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    • 7 hours, 45 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      It is not often that I get into discussions with people about Type 1 and type 2 diabetes. But, when I do, most people don't know that there is a difference. Those that are aware that there is a difference between type 1 and type 2 diabetes, don't know what the differences are. Generally, unless the person has the disease, is a close family member, or works in the medical profession, there is no understanding of the disease.
    • 7 hours, 46 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 7 hours, 46 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 9 hours ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 12 hours, 34 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 12 hours, 35 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 15 hours, 59 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 15 hours, 59 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 15 hours, 59 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 16 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 16 hours, 1 minute ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 16 hours, 24 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 16 hours, 24 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 17 hours, 14 minutes ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 20 hours, 10 minutes ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
    • 20 hours, 10 minutes ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 20 hours, 17 minutes ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      T1D & T2D are meaningless acronyms for most, nearly all, nondiabetics. Juvenile diabetes vs diabetes is the closest known pairing and that's still few.
    • 20 hours, 17 minutes ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 20 hours, 21 minutes ago
      Mike S likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 20 hours, 23 minutes ago
      Lauren T likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 20 hours, 24 minutes ago
      Meerkat likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 15 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 15 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, and even with low cholesterol levels all my life, CT Scan show extensive calcified coronary artery disease.
    • 1 day, 17 hours ago
      Carrolyn likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 1 day, 17 hours ago
      Marty likes your comment at
      If you could reimagine your diabetes technology, what’s the one thing you would change?
      The technology is remarkable — and I’m thankful for it. Having managed T1D for a very long time, it's improved my A1C. But as we age with T1D, usability becomes critical. Larger fonts, easier interfaces, simpler navigation, and design for arthritic hands will matter more and more. We also urgently need better training in hospitals and care facilities. Too often staff are unfamiliar with pumps and CGMs, and patients are forced to disconnect from the very tools that keep them safe. With the nationwide shortage of endocrinologists, we cannot rely on specialists to fix these gaps — frontline medical staff need better training and support. Tech innovation must include accessibility and real-world medical training.
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    If you are an adult with type 1 diabetes, without looking at your medical records, do you know whether your most recent LDL cholesterol level was above, below, or equal to 100 mg/dl?

    Home > LC Polls > If you are an adult with type 1 diabetes, without looking at your medical records, do you know whether your most recent LDL cholesterol level was above, below, or equal to 100 mg/dl?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    28 Comments

    1. Ahh Life

      I keep an Excel spreadsheet of blood work going back to 1974.

      LDL data averages 80.7. Sometimes, it’s so low it cannot be calculated. HDL, LDL, triglycerides, and cholesterol are all in double digits. Well, no. Cholesterol is three digits averaging 150. (〜^∇^)〜

      4 years ago Log in to Reply
    2. Britni

      I know the value was really good, but don’t remember what the actual value was.

      4 years ago Log in to Reply
    3. Larry Martin

      I answered then I looked. It is 30 because I am prescribed a statin.

      4 years ago Log in to Reply
    4. Annie Wall

      It is now always below 100. I take 40 mg of simvastatin and have done so for about the last 25 years.

      4 years ago Log in to Reply
    5. Sherolyn Newell

      I only remember that it wasn’t too high.

      4 years ago Log in to Reply
    6. KCR

      My LDL is just slightly above 100 but my HCP and I are not concerned because my HDL is , too.

      1
      4 years ago Log in to Reply
    7. Patricia Dalrymple

      Yes because for the first time mine was high. I switched from eating Tuna without mayo for lunch to Turkey breast with sometimes a teaspoon or less of mayo, so I will convince my doctor that I can control it with diet. I don’t want to be on a statin. Digging down and making sure I eat healthier. All other numbers are OK except thyroid and I was checked for cancer, so nothing there. And I hated the thyroid medicine so doc said I could go off.

      4 years ago Log in to Reply
      1. Jneticdiabetic

        Interestingly the only time my LDL levels were elevated above normal was when I was hypothyroid. After figuring out my Synthroid dose and getting my thyroid levels back in normal limits, my cholesterol returned to normal too.

