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    • 16 hours, 32 minutes ago
      Lawrence S. likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      shortly after I was diagnosed at age 43, went on a date with a T1D who had had it forever. she criticized what I ate, how much insulin I was taking for it (MDI) and when I ordered a Corona, I thought that her head would explode! needless to say there was no second date.
    • 16 hours, 32 minutes ago
      Lawrence S. likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered NO, but on reflection, I'm not certain that is correct. Of the many girls/women I dated in the 1950s and early 1960s, the only one I ever told that I have diabetes [Type One naming didn't exist for another 40 years] is the woman to whom I've been married for an eternity. And not one of my many dates told me that she has/had diabetes [of any of the many kinds].
    • 16 hours, 34 minutes ago
      Lawrence S. likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      At the time we dated and were married my wife was not diabetic. She was diagnosed as T1D during/after her first pregnancy. We shared T1D through the next 37 years and a second pregnancy!
    • 17 hours, 40 minutes ago
      Ahh Life likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered NO, but on reflection, I'm not certain that is correct. Of the many girls/women I dated in the 1950s and early 1960s, the only one I ever told that I have diabetes [Type One naming didn't exist for another 40 years] is the woman to whom I've been married for an eternity. And not one of my many dates told me that she has/had diabetes [of any of the many kinds].
    • 1 day, 8 hours ago
      Anita Stokar likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I put "Never" because I'm 85 and stable. Why change a good thing?
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      Ten years ago when I first started seeing her I asked her to work with me as an equal partner in all treatment decisions. She agreed and made a definite effort at every appointment to maintain that commitment. That was a decade ago. Healthcare has changed dramatically along with her caseload. At my 90 day appointment next week I hope she will have the uninterrupted time to allow for an actual pro/con discussion on several issues.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      the best one was when he recommended a CGM (Libre 2) for the first time. I said to him, "am I gonna scan myself like a can of peaches at the supermarket"? he got a laugh out of that one
    • 1 day, 9 hours ago
      Janis Senungetuk likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      I said “No.” Perhaps I’m the luckiest person alive since I’ve navigated the diabetic road for 74 years. Have never had DKA, although symptomatic twice. Have had numerous hypoglycemic affairs, but no hospitalizations. I am also a bit determined. They may hospitalize me for dementia or other old age conditions. But not for T1D. ✨.•*¨*.¸.•*¨*.¸¸.•*¨`*• ¨*.¸.•*¨`*. ¸.•*¨*.¸¸.•*¨`*•.✨
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      Ten years ago when I first started seeing her I asked her to work with me as an equal partner in all treatment decisions. She agreed and made a definite effort at every appointment to maintain that commitment. That was a decade ago. Healthcare has changed dramatically along with her caseload. At my 90 day appointment next week I hope she will have the uninterrupted time to allow for an actual pro/con discussion on several issues.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      My first one always pushed me towards new tech, letting me try it and then letting me decide. When I moved from Baltimore, a better place to be sick besides NYC you probably can’t find, to Florida, I asked for an Endo recommendation. He suggested USF but that’s a 45 min drive from me, on a good traffic day. So this one is convenient but he is more interested in not being inconvenienced. We got into it the last time I was there and were pretty honest with each other and he told me my insurance was the major problem. I have Medicare and a gap, like I’m not going to use that…I paid for it! Medicare is good paying for most things but you have to fight with them to get even normal prescriptions filled, here at least. So, to drone on, we’ve cleared the air and he and his staff have worked hard this past 3 months to get me what I need. I’m grateful for that. It’s not easy being a doc.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      To paraphrase a famous Ernest Hemingway line, it would be pretty to think so. 🧠
    • 1 day, 13 hours ago
      ChrisW likes your comment at
      Do you check your blood glucose before driving a car?
      Kind of a bad question, “check” means what, CGM and meter both are used to “check” BG, so it would appear that 60%+ “check”. Maybe it should have been, “How do you check BG before driving?” To get a more specific assessment of the BG checking task.
    • 1 day, 13 hours ago
      ChrisW likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      She recommended having the latest incarnation of Glucagon on hand and Lantus pens in case I have a pump problem.
    • 1 day, 16 hours ago
      kristina blake likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I am usually the one who asks about new tech. Or I explain the new tech that I am using to my endo.
    • 1 day, 16 hours ago
      kristina blake likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      To paraphrase a famous Ernest Hemingway line, it would be pretty to think so. 🧠
    • 1 day, 16 hours ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      the best one was when he recommended a CGM (Libre 2) for the first time. I said to him, "am I gonna scan myself like a can of peaches at the supermarket"? he got a laugh out of that one
    • 1 day, 16 hours ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I think I stay more up-to-date than my doc on what’s available for T1 treatment, but then I’m retired, have more time and more stake in the result than my doc does; further, he has to stay up-to-date on numerous other conditions/treatments, though an argument is true, it is his job. We still discuss settings/treatments/new offerings/changes in formulary of insurance coverage at each appointment a few times a year to go over blood work, update scripts, and check current treatments.
    • 1 day, 16 hours ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 17 hours ago
      Sarah Berry likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I think I stay more up-to-date than my doc on what’s available for T1 treatment, but then I’m retired, have more time and more stake in the result than my doc does; further, he has to stay up-to-date on numerous other conditions/treatments, though an argument is true, it is his job. We still discuss settings/treatments/new offerings/changes in formulary of insurance coverage at each appointment a few times a year to go over blood work, update scripts, and check current treatments.
    • 1 day, 17 hours ago
      Sarah Berry likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 17 hours ago
      Vicki Andersen likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I am usually the one who asks about new tech. Or I explain the new tech that I am using to my endo.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      My first one always pushed me towards new tech, letting me try it and then letting me decide. When I moved from Baltimore, a better place to be sick besides NYC you probably can’t find, to Florida, I asked for an Endo recommendation. He suggested USF but that’s a 45 min drive from me, on a good traffic day. So this one is convenient but he is more interested in not being inconvenienced. We got into it the last time I was there and were pretty honest with each other and he told me my insurance was the major problem. I have Medicare and a gap, like I’m not going to use that…I paid for it! Medicare is good paying for most things but you have to fight with them to get even normal prescriptions filled, here at least. So, to drone on, we’ve cleared the air and he and his staff have worked hard this past 3 months to get me what I need. I’m grateful for that. It’s not easy being a doc.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
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    If you are an adult with type 1 diabetes, have you also been diagnosed with kidney disease?

