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    • 5 hours, 44 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 5 hours, 44 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 5 hours, 46 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I was shocked that so many people haven't heard about it. It is all over social media. It looks promising to me. Of course the trial participants need to be followed for awhile as no drug gets approved by the FDA in short time, but so far all of the first 12 trial participants are insulin free and the 1st participant has been insulin free for over 1-1/2 years with no complications that I've heard of.
    • 7 hours, 50 minutes ago
      Anita Stokar likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 7 hours, 50 minutes ago
      Anita Stokar likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 8 hours, 32 minutes ago
      Ahh Life likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      This question is an advertisement. In my opinion it is a misleading advertisement. Tegoprupart is an immunosuppressant. A trial investigating using the drug with islet cell recipients has barely gotten started. 90-ish percent of all phase 3 drug trials fail. Drug development is hard. I wish them luck at the same time I wish they weren't misleading people about the investigational use of their drug.
    • 9 hours, 36 minutes ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 9 hours, 36 minutes ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 11 hours, 15 minutes ago
      Gerald Oefelein likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      AI Overview Tegoprubart, an anti-CD40L antibody, is generally safe and well-tolerated, with a cleaner safety profile than traditional calcineurin inhibitors (like tacrolimus) in early trials, specifically showing lower risks of kidney toxicity and diabetes. Common side effects reported include fatigue, headaches, muscle spasms, and potential infections. National Institutes of Health (.gov) National Institutes of Health (.gov) +4 Common Side Effects and Adverse Events In clinical trials, the most frequent treatment-emergent adverse events (TEAEs) observed included: National Institutes of Health (.gov) National Institutes of Health (.gov) +2 Fatigue (approx. 25.9%) Falls (approx. 22.2%) Headaches (approx. 20.4%) Muscle spasms (approx. 11.1%) Upper respiratory tract infections Sleepiness Key Safety Advantages Over Standard Care (Tacrolimus) Tegoprubart aims to avoid the, often, severe, long-term side effects of standard anti-rejection meds like tacrolimus
    • 11 hours, 16 minutes ago
      Lawrence S. likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      No thanks.
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      If it requires immunosuppressive medication I have no interest. I'll continue to manage with insulin.
    • 1 day, 7 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 1 day, 7 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely, especially if stem-cell generated islet cells are transplanted without the need for immunosuppressants. If tegoprubart is needed and is found safe after the trials are complete, then likely.
    • 1 day, 7 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 1 day, 7 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day, 7 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 1 day, 7 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 7 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely. Although the simplicity of spifflicating is often overrated. 🤓☝️
    • 1 day, 7 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
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    If you are an adult with type 1 diabetes, without looking at your medical records, do you know whether your most recent LDL cholesterol level was above, below, or equal to 100 mg/dl?

    Home > LC Polls > If you are an adult with type 1 diabetes, without looking at your medical records, do you know whether your most recent LDL cholesterol level was above, below, or equal to 100 mg/dl?
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    Multiple daily injections users: Do you use a diabetes-specific app on a smart phone to track your insulin dosing?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    28 Comments

    1. Ahh Life

      I keep an Excel spreadsheet of blood work going back to 1974.

      LDL data averages 80.7. Sometimes, it’s so low it cannot be calculated. HDL, LDL, triglycerides, and cholesterol are all in double digits. Well, no. Cholesterol is three digits averaging 150. (〜^∇^)〜

      4 years ago Log in to Reply
    2. Britni

      I know the value was really good, but don’t remember what the actual value was.

      4 years ago Log in to Reply
    3. Larry Martin

      I answered then I looked. It is 30 because I am prescribed a statin.

      4 years ago Log in to Reply
    4. Annie Wall

      It is now always below 100. I take 40 mg of simvastatin and have done so for about the last 25 years.

      4 years ago Log in to Reply
    5. Sherolyn Newell

      I only remember that it wasn’t too high.

      4 years ago Log in to Reply
    6. KCR

      My LDL is just slightly above 100 but my HCP and I are not concerned because my HDL is , too.

      1
      4 years ago Log in to Reply
    7. Patricia Dalrymple

      Yes because for the first time mine was high. I switched from eating Tuna without mayo for lunch to Turkey breast with sometimes a teaspoon or less of mayo, so I will convince my doctor that I can control it with diet. I don’t want to be on a statin. Digging down and making sure I eat healthier. All other numbers are OK except thyroid and I was checked for cancer, so nothing there. And I hated the thyroid medicine so doc said I could go off.

