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    • 13 hours, 5 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 13 hours, 11 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 13 hours, 18 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 10 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 13 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 14 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 15 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 15 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 16 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 16 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 10 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 10 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 12 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 14 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 14 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of April through the end of June 2022?

    Home > LC Polls > How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of April through the end of June 2022?
    Previous

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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. Molly Jones

      I live in the US but have a very good health insurance plan that pays for 100% of the diabetic supplies.

      4 years ago Log in to Reply
      1. Kim Johnston

        Hey Molly, do you mind sharing your health insurance plan?

        4 years ago Log in to Reply
    2. Carolann Hunt

      Someone gave us extra pods and I will order Dexcom soon so no orders that quarter.

      4 years ago Log in to Reply
    3. P-O Heidling

      I live in Sweden and here all diabetes medications and supplies for T1D are made available at no personal cost. The general healthcare insurance issued by the state, available for all citizens (young, old, employed, unemployed…everyone) in this country, pays for all these things for all type 1 diabetics.

      2
      4 years ago Log in to Reply
    4. RegMunro

      My out of pocket expenses were for extra glucose food for hypo rescue, but that’s it

      4 years ago Log in to Reply
    5. Mick Martin

      $0. I live in the United Kingdom of Great Britain and Northern Ireland where ALL of my diabetes medications and supplies are paid for by our NHS (National Health Service), which is funded via direct taxation of all working people.

      4 years ago Log in to Reply
    6. Tom Caesar

      Not counting the $1200 in insurance premiums

      4 years ago Log in to Reply
    7. pru barry

      It horrifies me when I start to wonder how we’d all survive without health insurance.
      BUT, other countries find the ability to provide their diabetics with needed supplies without the need for expensive insurance. What is wrong with us?
      Could it be greed in a certain segment???

      4 years ago Log in to Reply
      1. Lena Selbrand

        Yes, greed is what it is and that health care in America is a commodity, and not a human right!
        In Sweden I haven’t spent a penny on anything diabetes related, except for my doctor’s visits!

        4 years ago Log in to Reply
      2. Gustavo Avitabile

        Health care is free in most European countries, whereas it has high cost in US. Here in Italy, I am provided for all drugs, devices, and medical care I need, except for paying a small contribution (we call it a “ticket”) mainly meant to discourage unreasonable requests. It amounted to about 15 $ for me in April-June.

        4 years ago Log in to Reply
      3. Leona Hanson

        Trump tryed he just gave it the wrong name medicare for all he should have gave it another name maybe everyone would have voted for it

        4 years ago Log in to Reply
    8. ChrisW

      Not including the 32 hours of my billable time spent on phone calls to get my medications and supplies prescribed, approved and dispensed on time.

      2
      4 years ago Log in to Reply
    9. Bob Durstenfeld

      Just my insulin was almost $500, then add the 20 other meds that I currently take. It gets scarry expensive on a quarterly basis.

      4 years ago Log in to Reply
    10. Pauline M Reynolds

      My figure was high because I purchased a new insulin pump and CGM during that time. Otherwise, it would have been $70.

      4 years ago Log in to Reply
    11. Daniel Bestvater

      I live in Canada and have no health insurance. So I spend about $1,000/mth or $3,000 every 3 months.

      4 years ago Log in to Reply
    12. Bonnie Lundblom

      This question probably should have had an “Other” answer, since it didn’t I selected 501-750 since my Medicare Supplemental plan that’s used to cover the remaining 20% leftover after Medicare pays their part, I pay $220/month for that.

      4 years ago Log in to Reply
    13. Molly Jones

      My husband’s employer provides Premera heritage prime, which is not available on an individual level. These are his “golden handcuffs.”
      Hopefully my medical conditions are all cured by before he retires. Aaaahhhhhhh……. yeah right.

      4 years ago Log in to Reply
    14. Steve Rumble

      My insurance does not cover CGMs, so . . .

      The cost provides CGM necessities for 3 months.

      4 years ago Log in to Reply
    15. Leona Hanson

      I’ve spent $22.00 on all my supplies $3.00 more dollars when I get my cgm

      4 years ago Log in to Reply

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of April through the end of June 2022? Cancel reply

    You must be logged in to post a comment.




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