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    • 34 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 45 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 57 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 58 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 2 hours, 13 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 4 minutes ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 4 hours, 10 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 4 hours, 10 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 12 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 4 hours, 13 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    • 4 hours, 21 minutes ago
      Samantha Robinson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 4 hours, 27 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
    • 4 hours, 29 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 30 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 4 hours, 46 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
    • 4 hours, 46 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
    • 4 hours, 47 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 4 hours, 47 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 47 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 4 hours, 48 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 4 hours, 48 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 5 hours, 7 minutes ago
      William Bennett likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 5 hours, 7 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Eight times a year I have to spend more than eight hours to fix errors on the part of my mail order pharmacy and DME supplier. My endo doesn't keep track of when prescriptions expire or need refills so add another couple hours a year building a to-do list for the doc. I'm ready to start billing for my time.
    • 5 hours, 9 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 5 hours, 39 minutes ago
      Bill Williams likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Significantly less time since I switched from Byram to ADS. It has made a world of difference and saved so many headaches!!
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    Have you ever used any therapies in addition to insulin delivered under the skin? For example, inhalable insulin, type 2 diabetes drugs, etc. Tell us about your experience in the comments!

    Home > LC Polls > Have you ever used any therapies in addition to insulin delivered under the skin? For example, inhalable insulin, type 2 diabetes drugs, etc. Tell us about your experience in the comments!
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    If your blood glucose is rising rapidly for no clear reason, which of the following ranges includes the glucose level at which you would most likely give a correction bolus in this situation?

    Sarah Howard

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    49 Comments

    1. Brandon Denson

      Afrezza inhalable insulin is a must-try, ask your endocrinologist about it. The company that makes it is MannKind. It’s a huge game-changer to help me decrease my high blood sugars quicker than injectable insulin.

      3
      2 years ago Log in to Reply
    2. Laura McPheeters

      I used Jardiance for about 9 months. Saw no improvement to A1C or weight loss so discontinued use.

      2 years ago Log in to Reply
    3. Jaysen LeSage

      Trulicity

      2 years ago Log in to Reply
    4. Greg Felton

      I used Victoza as part of a study for a few months and my A1C & TIR improved, because I had no appetite. It’s easy to stay in control when you skip lunch! I lost weight, but suffered from nausea and lethargy. If this was available for T1 patients I don’t think I would use it again.

      2 years ago Log in to Reply
    5. Alan Altschuler

      When I was diagnosed in 1968, they did not initially start me on insulin. Instead they put me on a series of type two diabetes drugs for the first year during the honeymoon period. That did not go so well and I began insulin therapy a year later. I assume they do not use that approach anymore.

      2 years ago Log in to Reply
    6. Mary Dexter

      I was initially put on Metformin because I had been misdiagnosed as T2. When I was correctly diagnosed with LADA, I started insulin.

      2 years ago Log in to Reply
    7. Paul Madden

      For the bulk of my 59+ yrs. w/T1 I have been on a lower carbohydrate diet which has optimized my post meal blood sugar levels. 5 years ago I started using Afrezza. It has safely allowed me to enjoy more carbohydrates and actually has improved my HbA1c by .5 and I am working less now and enjoying better diabetes blood sugar balance remaining in the normal blood sugar range 92%-97% of the time.

      2
      2 years ago Log in to Reply
    8. Paul Madden

      SGLT2 for improved balance of my blood sugars and heart protection.

      2 years ago Log in to Reply
    9. connie ker

      I could say the identical words of Mary Dexter. I was 49 years of age and misdiagnosed with type 2 diabetes by a GP and put on metformin to no avail. An endocrinologist said “You don’t look like a type 2 diabetic” and I have been on insulin ever since. Metforman made me feel sick and I couldn’t eat anything; sugars going high. I have LADA too.

      1
      2 years ago Log in to Reply
      1. Sherolyn Newell

        My endo said if she was a betting woman, she would bet I was not Type 2. Tests proved her right.

        2 years ago Log in to Reply
    10. Jana Wardian

      I’m currently on metformin and GLP 1 for insulin resistance. Initially, I lost 50 pounds and decreased insulin by 1/2.

      2 years ago Log in to Reply
      1. T1DGJ

        I was in an inhaled insulin trial for a year. Once I got past The first couple of weeks of it making me cough, it was okay, pretty accurate. I actually prefer MDI, I don’t like the inhaler feeling. I said then it is probably really good for people who would avoid better control by being resistant to injections.

