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    • 13 hours, 46 minutes ago
      Greg Felton likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 14 hours, 18 minutes ago
      ConnieT1D62 likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      One time I was explaining that a new pump would be too expensive at the time because my deductible had just started over.. and she asked if I had insurance and I said yes….. then she said “then it should be free with insurance.” 🤦‍♀️ She may know a little about the challenges of living with diabetes, but she knows nothing about how insurance works or how costly T1D supplies are.
    • 14 hours, 37 minutes ago
      Steve Rumble likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 15 hours, 7 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I am an RN. Been going to same doctor for about ten years. Took me six years to train him. I am very well read when it comes to my LADA. He trusts my judgement and gives me excellent parameters to make decisions. Recently had a bad case of Covid. Insulin needs changed dramatically. Getting back to normal but he made sure I had scripts to cover my ups and downs with insulin needs.
    • 15 hours, 8 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Mine acknowledges the struggles and challenges that go along with managing T1D in my daily life. She gives suggestions as to what may or may not help and has often asked me I how I handle situations so she can give suggestions to other T1D patient's.
    • 15 hours, 9 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 15 hours, 34 minutes ago
      Jubin Veera likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      The hard spots are fairly frequent with the pump infusion sets. Especially if I go past 3 days which I try to avoid! I don’t think I ever got one from injections. I try heat and massaging to treat them and they normally go away after a day or so. Once I had a large area that I had to treat with antibiotics.
    • 15 hours, 36 minutes ago
      Magnus Hiis likes your comment at
      Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes, or having diabetes-related complications?
      I’m 79. My last orgasm was springtime about 3 or 4 years ago. When I complained of ED, my PCP Rxd 3 to 5 (60-100 mg) sildenafil tablets by mouth about one hour prior to sexual activity. This alone hasn’t worked to bring me up to former sexual capacity that I had 10 years years ago. I’m still considering consulting finding a doctor who’ll prescribe a safe but effective way of administering testosterone or an anabolic steroid in a dose low enough to avoid causing cardiovascular problems but high enough to restore normal ability that I had up to my sixties. My present doctors say it can’t be done, but there are doctors who advertise otherwise. Analogs of the hormone insulin can be delivered in small safe doses, why not testosterone?
    • 1 day, 7 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      We are all so very different, and trying to say that all of us with T1 understand what it's like for another who has the same hill to climb is unproductive. Having a health care provider with T1 may often be helpful just because there's apt to be more knowledge about the specifics. How we respond to the disease is such a personal matter, that I really don't think there are any guaranteed benefits beyond the grasp of the factual. Finding a doc with the same general attitude about the disease does feel good, and sometimes that's all I hope for after working hard to make peace with the disease for 70 years. Asking my doc to "get it" used to be almost my mantra, but I've come to realize that the ones who don't just see us as unruly childrenchildren
    • 1 day, 7 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Both my endocrinologist and my nurse practitioner are great. They compliment me on the way I take care of my life and health and make aure I get all the supplies I need managing all the paperwork Medicare and insurance requires. My nurse practitioner who works with me on managing the pump has her own opinion about the pump settings based on her technical knowledge which is different than what I do with my settings based on living with them. She has thru the years learned to respect what I do and is surprised with how my settings work. So we are now at peace. Both very supportive.
    • 1 day, 10 hours ago
      pru barry likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 10 hours ago
      mojoseje likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I said yes but that refers to my nurse practitioner who sees me every other visit, if not more often. The doctor may know how hard I try but perhaps takes my efforts for granted.
    • 1 day, 13 hours ago
      Anneyun likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      How can someone without the disease really understand what it is to live with it? I have never had a doctor with T1D in 60 years.
    • 1 day, 13 hours ago
      Bruce Schnitzler likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 13 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My endo is young, very empathetic, thorough, always asks for my input, and does research. I am blessed too. have him, and the one before for over 25 yrs.
    • 1 day, 13 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 14 hours ago
      lis be likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 1 day, 14 hours ago
      Daniel Bestvater likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 14 hours ago
      TEH likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I have no clue what my T1D health care provider understands about my daily challenges and I don’t know about his daily challenges either. Not sure why I should care as long as I have access to information how to best take care of myself.
    • 1 day, 15 hours ago
      Jeff Marvel likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      Richard Wiener likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Hi Connie, I still have my glass syringe and show it off occasionally. We boiled the needle and syringe every morning and sharpened the needle with a file. I was diagnosed at age 6 in 1963. Life is so different now! Then, my diet was extremely limited as was my exercise. Now, I am very active and eat pretty much as I please. I maintain an A1C in the low 6s (6.2 was my last).
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Connie and Beth, I was diagnosed in Nov 1962, age 10. During the early years I developed lumps and indentations on my upper thighs from my injections. In fact, I was able t o spot other t1 kids in my junior high school based upon the lumps in their upper arms.. (I eventually met up with them and learned that I was correct.) By the time I reached my twenties, these indentations had more or less disappeared, but I still have remnants of the lumps. I wish I could say that the layers of tissue now deposited on my legs disguises them, but they don't. I think the changes in insulin have been responsible for this improvement: the isolation and purification of animal insulins were refined, and then the various human clones were game changers in many ways.
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Yes in my upper arms when I was a petite and skinny child in the 1960s with T1D. In those days we used glass syringes with stainless steel 1/2 inch long heavy gauge needles. My mother would jab me in the upper arms, it hurt like the dickens, and I developed several hard nodules. I was diagnosed at age 8 in December 1962 and after the initial two months of her jabbing me in the upper arms, I took over giving my own "shots" and started self injecting via site rotation in my thighs for several years. Eventually the lipohypertrophy in my upper arms resolved and I never injected there again until many years later as an adult on MDI using disposable syringes with very short and fine gauge needle tips. Periodically I would give my tired pin cushion thighs a rest and take a break for a few months or a couple of years and rotate injections in my abdomen or upper arms. Have been using a pump for over 20 years now and rarely use MDI unless I am taking a pump break for a short period of time. Happily, I no longer have lumpy sites.
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    Have you ever had an unpleasant experience going through airport security because of your T1D devices or supplies?

