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      alex likes your comment at
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    • 16 hours, 26 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
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    • 16 hours, 28 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
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    • 16 hours, 29 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
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    • 16 hours, 30 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
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    • 16 hours, 38 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 18 hours, 30 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
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    • 18 hours, 31 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 18 hours, 33 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 34 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 1 hour ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 2 hours ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 14 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 16 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 1 day, 16 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    If you are an adult with type 1 diabetes, without looking at your medical records, do you know whether your most recent LDL cholesterol level was above, below, or equal to 100 mg/dl?

    Home > LC Polls > If you are an adult with type 1 diabetes, without looking at your medical records, do you know whether your most recent LDL cholesterol level was above, below, or equal to 100 mg/dl?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    28 Comments

    1. Ahh Life

      I keep an Excel spreadsheet of blood work going back to 1974.

      LDL data averages 80.7. Sometimes, it’s so low it cannot be calculated. HDL, LDL, triglycerides, and cholesterol are all in double digits. Well, no. Cholesterol is three digits averaging 150. (〜^∇^)〜

      4 years ago Log in to Reply
    2. Britni

      I know the value was really good, but don’t remember what the actual value was.

      4 years ago Log in to Reply
    3. Larry Martin

      I answered then I looked. It is 30 because I am prescribed a statin.

      4 years ago Log in to Reply
    4. Annie Wall

      It is now always below 100. I take 40 mg of simvastatin and have done so for about the last 25 years.

      4 years ago Log in to Reply
    5. Sherolyn Newell

      I only remember that it wasn’t too high.

      4 years ago Log in to Reply
    6. KCR

      My LDL is just slightly above 100 but my HCP and I are not concerned because my HDL is , too.

      1
      4 years ago Log in to Reply
    7. Patricia Dalrymple

      Yes because for the first time mine was high. I switched from eating Tuna without mayo for lunch to Turkey breast with sometimes a teaspoon or less of mayo, so I will convince my doctor that I can control it with diet. I don’t want to be on a statin. Digging down and making sure I eat healthier. All other numbers are OK except thyroid and I was checked for cancer, so nothing there. And I hated the thyroid medicine so doc said I could go off.

      4 years ago Log in to Reply
      1. Jneticdiabetic

        Interestingly the only time my LDL levels were elevated above normal was when I was hypothyroid. After figuring out my Synthroid dose and getting my thyroid levels back in normal limits, my cholesterol returned to normal too.

        4 years ago Log in to Reply
    8. gary rind

      knew mine was under 70 but looked it up and it was 60. my endo told me that diabetics have the risk factor for a heart attack like someone who has already had one and that my target was 70. take 10 mg of simvastatin

      4 years ago Log in to Reply
    9. Nevin Bowman

      So why shouldn’t we eat more high cholesterol foods and take a higher dose of statins? After all, that’s how we’re told to treat diabetes 😑

      4 years ago Log in to Reply
      1. Jane Cerullo

        Bahaha. Exactly why i don’t take statins. As a cardiac RN I notice low LDL with no lifestyle changes equals cardiac stents. How does that happen when LDL is 40. Mmm 🤔

        4 years ago Log in to Reply
    10. Kathy Morison

      I don’t know the exact number without looking but do know that all values relating to cholesterol is well within normal range. No cholesterol meds.

      4 years ago Log in to Reply
    11. Mick Martin

      Although I selected “Yes – My LDL was above 100 mg/dl” I had to do a quick calculation as I live in the UK, where our cholesterol measurements are delivered in mmol/l (millimols per litre … that’s liter for my American cousins).

      To change mmol/l to mg/dl you simply multiply by 18. Likewise, if you wish to convert from mg/dl to mmol/l you divide by 18.

      4 years ago Log in to Reply
      1. Anneyun

        I’m Canadian so had to do the calculation as well. I googled it and was told to multiply by 38.67.

        4 years ago Log in to Reply
      2. Gustavo Avitabile

        The multiplier 18 applies to blood glucose, rather than LDL.

        4 years ago Log in to Reply
    12. Jane Cerullo

      My LDL is 106 without a statin. I refuse to take
      Statins. Last month my cardiologist suggested Cholestoff, garlic and ginger. Will be o retested to see if this works to get under 100.

      4 years ago Log in to Reply
    13. Patty Harris

      For the first time ever, mine was 142. I was in the 60’s and 70’s before. I had decided to experiment for six months and not take my Pravastatin. Well, I got a big surprise and now I’m back on the statin. I eat a lot of Keto, so maybe that played a part in the rise???

      4 years ago Log in to Reply
    14. sdimond

      Read this paper in the British Medical Journal: https://bmjopen.bmj.com/content/5/9/e007118
      You will see how little effect that taking a statin has on your survival. Reducing your average A1C by 0.5 will extend your life and your quality of life by more than taking a statin. Statins also increase your insulin resistance and make it harder to control your blood sugar.

      1
      4 years ago Log in to Reply
      1. Wanacure

        Wow! Thanks for this info!

        3 years ago Log in to Reply
    15. Chris Albright

      My weakness in lowering my LDL is morning breakfast…… (2 strips of bacon and a sausage patty). I need to change to a ‘bacon want to be’ product…

      4 years ago Log in to Reply
    16. Tina Roberts

      Equal to.

      4 years ago Log in to Reply
    17. TomH

      I’ve had great cholesterol readings for years, partly due to the atorvastatin I’m on. I get tested at least every 6 months and doctors, both PCP and Endo, comment on it, so I don’t worry about it.

      4 years ago Log in to Reply
    18. Mary Ann Sayers

      My last LDL was 79—yes, I do know.

      4 years ago Log in to Reply
    19. Amanda Barras

      Below, but I’m also on a statin. Without that I’m above.

      1
      4 years ago Log in to Reply
      1. AnitaS

        Same here.

        4 years ago Log in to Reply
    20. Jillmarie61

      My LDL was 101.

      4 years ago Log in to Reply
    21. Tb-well

      Mine was over 100, but my tsh was also .0005. Normally it is at about 80.

      4 years ago Log in to Reply
    22. Wanacure

      Never had a cholesterol problem, but I’m on 10 mg simvastatin daily…”as a precaution/preventative.” sdimond’s comment is making me wonder. Do I REALLY need this?

      3 years ago Log in to Reply

    If you are an adult with type 1 diabetes, without looking at your medical records, do you know whether your most recent LDL cholesterol level was above, below, or equal to 100 mg/dl? Cancel reply

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