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    • 6 hours, 52 minutes ago
      Laurie B likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 7 hours, 14 minutes ago
      ChrisW likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      MDI and since FIASP is now covered under Medicare I wanted to try the inPen. They wanted over $600 for it so I said no thanks!
    • 8 hours, 3 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Wish cost did not have to come into play but unfortunately it does.
    • 8 hours, 3 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      It isn’t that I can’t afford devices or meds, it’s more that I feel pharma is jacking up prices to see what the market will bare without conscience. Free enterprise does not work in most of the life sustaining medical community, particularly in the US.
    • 8 hours, 4 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 8 hours, 4 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Having to wait for the warrantee period to run out before switching pump manufacturers is the biggest restraint. I had to wait to switch from Minimed 770 to T:slim X2 several months. I am now considering going back to Minimed because of the improvements in their sensor and the problems Tandem is having with infusion set manufacturing. So I have to wait a year.
    • 8 hours, 31 minutes ago
      Steve Rumble likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 8 hours, 35 minutes ago
      Kathy Hanavan likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 8 hours, 37 minutes ago
      Marty likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 9 hours, 23 minutes ago
      TEH likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 2 hours ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 1 day, 7 hours ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 2 days, 8 hours ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 19 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 2 days, 19 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 3 days, 2 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 3 days, 2 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 3 days, 2 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 3 days, 2 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 3 days, 6 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 3 days, 7 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 3 days, 8 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 3 days, 8 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 8 hours ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 3 days, 8 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
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    From which healthcare provider do you receive the majority of your diabetes care?

    Home > LC Polls > From which healthcare provider do you receive the majority of your diabetes care?
    Previous

    If you use a CGM, do you look at the Glucose Management Indicator (GMI) available in many CGM reports? If so, how accurate is your GMI compared to your A1c drawn in a lab?

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    If you have peripheral neuropathy in your feet, do you take any medications to help manage it? Please share in the comments how you manage neuropathy pain.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    32 Comments

    1. AnitaS

      A physician’s assistant who specializes in diabetes.

      3
      3 years ago Log in to Reply
      1. Gary Taylor

        Same here. There is no endocrinologist in my area.

        3 years ago Log in to Reply
    2. Jane Cerullo

      I answered NP because I usually see my Endo’s NP. This month see the doctor as his NPs keep leaving. I rally liked the NP I had for years but she left after having second baby. Saw her replacement once but he is gone now. Been going to this office for over ten years so too complicated to change now. Truthfully I take care of own diabetes. Need them for scripts mostly and labs.

      4
      3 years ago Log in to Reply
    3. Robin Melen

      I answered endocrinologist, but honestly most of my questions and concerns are answered in my every-other-month calls with my diabetes educator! She’s terrific!

      3 years ago Log in to Reply
    4. GLORIA MILLER

      I marked endo but I mainly go only because my insurance demands twice yearly visits in order to fill my prescriptions. I would not go otherwise since, after 66 years, I feel I can take care of myself regarding diabetes. When I was younger I stopped going to doctors for about ten years and I did just fine.

      2
      3 years ago Log in to Reply
    5. TEH

      My answer is really both. I see my Endo once a year and the other 3 times I see my PA. My Endo knows the physiological and the PA knows how to tweak the pump.

      1
      3 years ago Log in to Reply
    6. Merry Woolsey

      I answered Endo, however, if I don’t have one my primary care provider always “provides”.

      3 years ago Log in to Reply
    7. Steven Gill

      I’ve seen 5 endocrinologists (their specialty is the endocrine system/hormones, not necessarily diabetes) one said I was too old to need insulin and lose more weight. Another just ran tests and sent me on the way, at least the last got me on a pump/CGM. The only efficient one was at those medical trials, he taught me a good bit. For now I’ve been seeing a general practitioner although that may change.

      Am now retired and entering the VA health system, up to what’s required to follow up my care.

      2
      3 years ago Log in to Reply
    8. Liz Avery

      I answered NP as I see the nurse practitioner at my Endocrinologist practice.

      1
      3 years ago Log in to Reply
    9. Marsha Miller

      I see a Nurse Practitioner, but she specializes in Type 1 Diabetes.

      1
      3 years ago Log in to Reply
    10. Georgina Sokol

      Endo, but no longer. I have been TID FOR 58 years, and waiting for his majesty the endo for three hours in the office only to gave him cancel 2 out of 4 appointments a year is ridiculous ver. At this point, there is nothing the endo can tell me. This kast year I had a new pump that turned out to be faulty and was replaced. The whole time, the endo told me it was my imagination. I have had 5 endos in my life and they are not worth the frustration, lack of knowledge and waste of time driving an hour to get there, wait 3 hours to see him and then drive home for an hour. I am sooo disappointed in the general lack of attention and knowledge on the oart of endos concerning T1D’s. I have no faith left and will just rely on my GP for insulin prescriptions and reports to Medicare. My hA1C is consistently around 5.7. I do this myself with great control.

      1
      3 years ago Log in to Reply
    11. Lawrence S.

      I clicked “other” because I’m not sure what the person I see is. I go to the Endocrinology unit of a large hospital for quarterly visits. I always see a person who is an APRN, DNP. I have no idea what APRN means, but I believe the RN part means registered nurse. This hospital does not allow patients to select doctors or practitioners, the patient is assigned their health care providers. (This is a world renowned hospital).

      3 years ago Log in to Reply
      1. Lawrence S.