      4 years ago Log in to Reply
      1. Jneticdiabetic

        Interestingly the only time my LDL levels were elevated above normal was when I was hypothyroid. After figuring out my Synthroid dose and getting my thyroid levels back in normal limits, my cholesterol returned to normal too.

        4 years ago Log in to Reply
    8. gary rind

      knew mine was under 70 but looked it up and it was 60. my endo told me that diabetics have the risk factor for a heart attack like someone who has already had one and that my target was 70. take 10 mg of simvastatin

      4 years ago Log in to Reply
    9. Nevin Bowman

      So why shouldn’t we eat more high cholesterol foods and take a higher dose of statins? After all, that’s how we’re told to treat diabetes 😑

      4 years ago Log in to Reply
      1. Jane Cerullo

        Bahaha. Exactly why i don’t take statins. As a cardiac RN I notice low LDL with no lifestyle changes equals cardiac stents. How does that happen when LDL is 40. Mmm 🤔

        4 years ago Log in to Reply
    10. Kathy Morison

      I don’t know the exact number without looking but do know that all values relating to cholesterol is well within normal range. No cholesterol meds.

      4 years ago Log in to Reply
    11. Mick Martin

      Although I selected “Yes – My LDL was above 100 mg/dl” I had to do a quick calculation as I live in the UK, where our cholesterol measurements are delivered in mmol/l (millimols per litre … that’s liter for my American cousins).

      To change mmol/l to mg/dl you simply multiply by 18. Likewise, if you wish to convert from mg/dl to mmol/l you divide by 18.

      4 years ago Log in to Reply
      1. Anneyun

        I’m Canadian so had to do the calculation as well. I googled it and was told to multiply by 38.67.

        4 years ago Log in to Reply
      2. Gustavo Avitabile

        The multiplier 18 applies to blood glucose, rather than LDL.

        4 years ago Log in to Reply
    12. Jane Cerullo

      My LDL is 106 without a statin. I refuse to take
      Statins. Last month my cardiologist suggested Cholestoff, garlic and ginger. Will be o retested to see if this works to get under 100.

      4 years ago Log in to Reply
    13. Patty Harris

      For the first time ever, mine was 142. I was in the 60’s and 70’s before. I had decided to experiment for six months and not take my Pravastatin. Well, I got a big surprise and now I’m back on the statin. I eat a lot of Keto, so maybe that played a part in the rise???

      4 years ago Log in to Reply
    14. sdimond

      Read this paper in the British Medical Journal: https://bmjopen.bmj.com/content/5/9/e007118
      You will see how little effect that taking a statin has on your survival. Reducing your average A1C by 0.5 will extend your life and your quality of life by more than taking a statin. Statins also increase your insulin resistance and make it harder to control your blood sugar.

      1
      4 years ago Log in to Reply
      1. Wanacure

        Wow! Thanks for this info!

        4 years ago Log in to Reply
    15. Chris Albright

      My weakness in lowering my LDL is morning breakfast…… (2 strips of bacon and a sausage patty). I need to change to a ‘bacon want to be’ product…

      4 years ago Log in to Reply
    16. Tina Roberts

      Equal to.

      4 years ago Log in to Reply
    17. TomH

      I’ve had great cholesterol readings for years, partly due to the atorvastatin I’m on. I get tested at least every 6 months and doctors, both PCP and Endo, comment on it, so I don’t worry about it.

      4 years ago Log in to Reply
    18. Mary Ann Sayers

      My last LDL was 79—yes, I do know.

      4 years ago Log in to Reply
    19. Amanda Barras

      Below, but I’m also on a statin. Without that I’m above.

      1
      4 years ago Log in to Reply
      1. AnitaS

        Same here.

        4 years ago Log in to Reply
    20. Jillmarie61

      My LDL was 101.

      4 years ago Log in to Reply
    21. Tb-well

      Mine was over 100, but my tsh was also .0005. Normally it is at about 80.

      4 years ago Log in to Reply
    22. Wanacure

      Never had a cholesterol problem, but I’m on 10 mg simvastatin daily…”as a precaution/preventative.” sdimond’s comment is making me wonder. Do I REALLY need this?

      4 years ago Log in to Reply

    If you are an adult with type 1 diabetes, without looking at your medical records, do you know whether your most recent LDL cholesterol level was above, below, or equal to 100 mg/dl? Cancel reply

    You must be logged in to post a comment.




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