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    • 4 hours, 58 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 4 hours, 58 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 5 hours, 9 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 5 hours, 9 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 5 hours, 16 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 5 hours, 30 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 6 hours, 5 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 6 hours, 5 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 6 hours, 6 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 9 hours, 14 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 12 hours, 3 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 22 hours, 45 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 3 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 4 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 6 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
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    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of April through the end of June 2022?

    Home > LC Polls > How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of April through the end of June 2022?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. Molly Jones

      I live in the US but have a very good health insurance plan that pays for 100% of the diabetic supplies.

      3 years ago Log in to Reply
      1. Kim Johnston

        Hey Molly, do you mind sharing your health insurance plan?

        3 years ago Log in to Reply
    2. Carolann Hunt

      Someone gave us extra pods and I will order Dexcom soon so no orders that quarter.

      3 years ago Log in to Reply
    3. P-O Heidling

      I live in Sweden and here all diabetes medications and supplies for T1D are made available at no personal cost. The general healthcare insurance issued by the state, available for all citizens (young, old, employed, unemployed…everyone) in this country, pays for all these things for all type 1 diabetics.

      2
      3 years ago Log in to Reply
    4. RegMunro

      My out of pocket expenses were for extra glucose food for hypo rescue, but that’s it

      3 years ago Log in to Reply
    5. Mick Martin

      $0. I live in the United Kingdom of Great Britain and Northern Ireland where ALL of my diabetes medications and supplies are paid for by our NHS (National Health Service), which is funded via direct taxation of all working people.

      3 years ago Log in to Reply
    6. Tom Caesar

      Not counting the $1200 in insurance premiums

      3 years ago Log in to Reply
    7. pru barry

      It horrifies me when I start to wonder how we’d all survive without health insurance.
      BUT, other countries find the ability to provide their diabetics with needed supplies without the need for expensive insurance. What is wrong with us?
      Could it be greed in a certain segment???

      3 years ago Log in to Reply
      1. Lena Selbrand

        Yes, greed is what it is and that health care in America is a commodity, and not a human right!
        In Sweden I haven’t spent a penny on anything diabetes related, except for my doctor’s visits!

        3 years ago Log in to Reply
      2. Gustavo Avitabile

        Health care is free in most European countries, whereas it has high cost in US. Here in Italy, I am provided for all drugs, devices, and medical care I need, except for paying a small contribution (we call it a “ticket”) mainly meant to discourage unreasonable requests. It amounted to about 15 $ for me in April-June.

        3 years ago Log in to Reply
      3. Leona Hanson

        Trump tryed he just gave it the wrong name medicare for all he should have gave it another name maybe everyone would have voted for it

        3 years ago Log in to Reply
    8. ChrisW

      Not including the 32 hours of my billable time spent on phone calls to get my medications and supplies prescribed, approved and dispensed on time.

      2
      3 years ago Log in to Reply
    9. Bob Durstenfeld

      Just my insulin was almost $500, then add the 20 other meds that I currently take. It gets scarry expensive on a quarterly basis.

      3 years ago Log in to Reply
    10. Pauline M Reynolds

      My figure was high because I purchased a new insulin pump and CGM during that time. Otherwise, it would have been $70.

      3 years ago Log in to Reply
    11. Daniel Bestvater

      I live in Canada and have no health insurance. So I spend about $1,000/mth or $3,000 every 3 months.

      3 years ago Log in to Reply
    12. Bonnie Lundblom

      This question probably should have had an “Other” answer, since it didn’t I selected 501-750 since my Medicare Supplemental plan that’s used to cover the remaining 20% leftover after Medicare pays their part, I pay $220/month for that.

      3 years ago Log in to Reply
    13. Molly Jones

      My husband’s employer provides Premera heritage prime, which is not available on an individual level. These are his “golden handcuffs.”
      Hopefully my medical conditions are all cured by before he retires. Aaaahhhhhhh……. yeah right.

      3 years ago Log in to Reply
    14. Steve Rumble

      My insurance does not cover CGMs, so . . .

      The cost provides CGM necessities for 3 months.

      3 years ago Log in to Reply
    15. Leona Hanson

      I’ve spent $22.00 on all my supplies $3.00 more dollars when I get my cgm

      3 years ago Log in to Reply

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of April through the end of June 2022? Cancel reply

    You must be logged in to post a comment.




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