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    • 3 hours, 11 minutes ago
      Lawrence S. likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      I really think it just depends on the person who needs help. Some people may find it extremely useful and others may not find them of much help.
    • 3 hours, 11 minutes ago
      Lawrence S. likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      I said helpful because unless they actually have first hand knowledge of your health condition they can't really know.
    • 3 hours, 16 minutes ago
      Lawrence S. likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      Back in the 80's I was in an NIH study. But I think now my age (72) ages me out) and my A1C's (5.4-5.8 for the past 20 years or so) exclude me.
    • 3 hours, 17 minutes ago
      Lawrence S. likes your comment at
      How many people in your household live with T1D?
      I am the only one in my household who has T1D, but both husband and I live with it.
    • 3 hours, 18 minutes ago
      Lawrence S. likes your comment at
      How many people in your household live with T1D?
      I always find questions like this one intriguing. I am the one and only T1D in my family, both sides, going up, down, and wide on my family tree. Then there are T1D warriors in this group (and others on social media) where the T1D with whom I'm interacting has children with T1D, parents, and aunts and uncles as well. In a sense, the data like this are suggesting more than one cause for T1D, possibly multiple conditions that result in T1D.
    • 4 hours, 3 minutes ago
      ConnieT1D62 likes your comment at
      How many people in your household live with T1D?
      ALL of them are forced, given a seat at my T1D "table" whether they wish to be or not. They endure my experiences, their after-effects, the events themselves. Living with us, they are unwilling voyeurs/particip[ents This appears to be a badly worded question. If you meant, does anybody living with you ALSO have the disease T1D as well, you should have asked it that way. The question you kids wrote asks a far different question, by semantic accident it appears....?
    • 4 hours, 4 minutes ago
      ConnieT1D62 likes your comment at
      How many people in your household live with T1D?
      I answered "1" as I have T1D. However, it could be said that if any one person has T1D, everyone in the household is living with T1D. It affects everyone in house, not just the person with it.
    • 4 hours, 11 minutes ago
      KCR likes your comment at
      How many people in your household live with T1D?
      I answered "1" as I have T1D. However, it could be said that if any one person has T1D, everyone in the household is living with T1D. It affects everyone in house, not just the person with it.
    • 4 hours, 30 minutes ago
      Marthaeg likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I fill out every survey I get and am currently participating in a phase 2 study of a new insulin. Note: I am 67 years old and I am seeing studies that allow up to age 89. Check out tektonresearch.com They have some exciting studies coming up. 😊
    • 21 hours, 50 minutes ago
      ConnieT1D62 likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I participate every time I find one that wants me.
    • 21 hours, 50 minutes ago
      ConnieT1D62 likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I fill out every survey I get and am currently participating in a phase 2 study of a new insulin. Note: I am 67 years old and I am seeing studies that allow up to age 89. Check out tektonresearch.com They have some exciting studies coming up. 😊
    • 21 hours, 51 minutes ago
      KarenM6 likes your comment at
      How would you rate your overall health?
      I just have to say: Kudos to you. Your story is amazing. Congratulations and while it is simple to write this, I can only imagine the dedication, discipline, and hard work it took.
    • 23 hours, 12 minutes ago
      John Barbuto likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I participate every time I find one that wants me.
    • 23 hours, 13 minutes ago
      John Barbuto likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I chose Other as the correct choices were not available. N/A — did not have I HAVE participated in diabetes research studies.
    • 1 day, 1 hour ago
      Deborah Wright likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I chose Other as the correct choices were not available. N/A — did not have I HAVE participated in diabetes research studies.
    • 1 day, 2 hours ago
      Alyne Branson likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I participate every time I find one that wants me.
    • 1 day, 3 hours ago
      Marthaeg likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I participate every time I find one that wants me.
    • 1 day, 4 hours ago
      Marthaeg likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I chose Other as the correct choices were not available. N/A — did not have I HAVE participated in diabetes research studies.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I chose Other as the correct choices were not available. N/A — did not have I HAVE participated in diabetes research studies.
    • 1 day, 20 hours ago
      eherban1 likes your comment at
      How would you rate your overall health?
      I just have to say: Kudos to you. Your story is amazing. Congratulations and while it is simple to write this, I can only imagine the dedication, discipline, and hard work it took.
    • 1 day, 21 hours ago
      Derek West likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      No opinion.
    • 1 day, 21 hours ago
      Derek West likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      I have never felt the need to see a mental health professional who has an understanding of lifelong health conditions. I've been T1D for 55 years, but no significant additional diabetic related issues, and have suffered no mental health issues.
    • 1 day, 21 hours ago
      Kathy Hanavan likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      Seeing a mental health professional is essential to T1D’s when needed if you want to maintain your healthy relationships with those you love and not burden them with your difficulties. You may not realize how your intermittent anxiety or diabetes distress is affecting others. It is normal to be overwhelmed sometimes with things you cannot control.
    • 1 day, 23 hours ago
      Pam Hamilton likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      Seeing a mental health professional is essential to T1D’s when needed if you want to maintain your healthy relationships with those you love and not burden them with your difficulties. You may not realize how your intermittent anxiety or diabetes distress is affecting others. It is normal to be overwhelmed sometimes with things you cannot control.
    • 2 days, 3 hours ago
      Lawrence S. likes your comment at
      How would you rate your overall health?
      My first thought is always Excellent. My A1C hovers around 6.2, TIR around 85%. I do yoga, walk an hour at least 3 times per week, garden, keep my own house very clean, eat pretty healthy, weight is below average, BP excellent. Doctors say my eyes and feet deny I have diabetes. But then, I am insulin dependent, so I always bring it down one notch. Oh! To be able to eat gelato everyday. But even with insulin, there are too many other factors that keep me on the straight and narrow. I will get vertigo if I up my sugar/sweets intake.
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    If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?

