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    • 1 hour, 22 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 12 hours, 4 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 13 hours, 31 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 13 hours, 31 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 13 hours, 31 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 15 hours, 44 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 44 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 15 hours, 45 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 16 hours, 27 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 17 hours, 50 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 47 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 17 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 19 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
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    How often do you typically change your basal insulin rates outside of appointments with your T1D health care provider?

    Home > LC Polls > How often do you typically change your basal insulin rates outside of appointments with your T1D health care provider?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    40 Comments

    1. Steven Gill

      Several months I adjusted my basal, than tweaked them. Haven’t needed to since but I don’t think I need a doctor to tell me how.

      1
      3 years ago Log in to Reply
    2. Britni

      I answered “other” for two reasons. A) “Rates” instead of “doses” implies this question is meant only for pump users, but I use MDI and there isn’t an “N/A I use MDI” option. B) It varies. If I notice an obvious pattern and think that changing my basal doses will help, I’ll change them and tell my doctor at my next appointment. Some years I’ve made lots of changes on my own. Some years I’ve only made changes when my doctor suggested them.

      3 years ago Log in to Reply
    3. Ginger Vieira

      Tiny adjustments in my long-acting basal dose makes a huge difference in my ability to stay in my goal range. If I notice I’m suddenly struggling with stubborn highs, I know I probably need a tiny boost in my basal dose. Just going from 9 units to 10 units of Lantus can have a huge impact on how easy it is to stay in my goal range.

      1
      3 years ago Log in to Reply
    4. Robin Melen

      My pump handles most everything, but in the week following chemo, I use a different profile in the pump with higher basal rates – my sugars tend to rise during that week. Then I return to my main profile and all is well!

      3 years ago Log in to Reply
    5. Beth Dykes

      My endo doesn’t touch my settings. After 38 years, I do it all myself.

      3 years ago Log in to Reply
    6. Elle Hamann

      Whenever it needs adjusted, we adjust it.

      2
      3 years ago Log in to Reply
      1. cynthia jaworski

        of course!

        3 years ago Log in to Reply
    7. Daniel Bestvater

      I use control-IQ in the evening and at night. Often during the day if I am at all active, I must turn off CIQ and set my own basal rates or I will become hypoglycemic. CIQ works fine provided I am not very active.

      3 years ago Log in to Reply
    8. Donald Cragun

      I change my carb to insulin ratios daily to adjust to what happened on that day.

      I change basal rates when I see that my blood sugar is rising or falling at times when they shouldn’t be. It is entirely based on my blood sugar; not on the calendar.

      3 years ago Log in to Reply
    9. kalmay

      Don’t use a pump

      3 years ago Log in to Reply
    10. Lawrence S.

      I could have selected two answers. I selected “once every couple of months.” However, I could have said that I have a pump that automatically adjusts the basal rates (Tandem Control IQ). As my blood glucose levels rates change, I adjust basal rates, bolus rates (carb ratios), or correction factors, depending upon the circumstances of the BG changes.

      3 years ago Log in to Reply
    11. William Bennett

      On my own if it seems necessary, but I’ve been at this for a long time and am pretty stable, so it rarely is.

      3 years ago Log in to Reply
    12. Sherolyn Newell

      I will change the rates on my own, but usually only when I have trouble consistently for a couple weeks. I have found that issues tend to be temporary for me. I can use an adjustment dose if needed.

      2
      3 years ago Log in to Reply
    13. Jneticdiabetic

      I adjust my basal rates for menstruation when I remember. I used to predictably run high a week before my period. At 45 y/o, the timing of insulin resistance varies and I sometimes get very low when I start. I guess that’s perimenopause talking. I also sometimes make basal adjustments if I spot consistent patterns of highs or lows in my CGM. For the most part, I leave it to my b Tandem pump/Control-IQ.

      1
      3 years ago Log in to Reply
    14. Barbara Bubar

      LOL…..I agree with another comment…no one touches my pump settings but me….my NP just “observes.” I’m the one who lives with what is happening.

      1
      3 years ago Log in to Reply
    15. Ehamilton0722

      I use control IQ with my tandem pump, but if i see a consistent pattern of highs or lows, i will adjust my set basal rates as needed.

      2
      3 years ago Log in to Reply
    16. Marty

      I use Control IQ, which automatically adjusts basal rates, but I do set up new profiles with different basal rates as needed for different circumstances. Until I switched doctors to accommodate Medicare requirements for frequent appts, my endo never even asked about pump parameters when I saw him once per year. He saw my data and respected my ability to manage things.

      3 years ago Log in to Reply
    17. Eva

      I use a temp basal when I’m exercising and at night, if I did a lot of cardio. Minor tweaks matter.

      1
      3 years ago Log in to Reply
    18. AnitaS

      I use a pump that automatically adjusts my basal rates but I use different profiles for different circumstances. If I keep seeing too high or low of results, I will do a small adjustment but usually I just give a correction dose or eat something small to adjust blood sugars.

