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    • 4 hours, 41 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 4 hours, 42 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 4 hours, 43 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 4 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 1 day, 23 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 1 hour ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 2 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 2 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 3 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 4 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 4 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 20 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 2 days, 20 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 3 days, 13 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 3 days, 13 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 3 days, 21 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 3 days, 21 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
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    How much does T1D impact your ability to participate fully in work or school?

    Home > LC Polls > How much does T1D impact your ability to participate fully in work or school?
    Previous

    In the past 3 months, how many hours of work or school do you estimate you missed because of T1D (e.g., going to T1D-related appointments, feeling sick because of BG levels, etc.)?

    Next

    If you are an adult with T1D, does someone that you live with know how to administer glucagon?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    34 Comments

    1. Cheryl Seibert

      I’m retired.

      2 years ago Log in to Reply
    2. Steven Gill

      The only concerns are to keep my levels from doing to low at the worst times. Otherwise I tell folks it’s just a wee little part of me messed up.

      2 years ago Log in to Reply
    3. karolinamalecki7@gmail.com

      I answered not at all because it hasn’t, but I just remembered one time right after diagnosis that I went really low while in a patient room (I’m a nurse diagnosed as an adult) and someone had to take over for me while I recovered. However, that was my second week back after being diagnosed and DKA- I had no clue what I was doing.

      2 years ago Log in to Reply
    4. Mary Dexter

      The sudden changes in blood sugar that are part of LADA led to my retirement. They also impact my ability to grocery shop and clean house.

      2 years ago Log in to Reply
    5. Jane Cerullo

      I said not at all because I Check often with CGM. Does a little bit if I go low. Takes a minute to bring it up but doesn’t really interfere with what I’m doing. I’m a nurse so am active all day

      1
      2 years ago Log in to Reply
    6. Beckett Nelson

      I said a little, just because I might have to (or should) take a time out to treat a low

      1
      2 years ago Log in to Reply
    7. TomH

      I’m T1 LADA, dx’d at 67, mis-dx’d T2 at 58, and now retired. I previously worked in high stress national operation center positions, working rotating 24/7 9 and 12 hour shifts. I don’t think going thru the process of getting set on insulin types and doses initially with MDI and changing over to a pump would have been doable. It certainly would have taken longer with the revolving shift work, meal structures, and lousy fast-food available food sources, if it would have been doable. I actually think the jobs I had probably contributed to T1 LADA onset, though other jobs might not have stopped it.

      1
      2 years ago Log in to Reply
      1. Wanacure

        That was a cruel vicious work schedule. No one should have to put up with that sh*t. Stress from intensive classes & homework definitely was a factor in my T1D age 15. Since then I’ve met 2 Vietnam Vets who developed T1D in stressful Vietnam war. I met another guy who had a schedule like yours working for Starbucks. He was already taking pills to stimulate his pancreas to squirt insulin for his meals, plus raising 4 teenagers. In less than a year his pancreas was exhausted and he became a T1D. Someone should warn the T2Ds about the risks of becoming T1D while over-using oral agents.

        2 years ago Log in to Reply
    8. Kelly Wilhelm

      I’m retired. But it does frequently impact my ability to do my workouts. I imagine that will be a question at some point.

      1
      2 years ago Log in to Reply
    9. Sherolyn Newell

      Usually not at all. Occasionally, when we have a social event with alcohol, I wouldn’t mind having a drink or beer. But it’s too hard to bolus for, so I don’t. Not really a hardship, it doesn’t bother me.

      2 years ago Log in to Reply
    10. StPetie

      I answered a lot. Not so much because of t1d’s direct effects, more so due to health issues brought on by a hyperglycemic coma. Prior to the coma I was undiagnosed.

      2 years ago Log in to Reply
      1. StPetie

        Note: LADA dx just prior to 61st birthday.

        2 years ago Log in to Reply
    11. Ernie Richmann

      I said a little- but very little. I am retired it do volunteer work which can be physically challenging. I watch by bg and take carbs as needed without much interruption in my task at hand.

      1
      2 years ago Log in to Reply
    12. Liz Avery

      I answered some, I am now retired but have been T1 most of my life. As others said, going low and needing time to bring BG up was the challenge.

      2 years ago Log in to Reply
    13. Christine Gran

      My son experiences migraines due to high blood sugar levels periodically.

      1
      2 years ago Log in to Reply
      1. Jill Peak

        I do as well nearly all the time that I’m above 250 for a prolonged amount of time.

        2 years ago Log in to Reply
    14. Natalie Daley

      I worked for 20 years as a T1D. Tresciba is relatively new, maybe the last 10 years? It reduced the number of critical lows and stabilized me enough so I could lose 25 lbs. when I worked, I always carried a snack. Retirement has been physically easier because the last ten years have included Tresciba and a CGM.

      2 years ago Log in to Reply
    15. Vivian Moon

      I’m retired!
      When I was not, it did effect me some.