    Home > LC Polls > If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
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    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    33 Comments

    1. Wanacure

      The only close family member is a paternal cousin. She isn’t even interested in getting her DNA tested because “it may reveal some bad disease tendency.” She has children and a grandchild who could be tested. Her older sister and her cousins (me & my brother) all had/have T1D by age 15.

      2 years ago Log in to Reply
    2. Wanacure

      I answered “Other” because I DO wish my cousin & her offspring WOULD get screened for antibodies.

      2 years ago Log in to Reply
    3. Kathleen Begbie

      Several family members have been diagnosed with T1D or T2D

      2 years ago Log in to Reply
    4. Gary Rind

      my siblings & parents are older (like me) and they’ve never expressed any interest in getting tested. my nieces and nephews have never said anything either

      1
      2 years ago Log in to Reply
    5. Lawrence S.

      No. As far as I know, no one in my family has been tested for T1D autoantibodies. I don’t believe any of us has ever thought of it. Also, I don’t know what purpose it would serve. I am 70 years young. My siblings are around my age. My daughter, neices and nephews are all grown and scattered around the USA.

      2 years ago Log in to Reply
      1. Lawrence S.

        Also, no one else in my family has T1D.

        2 years ago Log in to Reply
      2. Wanacure

        But, Lawrence, how can you or they be sure until they’re tested for antibodies?

        2 years ago Log in to Reply
    6. HMW

      My family (parents and sibling) participated in a study around 30 years ago before screening was something you could request.

      2 years ago Log in to Reply
    7. Kristen Clifford

      First of all, I’ve said it before, and I’ll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of “I have not discussed antibody screenings with my family,” which is the category under which I fall.

      4
      2 years ago Log in to Reply
      1. Samantha Walsh

        Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D.
        We do offer “No, my family members have no been screened” as an option.
        We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions.
        All the best,
        The T1D Exchange team

        6
        2 years ago Log in to Reply
    8. pru barry

      Just my children, all grown and all clear:*)!

      2 years ago Log in to Reply
    9. Chrisanda

      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.