      3 years ago Log in to Reply
    19. Annie Simon

      I see my endocrinologist every 4 months and we review my data on my phone app as I have a CGM (sensor). He either keeps it the same or adjusts the pre meal insukin (ADMELOG) also is Tresiba and administer it at breakfast which last me 24 hours. It’s usually the same a slight change of 1-2 units at breakfast or dinner as now I’m not taking any pre lunch l.

      3 years ago Log in to Reply
    20. Steve Rumble

      I very rarely adjust my basal insulin (Lantus) rates, but more frequently adjust the correction factor for boluses (Novolog).

      3 years ago Log in to Reply
    21. Kayci Marr

      Multiple times per month if we aren’t counting temp basal for exercise or long car rides

      1
      3 years ago Log in to Reply
    22. Jeff Balbirnie

      Whenever necessary, zero use for white coats “sanctioning” whatever I do… EVER.

      1
      3 years ago Log in to Reply
    23. Sue Martin

      I use injected insulin, so I change my “rate” on the fly, so to speak.

      3 years ago Log in to Reply
    24. Ernie Richmann

      I do activate a profile with 50% of my normal basal rate for longer bike rides and walks.

      3 years ago Log in to Reply
    25. Abigail Elias

      I have 6 pre-programmed basal rate profiles (each of which has different rates for multiple different times of day). I will switch among them depending on my activities, but I don’t reprogram them unless my endocrinologist sees a pattern of high or low blood sugars and suggests I adjust a rate for a particular time of day for one or more of the profiles.

      3 years ago Log in to Reply
    26. Beckett Nelson

      Sometimes a couple times a year, sometimes once a year…it all depends what my body needs

      3 years ago Log in to Reply
    27. Thomas Cline

      On MDI, I use changes in my basal insulin (Levemir) not just for basal needs, but also to adjust for the longer-lasting effects on blood sugar of food that my fast-acting insulin (Fiasp) would not completely cover. Hence I may change several times a week, depending on diet and time of consumption.

      3 years ago Log in to Reply
    28. sdimond

      For the last several years I have injected 7 units of Tresiba in the morning and 13 units at bed time. I cover my low carb meals with Novilin-R and a couple of units of Humalog. A1C is 4.7 and standard deviation about 12.

      1
      3 years ago Log in to Reply
    29. Trina Blake

      If the question includes temp basal rates – then often. I hae 9 different time zones for my pump settings (all of them: basal, ISF for corrections and carb:insulin for when I eat). I have BIQ (te CIQ target is too high for me) and will avail myself of temp basal when needed. I also have different profiles based on where I place my infusion set.

      1
      3 years ago Log in to Reply
    30. Ms Cris

      Each site absorbs differently on my body, and so by rotating I also change my basal absorption (arms vs belly vs lower back, vs thigh). My semaglutide 1X/week injection has a curve of strength, with days 3-5 the strongest. Then my menstrual cycle is thrown in, with week one needing the least, and so on. I am way sensitive…

      2
      3 years ago Log in to Reply
      1. Ms Cris

        Oh, and for activity/exercise! Different temp rates for different activities.

        1
        3 years ago Log in to Reply
    31. Mary Ann Sayers

      When my bgs show a constant low at a given time I adjust the basal to avoid the lows.

      2
      3 years ago Log in to Reply
    32. Becky Hertz

      Not sure exactly what this question is asking. I do temp basals on an ad needed basis, stubborn highs or lows. I also adjust my basal profile when needed.

      1
      3 years ago Log in to Reply
    33. Clearblueskynm

      Whenever I need to…unless pretty new to diabetes and insulin, everyone should feel comfortable with changing their basal as necessary as it is your life, your body, and no physician is available 24/7

      3
      3 years ago Log in to Reply
    34. Juha Kankaanpaa

      I change the basal rate when needed. There is no time frame how often this happens.

      1
      3 years ago Log in to Reply
    35. Kathy Morison

      I take a basal injections twice a day. The morning dose stays mostly the same unless I have to be fasting or Im sick. The night time dose runs according to what my bedtime sugar is. I will decrease it if its running on the low side.

      3 years ago Log in to Reply
    36. George Lovelace

      So fine tuned with CIQ but my Endo still follows my G6 and advises me of any change needed.

      3 years ago Log in to Reply
    37. M C

      I change it when necessary. If I see a pattern forming (eg. going lower than normal, or higher) over a certain period of the day, I’ll make the adjustment accordingly to correct the changed pattern.

      3 years ago Log in to Reply
    38. Jim Cobbe

      Basal, never, but not for reason given as I’d interpret it; I don’t change it at my quarterly appointments either without detailed discussion and agreement with my endo — and as often as not, I’ve not gone along with his initial suggestion; I know better than him how things turn out in my body. He generally accepts my decisions after I state my reasons, albeit sometimes begrudgingly. Lately, somewhat to my surprise, he has seemed more willing to accept things as they are and just tell me to keep doing what I’m doing, and he hopes to keep ‘taking care’ of me for another decade (I’m 76 now with 47 years T1)!

      3 years ago Log in to Reply

    How often do you typically change your basal insulin rates outside of appointments with your T1D health care provider? Cancel reply

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