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    • 4 hours, 46 minutes ago
      KarenM6 likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 6 hours, 33 minutes ago
      Kristi Warmecke likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 6 hours, 34 minutes ago
      Laurie B likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 6 hours, 34 minutes ago
      Kristi Warmecke likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I answered slightly. I'm absolutely certain supplies and medication will be available. However, I'm doubtful they will be affordable. If I can't afford them, I can't access them.
    • 7 hours, 33 minutes ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 7 hours, 33 minutes ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 7 hours, 34 minutes ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I answered slightly. I'm absolutely certain supplies and medication will be available. However, I'm doubtful they will be affordable. If I can't afford them, I can't access them.
    • 7 hours, 37 minutes ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am worried about the changes to Medicare making no provision for getting an immediate replacement if a pump fails. It sounds like we will have to get these from the suppliers instead of a warranty replacement from Tandem themselves (or whatever brand you use). Pumps will be rented and will have to be returned so they can verify the problem before replacing them, which is ridiculous. Meanwhile, Medicare would not pay for us to get long acting insulin as a temporary replacement for the basal.
    • 7 hours, 39 minutes ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I broke down for the first time in 25 years and bought a bottle of insulin because I think I may have thrown a bottle out with the box. Medicare wouldn’t fill the prescription because it was too early. I just didn’t want the fight and worry. I’m not sure that’s what happened but it’s the only explanation. Also, I live in Florida and the threat of losing power is always there. I should get a generator but I’m a little afraid of them and you still can’t be sure you have access to propane. If my insulin goes bad, I’m not sure I could get refills. My back up plan is to leave before hurricane or go to a hospital. But it is all just causes concern.
    • 7 hours, 53 minutes ago
      Derek West likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Very! However, I wish I could use Fiasp insulin in the Tandem pumps.
    • 10 hours, 28 minutes ago
      Bruce Schnitzler likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I broke down for the first time in 25 years and bought a bottle of insulin because I think I may have thrown a bottle out with the box. Medicare wouldn’t fill the prescription because it was too early. I just didn’t want the fight and worry. I’m not sure that’s what happened but it’s the only explanation. Also, I live in Florida and the threat of losing power is always there. I should get a generator but I’m a little afraid of them and you still can’t be sure you have access to propane. If my insulin goes bad, I’m not sure I could get refills. My back up plan is to leave before hurricane or go to a hospital. But it is all just causes concern.
    • 11 hours ago
      Karen Newe likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 11 hours, 17 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Very! However, I wish I could use Fiasp insulin in the Tandem pumps.
    • 11 hours, 18 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 11 hours, 19 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 12 hours, 46 minutes ago
      Patricia Dalrymple likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Try Uni-Solve Adhesive Remover (smith&nephew)- wipe it on wait a minute to let it work and it will come off easy. at least it works great for me and I've tried several different brands, I use it for CGM & Omnipod removal
    • 19 hours, 46 minutes ago
      Sandy Norman likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 3 hours ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      There are several conversations about this across social media. Many people chime in and vote for a new, more accurate name for type 1.. some of the popular alternatives- Pancreatic Autoimmune Disease, Beta Cell Destruction Disease, Autoimmune Diabetes, Autoimmune Insulin Failure, Autoimmune Absolute Insulin Deficiency (AAID)
    • 1 day, 3 hours ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 1 day, 3 hours ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 5 hours ago
      Kristi Warmecke likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 7 hours ago
      Lee Tincher likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      If I could get a CGM that is consistent and predictable I'd be very happy with the Twiist or the Tandem. The weak point with pumps used to be infusion sites, but now that we are relying on poor performing technology to support potentially great algorithms itis quite frustrating.
    • 1 day, 9 hours ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 1 day, 11 hours ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
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    Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?

    Home > LC Polls > Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
    Previous

    If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?

    Next

    If you use an insulin pump, do you currently have a protective case on your pump or PDM?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    12 Comments

    1. Becky Hertz

      #JDRFRide

      2 years ago Log in to Reply
    2. Molly Jones

      Other.
      I don’t think so. I have a bad memory!!!

      2 years ago Log in to Reply
    3. Ahh Life

      A fund raiser true story. All is not sweetness & light in these things.

      It was a Saturday morning race with a $20 entry fee. I was in charge of the wee metal box in which I stuffed $20 bill after $20 bill. At the end of the day there were several thousands of dollars in that small box.

      Banks, being traditional and proper 10 to 2 people only worked Monday through Friday. I asked the lead person what I was to do with all that money? She replied, “Stick it in your trunk and hope nobody steals your car by Monday.” 🤔👮‍♂️

      1
      2 years ago Log in to Reply
    4. KIMBERELY SMITH

      No

      2 years ago Log in to Reply
    5. TEH

      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.

      1
      2 years ago Log in to Reply
    6. MT

      JDRF only.
      I like knowing that my contributions are going specifically to T1D.

      1
      2 years ago Log in to Reply
    7. Nicholas Argento

      I have led a team for the JDRF OneWalk annually since the late 1990’s. We have been able to raise a lot of funds for JDRF…and I have enjoyed doing it. Good cause!

      2
      2 years ago Log in to Reply
    8. Wanacure

      Once I “participated” in a JDRF Xmas Gingerbread House “contest” at a local suburban shopping mall. Kind of ironic: Cute sugary gingerbread house decorated w/ icing & candies! No one entered to compete w/ the elaborate house the organizer brought, but a few people stopped to chat. Didn’t raise much. But JDRF “Beat the Bridge” Run attracts many more folks, has prominent business sponsors & makes many $. A casual acquatence, after learning I had T1D, participated. I never have. Yrs of jogging 9 miles/wk & not buying new running shoes every 6 months must’ve worn away too much cartilage?

      2 years ago Log in to Reply
    9. Janis Senungetuk

      At the urging of my former CDE, now friend, I donated a $600 gift certificate for a couples portrait to a JDRF Gala/art auction. I contacted the organizer, asked if there was an interest in including my T1 , Joslin 50 YR. Medalist story with the certificate and was told “no”. At that point, since I had already agreed to the donation I just included a catalog sheet with four of my couples/family portraits to indicate what the certificate was offering. There was a winning bid on the certificate, but it wasn’t used and that was my last contact with JDRF.

      2 years ago Log in to Reply
    10. Pauline M Reynolds

      “Other”. The answer is No except that I did participate in two studies because I was a diabetic.

      2 years ago Log in to Reply
    11. Steve Rumble

      Years ago when in college I participated in a car wash raising money for the American Diabetes Association

      2 years ago Log in to Reply
    12. Kristen Clifford

      Not yet, but I really wanna do a diabetes walk! I keep an eye out every year, but it’s usually poorly timed. Two years ago they did one the week of my honeymoon!

      2 years ago Log in to Reply

    Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)? Cancel reply

    You must be logged in to post a comment.




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