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    • 26 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 14 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 13 hours, 57 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 23 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 15 hours, 24 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 15 hours, 24 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 17 hours, 36 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 17 hours, 37 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 38 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 18 hours, 20 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 43 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 21 hours, 40 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 19 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 21 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 21 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
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    If you are an adult with T1D and have tested positive for COVID-19 at some point since January 2022, did your health care provider prescribe Paxlovid to help with symptoms?

    Home > LC Polls > If you are an adult with T1D and have tested positive for COVID-19 at some point since January 2022, did your health care provider prescribe Paxlovid to help with symptoms?
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    If you have gone swimming while using an insulin pump that has to be disconnected while you are in the water, how do you manage your insulin while swimming? Select all that apply to you.

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    Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    32 Comments

    1. Pat Sims

      Paxlovid was worse than Covid. I suffered from most of the secondary effects it has. Had to be taken to hospital for dehydration and 104f degree fever.

      1
      2 years ago Log in to Reply
      1. Eva

        : – ( I am so sorry to hear. Hope you final recovered without much incident.

        2 years ago Log in to Reply
    2. LizB

      I had COVID in August 2022 but had very mild symptoms and didn’t take any prescription or OTC medications for it. I was fully vaxxed & boosted at the time.

      2 years ago Log in to Reply
      1. Jian

        same here

        2 years ago Log in to Reply
    3. KIMBERELY SMITH

      None

      2 years ago Log in to Reply
    4. Chrisanda

      I have not had Covid, but if I do get it, I will not take Paxlovid. Too many stories of severe side effects, including hospitalization. I am also not going to get any more boosters.

      2
      2 years ago Log in to Reply
      1. Jennifer Bounds

        👍 and I also have never been/ or will be vaccinated for C19.

        3
        2 years ago Log in to Reply
    5. GLORIA MILLER

      I’ve had Covid twice. The first time I was asymptomatic so nothing was needed. The second time, in June, I took Paxlovid with no problem. It was 17 days before I tested negative though.

      2 years ago Log in to Reply
    6. Ginger Vieira

      Yes, I’ve taken Paxlovid twice. It made a HUGE difference in my symptoms. I went from being hardly functional to very functional. As a mom, yada yada, I ain’t got time to lie on the couch with COVID. Paxlovid was critical.

      2 years ago Log in to Reply
    7. Amanda Barras

      Other – I have never taken a C19 test.

      1
      2 years ago Log in to Reply
    8. Karen Tay

      I had covered last June and the doctor said that he would not give me Paxlovid. Not too sure why but I was assuming the side effects from it would make my symptoms worse than what they already were. My husband had covered the same time as me and he did get it and seem to help him to get over it quicker than me. But he is not T1D

      2 years ago Log in to Reply
      1. Karen Tay

        Covid
        Darn voice text 🙄

        2
        2 years ago Log in to Reply
    9. Jennifer Bounds

      I have T1. Was tested for Covid 2x per week (employer required) and always NEGATIVE! I was even exposed on 2 occasions and never got it. To this day I’ve never had the Covid 19 virus.

      3
      2 years ago Log in to Reply
    10. Brian Vodehnal

      Honestly, unless you are testing everyday or one a week…can you really answer this question accurately. It’s a 98% exposure rate.

      1
      2 years ago Log in to Reply
    11. Lawrence S.

      I got my first case of Covid 19 in May, 2023. My doctor prescribed Paxlovid, which I started immediately. I hope the Paxlovid helped, but I felt that the symptoms were harsh, similar to a very bad case of the flu. It took over 2 months for my lungs to clear up.

      2 years ago Log in to Reply
    12. Vince Shockney

      I have not been diagnosed with COVID-19, yet. Five boosters so far and I will get number six next week.

      2 years ago Log in to Reply
    13. Jane Cerullo

      I was diagnosed on a cruise (I think picked up in Miami prior to cruise). They did not offer paxlovid. I worked as a nurse during whole pandemic and got Covid on vacation last March. I was quite sick. Took about three months before I felt back to normal.

      2 years ago Log in to Reply
    14. Eva

      Everyone around me got COVID pneumonia – they need to take erythromycin, inhaler and steroids. They were boosted and vaxxed to schedule. So, it doesn’t seem very effective to me – perhaps due to Antibody-dependent enhancement (ADE)???

