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    • 6 hours, 30 minutes ago
      Phyllis Biederman likes your comment at
      Have you ever attended a diabetes-related conference?
      TCOYD one conference and Breakthrough T1D summits. I really enjoy in person events.
    • 6 hours, 41 minutes ago
      Phyllis Biederman likes your comment at
      Have you ever attended a diabetes-related conference?
      Many because I am a retired RN, CDE
    • 8 hours, 46 minutes ago
      ChrisW likes your comment at
      If you miss a long-acting insulin injection, what are your next steps? Please share more in the comments.
      BAAAAAAD WORDS. Definitely the next step for sure.... After that more grumbling, cursing and eventually the decision whether or not taking the long acting THIS late is smart idea. If NOT, then a slightly heavier dose the next day of the short acting insulin seems real likely
    • 8 hours, 48 minutes ago
      ChrisW likes your comment at
      If you miss a long-acting insulin injection, what are your next steps? Please share more in the comments.
      OH boy, an impossible question to answer without a lot more specific details......ie name of insulin / miss an injection completely over 24 hrs or by shorter time frame / to list a few.
    • 13 hours, 26 minutes ago
      Lawrence S. likes your comment at
      Have you ever attended a diabetes-related conference?
      While living in San Diego, I got spoiled: TCOYD is based there and their annual flagship conference occurs there. I went every year. Among my favorite break away sessions we always the ones where we as patients got to share ideas on how Endo's could better respect us as patients. All of the vendors (pharma an device) were there - great oppo0rtunity to see hands-on the devices. An added benefit to being in San Diego, Dexcom and Tandem are based there - so having face-to-face interaction with their staff was awesome. And of course, great swag! Once I moved to Portland OR, I went to an ADA conference. AS a T1D person, I was very disappointed. I had gone with the hopes of meeting my Dexcom and Tandem rep. No device companies were there. The focus of the break away sessions were are oriented to T2D. Fortunately for me, there was was an Oregon Potters Guild show at the convention center at the same time. I bought some great artwork. Since I knew Steve Edelman (TCOYD founder), I got in touch to see what I needed to do to get a TCOYD conference in Portland. I needed to have an idea of the budget so I could also work on funding support. First thing, I wanted support (not $$) from the local ADA and JDRF. Contacted them, but they never returned my calls or emails. Very disappointed I couldn't pull it off.
    • 13 hours, 27 minutes ago
      Lawrence S. likes your comment at
      Have you ever attended a diabetes-related conference?
      Literal poverty prevents attending such conferences. I must survive, therefore to do so the job(s) require all that I have which remains. I would likely enjoy such conference(s), ALWAYS go for the "small" tables FIRST, their survival depends on it...
    • 14 hours, 52 minutes ago
      Lenora Ventura likes your comment at
      Have you ever attended a diabetes-related conference?
      Yes, TCOYD and maybe an ADA conference. The second conference I went to in order to check out tech. Both were in the 90s.
    • 14 hours, 56 minutes ago
      Lenora Ventura likes your comment at
      Have you ever attended a diabetes-related conference?
      While living in San Diego, I got spoiled: TCOYD is based there and their annual flagship conference occurs there. I went every year. Among my favorite break away sessions we always the ones where we as patients got to share ideas on how Endo's could better respect us as patients. All of the vendors (pharma an device) were there - great oppo0rtunity to see hands-on the devices. An added benefit to being in San Diego, Dexcom and Tandem are based there - so having face-to-face interaction with their staff was awesome. And of course, great swag! Once I moved to Portland OR, I went to an ADA conference. AS a T1D person, I was very disappointed. I had gone with the hopes of meeting my Dexcom and Tandem rep. No device companies were there. The focus of the break away sessions were are oriented to T2D. Fortunately for me, there was was an Oregon Potters Guild show at the convention center at the same time. I bought some great artwork. Since I knew Steve Edelman (TCOYD founder), I got in touch to see what I needed to do to get a TCOYD conference in Portland. I needed to have an idea of the budget so I could also work on funding support. First thing, I wanted support (not $$) from the local ADA and JDRF. Contacted them, but they never returned my calls or emails. Very disappointed I couldn't pull it off.
    • 15 hours, 6 minutes ago
      Kathy Hanavan likes your comment at
      Have you ever attended a diabetes-related conference?
      Before retiring I would go to our local teaching hospital/ADA conferences. They were held yearly and were a great way getting my CE's.
    • 1 day, 2 hours ago
      kilupx likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Other: I was not diagnosed with T1D at a young age.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      Before you chose an insulin pump, did you do a “saline trial” (a pump filled with saline instead of insulin)?
