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    • 18 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 6 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 13 hours, 49 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 15 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 15 hours, 15 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 15 hours, 16 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 17 hours, 28 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 17 hours, 29 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 29 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 18 hours, 12 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 35 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 21 hours, 32 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 14 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 19 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 21 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 21 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
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    Have you ever used inhaled insulin?

    Home > LC Polls > Have you ever used inhaled insulin?
    Previous

    How do you usually bolus for a slice of pizza? If you typically use multiple strategies, please select all that apply.

    Next

    If you are currently using a CGM, where on your body is your sensor placed right now?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    34 Comments

    1. Becky Hertz

      Wish I could but my pulmonary function tests aren’t good enough.

      2 years ago Log in to Reply
      1. Lynn Smith

        Yes. But I’m still having trouble managing my blood sugars. The manufacturer of Afrezza was supposed to be coming out with a gadget that tracks how much you have inhaled and when. I really need that. I’m not good at writing stuff down. But, now the launch of that gadget has been delayed indefinitely. I need to write them a letter telling them hurry up. I don’t want to go back to slow acting Humalog. 😬

        2
        2 years ago Log in to Reply
    2. Brian Vodehnal

      Gamechanger

      3
      2 years ago Log in to Reply
    3. Sara Henderson

      Yes I have used inhaled insulin for a couple of months and totally loved it. But unfortunately I developed a problem with shortness of breath that most certainly was related to inhaled insuI have a terrible problem with allergic reaction to many chemicals as well as auto-immune diseases:
      Type One diabetes since age 22 – I am 73 now, Hypothyroidism since age 15, and I was recently found to have AntiphospholipidSyndrome at age 72.

      2
      2 years ago Log in to Reply
    4. Merry Woolsey

      Yes and I love it! I have problems with finding sites I can use to inject insulin. I am unable to use my abdomen at all and only one are plus find a site for a cgm. This allows me to use my inner thighs for long acting and buttocks or one arm for cgm.

      2
      2 years ago Log in to Reply
      1. persevereT1D52

        same

        2 years ago Log in to Reply
    5. Jane Cerullo

      Afraid would damage lungs

      1
      2 years ago Log in to Reply
      1. Dave Akers

        Where’s the data to show that after 9 years on the market

        2 years ago Log in to Reply
    6. Annie Wall

      I only used it very briefly when I needed a pump vacation but I simply HATED it. I felt like I had no control so went back to shots instead. (Thankfully, I’m back to pumping)

      2
      2 years ago Log in to Reply
    7. KIMBERELY SMITH

      No

      2 years ago Log in to Reply
    8. Bruce Johnson

      Have never seen or heard of it.

      2 years ago Log in to Reply
    9. GLORIA MILLER

      No, my insurance won’t cover it.

      2 years ago Log in to Reply
    10. Lawrence S.

      No. I have not used inhaled insulin. I wonder what advantage it would have over my Tandem Pump with Control IQ?
      In any case, I have asthma and COPD, and wonder whether it would exacerbate my condition?

      1
      2 years ago Log in to Reply
      1. KarenM6

        Hi Lawrence!
        Yes, it might be a problem for the asthma and COPD.
        They do a lung test before letting you use it, so you might not be able to, for lack of better phrasing, pass that test.

        1
        2 years ago Log in to Reply
      2. Lawrence S.

        Thank you KarenM6

        1
        2 years ago Log in to Reply
    11. Marty

      I’d love to have in on hand for occasional use with super high BGs but it’s not covered by my insurance and I doubt that my health care provider would see the need since high BGs are (fortunately) pretty rare for me.

      2 years ago Log in to Reply
    12. Dave Akers

      “Clinical Inertia”: HCPs doing what they’ve done for years. Unwilling or unable to change course.

      Sadly patient left behind.

      Injectable insulin and AID systems is only getting about 40% of T1Ds to an A1c of under 7%. Maybe it’s time to change insulins and try something new for the other 60% of T1D’s?

