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    • 11 hours, 5 minutes ago
      Laurie B likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 11 hours, 27 minutes ago
      ChrisW likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      MDI and since FIASP is now covered under Medicare I wanted to try the inPen. They wanted over $600 for it so I said no thanks!
    • 12 hours, 16 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Wish cost did not have to come into play but unfortunately it does.
    • 12 hours, 16 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      It isn’t that I can’t afford devices or meds, it’s more that I feel pharma is jacking up prices to see what the market will bare without conscience. Free enterprise does not work in most of the life sustaining medical community, particularly in the US.
    • 12 hours, 16 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 12 hours, 17 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Having to wait for the warrantee period to run out before switching pump manufacturers is the biggest restraint. I had to wait to switch from Minimed 770 to T:slim X2 several months. I am now considering going back to Minimed because of the improvements in their sensor and the problems Tandem is having with infusion set manufacturing. So I have to wait a year.
    • 12 hours, 44 minutes ago
      Steve Rumble likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 12 hours, 48 minutes ago
      Kathy Hanavan likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 12 hours, 49 minutes ago
      Marty likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 13 hours, 36 minutes ago
      TEH likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 6 hours ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 1 day, 11 hours ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 2 days, 12 hours ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 23 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 2 days, 23 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 3 days, 6 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 3 days, 6 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 3 days, 6 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 3 days, 6 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 3 days, 11 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 3 days, 11 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 3 days, 12 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 3 days, 12 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 12 hours ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 3 days, 12 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
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    Have you ever used inhaled insulin?

    Home > LC Polls > Have you ever used inhaled insulin?
    Previous

    How do you usually bolus for a slice of pizza? If you typically use multiple strategies, please select all that apply.

    Next

    If you are currently using a CGM, where on your body is your sensor placed right now?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    34 Comments

    1. Becky Hertz

      Wish I could but my pulmonary function tests aren’t good enough.

      2 years ago Log in to Reply
      1. Lynn Smith

        Yes. But I’m still having trouble managing my blood sugars. The manufacturer of Afrezza was supposed to be coming out with a gadget that tracks how much you have inhaled and when. I really need that. I’m not good at writing stuff down. But, now the launch of that gadget has been delayed indefinitely. I need to write them a letter telling them hurry up. I don’t want to go back to slow acting Humalog. 😬

        2
        2 years ago Log in to Reply
    2. Brian Vodehnal

      Gamechanger

      3
      2 years ago Log in to Reply
    3. Sara Henderson

      Yes I have used inhaled insulin for a couple of months and totally loved it. But unfortunately I developed a problem with shortness of breath that most certainly was related to inhaled insuI have a terrible problem with allergic reaction to many chemicals as well as auto-immune diseases:
      Type One diabetes since age 22 – I am 73 now, Hypothyroidism since age 15, and I was recently found to have AntiphospholipidSyndrome at age 72.

      2
      2 years ago Log in to Reply
    4. Merry Woolsey

      Yes and I love it! I have problems with finding sites I can use to inject insulin. I am unable to use my abdomen at all and only one are plus find a site for a cgm. This allows me to use my inner thighs for long acting and buttocks or one arm for cgm.

      2
      2 years ago Log in to Reply
      1. persevereT1D52

        same

        2 years ago Log in to Reply
    5. Jane Cerullo

      Afraid would damage lungs

      1
      2 years ago Log in to Reply
      1. Dave Akers

        Where’s the data to show that after 9 years on the market

        2 years ago Log in to Reply
    6. Annie Wall

      I only used it very briefly when I needed a pump vacation but I simply HATED it. I felt like I had no control so went back to shots instead. (Thankfully, I’m back to pumping)

      2
      2 years ago Log in to Reply
    7. KIMBERELY SMITH

      No

      2 years ago Log in to Reply
    8. Bruce Johnson

      Have never seen or heard of it.

      2 years ago Log in to Reply
    9. GLORIA MILLER

      No, my insurance won’t cover it.

      2 years ago Log in to Reply
    10. Lawrence S.

      No. I have not used inhaled insulin. I wonder what advantage it would have over my Tandem Pump with Control IQ?
      In any case, I have asthma and COPD, and wonder whether it would exacerbate my condition?

      1
      2 years ago Log in to Reply
      1. KarenM6

        Hi Lawrence!
        Yes, it might be a problem for the asthma and COPD.
        They do a lung test before letting you use it, so you might not be able to, for lack of better phrasing, pass that test.

        1
        2 years ago Log in to Reply
      2. Lawrence S.