        Advanced Practice Registered Nurse.

        3 years ago Log in to Reply
      2. Lawrence S.

        A DNP, Doctor of Nursing Practice, is a higher-education degree. Those who earn a DNP have completed the highest level of training in nursing practice. A DNP-prepared nurse has a deep knowledge of evidence-based care and the ability to apply this knowledge in practice. A nurse with a DNP degree can influence healthcare policies, take on administrative roles and provide clinical education for nursing programs. .

        3 years ago Log in to Reply
    12. Lee Johnson

      I have not found a competent endo doc for the last 15 years. Current one has a terrible staff which jeopardizes her reputation!

      3 years ago Log in to Reply
    13. spencercarter1

      Although I see my endo regularly, I also use Your Diabetes Insider consultant Ben Tzeel. He is amazing and provided so much insight. I’ve had T1D for 45 years and thought I knew it all, but once I started working with Ben, I realized I didn’t.

      1
      3 years ago Log in to Reply
    14. Katrina Mundinger

      I’ve been seeing the same endo for almost 30 years. There was one visit I had with a different endo when my insurance changed but then my insurance changed back. My endo is fabulous. He knows the pumps, knows their ins and outs, and ALWAYS talks to me like I’m a person.

      2
      3 years ago Log in to Reply
    15. Eva

      I’m not sure the question really captures all the different types of “diabetes” care that some type 1’s require. In terms of how insulin is absorbed relative to what I eat and how much, my endo provides most information. In terms of exercise, how much cardio and strength training I need for my organs to stay healthy given that I take insulin, my trainer would be the provider of that information. Examining the minerals, vitamins and how my body processes the food that I need (macros, sensitivities etc…) given the exercise that I preform, my functional physician is my go to provider. Each has a role to play in my diabetes care.

      3 years ago Log in to Reply
    16. Tom Rintelmann

      I’ve seen an Endocrinologist off and on my whole adult life but now I see only my knowledgeable Primary Care Physician. I study many aspects of my T1D and only see an Endocrinologist when a specific test needs to be run. My last three A1C tests have been 5.7 to 6.1.
      Tom R

      3 years ago Log in to Reply
    17. Thomas Cline

      I use my GP because I’ve found (from experience) that endo’s seem to be useful only for those who can’t or won’t manage their diabetes well. I get better/more information from the web. If I could find a knowledgeable endo who was a Type I diabetic themselves I might consider it — I truly believe it takes one to know one with this medical problem.

      1
      3 years ago Log in to Reply
    18. Jneticdiabetic

      The majority of my care comes from my certified diabetes educator who n is bc also a nurse practitioner at my local endocrinology office. I’ve found my diabetes nurses are often a bit more tech savvy and better able to give helpful advice on pump/CGM adjustments..

      3 years ago Log in to Reply
    19. Janis Senungetuk

      Since 2006 I’ve been under the care of an endocrinologist. The first one for 10 years until insurance coverage changed. The current one for the past 9 years. For the quarterly Medicare required appointments I alternate between the endo and the diabetes educator. They’re both very knowledgeable about all of the tech devices and treat me as a whole person, not just a disease with a number.

      1
      3 years ago Log in to Reply
    20. fletchina

      I see my endo more than my CDE, but my CDE provides the most valuable care/ recommendations/ suggestions for optimizing my BG control

      3 years ago Log in to Reply
    21. Daniel Bestvater

      My diabetes care has mainly been self inflicted. I’ve been a pharmacist-CDE for about 35 years. In Canada insulin, pumps and most diabetic products are nonprescription so it is very easy to try new insulins, cgms and pumps.

      3 years ago Log in to Reply
    22. Patricia Kilwein

      My Endocrinologist actually has a team. I receive care from Dr, educators, nursed and dietitian. Very awesome care!

      3 years ago Log in to Reply
      1. Patricia Kilwein

        Nurse

        3 years ago Log in to Reply
    23. George Lovelace

      My Endo and I “just click”, I am her “Pump Poster Boy” and she Fine Tunes my Numbers, last A1c’s were 5.4 and 5.6

      1
      3 years ago Log in to Reply
    24. Wanacure

      I don’t actually see her. We have phone appts.

      3 years ago Log in to Reply
    25. Lauren Carey

      I see my assigned endocrinologists PA. He is more knowledgeable and understanding about trying to live a normal life with T1D. The one and only time I actually saw my endo, he tried to make me change everything about myself, instead of working with me. I will keep seeing the PA as long as I can.

      3 years ago Log in to Reply
    26. Liadona

      I was originally diagnosed as T2 because I was over 40 and still produced _some_ insulin. I received care from my GP then. It was, however, a misdiagnosis and I am now properly diagnosed as T1 and receiving care from an Endo.

      3 years ago Log in to Reply
    27. mbulzomi@optonline.net

      I have been using an Endo. for many years, but he has a CDE staff that I see at least 3 hour’s a year. (Medicare)

      3 years ago Log in to Reply
    28. James Cheairs

      I do not use an endo though I am in good shape. I was finally able to find an Internal Medicine MD (with a focus on diabetes) that was willing to be both my PCP and Diabetes doc. I see her annually for T1D and general health. Otherwise we communicate via My Chart. She follows my lead on how to write my prescriptions for pump and insulin supplies which is simply fabulous and has made life easier.

      3 years ago Log in to Reply

    From which healthcare provider do you receive the majority of your diabetes care? Cancel reply

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