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  • Activity
    • 6 hours, 50 minutes ago
      ConnieT1D62 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I usually bolus for breakfast right at the time I start eating. But I prefer to bolus 15 minutes before. Better results. But I always forget.
    • 8 hours, 46 minutes ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 8 hours, 48 minutes ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I am able to pr bolus for Breakfast and dinner as I am at home. I never know when I am going to eat at work so bolus is at start of meal.
    • 11 hours, 39 minutes ago
      Mick Martin likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      Question is misleading until type of insulin is understood. I said 15 because I use Fiasp insulin.
    • 11 hours, 55 minutes ago
      Kris Sykes-David likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 12 hours, 52 minutes ago
      Ernie Richmann likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 13 hours, 14 minutes ago
      Robin Melen likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      My most recent meal was breakfast and, during the work week, I am far better at bolusing ahead of time. The rest of my meals in the day though end up receiving the bolus as I start eating or part at the start and more later on (depending on what I am eating and whether I know how much I'll eat.)
    • 1 day, 8 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 2 days, 9 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 2 days, 9 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 2 days, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 2 days, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 13 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 3 days, 8 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 10 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 10 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 11 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 3 days, 11 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 12 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 13 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 3 days, 13 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 4 days ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
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    For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?

    Home > LC Polls > For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    35 Comments

    1. john36m

      I am on the Omnipod 5. No occlusions, but sometimes after 2 1/2 days the insulin effectiveness goes down. Sometimes, but not always.

      1
      4 months ago Log in to Reply
    2. TEH

      I have had about 4 bent canulas using Dexcom XC90. It is very hard to get the inserter off straight. I insert a plastic knife between the inserter and the infusion set now to pry it off.

      4 months ago Log in to Reply
      1. TEH

        Not Dexcom – Tandem

        4 months ago Log in to Reply
      2. mojoseje

        I had that problem with my Minimed inserter so I stopped using it all together and just commando it straight in by hand. I rarely insert it crookedly. I visually make sure the tape is paralleled to the injection site.

        4 months ago Log in to Reply
    3. Beckett Nelson

      Funny thing…I just took off a site that I had in for 6days because it was getting sore/itchy. When I took it out, it was bent in half and left a huge divot on my stomach. Sugars were rock solid, but not really sure how

      4 months ago Log in to Reply
    4. Barbara Bubar

      I hesitate to bring this up but I am quite sure this happens more than people realize. I use a tubed pump and small amounts of total daily insulin and have checked the tubing for YEARS for bubbles. YES, they are difficult to “notice” unless you have a good light behind the clear tubing because the insulin is also colorless. I detach and check the tubing in the morning and before bedtime if not before the evening meal…I’m talking about significant bubbles—-8-10-or12 inches in length can appear and you would NOT notice them unless you were looking. I wonder how many people wonder why their blood sugar is occasionally high and it’s being caused by a significant bubble…NO, not the champagne sized version that’s often mentioned to “ignore.” The pump company I deal with tried to get me to switch to injections instead but I am an EXPERT with the bubble situation. Also, comments over the years that I am probably not filling the reservoir correctly, etc….just plain silly. I am NOT new at this…LOL!!!

      2
      4 months ago Log in to Reply
      1. mojoseje

        Holy cow! 8 to 10” bubbles? There is definitely something wrong if that is happening to you. I occasionally get 1/4” inch 10” is excessive. Have you gone in and shown your pump instructor how you’re doing it so that they can help you figure out the problem?

        2
        4 months ago Log in to Reply
      2. Barbara Bubar

        This is exactly what I mean…I get “silly” comments –UNLESS you can tell me that you have frequently inspected the tubing in your pump, I have to respond that you do not understand what you are suggesting. Of COURSE it is excessive in bubble size and that’s what I’m saying. Why do you think I have heard from “my” company about changing to injections? This is not a “pump instructor person can help” issue. I am simply pointing out that IF you never check the tubing, you don’t know how often it “might” be happening.

        4 months ago Log in to Reply
    5. Kathleen Juzenas

      I have had occasions when insulin seems to be ineffective and I have to either increase my dosage by A LOT or change the infusion set. I don’t know how to identify an occlusion as the problem.

      4 months ago Log in to Reply
    6. Lawrence S.

      Years ago, I had many problems with bent cannulas and occlusions. I use the Tandem Vari Soft cannulas. I found that by switching from the 17mm syringe, to the 13 mm syringe, my bent cannula issues went away. I had occlusions more frequently years ago, and found that when I stopped using over-used sites, and switching my sites more frequently, that the occlusions almost completely stopped. I also found that I cannot insert my cannulas over my rib cage area.
      I do not have issues with bubbles in my tubing. I think it is because I make sure that I remove the air from my reservoirs before put the insulin into them (Tandem X2 pump).

      4 months ago Log in to Reply
    7. Henry Renn

      Tried to get use to tru-steel. Painful for 3 days everytime. After 4th attempt quit trying.

      1
      4 months ago Log in to Reply
    8. Jeanne McMillan-Olson

      I have had more incidents of occlusion with the Tandem x2 pump. Rarely had any problems with my older Medtronic Revel pump.