    Home > LC Polls > If you are an adult with type 1 diabetes, have you also been diagnosed with kidney disease?
    Previous

    If you use a CGM, how many times in the past year has a new sensor caused excessive bleeding at the site?

    Next

    How many glucose strips have you used to check your blood glucose levels in the past 24 hours?

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Lawrence S.

      No. But, kidney disease is my GREATEST fear. My father was on kidney dialysis at the end of his life. I figure it is in my genes. I really don’t want to do dialysis. So far, my urine tests have been within normal ranges. I’m keeping my fingers crossed.

      4
      2 years ago Log in to Reply
    2. GLORIA MILLER

      66 years T1 and no kidney disease to date! My husband has CKD from multiple insect stings a couple of years ago.

      1
      2 years ago Log in to Reply
    3. Henry Renn

      Dx after 62 yr of T1. Now at 66+. Wasn’t shocked by dx. I wish your survey broke it down by longevity.

      1
      2 years ago Log in to Reply
    4. cynthia jaworski

      I said “other” because my numbers are not good, but they are not quite in the range that requires a kidney consult. I don’t like this limbo, but it is better than being in the definitely bad zone.
      Kidney disease is what took most of my friends in the younger days.

      2
      2 years ago Log in to Reply
    5. RegMunro

      Not yet, only 57 years a T1D so maybe still coming

      2 years ago Log in to Reply
    6. Tom Caesar

      Type 1 for 53 years, diagnosed last year with kidney disease. Switched to plant based diet and increased my water intake both of which have improved my kidney functions. Terrified of dialysis but my doctor says I’ll never need it. Kidney functions at 40%_last test.