        2 years ago Log in to Reply
    11. gary rind

      Have taken metformin for a long time. Sugars would skyrocket during the night (100+ points) so my endo thought that metformin would take care of it. Thankfully, it has worked well.

      2 years ago Log in to Reply
    12. Gina Lucero

      I take Afrezza inhaled insulin. I’ve been using it with Tresiba and the Dexcom since September 2019. Love the combo! My last A1C was 5.6 with 90% time in range (65-160).

      2
      2 years ago Log in to Reply
    13. William Bennett

      When I was on MDI and struggling with Dawn Phenomenon my endo put me on Metformin. Getting a pump was the real fix for DP (higher basal rate starting in the wee hours) but I’ve stayed on it since it helps with some insulin resistance I have (like a lot of T1s). More recently I’ve been taking Jardiance, which has had a huge effect in attenuating my high and low excursions.

      2 years ago Log in to Reply
    14. Patricia Dalrymple

      I’m in the group I presume called LADA although I never heard the term from any of my primaries or Endos. I was 5’6’ and 110 lbs when diagnosed and put on glucophage I believe back in 2000. It did nothing. I told my primary (no Endo at the time) that it wasn’t working and I needed an Endo because I felt I needed insulin. He told me he could prescribe it. I said I wanted a specialist (why would I want him when he misdiagnosed me and I had to diagnose myself?). Once I got on insulin with an Endo and an educator, I put on weight again. They all suspected I was anorexic. It was a rough couple of years. Now, I am much better and much healthier. I prefer insulin to taking pills. I am grateful to have it.

      3
      2 years ago Log in to Reply
      1. Sherolyn Newell

        Same story for me. You can’t control glucose levels with food and metformin, unless you starve yourself to death. In the four months I waited for an endo appointment, I went down to 96 lbs. Also at 5’6″.

        2 years ago Log in to Reply
    15. cynthia jaworski

      I briefly used SGLT2 inhibitor. It lowered my blood sugars, but I began to suffer UTIs and odd tingling sensations in my legs. The inhibitor is supposed to be specific for only 1 transporter, but the manufacturer’s data shows it has greater activity against the one, but it is not specific.

      2 years ago Log in to Reply
    16. Bonnie kenney

      Type 1…47 years….used Jardiance for a couple of years back. Worked great then started spilling ketones… endo took me off immediately.

      2 years ago Log in to Reply
    17. rick phillips

      I used oral rezolin. Now withdrawn. I worked like a charm for me. But you know that silly gastro cancer in 10% of the users was a tough outcome

      2 years ago Log in to Reply
    18. Francisco Varea

      I was on Victoza for about 3-4 yrs. My end switched to Trulicity about 3 yrs. ago. Been on it since.

      2 years ago Log in to Reply
    19. Jeffrey Joseph

      T1 x 21 years. Metforman did nothing for weight nor A1C. On Victoza for 3 years while working for Novo Nordisk until it put me in the hospital with acute pancreatitis. I say stick to the insulin.

      2 years ago Log in to Reply
    20. Ernie Richmann

      I take metformin. In addition my therapy includes daily exercise- walking, biking, resistance training, and I do most yard work and upkeep on my home and for a few other people.

      2 years ago Log in to Reply
    21. Bob Durstenfeld

      I used Symlin for a few years. The nausea was annoying. I stopped when insurance refused to cover it. Now I use insulin in a pump, Jardiance, metformin, and Acarbose.

      2 years ago Log in to Reply
    22. Amanda Barras

      One doctor put me on Metformin. It didn’t help lower my insulin needs enough to warrant another medication on board. Also, when I first met this doctor she said I looked more like a T2 because of my weight and I think she was trying to put me on type 2 meds because she thought I was lying about my T1 diagnosis. SMH.

      1
      2 years ago Log in to Reply
      1. Pauline M Reynolds

        Yes, for many years I had to “prove” I was Type I to each new doctor. Always the same result after labs. Don’t produce insulin.

        1
        2 years ago Log in to Reply
      2. LizB

        Some years ago I saw a new endo who then sent me to talk to the NP because she felt a pump would be good for me. The NP took one look at me (overweight) and said “Who told you that you were Type 1?”. She ran antibody and c-peptide tests which showed I was most definitely Type 1.
        I was overweight at diagnosis, age 19, and the endo in the hospital kept telling me over and over how it wasn’t my fault and that nothing but insulin would work for me.

