37 Comments
How do you stay up to date about T1D advancements and community news? Select all that apply!
You must be logged in to post a comment.
© 2023 T1D Exchange. All Rights Reserved.
News (print and radio) and diabetes publications – I have no info on T1D-specific blogs or podcasts
Social media is rarely factual so I prefer users of products of services. Most always, the EU gets things before the USA so if you know people over there, you can find out of new things are just hype or actually do what makers advertise they will do.
I am a researcher and have access to lots of scholarly resources.
I go to this web site, Insulet’s web site, and the Juvenile Diabetes research foundation web site. For instance, I read on this website about polycystic ovarian syndrome, which answered a lot of my questions, and which my doctors never were never able to answer. They always blamed it on my diabetes, but that was the only explanation they could give me.
Google “latest research ” to access scientific journals.
I’m going to suggest theJuiceBox podcast as a really interesting series of conversations that Scott Benner has had for the past several years—well over 600 episodes at this point. Who does he talk with? Lots and lots of people with diabetes as well as CEOs of companies such as Dexcom and Omnipod, as well as with people who work with people with diabetes…eg., researchers. They are all “conversations” so they are really fun to listen to as well as informative.
Thanks for the info
Also search news media and science news sites, online webinars conferences, TCOYD and Diatribe emails.
About once a week I do a google search for T1D and hit the news tab, you can find current research info, technology updates, and stories about people related to T1D. Sometimes a story will pop up about a professional athlete with T1D and I always like to root them on.
I mostly rely upon The Diabetes Forecast magazine
I read medical publications and information posted on state and federal public health websites.
I’ve only been injecting insulin for fifty nine years. For about forty of those years I worked in medicine. I’m of the opinion that I’ve never really been “up to date” about type one diabetes!
Just recently JDRF has had 2 Worldwide Seminars. 1st Thursday of the month.
Most of my information comes from either T1D Exchange or my quarterly visits with my Endocrinologist. Otherwise, it’s mostly trial and error for me.
Other additional ways I keep up include reading books about diabetes and going to websites like JDRF.
I put “other” because my phone apparently keeps track of everything in my life. Because I get emails from Dexcom and Omnipod my phone’s news feeds now provide me with all sorts of diabetes news and stories. So my Android phone is my source.
Tod–Privacy is a very evanescent commodity in the US. Even using virtual privacy networks (VPN’s) are problematic. (ノಠ益ಠ)ノ彡┻━┻
https://www.howtogeek.com/787934/heres-what-a-vpn-cant-protect-you-from/
I read articles referenced from my daily Google Search app on T1d. And lately I see posts on FB because I follow TCOYD and another organization. But it can get overwhelming. An hour with coffee in bed 6:30-7:30, and then I can’t see well enough to read anymore. So up and at ‘em. .
I tend to do my own research via web searches.
I read medical journals and attend medical conferences RT diabetes
Read ADA and Diabetes UK publications and websites, and check other websites like this. And read books and journal articles.
Diabetes Forecast
TCOYD (https://tcoyd.org)-They’re the best!
Ok, I’ll try a subscription. Thanks.
Here only.
I’ve read diaTribe newsletters for many years, a few TCOYD virtual events, a couple select Twitter & Facebook groups, continued online contact with people involved in the DOC who I met at a conference in 1995 and communication from my CDE.
T1D Exchange helps a lot. Web searches also help. I used to read Diabetes Forecast and Diabetes Self Management very carefully. However, magazines now seem to be more superficial on the new developments. I read them less thoroughly. My health care provider does not seem to add much.
I’d love to find a way to read research and tech articles from outside of the USA as well as what google US wants us to read
TCOYD. Is a wonderful up to date pod cast. That is where I get my info
I read diaTribe
I visit T1DExchange and TCOYD as others have mentioned. I also read articles linked from various social media places like FB or Reddit. For years I’ve received a daily email from Google ffor “Type 1 diabetes”. IT will send links to various sites that have posted things that mention Type 1. Some are useful, some are local newspapers, sometimes every link is about the same thing!
I’m in two different Diabetes Hospital groups, however only one now has a Microsoft Team Video meeting once a month. Still no up close a personnel meeting yet at the Hospitals. Or maybe never?
I like to access https://pubmed.ncbi.nlm.nih.gov/ in order to stay on top of the abstracts of medical journals or read the free ones. If something with only the abstract looks too interesting to pass, I’ll visit the local university and read it for free.
I also like to see what’s on https://clinicaltrials.gov/
I answered “other” as one of my responses because I also subscribe to several diabetes magazines – Diabetes Forecast, Diabetes Self Management, etc.
I do research on the internet on things that interest me.
This website has proven most useful. I get periodic online news from JDRF. I gave up subbing to ADA Forecast and no longer donate to JDRF. I no longer read medical research journals. I rely on NHK, france24.com, dw.com, NPR, PBS, sometimes glance at WSJ, & also rely on commercial broadcast networks for any really big medical breakthroughs.. And sometimes I reread Bernstein to learn something again. When younger I read every new book on diabetes.
For privacy I use free DuckDuckGo.com to search. I use the free version of ProtonMail.com as a VPN; it’s highly rated by Consumer Reports. But I confess, I also still use Google mail for contacting politicians; keeps my more important VPN email box from clogging with appeals for campaign donations.
And I still use free online services at public libraries, despite “weak security” warning. I try to remember to reboot after finishing my online sessions. I keep my apps updated.
When I FINALLY “qualified” for a continuous monitor, the endocrinologist and her assistant have been very helpful.
Lesson: if you want something medical, you gotta squeak
LOUDLY.
I selected “Social Media”, but I only utilize information from Facebook T1D support groups that can be verified by reputable sources. Too many uninformed diabetics winging it and telling people inaccurate treatment methods. I go to DiaTribe, T1DExchange 🙂 , and T1D device manufacturer websites to stay up to date. Verify, verify, verify….. For advancements, the same applies…… cinnamon tablets don’t cure T1D!