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    • 1 hour, 11 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 hour, 11 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 hour, 12 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 hour, 54 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 3 hours, 17 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 14 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 20 hours, 37 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 20 hours, 40 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 20 hours, 41 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 20 hours, 41 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 20 hours, 49 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 42 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 22 hours, 42 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 22 hours, 45 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 4 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 5 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 6 hours ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 6 hours ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
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    For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?

    Home > LC Polls > For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    35 Comments

    1. john36m

      I am on the Omnipod 5. No occlusions, but sometimes after 2 1/2 days the insulin effectiveness goes down. Sometimes, but not always.

      1
      3 years ago Log in to Reply
    2. TEH

      I have had about 4 bent canulas using Dexcom XC90. It is very hard to get the inserter off straight. I insert a plastic knife between the inserter and the infusion set now to pry it off.

      3 years ago Log in to Reply
      1. TEH

        Not Dexcom – Tandem

        3 years ago Log in to Reply
      2. mojoseje

        I had that problem with my Minimed inserter so I stopped using it all together and just commando it straight in by hand. I rarely insert it crookedly. I visually make sure the tape is paralleled to the injection site.

        3 years ago Log in to Reply
    3. Beckett Nelson

      Funny thing…I just took off a site that I had in for 6days because it was getting sore/itchy. When I took it out, it was bent in half and left a huge divot on my stomach. Sugars were rock solid, but not really sure how

      3 years ago Log in to Reply
    4. Barbara Bubar

      I hesitate to bring this up but I am quite sure this happens more than people realize. I use a tubed pump and small amounts of total daily insulin and have checked the tubing for YEARS for bubbles. YES, they are difficult to “notice” unless you have a good light behind the clear tubing because the insulin is also colorless. I detach and check the tubing in the morning and before bedtime if not before the evening meal…I’m talking about significant bubbles—-8-10-or12 inches in length can appear and you would NOT notice them unless you were looking. I wonder how many people wonder why their blood sugar is occasionally high and it’s being caused by a significant bubble…NO, not the champagne sized version that’s often mentioned to “ignore.” The pump company I deal with tried to get me to switch to injections instead but I am an EXPERT with the bubble situation. Also, comments over the years that I am probably not filling the reservoir correctly, etc….just plain silly. I am NOT new at this…LOL!!!

      2
      3 years ago Log in to Reply
      1. mojoseje

        Holy cow! 8 to 10” bubbles? There is definitely something wrong if that is happening to you. I occasionally get 1/4” inch 10” is excessive. Have you gone in and shown your pump instructor how you’re doing it so that they can help you figure out the problem?

        2
        3 years ago Log in to Reply
      2. Barbara Bubar

        This is exactly what I mean…I get “silly” comments –UNLESS you can tell me that you have frequently inspected the tubing in your pump, I have to respond that you do not understand what you are suggesting. Of COURSE it is excessive in bubble size and that’s what I’m saying. Why do you think I have heard from “my” company about changing to injections? This is not a “pump instructor person can help” issue. I am simply pointing out that IF you never check the tubing, you don’t know how often it “might” be happening.

        3 years ago Log in to Reply
    5. Kathleen Juzenas

      I have had occasions when insulin seems to be ineffective and I have to either increase my dosage by A LOT or change the infusion set. I don’t know how to identify an occlusion as the problem.

      3 years ago Log in to Reply
    6. Lawrence S.

      Years ago, I had many problems with bent cannulas and occlusions. I use the Tandem Vari Soft cannulas. I found that by switching from the 17mm syringe, to the 13 mm syringe, my bent cannula issues went away. I had occlusions more frequently years ago, and found that when I stopped using over-used sites, and switching my sites more frequently, that the occlusions almost completely stopped. I also found that I cannot insert my cannulas over my rib cage area.
      I do not have issues with bubbles in my tubing. I think it is because I make sure that I remove the air from my reservoirs before put the insulin into them (Tandem X2 pump).

      3 years ago Log in to Reply
    7. Henry Renn

      Tried to get use to tru-steel. Painful for 3 days everytime. After 4th attempt quit trying.

      1
      3 years ago Log in to Reply
    8. Jeanne McMillan-Olson

      I have had more incidents of occlusion with the Tandem x2 pump. Rarely had any problems with my older Medtronic Revel pump.

      2
      3 years ago Log in to Reply
    9. Mig Vascos

      I have absorption problems frequently.
      I use a tandem slim 2x and the thing to do to avoid the bubbles is to go thru the two steps to get the air out, first of the empty cartridge and then just before you’re ready to shoot the insulin into the cartridge. It more bothersome but it avoids the chances of getting bubbles.
      Tha absorption problem is a matter of luck. I recently changed from my abdomen to the upper front thigh but is difficult to find the exact right place. Every time I don’t reach the 80% in range is because of faulty absorption and not because I’m eating wrong. It’s pretty frustrating. All I can do is use another infusion set and find a new place since the cartridge is still full of insulin.
      That problem creates the additional problem of having more cartridge sets than infusion sets and I cannot get the vendor to send me 4 boxes of infusion sets and just 2 boxes of cartridges and my doctor says they don’t allow her to write and uneven prescription. Very frustrating!!!

