Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 4 hours, 23 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 15 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 15 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 15 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 18 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 21 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 22 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 23 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 23 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 16 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 16 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 18 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 18 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 20 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 22 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 22 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 23 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 23 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    If you are an adult with T1D and have tested positive for COVID-19 at some point since January 2022, did your health care provider prescribe Paxlovid to help with symptoms?

    Home > LC Polls > If you are an adult with T1D and have tested positive for COVID-19 at some point since January 2022, did your health care provider prescribe Paxlovid to help with symptoms?
    Previous

    If you have gone swimming while using an insulin pump that has to be disconnected while you are in the water, how do you manage your insulin while swimming? Select all that apply to you.

    Next

    Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Advocacy

    Meet the Expert: Advancing Equity, Technology Access, and Connection in Diabetes Care 

    Jewels Doskicz, 2 days ago 11 min read  
    News

    A Nutritionist in Your Pocket: How One Family’s T1D Journey Inspired the Creation of SNAQ 

    Michael Howerton, 2 weeks ago 4 min read  
    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 3 weeks ago 5 min read  
    News

    What’s Keeping Glucagon Out of Reach for Many with T1D? 

    Jewels Doskicz, 4 weeks ago 6 min read  
    News

    Thinking About Type 1 Diabetes Autoantibody Screening? Here’s What to Consider 

    Jewels Doskicz, 1 month ago 9 min read  
    2025 Learning Session

    T1DX-QI 2025 November Learning Session Abstracts 

    QI Team at T1D Exchange, 1 month ago 1 min read  

    32 Comments

    1. Pat Sims

      Paxlovid was worse than Covid. I suffered from most of the secondary effects it has. Had to be taken to hospital for dehydration and 104f degree fever.

      1
      3 years ago Log in to Reply
      1. Eva

        : – ( I am so sorry to hear. Hope you final recovered without much incident.

        3 years ago Log in to Reply
    2. LizB

      I had COVID in August 2022 but had very mild symptoms and didn’t take any prescription or OTC medications for it. I was fully vaxxed & boosted at the time.

      3 years ago Log in to Reply
      1. Jian

        same here

        3 years ago Log in to Reply
    3. KIMBERELY SMITH

      None

      3 years ago Log in to Reply
    4. Chrisanda

      I have not had Covid, but if I do get it, I will not take Paxlovid. Too many stories of severe side effects, including hospitalization. I am also not going to get any more boosters.

      2
      3 years ago Log in to Reply
      1. Jennifer Bounds

        👍 and I also have never been/ or will be vaccinated for C19.

        3
        3 years ago Log in to Reply
    5. GLORIA MILLER

      I’ve had Covid twice. The first time I was asymptomatic so nothing was needed. The second time, in June, I took Paxlovid with no problem. It was 17 days before I tested negative though.

      3 years ago Log in to Reply
    6. Ginger Vieira

      Yes, I’ve taken Paxlovid twice. It made a HUGE difference in my symptoms. I went from being hardly functional to very functional. As a mom, yada yada, I ain’t got time to lie on the couch with COVID. Paxlovid was critical.

      3 years ago Log in to Reply
    7. Amanda Barras

      Other – I have never taken a C19 test.

      1
      3 years ago Log in to Reply
    8. Karen Tay

      I had covered last June and the doctor said that he would not give me Paxlovid. Not too sure why but I was assuming the side effects from it would make my symptoms worse than what they already were. My husband had covered the same time as me and he did get it and seem to help him to get over it quicker than me. But he is not T1D

      3 years ago Log in to Reply
      1. Karen Tay

        Covid
        Darn voice text 🙄

        2
        3 years ago Log in to Reply
    9. Jennifer Bounds

      I have T1. Was tested for Covid 2x per week (employer required) and always NEGATIVE! I was even exposed on 2 occasions and never got it. To this day I’ve never had the Covid 19 virus.

      3
      3 years ago Log in to Reply
    10. Brian Vodehnal

      Honestly, unless you are testing everyday or one a week…can you really answer this question accurately. It’s a 98% exposure rate.

      1
      3 years ago Log in to Reply
    11. Lawrence S.

      I got my first case of Covid 19 in May, 2023. My doctor prescribed Paxlovid, which I started immediately. I hope the Paxlovid helped, but I felt that the symptoms were harsh, similar to a very bad case of the flu. It took over 2 months for my lungs to clear up.

      3 years ago Log in to Reply
    12. Vince Shockney

      I have not been diagnosed with COVID-19, yet. Five boosters so far and I will get number six next week.

      3 years ago Log in to Reply
    13. Jane Cerullo

      I was diagnosed on a cruise (I think picked up in Miami prior to cruise). They did not offer paxlovid. I worked as a nurse during whole pandemic and got Covid on vacation last March. I was quite sick. Took about three months before I felt back to normal.

