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  • Activity
    • 2 hours, 13 minutes ago
      ConnieT1D62 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 2 hours, 55 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I always bring extra infusion sets and CGM sensors in case of accidental tear out. With Tandem pump, a charger is also essential. I forgot mine in my last weekend away. I use a Dexcom G6, so don't need to finger stick, but always bring my meter & strips just in case, and extra lancets as sometimes my non-diabetic family members like me to check their BG. I always take a vial and syringes in case of pump failure. For overnight trips also bring juice boxes/ glucose tabs and glucagon in case for lows. Hard to travel light as a T1D, especially with those GIANT Dexcom sensor inserters! 🧳🧳🧳
    • 3 hours, 11 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 3 hours, 12 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 3 hours, 28 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 3 hours, 28 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 3 hours, 29 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 3 hours, 30 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 4 hours, 50 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 4 hours, 51 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 4 hours, 52 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
    • 4 hours, 53 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 4 hours, 54 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 4 hours, 54 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      A while back I went to the UK for a choir tour. I had just acquired a CGM, a G4 Platinum, specifically as a safety measure for the trip. I don't bring second meter any more, but this was before the Dexcom was trusted for bolusing, so I was still meter-dependent and felt I needed an extra just in case. As it turned out I DID need it, but not for myself. There was another, newly dx'd, T1 on the trip and she lost her meter when she left her bag on the bus or some such. So I was able to come to the rescue. It was possible to buy a replacement of course but European/Brit ones are calibrated in moles rather than mL so that was still a glitch--she used mine for the remainder of the trip.
    • 4 hours, 55 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 4 hours, 56 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 7 hours, 52 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Skin prep pads.
    • 7 hours, 52 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 7 hours, 53 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Additional (i.e. beyond what I usually carry with me) glucose tablets and a dose of Baqsimi.
    • 7 hours, 53 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 8 hours, 40 minutes ago
      Flo Bachrach likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 9 hours, 8 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 9 hours, 8 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 9 hours, 9 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I agree that it depends on where the trip is. My decision point is how long would it take to get replacement supplies and what are the effects of a delay. I’m MDI Tresiba which lasts >24 hours, which significantly reduces the urgency to replace background insulin. For NYC, I brought nothing extra. For my trip to a third world country- I brought one, and only one, extra of each supply including a CGM receiver. Dexcom wasn’t available where I went and I worried if something happened to my phone, I wouldn’t be able to download the software if I bought a replacement phone.
    • 9 hours, 9 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
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    How often do you typically change your basal insulin rates outside of appointments with your T1D health care provider?

    Home > LC Polls > How often do you typically change your basal insulin rates outside of appointments with your T1D health care provider?
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    40 Comments

    1. Steven Gill

      Several months I adjusted my basal, than tweaked them. Haven’t needed to since but I don’t think I need a doctor to tell me how.

      1
      6 months ago Log in to Reply
    2. Britni

      I answered “other” for two reasons. A) “Rates” instead of “doses” implies this question is meant only for pump users, but I use MDI and there isn’t an “N/A I use MDI” option. B) It varies. If I notice an obvious pattern and think that changing my basal doses will help, I’ll change them and tell my doctor at my next appointment. Some years I’ve made lots of changes on my own. Some years I’ve only made changes when my doctor suggested them.

      6 months ago Log in to Reply
    3. Ginger Vieira

      Tiny adjustments in my long-acting basal dose makes a huge difference in my ability to stay in my goal range. If I notice I’m suddenly struggling with stubborn highs, I know I probably need a tiny boost in my basal dose. Just going from 9 units to 10 units of Lantus can have a huge impact on how easy it is to stay in my goal range.

      1
      6 months ago Log in to Reply
    4. Robin Melen

      My pump handles most everything, but in the week following chemo, I use a different profile in the pump with higher basal rates – my sugars tend to rise during that week. Then I return to my main profile and all is well!

      6 months ago Log in to Reply
    5. Beth Dykes

      My endo doesn’t touch my settings. After 38 years, I do it all myself.

      6 months ago Log in to Reply
    6. Elle Hamann

      Whenever it needs adjusted, we adjust it.