      2
      2 years ago Log in to Reply
    13. Dave Akers

      Have been on this for 5 years and have less hypo than I ever did with a pump system. A1c consistently under 6.5% with ~80% TIR.

      Tried this with Tresiba during a pump break, and turned into my “pump retirement!”

      It was a good 14 years wearing a pump 24/7…I do not miss it.

      1
      2 years ago Log in to Reply
      1. Rick Martin

        Similar answer here.

        2 years ago Log in to Reply
      2. persevereT1D52

        same

        2 years ago Log in to Reply
    14. Cub Scout

      I asked. My Dr. said she would never recommend inhaling a protein

      2 years ago Log in to Reply
    15. Jeanne McMillan-Olson

      Medicare doesn’t pay for inhaled insulin when you are on a pump. It lowers glucose rapidly. Wish I could use it. My friend is in a research study and is having good luck with it.

      1
      2 years ago Log in to Reply
    16. Tom Caesar

      Love it, use it mornings and whenever I need to reduce BG promptly. Running out of good sites after 50 years of injections

      5
      2 years ago Log in to Reply
    17. Eve Rabbiner

      Tried it once. Burning sensation in my nose. Not eager to use it again.

      2 years ago Log in to Reply
    18. KarenM6

      I did use it and loved it… it brought a high down so quickly, I was just amazed!
      I had trouble with a couple of other times, though, and need more training to use it properly. It’s in the works, but I’ve been slow about getting the training because life got so super busy for me.
      I am looking forward to getting back in the groove with this insulin!

      1
      2 years ago Log in to Reply
    19. Bekki Weston

      I’m MDI, and been using Afrezza as needed, for those stubborn highs and those moments when I sit down to eat, and realize I forgot to pre-bolus – I’m sure that doesn’t happen to anyone else – haha. Or even for spur of the moment foods, like when I’m shopping in Costco, and try some of the free samples. Sure wish the Mfgr. had better lobbyists, to get it covered under more Insurance plans.

      2
      2 years ago Log in to Reply
    20. Carol Meares

      My Endo would not let me try it.

      2 years ago Log in to Reply
    21. T1DGJ

      I was in a 1-year clinical study for it in the early 2000s. It worked well enough, but I didn’t like the tickle and coughing it created. I felt like it was great for someone really not wanting to take shots (pumps were not a common option then).

      2 years ago Log in to Reply
    22. Carolann Hunt

      Can’t with asthma

      2 years ago Log in to Reply
    23. Anita Stokar

      I have it for really high sugars which I very rarely get (250 or over). It dropped my sugar so quickly though that I dropped into the 40’s. Scary as I didn’t know when I would stop dropping. Now I will take more grams of carbs than normal when I see that I may drop below 70 when using afrezza. Unfortunately it doesn’t come in a smaller dose than it does as it would be way better for me.

      2 years ago Log in to Reply
    24. persevereT1D52

      It’s sad to see the resistance with both patients and medical society. Afrezza is a godsend. But it does take adjustment and a change in thinking. Once you get it down it is a huge blessing. I have very volatile BS and slow absorption from 30 years of pumping. It is off-label but very easy to divide the cartridge’s for lower does which works well for me. I use it to supplement the pump and works well with Control IQ. I hope others can be willing to take the time and to adjust their concept of insulin dosing.

      2 years ago Log in to Reply
    25. PamK

      I would love to try it, but was warned against it due to having asthma.

      2 years ago Log in to Reply
      1. mbulzomi@optonline.net

        As I stated above, there were aftereffects, some lung irritation. We were required to do a lung test before and after the test.

        2 years ago Log in to Reply
    26. mbulzomi@optonline.net

      I was part of a group of pumpers testing Mankind Inhaled Insulin at least 25 years ago. We only use it for Blousing not Basel that cane out of our pumps. Too many restrictions and limited dosage per pipe. At that time the test did not support using it.

      2 years ago Log in to Reply

    Have you ever used inhaled insulin? Cancel reply

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