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    • 15 hours, 1 minute ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 15 hours, 2 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 15 hours, 53 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 16 hours, 20 minutes ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 16 hours, 33 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 17 hours, 25 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 17 hours, 32 minutes ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 17 hours, 54 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 17 hours, 56 minutes ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 18 hours, 3 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 19 hours, 28 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 10 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 15 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 15 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 16 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 17 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 17 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 18 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 18 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 18 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 18 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    How often do you typically change your basal insulin rates outside of appointments with your T1D health care provider?

    Home > LC Polls > How often do you typically change your basal insulin rates outside of appointments with your T1D health care provider?
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    40 Comments

    1. Steven Gill

      Several months I adjusted my basal, than tweaked them. Haven’t needed to since but I don’t think I need a doctor to tell me how.

      1
      4 months ago Log in to Reply
    2. Britni

      I answered “other” for two reasons. A) “Rates” instead of “doses” implies this question is meant only for pump users, but I use MDI and there isn’t an “N/A I use MDI” option. B) It varies. If I notice an obvious pattern and think that changing my basal doses will help, I’ll change them and tell my doctor at my next appointment. Some years I’ve made lots of changes on my own. Some years I’ve only made changes when my doctor suggested them.

      4 months ago Log in to Reply
    3. Ginger Vieira

      Tiny adjustments in my long-acting basal dose makes a huge difference in my ability to stay in my goal range. If I notice I’m suddenly struggling with stubborn highs, I know I probably need a tiny boost in my basal dose. Just going from 9 units to 10 units of Lantus can have a huge impact on how easy it is to stay in my goal range.

      1
      4 months ago Log in to Reply
    4. Robin Melen

      My pump handles most everything, but in the week following chemo, I use a different profile in the pump with higher basal rates – my sugars tend to rise during that week. Then I return to my main profile and all is well!

      4 months ago Log in to Reply
    5. Beth Dykes

      My endo doesn’t touch my settings. After 38 years, I do it all myself.

      4 months ago Log in to Reply
    6. Elle Hamann

      Whenever it needs adjusted, we adjust it.

      2
      4 months ago Log in to Reply
      1. cynthia jaworski

        of course!

        4 months ago Log in to Reply
    7. Daniel Bestvater

      I use control-IQ in the evening and at night. Often during the day if I am at all active, I must turn off CIQ and set my own basal rates or I will become hypoglycemic. CIQ works fine provided I am not very active.

      4 months ago Log in to Reply
    8. Donald Cragun

      I change my carb to insulin ratios daily to adjust to what happened on that day.

      I change basal rates when I see that my blood sugar is rising or falling at times when they shouldn’t be. It is entirely based on my blood sugar; not on the calendar.

      4 months ago Log in to Reply
    9. kalmay

      Don’t use a pump

      4 months ago Log in to Reply
    10. Lawrence S.

      I could have selected two answers. I selected “once every couple of months.” However, I could have said that I have a pump that automatically adjusts the basal rates (Tandem Control IQ). As my blood glucose levels rates change, I adjust basal rates, bolus rates (carb ratios), or correction factors, depending upon the circumstances of the BG changes.

      4 months ago Log in to Reply
    11. William Bennett

      On my own if it seems necessary, but I’ve been at this for a long time and am pretty stable, so it rarely is.

      4 months ago Log in to Reply
    12. Sherolyn Newell

      I will change the rates on my own, but usually only when I have trouble consistently for a couple weeks. I have found that issues tend to be temporary for me. I can use an adjustment dose if needed.

      2
      4 months ago Log in to Reply
    13. Jneticdiabetic

      I adjust my basal rates for menstruation when I remember. I used to predictably run high a week before my period. At 45 y/o, the timing of insulin resistance varies and I sometimes get very low when I start. I guess that’s perimenopause talking. I also sometimes make basal adjustments if I spot consistent patterns of highs or lows in my CGM. For the most part, I leave it to my b Tandem pump/Control-IQ.

      1
      4 months ago Log in to Reply
    14. Barbara Bubar

      LOL…..I agree with another comment…no one touches my pump settings but me….my NP just “observes.” I’m the one who lives with what is happening.

      1
      4 months ago Log in to Reply
    15. Ehamilton0722

      I use control IQ with my tandem pump, but if i see a consistent pattern of highs or lows, i will adjust my set basal rates as needed.

      2
      4 months ago Log in to Reply
    16. Marty

      I use Control IQ, which automatically adjusts basal rates, but I do set up new profiles with different basal rates as needed for different circumstances. Until I switched doctors to accommodate Medicare requirements for frequent appts, my endo never even asked about pump parameters when I saw him once per year. He saw my data and respected my ability to manage things.

      4 months ago Log in to Reply
    17. Eva

      I use a temp basal when I’m exercising and at night, if I did a lot of cardio. Minor tweaks matter.

      1
      4 months ago Log in to Reply
    18. AnitaS

      I use a pump that automatically adjusts my basal rates but I use different profiles for different circumstances. If I keep seeing too high or low of results, I will do a small adjustment but usually I just give a correction dose or eat something small to adjust blood sugars.