      2 years ago Log in to Reply
    15. Jneticdiabetic

      I had COVID in June 2022. Did not take Paxlovid. I don’t think I notified my doctor. I did take a few extra vitamins and baby aspirin based on doctor’s recommendations given to a friend who had recently had it. Was sick in bed a couple of days with what felt like a really bad cold. Took 11 days to test negative. I am fully vaccinated.

      2 years ago Log in to Reply
    16. pru barry

      So far, so good. Covid clear, with an abundance of precautions. Still being respectful, but enjoying more freedom, to be sure.
      Here’s to good health!

      2 years ago Log in to Reply
    17. Sealani Weiner

      I am still getting over the side effects of the paxlovid now. It was a mess when I returned from travel by air and tested positive the next day. At the same time as I got COVID, my CGM readings were low, constantly low. In my foggy head I didn’t think to use a meter to compare, I just sort-of enjoyed the experience of stuffing sweet stuff into myself to raise up my blood sugar. After low after low with no abatement, I called Dexcom, and it was a sensor fail, which I’ve never experienced with that problem before in at least 10 years of using a cgm. The sensor read “43, then LOW”, but the meter recorded 545. Which explained why I was sleeping so much and not thinking clearly. I called my healthcare provider for paxolovid, took it the required days, and after the described incident, now have terrible itching and pain in my eyes. I don’t know that I will ever be able to determine what was COVID symptoms versus high blood sugar effects.

      2 years ago Log in to Reply
    18. Karen DeVeaux

      I said no, but I didn’t actually go to my HCP while I had it. I just took OTC medications.

      2 years ago Log in to Reply
    19. Marty

      I’m am fully vacc’d and boosted and have never had COVID, at least not symptomatic COVID. I’ve been taking precautions to avoid it since the start of the pandemic to be ready for knee surgery as soon as the opportunity arose and because I just don’t want to get sick. I find I don’t mind masking to stay healthy and protect others. When I see people masking, it feels like a warm gesture of mutual concern. I would take Paxlovid if I did test positive. My neighbor took it and hated her gastrointestinal side effects, but I don’t think everyone experiences that.

      2 years ago Log in to Reply
    20. Angela Naccari

      My endo discussed this with me but we both decided not to because I thought I may have had for several days before being tested positive. It works best when taken early is what I undertood.

      2 years ago Log in to Reply
    21. Trisha Oldenkamp

      I was offered rather than suggested Paxlovid but together we decided I didn’t need it.

      2 years ago Log in to Reply
    22. Mark Schweim

      I never had COVID until after I was “fully vaxed” against it. After getting the full faccine dosages, I’ve had COVID 3 times and every time my Doctors have told me to just treat it the same as I’d treat a bad cold or mild flu with OTC meds for the symptoms, so the heaviest medication I’ve ever taken for any of my 3 bouts with COVID has been Alka-Seltzer Plus and ibuprofen.

      2 years ago Log in to Reply
    23. Patricia Kilwein

      Had COVID in 2021. After having both vaccines. Was given an infusion of monoclonal thru an IV. Haven’t been sick since! Not a cold or flu either!

      2 years ago Log in to Reply
    24. Yaffa Steubinger

      I wasn’t prescribed Paxlovid because I didn’t want it. I would have if symptoms went into my lungs within their 5-day recommendation of when to get Paxlovid

      2 years ago Log in to Reply
    25. Linda Summerfield

      Yes. But I opted to take Ivermectin instead and within 2 hours after first dose temperature was gone and chilling stopped and other than tiredness couldn’t tell that I had been sick as a dog.

      1
      2 years ago Log in to Reply
    26. Kris Sykes-David

      I got Covid for the first time just a week ago upon arriving home from Norway/Sweden. Since I had been fully vaccinated prior to the trip, I feel like I didn’t have a bad case. So, Paxlovid or even calling my Doctor didn’t happen.

      1
      2 years ago Log in to Reply
    27. Jen Farley

      My provider handed me the prescription right there at the office. I have had it twice and each time they have just given Paxlovid to me. Normally I just go to the urgent care

      2 years ago Log in to Reply
    28. T1D4LongTime

      Yes, Paxlovid prescribed within 24 hrs of symptoms and positive test. Minimal symptoms and quick recovery.

      2 years ago Log in to Reply

    If you are an adult with T1D and have tested positive for COVID-19 at some point since January 2022, did your health care provider prescribe Paxlovid to help with symptoms? Cancel reply

    You must be logged in to post a comment.




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