    Home > LC Polls > Have you ever had an unpleasant experience going through airport security because of your T1D devices or supplies?
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    For caregivers of kids with T1D, do you have any special accommodations available from your child’s school? For adults with T1D, did you have special accommodations when you were in school?

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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    32 Comments

    1. Molly Jones

      T1D supplies can take extra time along with my other medical supplies. Not as bothersome as larger liquids, but I have learned to give myself extra time for security especially for the chance of hypoglycemia combined.

      2 years ago Log in to Reply
    2. Amanda Barras

      Denver Airpot. TSA with a God Complex. I explained that I’m a T1D with an insulin pump and that device isn’t safe to go through the Body Scanner but that metal detector wouldn’t hurt it. She condescending looks at me and says “You don’t get to choose!” Luckily another agent approached and got me through the line, but between her attitude and the already long security line, we almost missed our flight and hand to run for the gate at final boarding call.

      2 years ago Log in to Reply
    3. Tim Lors

      It depends a little on your definition of unpleasant. I had one pat down that went beyond unpleasant, approaching sexual assault. I also got into a debate once whether my bottles of pop were medically necessary. Those were exceptions — most of the time it not much more of a nuisance for me than all the other passengers.

      2 years ago Log in to Reply
    4. Bob Durstenfeld

      I was stripped searched at the London/Heathrow airport for carrying syringes. I had to empty all my bags because they thought that my CPAP was some sort of bomb detonator in Hong Kong. I was detained in Nairobi and told to call the US Ambassador for diplomatic permission to fly. In Maracaibo, Venezuela I was held in detention by an armed guard when my pump LOW alarm went off, then denied my glucose tablets. I have been told that I have to check my medical supply bag because carry-ons were not allowed on that flight with my ticket class. I have had a few travel adventures. Lesson: I always allow extra time.

      2 years ago Log in to Reply
    5. Sherolyn Newell

      I sometimes have to go to data centers for various clients. One in particular has extra tight security, pretty much like an airport. The first time I went there after I got my pump and CGM, I had to explain to them what they were. It wasn’t unpleasant, but the security guards pretty obviously didn’t know what to do about it. After they talked it over, they let me in.

      2 years ago Log in to Reply
    6. connie ker

      My husband was a type 1 diabetic and was seen taking a shot of insulin in the restroom. He was reported to the security guards and when he saw them coming, he took a detour and missed the confrontation. He also had an artificial hip which sounded off the metal detector, and was wanded in a special room which was private. It seems airports are not diabetic friendly, nor are they trained about diabetics who carry Dr. letters and cards.

      2 years ago Log in to Reply
    7. Katy Giebenhain

      It is really unpredictable and depends on the screener. Sometimes going through airport security is smooth, sometimes stressful. I had my absolute worst experience at London Heathrow.

      2 years ago Log in to Reply
    8. Gene Maggard

      Most of the time I get TSA Pre-Check which only requires I go through the metal detector, and I sail right through without a problem. But occasionally I have to go through the body scanner. Having been to the airport hundreds of time wearing my pump and CGM, I have never worried about them being damaged by the machines (even though the companies warn against that). But I do announce prior to getting into the scanner that I have an insulin pump. They then ask me to take the pump out of my pocket and they rub it with a wipe which is put into the bomb scanner (I assume that is what the thing is). I always give myself a little extra time to ensure I don’t miss the plane.

