 6 hours, 34 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 6 hours, 34 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 6 hours, 34 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 6 hours, 34 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 6 hours, 35 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 6 hours, 35 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
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    If you are an adult with type 1 diabetes, without looking at your medical records, do you know whether your most recent LDL cholesterol level was above, below, or equal to 100 mg/dl?

    Home > LC Polls > If you are an adult with type 1 diabetes, without looking at your medical records, do you know whether your most recent LDL cholesterol level was above, below, or equal to 100 mg/dl?
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    28 Comments

    1. Ahh Life

      I keep an Excel spreadsheet of blood work going back to 1974.

      LDL data averages 80.7. Sometimes, it’s so low it cannot be calculated. HDL, LDL, triglycerides, and cholesterol are all in double digits. Well, no. Cholesterol is three digits averaging 150. (〜^∇^)〜

      12 months ago Log in to Reply
    2. Britni

      I know the value was really good, but don’t remember what the actual value was.

      12 months ago Log in to Reply
    3. Larry Martin

      I answered then I looked. It is 30 because I am prescribed a statin.

      12 months ago Log in to Reply
    4. Annie Wall

      It is now always below 100. I take 40 mg of simvastatin and have done so for about the last 25 years.

      12 months ago Log in to Reply
    5. Sherolyn Newell

      I only remember that it wasn’t too high.

      12 months ago Log in to Reply
    6. KCR

      My LDL is just slightly above 100 but my HCP and I are not concerned because my HDL is , too.

      1
      12 months ago Log in to Reply
    7. Patricia Dalrymple

      Yes because for the first time mine was high. I switched from eating Tuna without mayo for lunch to Turkey breast with sometimes a teaspoon or less of mayo, so I will convince my doctor that I can control it with diet. I don’t want to be on a statin. Digging down and making sure I eat healthier. All other numbers are OK except thyroid and I was checked for cancer, so nothing there. And I hated the thyroid medicine so doc said I could go off.

      12 months ago Log in to Reply
      1. Jneticdiabetic

        Interestingly the only time my LDL levels were elevated above normal was when I was hypothyroid. After figuring out my Synthroid dose and getting my thyroid levels back in normal limits, my cholesterol returned to normal too.

        12 months ago Log in to Reply
    8. gary rind

      knew mine was under 70 but looked it up and it was 60. my endo told me that diabetics have the risk factor for a heart attack like someone who has already had one and that my target was 70. take 10 mg of simvastatin

      12 months ago Log in to Reply
    9. Nevin Bowman

      So why shouldn’t we eat more high cholesterol foods and take a higher dose of statins? After all, that’s how we’re told to treat diabetes 😑

      12 months ago Log in to Reply
      1. Jane Cerullo

        Bahaha. Exactly why i don’t take statins. As a cardiac RN I notice low LDL with no lifestyle changes equals cardiac stents. How does that happen when LDL is 40. Mmm 🤔

        12 months ago Log in to Reply
    10. Kathy Morison

      I don’t know the exact number without looking but do know that all values relating to cholesterol is well within normal range. No cholesterol meds.

      12 months ago Log in to Reply
    11. Mick Martin

      Although I selected “Yes – My LDL was above 100 mg/dl” I had to do a quick calculation as I live in the UK, where our cholesterol measurements are delivered in mmol/l (millimols per litre … that’s liter for my American cousins).

      To change mmol/l to mg/dl you simply multiply by 18. Likewise, if you wish to convert from mg/dl to mmol/l you divide by 18.

      12 months ago Log in to Reply
      1. Anneyun

        I’m Canadian so had to do the calculation as well. I googled it and was told to multiply by 38.67.

        12 months ago Log in to Reply
      2. Gustavo Avitabile

        The multiplier 18 applies to blood glucose, rather than LDL.

        12 months ago Log in to Reply
    12. Jane Cerullo

      My LDL is 106 without a statin. I refuse to take
      Statins. Last month my cardiologist suggested Cholestoff, garlic and ginger. Will be o retested to see if this works to get under 100.

      12 months ago Log in to Reply
    13. Patty Harris

      For the first time ever, mine was 142. I was in the 60’s and 70’s before. I had decided to experiment for six months and not take my Pravastatin. Well, I got a big surprise and now I’m back on the statin. I eat a lot of Keto, so maybe that played a part in the rise???

      12 months ago Log in to Reply
    14. sdimond

      Read this paper in the British Medical Journal: https://bmjopen.bmj.com/content/5/9/e007118
      You will see how little effect that taking a statin has on your survival. Reducing your average A1C by 0.5 will extend your life and your quality of life by more than taking a statin. Statins also increase your insulin resistance and make it harder to control your blood sugar.

      1
      12 months ago Log in to Reply
      1. Wanacure

        Wow! Thanks for this info!

        12 months ago Log in to Reply
    15. Chris Albright

      My weakness in lowering my LDL is morning breakfast…… (2 strips of bacon and a sausage patty). I need to change to a ‘bacon want to be’ product…

      12 months ago Log in to Reply
    16. Tina Roberts

      Equal to.

      12 months ago Log in to Reply
    17. TomH

      I’ve had great cholesterol readings for years, partly due to the atorvastatin I’m on. I get tested at least every 6 months and doctors, both PCP and Endo, comment on it, so I don’t worry about it.

      12 months ago Log in to Reply
    18. Mary Ann Sayers

      My last LDL was 79—yes, I do know.

      12 months ago Log in to Reply
    19. Amanda Barras

      Below, but I’m also on a statin. Without that I’m above.

      1
      12 months ago Log in to Reply
      1. AnitaS

        Same here.

        12 months ago Log in to Reply
    20. Jillmarie61

      My LDL was 101.

      12 months ago Log in to Reply
    21. Tb-well

      Mine was over 100, but my tsh was also .0005. Normally it is at about 80.

      12 months ago Log in to Reply
    22. Wanacure

      Never had a cholesterol problem, but I’m on 10 mg simvastatin daily…”as a precaution/preventative.” sdimond’s comment is making me wonder. Do I REALLY need this?

      12 months ago Log in to Reply

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