        2 years ago Log in to Reply
    23. Judith Marged

      I have been using the inhalable Afrezza for the past four years. I have had my best glucose control since switching and would not go back to injectable insulin. Within the first three months of switching, my A1C went from 7.9 to 6.4. I have never been above 6.9 in the past four years.

      1
      2 years ago Log in to Reply
    24. Maureen Helinski

      Yes, I used symlin for about 5 years and liked it. It took a while to figure out the exact amount and time I need to add insulin (1 1/2 hours later I need the rest of the required insulin). I only stopped to go on the Tandem CIQ which need to make a algorithm for me in normal cases.

      2 years ago Log in to Reply
    25. Mary Coleman

      Tried Metformin for a couple of years but it didn’t seem to be doing anything except giving me stomach upset. Got some samples of Afrezza from my end and I loved it but my insurance won’t cover it and it’s too cost prohibitive for me to pay out of pocket.

      2 years ago Log in to Reply
      1. Dave Akers

        Mary Coleman, contact the company, MANNKIND, they can help with coverage.

        2 years ago Log in to Reply
    26. Becky Hertz

      I use Victoza for insulin resistance. It works for me.

      1
      2 years ago Log in to Reply
    27. Janis Senungetuk

      As a 10 year old, two years after dx , my MD had me stop insulin and try an oral drug still under development. He had previously been involved in that research. After less than two weeks, I was very ill and went back to insulin injections. The drug never made it to market.

      2 years ago Log in to Reply
    28. Dave Akers

      Inhaled insulin, Tresiba, and Dexcom was the game changer Combo for me. Never thought a fixed dose insulin would allow the control I’ve experienced. Tightest control I’ve ever had. W/ the least amount of time spend managing my T1D. my best, most consistent A1c results in last 3yrs (5.7-6.3) and less glucose variability (100-160)

      1
      2 years ago Log in to Reply
    29. Pauline M Reynolds

      Because I was 45 at time of diagnosis, I was thought to be Type II. So I took oral meds for a little while until they didn’t work. C-reactive protein showed that I produce no insulin, and I went on insulin therapy.

      1
      2 years ago Log in to Reply
    30. Carol Meares

      I was diagnosed type 2 to begin with because I was an adult. I was given glucaphage. It did nothing thing for me. I was on that for quite a while and my bs was always high. I weighed between 115-119 down from 135. They put me on insulin eventually but it was probably 6-9 months before they did. Once on insulin I was able to get my bg into a good range.

      2 years ago Log in to Reply
    31. Kevin McCue

      T1D, currently on pump and use inhaled Afrezza for mealtime. But afrezza onset/fall off is so quick also usually have to give small bolus when sugars start to rise after Afrezza did it’s part. Very happy with how fast it starts to work.

      2 years ago Log in to Reply
    32. ConnieT1D62

      I have T1D for almost 60 years. My endo put me on Symlin 10 years ago to help with satiety and weight gain from stress eating. It worked for satiety to control stress eating and lower BGs, but it involved way too much math as I was frequently having to adjust insulin delivery from a Medtronic pump and was having frequent episodes of hypoglycemia.

      Switched to a small daily dose of Victoza about 4 years ago and it has worked like a charm for me ever since. My endo had me start on a very low dose (0.2 mg) with slow titration up as tolerated to avoid any unpleasant side effects. It took me almost a full year to reach 0.6 mg (which is the manufacturer’s recommended starting dose) and I stayed there for quite a awhile. I have been on 0.8 mg for the past 18 months. My experience with it feels like something in my gut hormones that was offline is plugged back in and working again.

      1
      2 years ago Log in to Reply
    33. Molly Jones

      I was 30yrs old and was diagnosed as type 2 after my yearly check up showing elevated BG. Some unremembered medication I took for 3 months did nothing.
      I had to convince my GP that I understood the necessity of taking medications and was not missing any before being brought to the hospital for two days and started with insulin.

      2 years ago Log in to Reply
    34. Janice B

      I was originally misdiagnosed as Ty2D because I was 36. I kept getting sicker and my blood sugar did not come down. Saw an Endocrinologist who did tests and said I was t1d and did not make any insulin.