      2
      6 months ago Log in to Reply
      1. cynthia jaworski

        of course!

        6 months ago Log in to Reply
    7. Daniel Bestvater

      I use control-IQ in the evening and at night. Often during the day if I am at all active, I must turn off CIQ and set my own basal rates or I will become hypoglycemic. CIQ works fine provided I am not very active.

      6 months ago Log in to Reply
    8. Donald Cragun

      I change my carb to insulin ratios daily to adjust to what happened on that day.

      I change basal rates when I see that my blood sugar is rising or falling at times when they shouldn’t be. It is entirely based on my blood sugar; not on the calendar.

      6 months ago Log in to Reply
    9. kalmay

      Don’t use a pump

      6 months ago Log in to Reply
    10. Lawrence S.

      I could have selected two answers. I selected “once every couple of months.” However, I could have said that I have a pump that automatically adjusts the basal rates (Tandem Control IQ). As my blood glucose levels rates change, I adjust basal rates, bolus rates (carb ratios), or correction factors, depending upon the circumstances of the BG changes.

      6 months ago Log in to Reply
    11. William Bennett

      On my own if it seems necessary, but I’ve been at this for a long time and am pretty stable, so it rarely is.

      6 months ago Log in to Reply
    12. Sherolyn Newell

      I will change the rates on my own, but usually only when I have trouble consistently for a couple weeks. I have found that issues tend to be temporary for me. I can use an adjustment dose if needed.

      2
      6 months ago Log in to Reply
    13. Jneticdiabetic

      I adjust my basal rates for menstruation when I remember. I used to predictably run high a week before my period. At 45 y/o, the timing of insulin resistance varies and I sometimes get very low when I start. I guess that’s perimenopause talking. I also sometimes make basal adjustments if I spot consistent patterns of highs or lows in my CGM. For the most part, I leave it to my b Tandem pump/Control-IQ.

      1
      6 months ago Log in to Reply
    14. Barbara Bubar

      LOL…..I agree with another comment…no one touches my pump settings but me….my NP just “observes.” I’m the one who lives with what is happening.

      1
      6 months ago Log in to Reply
    15. Ehamilton0722

      I use control IQ with my tandem pump, but if i see a consistent pattern of highs or lows, i will adjust my set basal rates as needed.

      2
      6 months ago Log in to Reply
    16. Marty

      I use Control IQ, which automatically adjusts basal rates, but I do set up new profiles with different basal rates as needed for different circumstances. Until I switched doctors to accommodate Medicare requirements for frequent appts, my endo never even asked about pump parameters when I saw him once per year. He saw my data and respected my ability to manage things.

      6 months ago Log in to Reply
    17. Eva

      I use a temp basal when I’m exercising and at night, if I did a lot of cardio. Minor tweaks matter.

      1
      6 months ago Log in to Reply
    18. AnitaS

      I use a pump that automatically adjusts my basal rates but I use different profiles for different circumstances. If I keep seeing too high or low of results, I will do a small adjustment but usually I just give a correction dose or eat something small to adjust blood sugars.

      6 months ago Log in to Reply
    19. Annie Simon

      I see my endocrinologist every 4 months and we review my data on my phone app as I have a CGM (sensor). He either keeps it the same or adjusts the pre meal insukin (ADMELOG) also is Tresiba and administer it at breakfast which last me 24 hours. It’s usually the same a slight change of 1-2 units at breakfast or dinner as now I’m not taking any pre lunch l.

      6 months ago Log in to Reply
    20. Steve Rumble

      I very rarely adjust my basal insulin (Lantus) rates, but more frequently adjust the correction factor for boluses (Novolog).

      6 months ago Log in to Reply
    21. Kayci Marr

      Multiple times per month if we aren’t counting temp basal for exercise or long car rides

      1
      6 months ago Log in to Reply
    22. Jeff Balbirnie

      Whenever necessary, zero use for white coats “sanctioning” whatever I do… EVER.

      1
      6 months ago Log in to Reply
    23. Sue Martin

      I use injected insulin, so I change my “rate” on the fly, so to speak.

