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    • 14 hours ago
      ConnieT1D62 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I usually bolus for breakfast right at the time I start eating. But I prefer to bolus 15 minutes before. Better results. But I always forget.
    • 15 hours, 56 minutes ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 15 hours, 58 minutes ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I am able to pr bolus for Breakfast and dinner as I am at home. I never know when I am going to eat at work so bolus is at start of meal.
    • 18 hours, 50 minutes ago
      Mick Martin likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      Question is misleading until type of insulin is understood. I said 15 because I use Fiasp insulin.
    • 19 hours, 6 minutes ago
      Kris Sykes-David likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 20 hours, 3 minutes ago
      Ernie Richmann likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 20 hours, 24 minutes ago
      Robin Melen likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      My most recent meal was breakfast and, during the work week, I am far better at bolusing ahead of time. The rest of my meals in the day though end up receiving the bolus as I start eating or part at the start and more later on (depending on what I am eating and whether I know how much I'll eat.)
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 2 days, 16 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 2 days, 16 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 2 days, 17 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 2 days, 17 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 20 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 3 days, 15 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 17 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 18 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 18 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 3 days, 18 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 19 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 20 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 3 days, 20 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 4 days, 7 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
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    If you are an adult with type 1 diabetes, have you also been diagnosed with kidney disease?

    Home > LC Polls > If you are an adult with type 1 diabetes, have you also been diagnosed with kidney disease?
    Previous

    If you use a CGM, how many times in the past year has a new sensor caused excessive bleeding at the site?

    Next

    How many glucose strips have you used to check your blood glucose levels in the past 24 hours?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    23 Comments

    1. Lawrence S.

      No. But, kidney disease is my GREATEST fear. My father was on kidney dialysis at the end of his life. I figure it is in my genes. I really don’t want to do dialysis. So far, my urine tests have been within normal ranges. I’m keeping my fingers crossed.

      4
      7 months ago Log in to Reply
    2. GLORIA MILLER

      66 years T1 and no kidney disease to date! My husband has CKD from multiple insect stings a couple of years ago.

      1
      7 months ago Log in to Reply
    3. Henry Renn

      Dx after 62 yr of T1. Now at 66+. Wasn’t shocked by dx. I wish your survey broke it down by longevity.

      1
      7 months ago Log in to Reply
    4. cynthia jaworski

      I said “other” because my numbers are not good, but they are not quite in the range that requires a kidney consult. I don’t like this limbo, but it is better than being in the definitely bad zone.
      Kidney disease is what took most of my friends in the younger days.

      2
      7 months ago Log in to Reply
    5. RegMunro

      Not yet, only 57 years a T1D so maybe still coming

      7 months ago Log in to Reply
    6. Tom Caesar

      Type 1 for 53 years, diagnosed last year with kidney disease. Switched to plant based diet and increased my water intake both of which have improved my kidney functions. Terrified of dialysis but my doctor says I’ll never need it. Kidney functions at 40%_last test.

      2
      7 months ago Log in to Reply
      1. Julie Nalibov

        My nephrologist told me (and lots of research confirmed) that you should give up most “brown soda” (diet coke, pepsi, dr. pepper because they have astronomically more phosphates that appear in foods naturally. I have stage 3 CKD (stable for last 4-5 years). Rarely drink soda but if I get craving, its ginger ale, sprite, etc… or root beer all of which do not have phosphates added. Also started reading labels for it as a preservative. I only drink plant milks and some have it and some don’t, Always need my strong reading glasses for trips to supermarket lol! Good luck.with it all.

        1
        7 months ago Log in to Reply
    7. Sue Martin

      I had a kidney transplant 1.5 years ago.

      2
      7 months ago Log in to Reply
    8. Janis Senungetuk

      Yes, dx close to 3 years ago with CKD 3a. It will soon be 68 yrs since my T1D dx. I’m trying hard to reduce potassium and sodium levels in my food choices, finding it difficult.

      3
      7 months ago Log in to Reply
      1. MT

        I’ve been able to reduce sodium by making everything from scratch but reducing potassium has been almost impossible – there’s very little left to eat!

        7 months ago Log in to Reply
    9. Pete Murphy

      Apparently I’m fairly close to issues with my Kidney’s due to lack of good control during the bulk of the 34 years I’ve had it….On a Tandem X2 now…which is SOOO much better than Medtronic garbage, I’ve actually been achieving an A1C in the 7% for the first time in years…

      4
      7 months ago Log in to Reply
    10. Trina Blake

      I was born with poor kidney function, reached close to stage 2 at 15 years old. I was Dx’d with T1D at 30 years old – which of course doesn’t hep things. I’m in my 70’s now and won’t do dialysis (it’s expensive – I don’t qualify for Medicare and wold really impact my lfie and work in a bad way. I’ve lived with poor kidneys for 70+ years now so I figure what happens will happen.

      2
      7 months ago Log in to Reply
      1. Becky Hertz

        FYI if you have the need for dialysis, you will automatically go on Medicare. Not sure how it works but it does.

        1
        7 months ago Log in to Reply
    11. Becky Hertz

      Yes. I also had to have a kidney removed in 2016 due to a tumor. Wasn’t diagnosed until about 2 years ago. 49 years this June.

      1
      7 months ago Log in to Reply
    12. Jillmarie61

      My test results have always been great, never have they been abnormal, but my doctor told me all people who ate diabetic as long as I’ve had it (61 years) are considered to have stage 1 kidney disease even if they show no signs of it and every thing is fine. Like WTF???

      4
      7 months ago Log in to Reply
      1. Ahh Life

        Jillmarie62–Grrr! My main objection is to the physician’s phrase “all people with …” I would immediately challenge him to provide references, correlation coefficients, margins of error, et al. Most professionals are much more conditional and guarded in their assessments.

        1
        7 months ago Log in to Reply
    13. Kristine Warmecke

      Knock on wood, I haven’t yet. I have a history of NS when I was 4 years old and not T1D, yet.

      1
      7 months ago Log in to Reply
    14. Sharon Gerdik

      I am classified as CKD 3b but my kidney function has been stable for some time. I’m a T1D for 38 years and diagnosed at 35 after surviving Thyroid Storm.

      7 months ago Log in to Reply
    15. Molly Jones

      Other was my answer as I have common kidney stones from an epilepsy medication I take and need to take potassium citrate to help prevent this.

      7 months ago Log in to Reply
    16. TomH

      I answered no, but it depends on what you call kidney disease. I have a large stone about to get pulverized, I have a cyst, and one of my kidney related readings is marginal.

      7 months ago Log in to Reply
    17. Patty Harris

      After 42 years of T1, I had my first abnormal kidney check at my last routine physical. I go back in March to have it rechecked.

      7 months ago Log in to Reply
    18. Jan Masty

      63 years if t1d and so far so good! I consider myself very lucky!

      7 months ago Log in to Reply
    19. Jen Farley

      My test results are not looking good and it is stressing me out a bit.

      7 months ago Log in to Reply

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