      2 years ago Log in to Reply
    9. Tb-well

      My boss didn’t believe me about how not only is it bad, but that the TSA does whatever arbitrary checks they want. Worst case? Back in 2015 got a back room enhanced pat down because I didn’t want them to X-ray an insulin pump in Orlando. Most common: being told, “oh no, it’s ok, just go through the millimeter wave machine” after telling them that I can’t. Traveling other than driving with this thing is a freaking nightmare, and god forbid it flags on the CGM. (It did this once, and I got pushed off and pulled it off in front of a whole line of people, just to have the TSA dude go, “wait, you have to wear a wire under your skin?”

      2 years ago Log in to Reply
    10. Leon Malnik

      The years after 9/11 things were pretty annoying. Full body searches were the norm. I’d loose or miss personal items all the time. More recently the security people are better versed about diabetic equipment so things now are less. Today i’m not going anywhere especially airports so it’s a mute point.

      2 years ago Log in to Reply
    11. Nicholas Argento

      Many times. Especially in Toronto airport, I must be on some kind of a list there, because I routinely get pulled over for special attention and often am delayed for up to an hour. I have had my bags all completely emptied by a skeptical inspector in a separated area, and been interviewed by skeptical agents with a lot of detailed questions to prove that I am there to speak to HCP’s about CGM use. Not to sell drugs….or stay there as an illegal immigrant…. or whatever they are concerned about. I am routinely delayed by TSA for many reasons in US.

      2 years ago Log in to Reply
    12. Britni Steingard

      I said “Other” because I’m not sure I would call the experience unpleasant. I got through security fine, just slightly slower than normal. One time flying out of DC (in 2006) my insulin vials raised a few eyebrows and I had to answer a few questions about what they were and why I was traveling with them. And a few times my bag’s been searched and/or swabbed for explosives because of the amount of food I had packed/the way I had packed my snacks. Apparently food can obscure the visual on the X-ray. One trip I was checked for explosives 4 times in one airport. These experiences were slightly annoying, but everyone was professional about it and they were all over quickly.

      2 years ago Log in to Reply
    13. Tom Caesar

      Luckily its never been a problem for me. It does slow down the process getting through security what with the screening and all, but the screeners have always been patient and helpful, even sympathetic.

      2 years ago Log in to Reply
    14. NAK Marshall

      Only once. Early in the CGM years & a brand new TSA person had never heard of it, couldn’t find the “Big Book of Rules” and had to call someone from far far away to come lookup and look at my “stuff.” Then I stopped pouting out anything except insulin which at least they were familiar with and have not had issues since, although I haven’t flown internationally for several years.

      2 years ago Log in to Reply
    15. Dennis Dacey

      YES, but only one time of the hundreds of times I’ve gone through airport security. .Most times the agent will glance at the copy of TSA Rrgs i place on the conveyor and just give me routine pat down and use a wipe on my pump.

      2 years ago Log in to Reply
    16. NAK Marshall

      Should be pointing out not pouting out, although….. lol

      2 years ago Log in to Reply
    17. Ahh Life

      Actually, the experience at Charles de Gaule was somewhat flattering, not unpleasant. I was pulled aside and asked to be strip searched. At my age, I consider that a complement! Unlike others, I have had extremely good luck at London Gatwick, Orlando, Kansas City, Faro, Munich, John Wayne, et al. Seems most professionals and experienced folks (unlike the tyros) know what they’re doing.

      2 years ago Log in to Reply
    18. Thomas Hatton

      Only when I fly. In UK at Heathrow i had a full body check the first few times I flew home. Fortunatly it wasn’t a strip or a body cavity search. I get extra pat down in the US. I fixed the problem by quitting flying when I retired.

      2 years ago Log in to Reply
    19. Jose Almodovar

      It wasn’t unpleasant but not what I expected. Was traveling for a weeks business trip and had enough supplies for the week in my lunch box. I had to throw away several juice and protein shakes because the agent did not believe I need the amount I was carrying.

      2 years ago Log in to Reply
    20. Tina Roberts

      No. They just test my hands after rubbing them on the pump. No big deal at all.

      2 years ago Log in to Reply
    21. MARIE PEELER

      It’s often an adventure. Many of the same stories as others here. Lesson learned, allow extra time. We’ve actually had an easier time overseas (Frankfurt, Germany was the best) than in the US. Also, we learned that in the US we can call ahead and request a specially trained escort. Half the time we arrive to find the requested agent is in a different terminal or otherwise unavailable, but when we do get them, we breeze through with all the required and reasonable scrutiny but none of the nonsense.