      2 years ago Log in to Reply
    16. Kathleen Juzenas

      I marked not at all because that applied to my working years. Even though I had to drink oj at times while at work. I don’t think it interfered with my job. I’m now retired.

      2 years ago Log in to Reply
    17. kristina blake

      I said a little…but need to explain why. T1D has neve impacted my ability to do my job (turns out my attendance records are far better than many of my colleagues, I have the benefit of my Tandem X2 pump with Dexcom integration), However, the stigma and/or bad reputation that the general public – including employers – have towards people with diabetes has impacted my career. Statements such as “she shouldn’t be prooted, she’s irresponsible” When challenged on that statement a dept head said that I obviously wasn’t responsible, after all “she has diabetes. If she can’t be relied on to take care of her health, she can’t be relied on to …whatever” diabetes”

      1
      2 years ago Log in to Reply
      1. kristina blake

        meant to say “shouldn’t be promoted”

        1
        2 years ago Log in to Reply
      2. Wanacure

        Have you considered legal action? Maybe JDRF or ADA could recommend an attorney? Do you have disability rights organization in your state? (Even though T1 diabetes is not considered a “disability”. ) Your rights have been violated.

        2 years ago Log in to Reply
    18. Kevin McCue

      Seems like it only affects life when it’s an inconvenience

      1
      2 years ago Log in to Reply
    19. Pauline M Reynolds

      I put “not at all” because that was my work experience. I am now retired.

      2 years ago Log in to Reply
    20. LizB

      I answered not at all. Over the years I have had to take off a day here & there because I had a serious overnight low, but I was entitled to days off so it didn’t matter why I took them. It’s not like I was calling out every week or even every month. I have also had a few bad lows while at work but I have always worked for small, family owned businesses and it was not a problem. I actually had my second bad low at work one day and my co-worker told me that I had to see a specialist because my doctor wasn’t helping me. At the time, I only saw a PCP. She stood over me while I looked up an endo on the insurance site and waited while I made the call. It was a gift, because I found the greatest endo and got on a pump. That was 17 years ago and that endo has just retired which makes me so sad.

      2 years ago Log in to Reply
    21. Mig Vascos

      In retrospect, I now recognize the impact of diabetes in my life, but for years and years I pretended I had it all under control and it was all fine.
      Because of diabetes I always avoided jobs where I had to attend long meetings since there was no way to tell my sugar levels other than pricking my fingers. I also avoided going out with others to lunch unless they were people I feel very comfortable with because I had to give myself a shot before eating .
      On the other hand, I always, worked, and took classes, travel, and did whatever life required from me. On the good side diabetes taught me to take care of my health, to eat moderately, to exercise, and to be responsible and strong in life. So it had pros and cons.

      3
      2 years ago Log in to Reply
    22. Becky Hertz

      I put n/a as i no longer work and school is very far behind me. When I was working, however, it impacted my work a little bit. I had difficulty recovering from major lows experienced in the wee hours. I’m sure if I were still working (it’s been about 15 years) it would have more impact cause everything is more impactful as I age.

      2 years ago Log in to Reply
    23. Marty

      I was lucky to have a long, active career that was rarely, if ever, constrained by my diabetes. However, I’m still avoiding travel and face-to-face meetings when many of my colleagues have resumed these pre-pandemic activities after being vaccinated. Due to my age and my diabetes, I think I’ll continue to feel vulnerable to severe COVID until effective antivirals are readily available.

      2 years ago Log in to Reply
    24. Juha Kankaanpaa

      Not at all. Having classes or not seeing without classes is far more limiting and annoying in some activities.

      2 years ago Log in to Reply
    25. mbulzomi@optonline.net

      Never in my T1D 55 years has it gotten in the way of anything. I even did seven (7) Sky dive Jumps with no problems!

      1
      2 years ago Log in to Reply
    26. Jneticdiabetic

      I marked “a little” to account for the rare extreme blood sugars that can distract. However, reading the other comments and question again perhaps I should have selected not at all. I work more than 70 hrs a week, so participate more than fully in work.

      2 years ago Log in to Reply
    27. AnitaS

      I am retired now, but having had a physically demanding job in the past, there were times I had to ingest carbs and sit down for awhile to let my sugar rise. Since I felt terrible not holding up my end of the workload, I must admit I worked through some lows (not sitting down but drinking juice to raise my blood sugar).

      1
      2 years ago Log in to Reply
    28. Wanacure

      For the most part T1D did not interfere with my work or classes except for one brief period at age 19. If I was low at work, I just ate sugar or candy and muscled my way thru it. I’ve done some physically demanding jobs including loading trucks at a frenetic pace. I was surprised when a friend suggested I get a pilot’s license. He knew I had Type 1 but said it would not be a problem. I was astonished. This was before pumps.

      2 years ago Log in to Reply
    29. Lawrence S.

      I am retired. However T1D still impacts my ability to fully participate in work around the house and other outside activities. It has had less of an impact with my isolation over the past two years because of covid. I think I would have answered either a little or some.

      2 years ago Log in to Reply

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