        Thank you KarenM6

        1
        2 years ago Log in to Reply
    11. Marty

      I’d love to have in on hand for occasional use with super high BGs but it’s not covered by my insurance and I doubt that my health care provider would see the need since high BGs are (fortunately) pretty rare for me.

      2 years ago Log in to Reply
    12. Dave Akers

      “Clinical Inertia”: HCPs doing what they’ve done for years. Unwilling or unable to change course.

      Sadly patient left behind.

      Injectable insulin and AID systems is only getting about 40% of T1Ds to an A1c of under 7%. Maybe it’s time to change insulins and try something new for the other 60% of T1D’s?

      2
      2 years ago Log in to Reply
    13. Dave Akers

      Have been on this for 5 years and have less hypo than I ever did with a pump system. A1c consistently under 6.5% with ~80% TIR.

      Tried this with Tresiba during a pump break, and turned into my “pump retirement!”

      It was a good 14 years wearing a pump 24/7…I do not miss it.

      1
      2 years ago Log in to Reply
      1. Rick Martin

        Similar answer here.

        2 years ago Log in to Reply
      2. persevereT1D52

        same

        2 years ago Log in to Reply
    14. Cub Scout

      I asked. My Dr. said she would never recommend inhaling a protein

      2 years ago Log in to Reply
    15. Jeanne McMillan-Olson

      Medicare doesn’t pay for inhaled insulin when you are on a pump. It lowers glucose rapidly. Wish I could use it. My friend is in a research study and is having good luck with it.

      1
      2 years ago Log in to Reply
    16. Tom Caesar

      Love it, use it mornings and whenever I need to reduce BG promptly. Running out of good sites after 50 years of injections

      5
      2 years ago Log in to Reply
    17. Eve Rabbiner

      Tried it once. Burning sensation in my nose. Not eager to use it again.

      2 years ago Log in to Reply
    18. KarenM6

      I did use it and loved it… it brought a high down so quickly, I was just amazed!
      I had trouble with a couple of other times, though, and need more training to use it properly. It’s in the works, but I’ve been slow about getting the training because life got so super busy for me.
      I am looking forward to getting back in the groove with this insulin!

      1
      2 years ago Log in to Reply
    19. Bekki Weston

      I’m MDI, and been using Afrezza as needed, for those stubborn highs and those moments when I sit down to eat, and realize I forgot to pre-bolus – I’m sure that doesn’t happen to anyone else – haha. Or even for spur of the moment foods, like when I’m shopping in Costco, and try some of the free samples. Sure wish the Mfgr. had better lobbyists, to get it covered under more Insurance plans.

      2
      2 years ago Log in to Reply
    20. Carol Meares

      My Endo would not let me try it.

      2 years ago Log in to Reply
    21. T1DGJ

      I was in a 1-year clinical study for it in the early 2000s. It worked well enough, but I didn’t like the tickle and coughing it created. I felt like it was great for someone really not wanting to take shots (pumps were not a common option then).

      2 years ago Log in to Reply
    22. Carolann Hunt

      Can’t with asthma

      2 years ago Log in to Reply
    23. Anita Stokar

      I have it for really high sugars which I very rarely get (250 or over). It dropped my sugar so quickly though that I dropped into the 40’s. Scary as I didn’t know when I would stop dropping. Now I will take more grams of carbs than normal when I see that I may drop below 70 when using afrezza. Unfortunately it doesn’t come in a smaller dose than it does as it would be way better for me.

      2 years ago Log in to Reply
    24. persevereT1D52

      It’s sad to see the resistance with both patients and medical society. Afrezza is a godsend. But it does take adjustment and a change in thinking. Once you get it down it is a huge blessing. I have very volatile BS and slow absorption from 30 years of pumping. It is off-label but very easy to divide the cartridge’s for lower does which works well for me. I use it to supplement the pump and works well with Control IQ. I hope others can be willing to take the time and to adjust their concept of insulin dosing.

      2 years ago Log in to Reply
    25. PamK

      I would love to try it, but was warned against it due to having asthma.

      2 years ago Log in to Reply
      1. mbulzomi@optonline.net

        As I stated above, there were aftereffects, some lung irritation. We were required to do a lung test before and after the test.

        2 years ago Log in to Reply
    26. mbulzomi@optonline.net

      I was part of a group of pumpers testing Mankind Inhaled Insulin at least 25 years ago. We only use it for Blousing not Basel that cane out of our pumps. Too many restrictions and limited dosage per pipe. At that time the test did not support using it.

      2 years ago Log in to Reply

    Have you ever used inhaled insulin? Cancel reply

    You must be logged in to post a comment.




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