      2 years ago Log in to Reply
    22. Patricia Dalrymple

      The worst was at Tampa International. The TSA agent said that I should go through full body scanner. I said the company said I should not. He said: do you own a cell phone? I said yes but it was not on me. He said the body scanner was no worse than having a cell phone near the pump – I have since researched this and he was wrong. I was alone and afraid to challenge him, so I let him bully me to go through the body scanner. Never again. Now I would report him. I often call TSA right before I fly and then I get a free TSA pass. They say: you can go through body scanner. I said – so you are telling me you know better than my pump company? They do a fast retreat. I say: tell that to the young girl in Utah whose pump failed after she went through the body scanner. I get sick REAL fast without a working pump and I am not willing to risk it. I don’t understand why the pump companies do not advocate for us. They say NO. The TSA says you can. Why do we have to be put in this position?

      2 years ago Log in to Reply
    23. Glenda Schuessler

      The majority of the time I find TSA agents helpful and understanding. The encounters which are not are few and far between but are the most memorable unfortunately! I had a nasty experience at Dulles, was told that my equipment and supplies could go through the scanners without a problem; she obviously knew more about that me. She was NOT happy when I still chose a pat down and delayed me so much that I had to run the mile (maybe not that much, it seemed like a 5K when I wasn’t a runner back then). TSA pre-check has helped a lot! So has the Global Entry program.

      2 years ago Log in to Reply
    24. Mick Martin

      No, because I wasn’t diabetic the last time I went through airport security.

      2 years ago Log in to Reply
    25. Lizzi Skywalker

      When I was first diagnosed ( probably around 2001 ) I was flying to California and had a box of syringes packed in my suitcase when security checked my luggage they confiscated some of my syringes so I ran out of synergies near my vacation. I didn’t realize that I was missing syringes until I ran a short. It was a mess… And back then it was harder to buy insulin syringes over the counter.

      2 years ago Log in to Reply
    26. Jodi Greenfield

      A better question would be “when haven’t you …” – Ha! The thing that held up the line behind me 10 years or so ago was my little box of juice in my purse for low BG. My carry-on, full of syringes, insulin, pokie things – blah blah, was never questioned. My husband has yet to get over that! I got a better low BG plan. I carry “smarties” now. The little candy rolls can fit in my purse, jeans pocket, carry on – you name it. They do not get warm, spoil, or get confiscated at airports. in recent years, I get the dirtiest looks from airport security when I asked to be checked with a wand, patdown, or whatever alternative to being imaged they had available. My CGM and Insulin pump were not supposed to be subject to x-rays or any imaging equipment. If people with diabetes were in wheelchairs or attached to equipment that was visible to the public, we would maybe be given some consideration and not be treated like the annoying primadonnas they think we are. Pardon my rant – the question touched a nerve! A tip for those who are not aware of this: If you have a carry-on that is completely dedicated to medical supplies, it can become your “legal” third bag. Don’t try to shove more clothes or makeup in that bag – it is for medical needs only! .

      2 years ago Log in to Reply
    27. Kristen Clifford

      About eight months after I got my pump, I was flying back to Chicago from Columbus, OH, after visiting family. I’d flown several times already and hadn’t had any issues yet. This day, though, two very young and brand-new security guards were working. I told them I had an insulin pump, and they looked at each other with clueless expressions. They started calling all over the place just to find someone who had a clue what to do. They weren’t unfriendly or discourteous, but it took much more time than necessary.

      2 years ago Log in to Reply
    28. Steven Gill

      Just like in a lounge I go till security first. The airport security “person” got her supervisor who shrugged and practically walked me through. At a lounge with security raised my shirt showing them the pump and tubing. I really love hearing “You don’t look like a…” so I offered to buy a drink as I walk in.

      2 years ago Log in to Reply
    29. Leona Hanson

      Never been on a plane but court house is a different story

      2 years ago Log in to Reply
    30. Jennifer Tribble

      Poorly trained TSA agents are a real threat to those of us dependent upon technology they don’t understand. I have been told many times by TSA agents that the full body scanners are fine because they aren’t x-rays. While it’s true that they don’t emit x radiation, neither does an MRI and that will destroy your pump and/or CGM too. Be loud. Be insistent. Don’t let them bully you into unnecessary dangers.

      2 years ago Log in to Reply
    31. Gordon Calley

      I met a non US security agent in a diabetes prone country that didn’t know what insulin or diabetes was. After multiple questions from him I asked, “May I speak with someone more intelligent than you?” His supervisor apologized, expletives deleted, and asked the agent to leave the scene. I was allowed to board the plane. Stand up to the uninformed. Just because they have a badge the are not correct or even knowledgeable.

      2 years ago Log in to Reply
    32. Cheryl Seibert

      Only one bad experience…. Pump and CGM on me in 2013. Headed home to Ohio from Sarasota. TSA would not honor my hand scan request. I asked for a TSA supervisor who was even worse. She said… ‘go through the body imager or miss your plane’. Thank God, there was not damage to my devices. I have to say, TSA and TSA Customer Support personnel in Detroit are WONDERFUL! We signed up for TSA Precheck and that makes life easier for both TSA agents and us!

      2 years ago Log in to Reply

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