      2
      2 years ago Log in to Reply
      1. Julie Nalibov

        My nephrologist told me (and lots of research confirmed) that you should give up most “brown soda” (diet coke, pepsi, dr. pepper because they have astronomically more phosphates that appear in foods naturally. I have stage 3 CKD (stable for last 4-5 years). Rarely drink soda but if I get craving, its ginger ale, sprite, etc… or root beer all of which do not have phosphates added. Also started reading labels for it as a preservative. I only drink plant milks and some have it and some don’t, Always need my strong reading glasses for trips to supermarket lol! Good luck.with it all.

        1
        2 years ago Log in to Reply
    7. Sue Martin

      I had a kidney transplant 1.5 years ago.

      2
      2 years ago Log in to Reply
    8. Janis Senungetuk

      Yes, dx close to 3 years ago with CKD 3a. It will soon be 68 yrs since my T1D dx. I’m trying hard to reduce potassium and sodium levels in my food choices, finding it difficult.

      3
      2 years ago Log in to Reply
      1. MT

        I’ve been able to reduce sodium by making everything from scratch but reducing potassium has been almost impossible – there’s very little left to eat!

        2 years ago Log in to Reply
    9. Pete Murphy

      Apparently I’m fairly close to issues with my Kidney’s due to lack of good control during the bulk of the 34 years I’ve had it….On a Tandem X2 now…which is SOOO much better than Medtronic garbage, I’ve actually been achieving an A1C in the 7% for the first time in years…

      4
      2 years ago Log in to Reply
    10. Trina Blake

      I was born with poor kidney function, reached close to stage 2 at 15 years old. I was Dx’d with T1D at 30 years old – which of course doesn’t hep things. I’m in my 70’s now and won’t do dialysis (it’s expensive – I don’t qualify for Medicare and wold really impact my lfie and work in a bad way. I’ve lived with poor kidneys for 70+ years now so I figure what happens will happen.

      2
      2 years ago Log in to Reply
      1. Becky Hertz

        FYI if you have the need for dialysis, you will automatically go on Medicare. Not sure how it works but it does.

        1
        2 years ago Log in to Reply
    11. Becky Hertz

      Yes. I also had to have a kidney removed in 2016 due to a tumor. Wasn’t diagnosed until about 2 years ago. 49 years this June.

      1
      2 years ago Log in to Reply
    12. Jillmarie61

      My test results have always been great, never have they been abnormal, but my doctor told me all people who ate diabetic as long as I’ve had it (61 years) are considered to have stage 1 kidney disease even if they show no signs of it and every thing is fine. Like WTF???

      4
      2 years ago Log in to Reply
      1. Ahh Life

        Jillmarie62–Grrr! My main objection is to the physician’s phrase “all people with …” I would immediately challenge him to provide references, correlation coefficients, margins of error, et al. Most professionals are much more conditional and guarded in their assessments.

        1
        2 years ago Log in to Reply
    13. Kristine Warmecke

      Knock on wood, I haven’t yet. I have a history of NS when I was 4 years old and not T1D, yet.

      1
      2 years ago Log in to Reply
    14. Sharon Gerdik

      I am classified as CKD 3b but my kidney function has been stable for some time. I’m a T1D for 38 years and diagnosed at 35 after surviving Thyroid Storm.

      2 years ago Log in to Reply
    15. Molly Jones

      Other was my answer as I have common kidney stones from an epilepsy medication I take and need to take potassium citrate to help prevent this.

      2 years ago Log in to Reply
    16. TomH

      I answered no, but it depends on what you call kidney disease. I have a large stone about to get pulverized, I have a cyst, and one of my kidney related readings is marginal.

      2 years ago Log in to Reply
    17. Patty Harris

      After 42 years of T1, I had my first abnormal kidney check at my last routine physical. I go back in March to have it rechecked.

      2 years ago Log in to Reply
    18. Jan Masty

      63 years if t1d and so far so good! I consider myself very lucky!

      2 years ago Log in to Reply
    19. Jen Farley

      My test results are not looking good and it is stressing me out a bit.

      2 years ago Log in to Reply

    If you are an adult with type 1 diabetes, have you also been diagnosed with kidney disease? Cancel reply

    You must be logged in to post a comment.




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