      6 months ago Log in to Reply
    24. Ernie Richmann

      I do activate a profile with 50% of my normal basal rate for longer bike rides and walks.

      6 months ago Log in to Reply
    25. Abigail Elias

      I have 6 pre-programmed basal rate profiles (each of which has different rates for multiple different times of day). I will switch among them depending on my activities, but I don’t reprogram them unless my endocrinologist sees a pattern of high or low blood sugars and suggests I adjust a rate for a particular time of day for one or more of the profiles.

      6 months ago Log in to Reply
    26. Beckett Nelson

      Sometimes a couple times a year, sometimes once a year…it all depends what my body needs

      6 months ago Log in to Reply
    27. Thomas Cline

      On MDI, I use changes in my basal insulin (Levemir) not just for basal needs, but also to adjust for the longer-lasting effects on blood sugar of food that my fast-acting insulin (Fiasp) would not completely cover. Hence I may change several times a week, depending on diet and time of consumption.

      6 months ago Log in to Reply
    28. sdimond

      For the last several years I have injected 7 units of Tresiba in the morning and 13 units at bed time. I cover my low carb meals with Novilin-R and a couple of units of Humalog. A1C is 4.7 and standard deviation about 12.

      1
      6 months ago Log in to Reply
    29. Trina Blake

      If the question includes temp basal rates – then often. I hae 9 different time zones for my pump settings (all of them: basal, ISF for corrections and carb:insulin for when I eat). I have BIQ (te CIQ target is too high for me) and will avail myself of temp basal when needed. I also have different profiles based on where I place my infusion set.

      1
      6 months ago Log in to Reply
    30. Ms Cris

      Each site absorbs differently on my body, and so by rotating I also change my basal absorption (arms vs belly vs lower back, vs thigh). My semaglutide 1X/week injection has a curve of strength, with days 3-5 the strongest. Then my menstrual cycle is thrown in, with week one needing the least, and so on. I am way sensitive…

      2
      6 months ago Log in to Reply
      1. Ms Cris

        Oh, and for activity/exercise! Different temp rates for different activities.

        1
        6 months ago Log in to Reply
    31. Mary Ann Sayers

      When my bgs show a constant low at a given time I adjust the basal to avoid the lows.

      2
      6 months ago Log in to Reply
    32. Becky Hertz

      Not sure exactly what this question is asking. I do temp basals on an ad needed basis, stubborn highs or lows. I also adjust my basal profile when needed.

      1
      6 months ago Log in to Reply
    33. Clearblueskynm

      Whenever I need to…unless pretty new to diabetes and insulin, everyone should feel comfortable with changing their basal as necessary as it is your life, your body, and no physician is available 24/7

      3
      6 months ago Log in to Reply
    34. Juha Kankaanpaa

      I change the basal rate when needed. There is no time frame how often this happens.

      1
      6 months ago Log in to Reply
    35. Kathy Morison

      I take a basal injections twice a day. The morning dose stays mostly the same unless I have to be fasting or Im sick. The night time dose runs according to what my bedtime sugar is. I will decrease it if its running on the low side.

      6 months ago Log in to Reply
    36. George Lovelace

      So fine tuned with CIQ but my Endo still follows my G6 and advises me of any change needed.

      6 months ago Log in to Reply
    37. M C

      I change it when necessary. If I see a pattern forming (eg. going lower than normal, or higher) over a certain period of the day, I’ll make the adjustment accordingly to correct the changed pattern.

      6 months ago Log in to Reply
    38. Jim Cobbe

      Basal, never, but not for reason given as I’d interpret it; I don’t change it at my quarterly appointments either without detailed discussion and agreement with my endo — and as often as not, I’ve not gone along with his initial suggestion; I know better than him how things turn out in my body. He generally accepts my decisions after I state my reasons, albeit sometimes begrudgingly. Lately, somewhat to my surprise, he has seemed more willing to accept things as they are and just tell me to keep doing what I’m doing, and he hopes to keep ‘taking care’ of me for another decade (I’m 76 now with 47 years T1)!

      6 months ago Log in to Reply

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