        4 years ago Log in to Reply
    8. gary rind

      knew mine was under 70 but looked it up and it was 60. my endo told me that diabetics have the risk factor for a heart attack like someone who has already had one and that my target was 70. take 10 mg of simvastatin

      4 years ago Log in to Reply
    9. Nevin Bowman

      So why shouldn’t we eat more high cholesterol foods and take a higher dose of statins? After all, that’s how we’re told to treat diabetes 😑

      4 years ago Log in to Reply
      1. Jane Cerullo

        Bahaha. Exactly why i don’t take statins. As a cardiac RN I notice low LDL with no lifestyle changes equals cardiac stents. How does that happen when LDL is 40. Mmm 🤔

        4 years ago Log in to Reply
    10. Kathy Morison

      I don’t know the exact number without looking but do know that all values relating to cholesterol is well within normal range. No cholesterol meds.

      4 years ago Log in to Reply
    11. Mick Martin

      Although I selected “Yes – My LDL was above 100 mg/dl” I had to do a quick calculation as I live in the UK, where our cholesterol measurements are delivered in mmol/l (millimols per litre … that’s liter for my American cousins).

      To change mmol/l to mg/dl you simply multiply by 18. Likewise, if you wish to convert from mg/dl to mmol/l you divide by 18.

      4 years ago Log in to Reply
      1. Anneyun

        I’m Canadian so had to do the calculation as well. I googled it and was told to multiply by 38.67.

        4 years ago Log in to Reply
      2. Gustavo Avitabile

        The multiplier 18 applies to blood glucose, rather than LDL.

        4 years ago Log in to Reply
    12. Jane Cerullo

      My LDL is 106 without a statin. I refuse to take
      Statins. Last month my cardiologist suggested Cholestoff, garlic and ginger. Will be o retested to see if this works to get under 100.

      4 years ago Log in to Reply
    13. Patty Harris

      For the first time ever, mine was 142. I was in the 60’s and 70’s before. I had decided to experiment for six months and not take my Pravastatin. Well, I got a big surprise and now I’m back on the statin. I eat a lot of Keto, so maybe that played a part in the rise???

      4 years ago Log in to Reply
    14. sdimond

      Read this paper in the British Medical Journal: https://bmjopen.bmj.com/content/5/9/e007118
      You will see how little effect that taking a statin has on your survival. Reducing your average A1C by 0.5 will extend your life and your quality of life by more than taking a statin. Statins also increase your insulin resistance and make it harder to control your blood sugar.

      1
      4 years ago Log in to Reply
      1. Wanacure

        Wow! Thanks for this info!

        4 years ago Log in to Reply
    15. Chris Albright

      My weakness in lowering my LDL is morning breakfast…… (2 strips of bacon and a sausage patty). I need to change to a ‘bacon want to be’ product…

      4 years ago Log in to Reply
    16. Tina Roberts

      Equal to.

      4 years ago Log in to Reply
    17. TomH

      I’ve had great cholesterol readings for years, partly due to the atorvastatin I’m on. I get tested at least every 6 months and doctors, both PCP and Endo, comment on it, so I don’t worry about it.

      4 years ago Log in to Reply
    18. Mary Ann Sayers

      My last LDL was 79—yes, I do know.

      4 years ago Log in to Reply
    19. Amanda Barras

      Below, but I’m also on a statin. Without that I’m above.

      1
      4 years ago Log in to Reply
      1. AnitaS

        Same here.

        4 years ago Log in to Reply
    20. Jillmarie61

      My LDL was 101.

      4 years ago Log in to Reply
    21. Tb-well

      Mine was over 100, but my tsh was also .0005. Normally it is at about 80.

      4 years ago Log in to Reply
    22. Wanacure

      Never had a cholesterol problem, but I’m on 10 mg simvastatin daily…”as a precaution/preventative.” sdimond’s comment is making me wonder. Do I REALLY need this?

      4 years ago Log in to Reply

    If you are an adult with type 1 diabetes, without looking at your medical records, do you know whether your most recent LDL cholesterol level was above, below, or equal to 100 mg/dl? Cancel reply

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