      2 years ago Log in to Reply
    35. Bekki Weston

      I’ve been using Afrezza for a little over 6 months. Like it for the “let’s eat now” moments and for bringing down a high. I also use MDI, as the smallest Afrezza = 2 – 2.5 regular insulin units….so not good for those “little” corrections we occasionally need to make.

      2 years ago Log in to Reply
    36. Steven Gill

      Don’t know of this counts. I was originally diagnosed TYPE 2 (was the perfect TYPE 2: ate and drank everything, workaholic) and was long was I lost weight if was fine (lost 105lbs over 2 1/2 years) than the went haywire.

      My did refused to consider insulin after 3 years for alone, counts m medical risks for TYPE 2 “out of control,” and although the bloodwork said I had the antibodies placed me in the trials “just to see.” NPH with initially STARLIX, the GLUCOPHAGE (have brand for metformin), finally told to gain weight than in shots.

      They admitted meds did nothing.

      1 year ago Log in to Reply
    37. Henry Renn

      1956 dx T1. In early 2000s was additionally dx with T2. Was prescribed T2 oral med which helped stabilized bg. Med was withdrawn from market. Dr. did not prescribe a diff oral med.

      1 year ago Log in to Reply
    38. Germaine Sarda

      I tried inhalable insulin and while I loved how quickly it worked, even the lowest dose could knock me down to a low. My correction ratio for insulin is 1 to 100 so I think that has something to do with it.

      1 year ago Log in to Reply
    39. Chris Deutsch

      In response to my blood sugars, my Dr suggested I try Victoria. I began to have diarrhea after the first dose. I stopped the Victoria within a few days, but the diarrhea continued for 6 months.

      1 year ago Log in to Reply
    40. persevereT1D52

      I use Afreeza. It spoils me because of it’s amazing fast action and short duration. I hope I never have to do without it.

      1 year ago Log in to Reply
    41. MikeeB.

      I was in a test program using Inhalable Insulin. Persons with Insulin pumps were asked by our Endo. to participate because we were good at keeping data. The test was a bust, although we kept our pumps’ on for Basel insulin, the inhaled insulin didn’t not control our Glucose levels, because the inhaled insulin dosages were limited. We all had lung test before and after. I did have some shortness of breath after, but it passed.

      1 year ago Log in to Reply
    42. John Henninger

      Inhalable insulin and I did not get along as it was not effective and hard to take. Tried a T2 drug and it block my intestines up. Ugh

      1 year ago Log in to Reply
    43. Louise Robinson

      After relocating to Florida from the northeast due to retirement and not being able to find an endocrinologist nearby, I had my Primary Care Doctor handle my Type 1 diabetes. (I was dx’d Type 1 in 1976 while in my late 20’s and relocated in 2005.) As my prior good control slipped and my A1c edged into the 7’s, my PCP first prescribed Avandia in addition to the Lantus and Humalog I was taking. That caused severe hypoglycemic episodes. I stopped taking Avandia on my own after several weeks. When the then instructed me to increase my Lantus dose AND not take my Humalog unless my BG was 250 mg/dl or greater before meals, I was increasingly doubtful of his approach. While on vacation in Idaho in 2010, I had a bad hypo requiring my husband to administer glucagon when he was unable to wake me in the morning. Although the glucagon helped, he drove me to the local ER where they admitted me after fearing I’d had a stroke.
      The many tests showed no stroke and “just” a severe hypoglycemic reaction. When we returned home after cutting our vacation short and this PCP advised me to continue doing what he’d advised, I knew I needed to change doctors. He was treating me as a Type 2 and had no idea how to treat a Type 1 nor that he should be referring me to someone who did. I self-referred to an endocrinologist who was 75 minutes away. The endo immediately reduced my daily Lantus dose by 25% and re-educated me about carb to insulin ratios. He ordered the first C-peptide test I’d ever had and the results clearly showed that I no longer produced any insulin. Rather than insulin resistance which is what the PCP had determined was the problem, I learned that I had a high insulin sensitivity factor at 1:120. Within 6 months, under his care, I transitioned from MDI to an insulin pump and have been able to maintain my A1c in the mid to low 6’s for the past 10 years. Had I stayed with that PCP, I doubt I would be alive today. I continue to learn as much as I can about my diabetes and how it affects me. Knowledge is power and we must be our own advocates.

      1 year ago Log in to Reply

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