      4 months ago Log in to Reply
    19. Annie Simon

      I see my endocrinologist every 4 months and we review my data on my phone app as I have a CGM (sensor). He either keeps it the same or adjusts the pre meal insukin (ADMELOG) also is Tresiba and administer it at breakfast which last me 24 hours. It’s usually the same a slight change of 1-2 units at breakfast or dinner as now I’m not taking any pre lunch l.

      4 months ago Log in to Reply
    20. Steve Rumble

      I very rarely adjust my basal insulin (Lantus) rates, but more frequently adjust the correction factor for boluses (Novolog).

      4 months ago Log in to Reply
    21. Kayci Marr

      Multiple times per month if we aren’t counting temp basal for exercise or long car rides

      1
      4 months ago Log in to Reply
    22. Jeff Balbirnie

      Whenever necessary, zero use for white coats “sanctioning” whatever I do… EVER.

      1
      4 months ago Log in to Reply
    23. Sue Martin

      I use injected insulin, so I change my “rate” on the fly, so to speak.

      4 months ago Log in to Reply
    24. Ernie Richmann

      I do activate a profile with 50% of my normal basal rate for longer bike rides and walks.

      4 months ago Log in to Reply
    25. Abigail Elias

      I have 6 pre-programmed basal rate profiles (each of which has different rates for multiple different times of day). I will switch among them depending on my activities, but I don’t reprogram them unless my endocrinologist sees a pattern of high or low blood sugars and suggests I adjust a rate for a particular time of day for one or more of the profiles.

      4 months ago Log in to Reply
    26. Beckett Nelson

      Sometimes a couple times a year, sometimes once a year…it all depends what my body needs

      4 months ago Log in to Reply
    27. Thomas Cline

      On MDI, I use changes in my basal insulin (Levemir) not just for basal needs, but also to adjust for the longer-lasting effects on blood sugar of food that my fast-acting insulin (Fiasp) would not completely cover. Hence I may change several times a week, depending on diet and time of consumption.

      4 months ago Log in to Reply
    28. sdimond

      For the last several years I have injected 7 units of Tresiba in the morning and 13 units at bed time. I cover my low carb meals with Novilin-R and a couple of units of Humalog. A1C is 4.7 and standard deviation about 12.

      1
      4 months ago Log in to Reply
    29. Trina Blake

      If the question includes temp basal rates – then often. I hae 9 different time zones for my pump settings (all of them: basal, ISF for corrections and carb:insulin for when I eat). I have BIQ (te CIQ target is too high for me) and will avail myself of temp basal when needed. I also have different profiles based on where I place my infusion set.

      1
      4 months ago Log in to Reply
    30. Ms Cris

      Each site absorbs differently on my body, and so by rotating I also change my basal absorption (arms vs belly vs lower back, vs thigh). My semaglutide 1X/week injection has a curve of strength, with days 3-5 the strongest. Then my menstrual cycle is thrown in, with week one needing the least, and so on. I am way sensitive…

      2
      4 months ago Log in to Reply
      1. Ms Cris

        Oh, and for activity/exercise! Different temp rates for different activities.

        1
        4 months ago Log in to Reply
    31. Mary Ann Sayers

      When my bgs show a constant low at a given time I adjust the basal to avoid the lows.

      2
      4 months ago Log in to Reply
    32. Becky Hertz

      Not sure exactly what this question is asking. I do temp basals on an ad needed basis, stubborn highs or lows. I also adjust my basal profile when needed.

      1
      4 months ago Log in to Reply
    33. Clearblueskynm

      Whenever I need to…unless pretty new to diabetes and insulin, everyone should feel comfortable with changing their basal as necessary as it is your life, your body, and no physician is available 24/7

      3
      4 months ago Log in to Reply
    34. Juha Kankaanpaa

      I change the basal rate when needed. There is no time frame how often this happens.

      1
      4 months ago Log in to Reply
    35. Kathy Morison

      I take a basal injections twice a day. The morning dose stays mostly the same unless I have to be fasting or Im sick. The night time dose runs according to what my bedtime sugar is. I will decrease it if its running on the low side.

      4 months ago Log in to Reply
    36. George Lovelace

      So fine tuned with CIQ but my Endo still follows my G6 and advises me of any change needed.

      4 months ago Log in to Reply
    37. M C

      I change it when necessary. If I see a pattern forming (eg. going lower than normal, or higher) over a certain period of the day, I’ll make the adjustment accordingly to correct the changed pattern.

      4 months ago Log in to Reply
    38. Jim Cobbe

      Basal, never, but not for reason given as I’d interpret it; I don’t change it at my quarterly appointments either without detailed discussion and agreement with my endo — and as often as not, I’ve not gone along with his initial suggestion; I know better than him how things turn out in my body. He generally accepts my decisions after I state my reasons, albeit sometimes begrudgingly. Lately, somewhat to my surprise, he has seemed more willing to accept things as they are and just tell me to keep doing what I’m doing, and he hopes to keep ‘taking care’ of me for another decade (I’m 76 now with 47 years T1)!

      4 months ago Log in to Reply

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