      2
      4 months ago Log in to Reply
    9. Mig Vascos

      I have absorption problems frequently.
      I use a tandem slim 2x and the thing to do to avoid the bubbles is to go thru the two steps to get the air out, first of the empty cartridge and then just before you’re ready to shoot the insulin into the cartridge. It more bothersome but it avoids the chances of getting bubbles.
      Tha absorption problem is a matter of luck. I recently changed from my abdomen to the upper front thigh but is difficult to find the exact right place. Every time I don’t reach the 80% in range is because of faulty absorption and not because I’m eating wrong. It’s pretty frustrating. All I can do is use another infusion set and find a new place since the cartridge is still full of insulin.
      That problem creates the additional problem of having more cartridge sets than infusion sets and I cannot get the vendor to send me 4 boxes of infusion sets and just 2 boxes of cartridges and my doctor says they don’t allow her to write and uneven prescription. Very frustrating!!!

      1
      4 months ago Log in to Reply
      1. Trina Blake

        One of the benefits of using the TruSteel sets is that if it is a n absorption site issue (or the rare time the set comes off) I can just pop it in a new place, and tape. I remember that my set got tugged off (again very rare) and I was at a hardware store. I decided to pick up a roll of blue painter’s tape that was near the register, popped the site in, taped over and didn’t lose my place in line.

        2
        4 months ago Log in to Reply
      2. Cheryl Weaver

        It’s just weird how insurances can dictate what we can have to control this diabetes beast. Medicare is very strict. For one thing, I can’t change my site every 2 days. It has to be every three days. One really nice thing though, if I have a problem with the catheters I can call Tandem, I can call Tandem, and they will send me a replacement. The same holds true with Dexcom. They’re really nice to work with.

        4 months ago Log in to Reply
    10. Mick Martin

      I have to change my infusion sets every 2-3 days as they become occluded. I can generally tell when it’s coming to the time when I need to change my infusion site, even though I have my pump set to alarm every 2 days informing me that I need to change my infusion set, as I begin to notice blood glucose levels higher than what I’m normally getting.

      4 months ago Log in to Reply
    11. Janice Bohn

      Once I started using Verisoft cannulas it has not been a problem.

      4 months ago Log in to Reply
    12. beth nelson

      My pump has alerted me to occlusions, but I’m not sure if it actully has had one as it resolved quickly.

      4 months ago Log in to Reply
    13. Ehamilton0722

      Only because i use tandem’s tru steel infusion sets. Honestly the best decision i ever made.

      1
      4 months ago Log in to Reply
    14. Edward Geary

      No problems since switching to TruSteel.

      4 months ago Log in to Reply
      1. Cheryl Weaver

        I tried Tru Steel, and they make me bleed, so I have to stick with the AutoSofts.

        1
        4 months ago Log in to Reply
    15. Cheryl Weaver

      I have to be so careful where I place my cannula because I’ve had Type 1 diabetes for 64 years, and I have some hardened lumps under my skin. Also, I think the needle to my infusion set is kind of wimpy, in that it bends too easily.

      4 months ago Log in to Reply
    16. Becky Hertz

      No more bent cannula with TruSteel!

      4 months ago Log in to Reply
    17. George Lovelace

      I use the Varisoft on a Tandem w/CIQ and usually change after 2 days but I can sometimes get 4 days/ BTW Best A1c was 5.4

      4 months ago Log in to Reply
    18. Jennifer Edmiston

      In the past 3 months, no issues.
      With my prior system I did. One episode gave me the gift of DKA and 4 days in the ICU…all because the occlusion alarm failed. The pump manufacturer has a default of 5 units to consider the pump defective…it alarmed at 4.9 when tested. My average daily units at the time was 30. The manufacturer didn’t see a problem. 😡

      4 months ago Log in to Reply
    19. Antsy

      In the last 4-5 months, I’ve been lucky. But usually, it tends to happen a few times per year. Luckily, the CGM helps catch them.

      4 months ago Log in to Reply
    20. Ernie Richmann

      How do I tell if I have a bent cannula? If I have
      an unexplained high, it could be a bad site, pump failure, bad insulin, broken line.

      4 months ago Log in to Reply
    21. Sherrie Johnson

      In the last five months I’ve been new to tandem I had to infusion sets that bent. I re-watched the insertion video and realized I was pulling up too hard on the tape and getting the needle out of alignment are getting it off-center somehow. I am careful now have not had a problem tandem did replace my two sets

      4 months ago Log in to Reply
    22. Maureen Helinski

      Yes, but it was my body problem. The insulin wasn’t going in and I changed the site placement. Then it worked. Some little bump formed on my stomach and the insulin didn’t go through that.

      4 months ago Log in to Reply
    23. Donna Condi

      Yes I’ve had two in the last two weeks.

      4 months ago Log in to Reply
    24. Nevin Bowman

      I no longer use a bendable cannula.

      4 months ago Log in to Reply
    25. KarenM6

      I had a recent issue that might have been caused by a bent trusteel and/or occluded insulin.
      When I took the site out the needle that was supposed to be 90 degrees was bent maybe 20 degrees (to maybe 30 degrees max) off of what it should have been. But, that site had 3 or so different issues that could have been one or two different issues within each issue.
      I decided not to bend my mind around trying to figure out if it was one or two issues or six…
      That one was just: “It just needs to change.” LOL!

      4 months ago Log in to Reply
    26. Elizabeth T.

      I answered yes , but I’m glad to say the first vent one in 4 or 5 years!

      1
      4 months ago Log in to Reply
      1. Elizabeth T.

        First one

        4 months ago Log in to Reply
    27. Randy Campbell

      The Omnipod 5 seems to have some issues. When the insulin from the pod doesn’t work, I switch to injections. I was almost to the point of stopping with the Omnipod until I started adding injections.

      4 months ago Log in to Reply

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