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    • 15 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 26 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 38 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 39 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 hour, 54 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 45 minutes ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 3 hours, 51 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 3 hours, 51 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 53 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 54 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    • 4 hours, 2 minutes ago
      Samantha Robinson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 4 hours, 8 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
    • 4 hours, 10 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 11 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 4 hours, 27 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
    • 4 hours, 27 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
    • 4 hours, 28 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 4 hours, 28 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 28 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 4 hours, 29 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 4 hours, 29 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 4 hours, 48 minutes ago
      William Bennett likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 4 hours, 48 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Eight times a year I have to spend more than eight hours to fix errors on the part of my mail order pharmacy and DME supplier. My endo doesn't keep track of when prescriptions expire or need refills so add another couple hours a year building a to-do list for the doc. I'm ready to start billing for my time.
    • 4 hours, 50 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 5 hours, 20 minutes ago
      Bill Williams likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Significantly less time since I switched from Byram to ADS. It has made a world of difference and saved so many headaches!!
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    How much does T1D impact your ability to participate fully in work or school?

    Home > LC Polls > How much does T1D impact your ability to participate fully in work or school?
    Previous

    In the past 3 months, how many hours of work or school do you estimate you missed because of T1D (e.g., going to T1D-related appointments, feeling sick because of BG levels, etc.)?

    Next

    If you are an adult with T1D, does someone that you live with know how to administer glucagon?

    Sarah Howard

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    34 Comments

    1. Cheryl Seibert

      I’m retired.

      12 months ago Log in to Reply
    2. Steven Gill

      The only concerns are to keep my levels from doing to low at the worst times. Otherwise I tell folks it’s just a wee little part of me messed up.

      12 months ago Log in to Reply
    3. karolinamalecki7@gmail.com

      I answered not at all because it hasn’t, but I just remembered one time right after diagnosis that I went really low while in a patient room (I’m a nurse diagnosed as an adult) and someone had to take over for me while I recovered. However, that was my second week back after being diagnosed and DKA- I had no clue what I was doing.

      12 months ago Log in to Reply
    4. Mary Dexter

      The sudden changes in blood sugar that are part of LADA led to my retirement. They also impact my ability to grocery shop and clean house.

      12 months ago Log in to Reply
    5. Jane Cerullo

      I said not at all because I Check often with CGM. Does a little bit if I go low. Takes a minute to bring it up but doesn’t really interfere with what I’m doing. I’m a nurse so am active all day

      1
      12 months ago Log in to Reply
    6. Beckett Nelson

      I said a little, just because I might have to (or should) take a time out to treat a low

      1
      12 months ago Log in to Reply
    7. TomH

      I’m T1 LADA, dx’d at 67, mis-dx’d T2 at 58, and now retired. I previously worked in high stress national operation center positions, working rotating 24/7 9 and 12 hour shifts. I don’t think going thru the process of getting set on insulin types and doses initially with MDI and changing over to a pump would have been doable. It certainly would have taken longer with the revolving shift work, meal structures, and lousy fast-food available food sources, if it would have been doable. I actually think the jobs I had probably contributed to T1 LADA onset, though other jobs might not have stopped it.

      1
      12 months ago Log in to Reply
      1. Wanacure

        That was a cruel vicious work schedule. No one should have to put up with that sh*t. Stress from intensive classes & homework definitely was a factor in my T1D age 15. Since then I’ve met 2 Vietnam Vets who developed T1D in stressful Vietnam war. I met another guy who had a schedule like yours working for Starbucks. He was already taking pills to stimulate his pancreas to squirt insulin for his meals, plus raising 4 teenagers. In less than a year his pancreas was exhausted and he became a T1D. Someone should warn the T2Ds about the risks of becoming T1D while over-using oral agents.

        12 months ago Log in to Reply
    8. Kelly Wilhelm

      I’m retired. But it does frequently impact my ability to do my workouts. I imagine that will be a question at some point.

      1
      12 months ago Log in to Reply
    9. Sherolyn Newell

      Usually not at all. Occasionally, when we have a social event with alcohol, I wouldn’t mind having a drink or beer. But it’s too hard to bolus for, so I don’t. Not really a hardship, it doesn’t bother me.

      12 months ago Log in to Reply
    10. StPetie

      I answered a lot. Not so much because of t1d’s direct effects, more so due to health issues brought on by a hyperglycemic coma. Prior to the coma I was undiagnosed.

      12 months ago Log in to Reply
      1. StPetie

        Note: LADA dx just prior to 61st birthday.

        12 months ago Log in to Reply
    11. Ernie Richmann

      I said a little- but very little. I am retired it do volunteer work which can be physically challenging. I watch by bg and take carbs as needed without much interruption in my task at hand.

      1
      12 months ago Log in to Reply
    12. Liz Avery

      I answered some, I am now retired but have been T1 most of my life. As others said, going low and needing time to bring BG up was the challenge.

      12 months ago Log in to Reply
    13. Christine Gran

      My son experiences migraines due to high blood sugar levels periodically.

      1
      12 months ago Log in to Reply
      1. Jill Peak

        I do as well nearly all the time that I’m above 250 for a prolonged amount of time.

        12 months ago Log in to Reply
    14. Natalie Daley

      I worked for 20 years as a T1D. Tresciba is relatively new, maybe the last 10 years? It reduced the number of critical lows and stabilized me enough so I could lose 25 lbs. when I worked, I always carried a snack. Retirement has been physically easier because the last ten years have included Tresciba and a CGM.

