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    • 7 hours, 43 minutes ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 8 hours, 33 minutes ago
      Mick Martin likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 9 hours, 29 minutes ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 10 hours, 12 minutes ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 10 hours, 32 minutes ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 11 hours, 3 minutes ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 11 hours, 7 minutes ago
      KCR likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 12 hours, 2 minutes ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 12 hours, 4 minutes ago
      Chrisanda likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 12 hours, 32 minutes ago
      Gary Rind likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 12 hours, 41 minutes ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 12 hours, 46 minutes ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 1 day ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 1 day ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 1 day ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 1 day, 4 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 1 day, 4 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 1 day, 21 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 1 day, 21 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 2 days, 5 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 2 days, 5 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
    • 2 days, 5 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I am rough on insulin pumps and cracked 2 minimed pump cases. I found the bare T:slim pump too slippery. I use the MEDmax silicone case. I put that in a AGOZ case with a belp clip. But I don't like the clip. It's too sharp and too stif. Looking for a belt for night time use.
    • 2 days, 5 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I use the Tandem provided case and added a gorilla glass screen protector. I wear it on my belt in an pouch.
    • 2 days, 7 hours ago
      lis be likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 2 days, 8 hours ago
      Karen Tay likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      No. I hate the clip on the case that came with my Tandem pump. I bought a couple of other cases, including Type 1 Tactical, and hate the bulk and the awful clips. I just stick the pump in my pocket and it's fine. At night I do use one of the other cases, from Type 1 Secura, because I can keep it clipped to my undies and easily slide the pump in/out if I have to look at it during the night.
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    How do you stay up to date about T1D advancements and community news? Select all that apply!

    Home > LC Polls > How do you stay up to date about T1D advancements and community news? Select all that apply!
    Previous

    For insulin pump users: When traveling to a time zone that is 1 hour different than your home time zone, do you change the time on your pump? (For example, traveling from Eastern Time to Central Time, or traveling from Pacific Time to Mountain Time)

    Next

    If you use an insulin pump, which of these options best describes when you most often change your pump site?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    37 Comments

    1. Abigail Elias

      News (print and radio) and diabetes publications – I have no info on T1D-specific blogs or podcasts

      1
      1 year ago Log in to Reply
    2. Larry Martin

      Social media is rarely factual so I prefer users of products of services. Most always, the EU gets things before the USA so if you know people over there, you can find out of new things are just hype or actually do what makers advertise they will do.

      3
      1 year ago Log in to Reply
    3. Jana Wardian

      I am a researcher and have access to lots of scholarly resources.

      1 year ago Log in to Reply
    4. ELYSSE HELLER

      I go to this web site, Insulet’s web site, and the Juvenile Diabetes research foundation web site. For instance, I read on this website about polycystic ovarian syndrome, which answered a lot of my questions, and which my doctors never were never able to answer. They always blamed it on my diabetes, but that was the only explanation they could give me.

      1
      1 year ago Log in to Reply
    5. Mary Dexter

      Google “latest research ” to access scientific journals.

      2
      1 year ago Log in to Reply
    6. Barbara Bubar

      I’m going to suggest theJuiceBox podcast as a really interesting series of conversations that Scott Benner has had for the past several years—well over 600 episodes at this point. Who does he talk with? Lots and lots of people with diabetes as well as CEOs of companies such as Dexcom and Omnipod, as well as with people who work with people with diabetes…eg., researchers. They are all “conversations” so they are really fun to listen to as well as informative.

      5
      1 year ago Log in to Reply
      1. Karen Taylor

        Thanks for the info

        1 year ago Log in to Reply
    7. KCR

      Also search news media and science news sites, online webinars conferences, TCOYD and Diatribe emails.

      3
      1 year ago Log in to Reply
    8. Jillkdubois

      About once a week I do a google search for T1D and hit the news tab, you can find current research info, technology updates, and stories about people related to T1D. Sometimes a story will pop up about a professional athlete with T1D and I always like to root them on.

      1
      1 year ago Log in to Reply
    9. Jodi Greenfield

      I mostly rely upon The Diabetes Forecast magazine

      1 year ago Log in to Reply
    10. Lisa Anderson

      I read medical publications and information posted on state and federal public health websites.

      1 year ago Log in to Reply
    11. Nick Trubov

      I’ve only been injecting insulin for fifty nine years. For about forty of those years I worked in medicine. I’m of the opinion that I’ve never really been “up to date” about type one diabetes!

      2
      1 year ago Log in to Reply
    12. Karen Taylor

      Just recently JDRF has had 2 Worldwide Seminars. 1st Thursday of the month.

      1 year ago Log in to Reply
    13. Lawrence S.

      Most of my information comes from either T1D Exchange or my quarterly visits with my Endocrinologist. Otherwise, it’s mostly trial and error for me.

      1
      1 year ago Log in to Reply
    14. Ernie Richmann

      Other additional ways I keep up include reading books about diabetes and going to websites like JDRF.

      1 year ago Log in to Reply
    15. Tod Herman

      I put “other” because my phone apparently keeps track of everything in my life. Because I get emails from Dexcom and Omnipod my phone’s news feeds now provide me with all sorts of diabetes news and stories. So my Android phone is my source.