      1
      2 years ago Log in to Reply
    10. William Bennett

      I have a huge extended family–siblings, cousins, kids and grandkids–and afaik no one else has it, with the exception of my first cousin’s daughter. I was told at diagnosis back in 1983 that T1 doesn’t necessarily track in families the way T2 does, and that certainly seems to be true in my case. So it doesn’t really seem necessary.

      2 years ago Log in to Reply
      1. Wanacure

        William, that was then. This is now! Please read Samantha’s reply to Kristen! 😎

        2 years ago Log in to Reply
    11. Richard Vaughn

      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday.
      I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives.
      I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.

      1
      2 years ago Log in to Reply
      1. Wanacure

        Richard, why not suggest they be tested to be sure? Why not let them make the decision? ❤️😎

        2 years ago Log in to Reply
    12. KCR

      My brother and I have never talked about this.

      2 years ago Log in to Reply
    13. Kristine Warmecke

      Only my 2 youngest niece have been screened, middle born about a month after my oldest ones diagnosis. Their Dad & I both have have T1D.

      1
      2 years ago Log in to Reply
    14. Yaffa Steubinger

      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who’s the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.

      1
      2 years ago Log in to Reply
      1. Wanacure

        Aha! So the test was an accurate predictor? Did the doctor (s) suggest any preventive course of action?

        2 years ago Log in to Reply
    15. Karen DeVeaux

      No and no because I got T1D at 47 years old from a virus.

      2 years ago Log in to Reply
    16. Janis Senungetuk

      I’ve previously answered this question. My daughter and my three grandchildren, who are now in their 20’s, have no interest in being screened. I asked them when screening first became available and have repeated my request as my grandchildren grew into their teens. They refuse.

      1
      2 years ago Log in to Reply
    17. Bob Durstenfeld

      I was genetically screened and found to have monogenic Type 1 Diabetes. Not caused by antibiotics, but a gene defect. So does my eldest of three sons and his eldest of two daughters.

      2 years ago Log in to Reply
      1. Wanacure

        ❤️ Good on you for trying, Janis. So often we humans make decisions based on emotions, like fear, not rationality. I guess Freud was on to something. 😎

        2 years ago Log in to Reply
      2. Wanacure

        I wonder how many of us T1Ds have been tested for monogenic diabetes? Theoretically couldn’t this be treated by CRISPR?

        2 years ago Log in to Reply
    18. Mick Martin

      I have 1 brother that was also Type 1 … sadly, no longer with us; 2 first cousins that are both Type 1, and 2 brothers that are Type 2.

      0
      2 years ago Log in to Reply
    19. Jana Wardian

      I’ve not discussed this with family members.

      2 years ago Log in to Reply
    20. Becky Hertz

      I’m sure my sister would be screened, but she ages (64) out of most past screening requests.

      2 years ago Log in to Reply
    21. Molly Jones

      I chose other as I don’t know what family was defined as (extended or primary) and my desired answer was not available.
      I know my brother, the only primary family remaining, would have little interest, but I am unsure of extended family members.

      2 years ago Log in to Reply
    22. AnitaS

      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin’s 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.

      0
      2 years ago Log in to Reply
    23. Anne Mueller

      In my immediate family, both my son and I are T1D’s. After my son was diagnosed, his older sister was tested for the antibodies, but she didn’t have them. My husband has neve been tested, and neither have my siblings. I have a sister who was diagnosed as Type 2.

      2 years ago Log in to Reply
    24. Joindy23

      As a T1D, if I had children I’d have them screened-but I have none because when I was child-bearing age (20+ years ago), it felt too dangerous. My brother and sister (in their 50s & healthy) don’t seem interested and are presumably safe from T1D at this point.

      2 years ago Log in to Reply
    25. T1D4LongTime

      No, none of my close family has been screened. I have one natural-born son and he has only 1 child. He will not agree to screening (he’s an adult so his decision). My granddaughter is now 18 and can decide for herself if she wants screened. She may be willing.

      2 years ago Log in to Reply

    If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies? Cancel reply

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