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    • 8 hours, 16 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 9 hours, 42 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 9 hours, 42 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 9 hours, 43 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 11 hours, 55 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 11 hours, 56 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 11 hours, 56 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 12 hours, 39 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 14 hours, 2 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 15 hours, 59 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 7 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 7 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 7 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 7 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 7 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 9 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 9 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 9 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 15 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 16 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of April through the end of June 2022?

    Home > LC Polls > How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of April through the end of June 2022?
    Previous

    Have you had a virtual care appointment via phone or video call (sometimes called a telehealth or telemedicine visit) with your T1D health care provider?

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    If you have T1D and have a child under the age of 18 who has not been diagnosed with T1D, at what age would you start screening your child for T1D autoantibodies?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. Molly Jones

      I live in the US but have a very good health insurance plan that pays for 100% of the diabetic supplies.

      3 years ago Log in to Reply
      1. Kim Johnston

        Hey Molly, do you mind sharing your health insurance plan?

        3 years ago Log in to Reply
    2. Carolann Hunt

      Someone gave us extra pods and I will order Dexcom soon so no orders that quarter.

      3 years ago Log in to Reply
    3. P-O Heidling

      I live in Sweden and here all diabetes medications and supplies for T1D are made available at no personal cost. The general healthcare insurance issued by the state, available for all citizens (young, old, employed, unemployed…everyone) in this country, pays for all these things for all type 1 diabetics.

      2
      3 years ago Log in to Reply
    4. RegMunro

      My out of pocket expenses were for extra glucose food for hypo rescue, but that’s it

      3 years ago Log in to Reply
    5. Mick Martin

      $0. I live in the United Kingdom of Great Britain and Northern Ireland where ALL of my diabetes medications and supplies are paid for by our NHS (National Health Service), which is funded via direct taxation of all working people.

      3 years ago Log in to Reply
    6. Tom Caesar

      Not counting the $1200 in insurance premiums

      3 years ago Log in to Reply
    7. pru barry

      It horrifies me when I start to wonder how we’d all survive without health insurance.
      BUT, other countries find the ability to provide their diabetics with needed supplies without the need for expensive insurance. What is wrong with us?
      Could it be greed in a certain segment???

      3 years ago Log in to Reply
      1. Lena Selbrand

        Yes, greed is what it is and that health care in America is a commodity, and not a human right!
        In Sweden I haven’t spent a penny on anything diabetes related, except for my doctor’s visits!

        3 years ago Log in to Reply
      2. Gustavo Avitabile

        Health care is free in most European countries, whereas it has high cost in US. Here in Italy, I am provided for all drugs, devices, and medical care I need, except for paying a small contribution (we call it a “ticket”) mainly meant to discourage unreasonable requests. It amounted to about 15 $ for me in April-June.

        3 years ago Log in to Reply
      3. Leona Hanson

        Trump tryed he just gave it the wrong name medicare for all he should have gave it another name maybe everyone would have voted for it

        3 years ago Log in to Reply
    8. ChrisW

      Not including the 32 hours of my billable time spent on phone calls to get my medications and supplies prescribed, approved and dispensed on time.

      2
      3 years ago Log in to Reply
    9. Bob Durstenfeld

      Just my insulin was almost $500, then add the 20 other meds that I currently take. It gets scarry expensive on a quarterly basis.

      3 years ago Log in to Reply
    10. Pauline M Reynolds

      My figure was high because I purchased a new insulin pump and CGM during that time. Otherwise, it would have been $70.

      3 years ago Log in to Reply
    11. Daniel Bestvater

      I live in Canada and have no health insurance. So I spend about $1,000/mth or $3,000 every 3 months.

      3 years ago Log in to Reply
    12. Bonnie Lundblom

      This question probably should have had an “Other” answer, since it didn’t I selected 501-750 since my Medicare Supplemental plan that’s used to cover the remaining 20% leftover after Medicare pays their part, I pay $220/month for that.

      3 years ago Log in to Reply
    13. Molly Jones

      My husband’s employer provides Premera heritage prime, which is not available on an individual level. These are his “golden handcuffs.”
      Hopefully my medical conditions are all cured by before he retires. Aaaahhhhhhh……. yeah right.

      3 years ago Log in to Reply
    14. Steve Rumble

      My insurance does not cover CGMs, so . . .

      The cost provides CGM necessities for 3 months.

      3 years ago Log in to Reply
    15. Leona Hanson

      I’ve spent $22.00 on all my supplies $3.00 more dollars when I get my cgm

      3 years ago Log in to Reply

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of April through the end of June 2022? Cancel reply

    You must be logged in to post a comment.




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