      1
      1 year ago Log in to Reply
      1. Ahh Life

        Tod–Privacy is a very evanescent commodity in the US. Even using virtual privacy networks (VPN’s) are problematic. (ノಠ益ಠ)ノ彡┻━┻

        https://www.howtogeek.com/787934/heres-what-a-vpn-cant-protect-you-from/

        1 year ago Log in to Reply
    16. Joan Fray

      I read articles referenced from my daily Google Search app on T1d. And lately I see posts on FB because I follow TCOYD and another organization. But it can get overwhelming. An hour with coffee in bed 6:30-7:30, and then I can’t see well enough to read anymore. So up and at ‘em. .

      1 year ago Log in to Reply
    17. TomH

      I tend to do my own research via web searches.

      1 year ago Log in to Reply
    18. Phyllis Biederman

      I read medical journals and attend medical conferences RT diabetes

      1 year ago Log in to Reply
    19. Jim Cobbe

      Read ADA and Diabetes UK publications and websites, and check other websites like this. And read books and journal articles.

      1 year ago Log in to Reply
    20. Hieromonk Alexis

      Diabetes Forecast

      1 year ago Log in to Reply
    21. Marty

      TCOYD (https://tcoyd.org)-They’re the best!

      3
      1 year ago Log in to Reply
      1. Wanacure

        Ok, I’ll try a subscription. Thanks.

        1 year ago Log in to Reply
    22. Tina Roberts

      Here only.

      1
      1 year ago Log in to Reply
    23. Janis Senungetuk

      I’ve read diaTribe newsletters for many years, a few TCOYD virtual events, a couple select Twitter & Facebook groups, continued online contact with people involved in the DOC who I met at a conference in 1995 and communication from my CDE.

      1
      1 year ago Log in to Reply
    24. George O Hamilton

      T1D Exchange helps a lot. Web searches also help. I used to read Diabetes Forecast and Diabetes Self Management very carefully. However, magazines now seem to be more superficial on the new developments. I read them less thoroughly. My health care provider does not seem to add much.

      1
      1 year ago Log in to Reply
    25. lis be

      I’d love to find a way to read research and tech articles from outside of the USA as well as what google US wants us to read

      1 year ago Log in to Reply
    26. Sue Compo

      TCOYD. Is a wonderful up to date pod cast. That is where I get my info

      1
      1 year ago Log in to Reply
    27. Bob Durstenfeld

      I read diaTribe

      1
      1 year ago Log in to Reply
    28. LizB

      I visit T1DExchange and TCOYD as others have mentioned. I also read articles linked from various social media places like FB or Reddit. For years I’ve received a daily email from Google ffor “Type 1 diabetes”. IT will send links to various sites that have posted things that mention Type 1. Some are useful, some are local newspapers, sometimes every link is about the same thing!

      1 year ago Log in to Reply
    29. mbulzomi@optonline.net

      I’m in two different Diabetes Hospital groups, however only one now has a Microsoft Team Video meeting once a month. Still no up close a personnel meeting yet at the Hospitals. Or maybe never?

      1 year ago Log in to Reply
    30. Molly Jones

      I like to access https://pubmed.ncbi.nlm.nih.gov/ in order to stay on top of the abstracts of medical journals or read the free ones. If something with only the abstract looks too interesting to pass, I’ll visit the local university and read it for free.
      I also like to see what’s on https://clinicaltrials.gov/

      1 year ago Log in to Reply
    31. PamK

      I answered “other” as one of my responses because I also subscribe to several diabetes magazines – Diabetes Forecast, Diabetes Self Management, etc.

      1
      1 year ago Log in to Reply
    32. Kim Murphy

      I do research on the internet on things that interest me.

      1 year ago Log in to Reply
    33. Wanacure

      This website has proven most useful. I get periodic online news from JDRF. I gave up subbing to ADA Forecast and no longer donate to JDRF. I no longer read medical research journals. I rely on NHK, france24.com, dw.com, NPR, PBS, sometimes glance at WSJ, & also rely on commercial broadcast networks for any really big medical breakthroughs.. And sometimes I reread Bernstein to learn something again. When younger I read every new book on diabetes.

      For privacy I use free DuckDuckGo.com to search. I use the free version of ProtonMail.com as a VPN; it’s highly rated by Consumer Reports. But I confess, I also still use Google mail for contacting politicians; keeps my more important VPN email box from clogging with appeals for campaign donations.

      And I still use free online services at public libraries, despite “weak security” warning. I try to remember to reboot after finishing my online sessions. I keep my apps updated.

      When I FINALLY “qualified” for a continuous monitor, the endocrinologist and her assistant have been very helpful.

      Lesson: if you want something medical, you gotta squeak
      LOUDLY.

      1 year ago Log in to Reply
    34. Cheryl Seibert

      I selected “Social Media”, but I only utilize information from Facebook T1D support groups that can be verified by reputable sources. Too many uninformed diabetics winging it and telling people inaccurate treatment methods. I go to DiaTribe, T1DExchange 🙂 , and T1D device manufacturer websites to stay up to date. Verify, verify, verify….. For advancements, the same applies…… cinnamon tablets don’t cure T1D!

      1 year ago Log in to Reply

    How do you stay up to date about T1D advancements and community news? Select all that apply! Cancel reply

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