      The word "chose" is past tense. In the present tense, "no." In the past tense, the ancient of days 1996, the answer was "yes." They even hospitalized you for 2 days. I was and am very healthy and horrified the medical staff when I walked up and down 9 flights of stairs to get something. C'est la vie 🫠
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      I felt my lows when I was younger. Now after 45+ years with type 1 I feel a bit of “blurry brain function” when below 50. Thankful for CGM alerts!
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      I was diagnosed at age 29. Is that considered "young"?
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Yes 74 years ago. Yes today intensely. I am one of the small percentage of folks who, instead of experiencing hypoglycemia unawareness, feels it with even more almost acute intensity today. I guess sometime the nerves go the other direction?!? 🐦‍🔥
    • 1 day, 15 hours ago
      Trina Blake likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      The "target" is set for 100 (the lowest option with Medtronic), my alarms are 70-130. With the algorithm it's interesting with a basal that rises and falls (and the "auto-bolus") according to levels and dosing, thus my alarms (down to 2% lows this way). But... There's another setting offering different target range, I have it set 70-90 for now. Only been a few weeks so interesting to see how it goes.
    • 1 day, 15 hours ago
      Trina Blake likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      On my Omnipod, both the high and the low are set at 110, the lowest it will allow. My preferred target rang is 70 to 120.
    • 1 day, 15 hours ago
      Janis Senungetuk likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Diagnosed in 1951 when I was 6 years old. I would feel terrible when glucose went low, but did not know what was wrong.
    • 1 day, 16 hours ago
      Kristi Warmecke likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Missing answer is “I felt them early in, but not it can be hard at times to physically see a low.”
    • 1 day, 17 hours ago
      Steven Gill likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      To me... (a1C has been as low as 5.2, now near 6.0 with a lot less lows). Discuss with your doc goals, read the DCCT trials (determined "multiple injections" were more beneficial than 1 or 2 shots a day (mixed). Than up to your own confidence with insulin: -how your body reacts (after dosed I notice in 30-35 minutes) it's different for everyone -confidence with understanding the glycemic scale for food (some reach the blood stream quicker, some slower) -your health-as I grow up may not hear a low alarm as quick, nor be able to react as well -and tools... I'm confident with my CGM, alarms, understanding my insulin pump A tighter or lower target can lower a1C, wasn't worth my lows. But an a1C a little closer to non-diabetic can offer a little more prevention against the damage from diabetes. We're doing this to get as old a we can and be as healthy as we can (not necessarily a brag about numbers)---read a definition of heath is to be as far from death as possible. I think that changes...
    • 1 day, 18 hours ago
      atr likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      110, which is as low as omnipod 5 allows. If I could change it, it would be 90-100.
    • 1 day, 19 hours ago
      Phyllis Biederman likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      In 1973 when I was diagnosed the hospital policy was to force a low so you knew what they felt like. Around 2000 I became severely hypo unaware.
    • 1 day, 19 hours ago
      Phyllis Biederman likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Initially, I felt lows long before they became problematic. This diminished gradually over time. Now, after 51 years, I feel nothing until BG drops to critical levels -50. Exception is when BG drops dramatically over a very short period of time.
    • 1 day, 20 hours ago
      Edward Geary likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Yes 74 years ago. Yes today intensely. I am one of the small percentage of folks who, instead of experiencing hypoglycemia unawareness, feels it with even more almost acute intensity today. I guess sometime the nerves go the other direction?!? 🐦‍🔥
    • 2 days, 12 hours ago
      kilupx likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      My alarm range is 70 - 180.
    • 2 days, 12 hours ago
      Anita Stokar likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      The whole "target" question is a mess. I think most of us here (T1D people who are proactive etc) define "target" as where we want to be after a meal or correction bolus has done it's job. Pump mfr's (and many Endo's) define "target" like they define an A1C goal: averaging 110 over time. Lots of "discussions" (notice the quotes) with my Endo about my targets (I don't accept the "standard goal" of 70-180, I prefer aiming for 70-140). So so answer today's question, my alert ranges are 70 and 120 for high (I correct if I have no IOB, but may have food on board). My target bg (post bolus) is 80-90.
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    Over the past month, on average how often did you test for ketones?