      1
      3 years ago Log in to Reply
      1. Trina Blake

        One of the benefits of using the TruSteel sets is that if it is a n absorption site issue (or the rare time the set comes off) I can just pop it in a new place, and tape. I remember that my set got tugged off (again very rare) and I was at a hardware store. I decided to pick up a roll of blue painter’s tape that was near the register, popped the site in, taped over and didn’t lose my place in line.

        2
        3 years ago Log in to Reply
      2. Cheryl Weaver

        It’s just weird how insurances can dictate what we can have to control this diabetes beast. Medicare is very strict. For one thing, I can’t change my site every 2 days. It has to be every three days. One really nice thing though, if I have a problem with the catheters I can call Tandem, I can call Tandem, and they will send me a replacement. The same holds true with Dexcom. They’re really nice to work with.

        3 years ago Log in to Reply
    10. Mick Martin

      I have to change my infusion sets every 2-3 days as they become occluded. I can generally tell when it’s coming to the time when I need to change my infusion site, even though I have my pump set to alarm every 2 days informing me that I need to change my infusion set, as I begin to notice blood glucose levels higher than what I’m normally getting.

      3 years ago Log in to Reply
    11. Janice Bohn

      Once I started using Verisoft cannulas it has not been a problem.

      3 years ago Log in to Reply
    12. beth nelson

      My pump has alerted me to occlusions, but I’m not sure if it actully has had one as it resolved quickly.

      3 years ago Log in to Reply
    13. Ehamilton0722

      Only because i use tandem’s tru steel infusion sets. Honestly the best decision i ever made.

      1
      3 years ago Log in to Reply
    14. Edward Geary

      No problems since switching to TruSteel.

      3 years ago Log in to Reply
      1. Cheryl Weaver

        I tried Tru Steel, and they make me bleed, so I have to stick with the AutoSofts.

        1
        3 years ago Log in to Reply
    15. Cheryl Weaver

      I have to be so careful where I place my cannula because I’ve had Type 1 diabetes for 64 years, and I have some hardened lumps under my skin. Also, I think the needle to my infusion set is kind of wimpy, in that it bends too easily.

      3 years ago Log in to Reply
    16. Becky Hertz

      No more bent cannula with TruSteel!

      3 years ago Log in to Reply
    17. George Lovelace

      I use the Varisoft on a Tandem w/CIQ and usually change after 2 days but I can sometimes get 4 days/ BTW Best A1c was 5.4

      3 years ago Log in to Reply
    18. Jennifer Edmiston

      In the past 3 months, no issues.
      With my prior system I did. One episode gave me the gift of DKA and 4 days in the ICU…all because the occlusion alarm failed. The pump manufacturer has a default of 5 units to consider the pump defective…it alarmed at 4.9 when tested. My average daily units at the time was 30. The manufacturer didn’t see a problem. 😡

      3 years ago Log in to Reply
    19. Antsy

      In the last 4-5 months, I’ve been lucky. But usually, it tends to happen a few times per year. Luckily, the CGM helps catch them.

      3 years ago Log in to Reply
    20. Ernie Richmann

      How do I tell if I have a bent cannula? If I have
      an unexplained high, it could be a bad site, pump failure, bad insulin, broken line.

      3 years ago Log in to Reply
    21. Sherrie Johnson

      In the last five months I’ve been new to tandem I had to infusion sets that bent. I re-watched the insertion video and realized I was pulling up too hard on the tape and getting the needle out of alignment are getting it off-center somehow. I am careful now have not had a problem tandem did replace my two sets

      3 years ago Log in to Reply
    22. Maureen Helinski

      Yes, but it was my body problem. The insulin wasn’t going in and I changed the site placement. Then it worked. Some little bump formed on my stomach and the insulin didn’t go through that.

      3 years ago Log in to Reply
    23. Donna Condi

      Yes I’ve had two in the last two weeks.

      3 years ago Log in to Reply
    24. Nevin Bowman

      I no longer use a bendable cannula.

      3 years ago Log in to Reply
    25. KarenM6

      I had a recent issue that might have been caused by a bent trusteel and/or occluded insulin.
      When I took the site out the needle that was supposed to be 90 degrees was bent maybe 20 degrees (to maybe 30 degrees max) off of what it should have been. But, that site had 3 or so different issues that could have been one or two different issues within each issue.
      I decided not to bend my mind around trying to figure out if it was one or two issues or six…
      That one was just: “It just needs to change.” LOL!

      3 years ago Log in to Reply
    26. Elizabeth T.

      I answered yes , but I’m glad to say the first vent one in 4 or 5 years!

      1
      3 years ago Log in to Reply
      1. Elizabeth T.

        First one

        3 years ago Log in to Reply
    27. Randy Campbell

      The Omnipod 5 seems to have some issues. When the insulin from the pod doesn’t work, I switch to injections. I was almost to the point of stopping with the Omnipod until I started adding injections.

      3 years ago Log in to Reply

    For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion? Cancel reply

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