      3 years ago Log in to Reply
    14. Eva

      Everyone around me got COVID pneumonia – they need to take erythromycin, inhaler and steroids. They were boosted and vaxxed to schedule. So, it doesn’t seem very effective to me – perhaps due to Antibody-dependent enhancement (ADE)???

      3 years ago Log in to Reply
    15. Jneticdiabetic

      I had COVID in June 2022. Did not take Paxlovid. I don’t think I notified my doctor. I did take a few extra vitamins and baby aspirin based on doctor’s recommendations given to a friend who had recently had it. Was sick in bed a couple of days with what felt like a really bad cold. Took 11 days to test negative. I am fully vaccinated.

      3 years ago Log in to Reply
    16. pru barry

      So far, so good. Covid clear, with an abundance of precautions. Still being respectful, but enjoying more freedom, to be sure.
      Here’s to good health!

      3 years ago Log in to Reply
    17. Sealani Weiner

      I am still getting over the side effects of the paxlovid now. It was a mess when I returned from travel by air and tested positive the next day. At the same time as I got COVID, my CGM readings were low, constantly low. In my foggy head I didn’t think to use a meter to compare, I just sort-of enjoyed the experience of stuffing sweet stuff into myself to raise up my blood sugar. After low after low with no abatement, I called Dexcom, and it was a sensor fail, which I’ve never experienced with that problem before in at least 10 years of using a cgm. The sensor read “43, then LOW”, but the meter recorded 545. Which explained why I was sleeping so much and not thinking clearly. I called my healthcare provider for paxolovid, took it the required days, and after the described incident, now have terrible itching and pain in my eyes. I don’t know that I will ever be able to determine what was COVID symptoms versus high blood sugar effects.

      3 years ago Log in to Reply
    18. Karen DeVeaux

      I said no, but I didn’t actually go to my HCP while I had it. I just took OTC medications.

      3 years ago Log in to Reply
    19. Marty

      I’m am fully vacc’d and boosted and have never had COVID, at least not symptomatic COVID. I’ve been taking precautions to avoid it since the start of the pandemic to be ready for knee surgery as soon as the opportunity arose and because I just don’t want to get sick. I find I don’t mind masking to stay healthy and protect others. When I see people masking, it feels like a warm gesture of mutual concern. I would take Paxlovid if I did test positive. My neighbor took it and hated her gastrointestinal side effects, but I don’t think everyone experiences that.

      3 years ago Log in to Reply
    20. Angela Naccari

      My endo discussed this with me but we both decided not to because I thought I may have had for several days before being tested positive. It works best when taken early is what I undertood.

      3 years ago Log in to Reply
    21. Trisha Oldenkamp

      I was offered rather than suggested Paxlovid but together we decided I didn’t need it.

      3 years ago Log in to Reply
    22. Mark Schweim

      I never had COVID until after I was “fully vaxed” against it. After getting the full faccine dosages, I’ve had COVID 3 times and every time my Doctors have told me to just treat it the same as I’d treat a bad cold or mild flu with OTC meds for the symptoms, so the heaviest medication I’ve ever taken for any of my 3 bouts with COVID has been Alka-Seltzer Plus and ibuprofen.

      3 years ago Log in to Reply
    23. Patricia Kilwein

      Had COVID in 2021. After having both vaccines. Was given an infusion of monoclonal thru an IV. Haven’t been sick since! Not a cold or flu either!

      3 years ago Log in to Reply
    24. Yaffa Steubinger

      I wasn’t prescribed Paxlovid because I didn’t want it. I would have if symptoms went into my lungs within their 5-day recommendation of when to get Paxlovid

      3 years ago Log in to Reply
    25. Linda Summerfield

      Yes. But I opted to take Ivermectin instead and within 2 hours after first dose temperature was gone and chilling stopped and other than tiredness couldn’t tell that I had been sick as a dog.

      1
      3 years ago Log in to Reply
    26. Kris Sykes-David

      I got Covid for the first time just a week ago upon arriving home from Norway/Sweden. Since I had been fully vaccinated prior to the trip, I feel like I didn’t have a bad case. So, Paxlovid or even calling my Doctor didn’t happen.

      1
      3 years ago Log in to Reply
    27. Jen Farley

      My provider handed me the prescription right there at the office. I have had it twice and each time they have just given Paxlovid to me. Normally I just go to the urgent care

      3 years ago Log in to Reply
    28. T1D4LongTime

      Yes, Paxlovid prescribed within 24 hrs of symptoms and positive test. Minimal symptoms and quick recovery.

      3 years ago Log in to Reply

    If you are an adult with T1D and have tested positive for COVID-19 at some point since January 2022, did your health care provider prescribe Paxlovid to help with symptoms? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]