    Home > LC Polls > Over the past month, on average how often did you test for ketones?
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    Living with T1D can be frustrating and finding silver linings can be difficult, but is there anything that you’re thankful for related to T1D? Select all the options you’re grateful for and spread the positivity in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    21 Comments

    1. Bob Durstenfeld

      I have both a Ketone blood meter and urine strips. I generally test if I am high or if I have unexplained nausea, in case of normal blood sugar range ketosis because I take an SLGT-2.

      5 years ago Log in to Reply
    2. René Wagner

      I never test

      5 years ago Log in to Reply
    3. Sean Gallagher

      I have never tested for ketones in my nearly 32 years with T1D.

      5 years ago Log in to Reply
    4. Sue Herflicker

      Never!!!

      5 years ago Log in to Reply
    5. Meghann Reese

      I rarely test for ketones and instead go by symptoms – if my sugars are high and not responding to insulin, I probably have ketones and need to go to the ER. If I’m vomiting and can’t keep anything down, I probably need to go to the ER. In these cases ketones or no ketones doesn’t change that, but no ketones might cause me to second guess myself in going.

      5 years ago Log in to Reply
    6. GLORIA MILLER

      I have never tested for ketones in my almost 64 years with T1 and I have never been hospitalized for diabetes.

      5 years ago Log in to Reply
    7. Jennifer Linnane

      I’ve never tested for ketones in almost 26 years of having T1D. It has never been recommended to me to do so, so it’s not a compliance issue.

      5 years ago Log in to Reply
    8. Miriam Eisenberg

      For my teenager, ketones may be a sign of a pump delivery issue, so he checks ketones if he has a high bs and unsure of reason (didn’t forget a food bolus, etc) or if any GI symptoms of nausea or vomiting. This has happened less since going on control iq.

      5 years ago Log in to Reply
    9. Janet Wilson

      Once. BLOOD ketones. And the only reason was because my son’s blood sugar was over 200 for a considerable length of time (which it usually ISN’T). We never use urine strips because we were told that the results are old information and that blood ketone testing is infinitely more accurate and timely. Plus, it’s an actual NUMBER rather than a guessing game of ranges.

      5 years ago Log in to Reply
    10. connie ker

      I have ketone strips that test urine but they are way past the sell by date simply because I don’t use them often. So are they still good? My Dr. told me test strips for meters don’t go bad, so are these viable for use?

      5 years ago Log in to Reply
    11. Jana Foley

      I have not tested in the last month at all. I am in better control of my diabetes thanks to my CGM so it isn’t ever a problem.

      5 years ago Log in to Reply
    12. Ahh Life

      Have the strips. Do not test, hardly ever. Despite my 7 decades of bungie-chord swings between highs and lows (sometimes 400-500), I invariably and with certainty treat any high BG. At times, it will take several hours. But I eventually get it right which is defined as “somewhere near 100.” Good luck to all who try, no matter what the method.

      5 years ago Log in to Reply
    13. Yaffa Steubinger

      Have the strips but don’t test. Haven’t felt the need to.

      5 years ago Log in to Reply
    14. George Lovelace

      Haven’t had any Symptoms to speak of in over 30 years – T1 for almost 57 yrs.

      5 years ago Log in to Reply
    15. Kristine Warmecke

      I’ve not had to test my blood for ketones in several months, knock on wood. My Control IQ is such a blessing, once I gave up my need to control all things T1D. Not an easy thing to do, I began on it in late Jan. of this year and was finally able to do so in Sept. I only check for ketones when I have unexplained highs and even an injection won’t bring it down.

      5 years ago Log in to Reply
    16. Patricia Dalrymple

      I’ve never tested for ketones. I’ve always been able to bring any spikes down within two tries. I rarely get sick. Very fortunate.

      5 years ago Log in to Reply
    17. Molly Jones

      I have tested for ketones less than ten times in twenty years and all were negative. My blood sugar sometimes stays in the 300s with no apparent cause. I will change my pump and insulin along with increasing insulin, so there must be something stressful going on inside. Who knows, maybe my brain isn’t happy during those periods with seizures.

      5 years ago Log in to Reply
    18. Amanda Barras

      I haven’t checked my ketones since my pregnancy over 12 years ago! And before that I was a kid last time I checked.

      5 years ago Log in to Reply
    19. Dr Dennis Timothy Crowe

      I have been a T1D for 51 years and have only tested for ketones when trying to move into a ketogenic diet. Seems counterintuitive but the less carbohydrates I ingest the more steady my blood sugar levels and CGM waveforms are and in a range of 90-140. Anyone else with these results?

      5 years ago Log in to Reply
    20. ANN GALLUZZO

      In 50 years I have never tested for ketones.

      5 years ago Log in to Reply
    21. Leona Hanson

      Never tested for ketones I though the doctor did that when they did the pee test

      5 years ago Log in to Reply

    Over the past month, on average how often did you test for ketones? Cancel reply

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