      12 months ago Log in to Reply
    15. Vivian Moon

      I’m retired!
      When I was not, it did effect me some.

      12 months ago Log in to Reply
    16. Kathleen Juzenas

      I marked not at all because that applied to my working years. Even though I had to drink oj at times while at work. I don’t think it interfered with my job. I’m now retired.

      12 months ago Log in to Reply
    17. kristina blake

      I said a little…but need to explain why. T1D has neve impacted my ability to do my job (turns out my attendance records are far better than many of my colleagues, I have the benefit of my Tandem X2 pump with Dexcom integration), However, the stigma and/or bad reputation that the general public – including employers – have towards people with diabetes has impacted my career. Statements such as “she shouldn’t be prooted, she’s irresponsible” When challenged on that statement a dept head said that I obviously wasn’t responsible, after all “she has diabetes. If she can’t be relied on to take care of her health, she can’t be relied on to …whatever” diabetes”

      1
      12 months ago Log in to Reply
      1. kristina blake

        meant to say “shouldn’t be promoted”

        1
        12 months ago Log in to Reply
      2. Wanacure

        Have you considered legal action? Maybe JDRF or ADA could recommend an attorney? Do you have disability rights organization in your state? (Even though T1 diabetes is not considered a ā€œdisabilityā€. ) Your rights have been violated.

        12 months ago Log in to Reply
    18. Kevin McCue

      Seems like it only affects life when it’s an inconvenience

      1
      12 months ago Log in to Reply
    19. Pauline M Reynolds

      I put “not at all” because that was my work experience. I am now retired.

      12 months ago Log in to Reply
    20. LizB

      I answered not at all. Over the years I have had to take off a day here & there because I had a serious overnight low, but I was entitled to days off so it didn’t matter why I took them. It’s not like I was calling out every week or even every month. I have also had a few bad lows while at work but I have always worked for small, family owned businesses and it was not a problem. I actually had my second bad low at work one day and my co-worker told me that I had to see a specialist because my doctor wasn’t helping me. At the time, I only saw a PCP. She stood over me while I looked up an endo on the insurance site and waited while I made the call. It was a gift, because I found the greatest endo and got on a pump. That was 17 years ago and that endo has just retired which makes me so sad.

      12 months ago Log in to Reply
    21. Mig Vascos

      In retrospect, I now recognize the impact of diabetes in my life, but for years and years I pretended I had it all under control and it was all fine.
      Because of diabetes I always avoided jobs where I had to attend long meetings since there was no way to tell my sugar levels other than pricking my fingers. I also avoided going out with others to lunch unless they were people I feel very comfortable with because I had to give myself a shot before eating .
      On the other hand, I always, worked, and took classes, travel, and did whatever life required from me. On the good side diabetes taught me to take care of my health, to eat moderately, to exercise, and to be responsible and strong in life. So it had pros and cons.

      3
      12 months ago Log in to Reply
    22. Becky Hertz

      I put n/a as i no longer work and school is very far behind me. When I was working, however, it impacted my work a little bit. I had difficulty recovering from major lows experienced in the wee hours. I’m sure if I were still working (it’s been about 15 years) it would have more impact cause everything is more impactful as I age.

      12 months ago Log in to Reply
    23. Marty

      I was lucky to have a long, active career that was rarely, if ever, constrained by my diabetes. However, I’m still avoiding travel and face-to-face meetings when many of my colleagues have resumed these pre-pandemic activities after being vaccinated. Due to my age and my diabetes, I think I’ll continue to feel vulnerable to severe COVID until effective antivirals are readily available.

      12 months ago Log in to Reply
    24. Juha Kankaanpaa

      Not at all. Having classes or not seeing without classes is far more limiting and annoying in some activities.

      12 months ago Log in to Reply
    25. mbulzomi@optonline.net

      Never in my T1D 55 years has it gotten in the way of anything. I even did seven (7) Sky dive Jumps with no problems!

      1
      12 months ago Log in to Reply
    26. Jneticdiabetic

      I marked “a little” to account for the rare extreme blood sugars that can distract. However, reading the other comments and question again perhaps I should have selected not at all. I work more than 70 hrs a week, so participate more than fully in work.

      12 months ago Log in to Reply
    27. AnitaS

      I am retired now, but having had a physically demanding job in the past, there were times I had to ingest carbs and sit down for awhile to let my sugar rise. Since I felt terrible not holding up my end of the workload, I must admit I worked through some lows (not sitting down but drinking juice to raise my blood sugar).

      1
      12 months ago Log in to Reply
    28. Wanacure

      For the most part T1D did not interfere with my work or classes except for one brief period at age 19. If I was low at work, I just ate sugar or candy and muscled my way thru it. I’ve done some physically demanding jobs including loading trucks at a frenetic pace. I was surprised when a friend suggested I get a pilot’s license. He knew I had Type 1 but said it would not be a problem. I was astonished. This was before pumps.

      12 months ago Log in to Reply
    29. Lawrence S.

      I am retired. However T1D still impacts my ability to fully participate in work around the house and other outside activities. It has had less of an impact with my isolation over the past two years because of covid. I think I would have answered either a little or some.

      12 months ago Log in to Reply

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