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    • 2 hours, 44 minutes ago
      ChrisW likes your comment at
      If your insulin pump stopped working, how prepared do you feel to manage injections, including having supplies on hand and understanding dosing?
      Since I started this journey long long ago when there were no pumps, CGMs, I have always kept long acting insulin and test strips on hand so I can use those when needed. Sometimes I have to go old school because of medical tests, so my feeling is to always be prepared.
    • 8 hours, 35 minutes ago
      Laurie B likes your comment at
      If your insulin pump stopped working, how prepared do you feel to manage injections, including having supplies on hand and understanding dosing?
      Since I started this journey long long ago when there were no pumps, CGMs, I have always kept long acting insulin and test strips on hand so I can use those when needed. Sometimes I have to go old school because of medical tests, so my feeling is to always be prepared.
    • 11 hours, 14 minutes ago
      lis be likes your comment at
      If your insulin pump stopped working, how prepared do you feel to manage injections, including having supplies on hand and understanding dosing?
      I say somewhat, because I don't have a basal insulin. But pharmacy isn't far, and prescription is on file.
    • 16 hours, 53 minutes ago
      Lawrence S. likes your comment at
      If your insulin pump stopped working, how prepared do you feel to manage injections, including having supplies on hand and understanding dosing?
      Since I started this journey long long ago when there were no pumps, CGMs, I have always kept long acting insulin and test strips on hand so I can use those when needed. Sometimes I have to go old school because of medical tests, so my feeling is to always be prepared.
    • 17 hours, 42 minutes ago
      atr likes your comment at
      If your insulin pump stopped working, how prepared do you feel to manage injections, including having supplies on hand and understanding dosing?
      I answered not at all perpared! I have novolog and syringes on hand but no lantus. However, I use Omnipod 5 pods, which come in boxes of 5 pods, so I always have some on hand. They must be replace every 3 days anyway so if one fails I simply replace it. That has happened twice and when I contacted Insulet they provided a replacement pod both times.
    • 18 hours, 3 minutes ago
      Kathy Hanavan likes your comment at
      If your insulin pump stopped working, how prepared do you feel to manage injections, including having supplies on hand and understanding dosing?
      Was on injections for yrs before a pump so no problem for me
    • 2 days, 14 hours ago
      KarenM6 likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      The question is poorly worded. If I am doing those things I run my blood sugar higher if not I don’t. A better question might be how often do I do those things. Since I do them often I run high often on purpose. I cannot be sub 100 and do them.
    • 2 days, 14 hours ago
      KarenM6 likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      Exercise affects me profoundly at an older age (and has the physics of momentum and driving at ANY age!). Answer: often/
    • 2 days, 15 hours ago
      Richard likes your comment at
      How often do you exercise? Share more in the comments about your exercise routine.
      I have to try my best to move my Leg's for at least 30 minutes a day. If not something around that.
    • 2 days, 15 hours ago
      Richard likes your comment at
      How often do you exercise? Share more in the comments about your exercise routine.
      I exercise daily! I ski, bicycle, walk/jog, and workout at the gym. I currently have a rotator cuff injury so I limit my trips to the gym.
    • 2 days, 17 hours ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      During Ramadhan I keep it slightly elevated so that I don’t have to break the 12 hour fast.
    • 2 days, 17 hours ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      when I am traveling, I will let it run a little higher because I don't know what I'll be doing at any given moment.
    • 2 days, 17 hours ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      The question is poorly worded. If I am doing those things I run my blood sugar higher if not I don’t. A better question might be how often do I do those things. Since I do them often I run high often on purpose. I cannot be sub 100 and do them.
    • 2 days, 17 hours ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 2 days, 17 hours ago
      Lawrence S. likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      Exercise affects me profoundly at an older age (and has the physics of momentum and driving at ANY age!). Answer: often/
    • 3 days, 13 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Moderately. My doctor and pharmacy are awesome, my insurance and durable medical equipment supplier, not so much. The excessive red tape of paper to get DME supplies shipped is almost always a nightmare!
    • 3 days, 13 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Run, don’t walk from Edgepark! Read my response to Nevin Bowman above! (Hint: the company I was referring to in that post was Edgepark)
    • 3 days, 13 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I once had a supplier withhold old pump supplies while refusing to ship the order for a new pump and I was on a 3-way call with insurance and got to listen to DME lie directly to Insurance about it and then I had the pleasure of interjecting and getting to call them a liar! I would have been more vindicated if it actually accomplished anything, but after I finally got my shipment I fired that DME and never looked back. The red tape that insurance insists on for DME is excessive for chronically ill patients!
    • 3 days, 13 hours ago
      kristina blake likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 3 days, 14 hours ago
      Patricia Dalrymple likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 3 days, 16 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 3 days, 16 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Yes, for me never weighing or measuring but actively using the Calorie King book and app for several years I have most things memorized or I can make a decent assessment.
    • 3 days, 16 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 3 days, 16 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 3 days, 16 hours ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
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    For how many years have you been going to the health care practice where you currently receive your T1D care?

    Home > LC Polls > For how many years have you been going to the health care practice where you currently receive your T1D care?
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    If you were diagnosed with T1D as an adult, for how long did you notice symptoms before getting a T1D diagnosis?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    31 Comments

    1. LizB

      I was forced by insurance to switch in 2021. The hospital where my previous team was went out of network. In 2022 they went back in network but my old endo retired. I didn’t feel like switching back because it would be a new doctor all over.

      3 years ago Log in to Reply
    2. Molly Jones

      I have been going to a University hospital for neurological care for about thirty years and decided to move all of my doctors to this location about fifteen years ago.

      3 years ago Log in to Reply
      1. Teresa Schnoor

        I’m also constantly trying to get all of my doctors in one place. I’d get that done and then my Endo would move. 🙄

        3 years ago Log in to Reply
    3. Mary Ann Sayers

      My mom recognized something wasn’t right because I was constantly thirsty. I was only 7years old when DX.

      3
      3 years ago Log in to Reply
      1. mojoseje

        Me too!

        3 years ago Log in to Reply
    4. Mick Martin

      I’ve been using the same hospital, which is local to myself, for the past 43 years, ever since I was diagnosed. I will add, however, that it’s not the same endocrinologist/diabetes consultant/Diabetes Specialist Nurse(s)/dietitians, etc. as many have changed over the years.

      1
      3 years ago Log in to Reply
    5. Teresa Schnoor

      Not the same clinic but I’ve followed my endocrinologist across four different practices over the years.

      3 years ago Log in to Reply
    6. Mark Schweim

      First 5 years post diagnosis, from 1991 to almost the end of 1996. Then I lived in southern Alabama for 22 years, and am now back in my home town and going to the same practice I was seeing 22 years before I returned to this area almost 5 years ago.

      Same practice for 10+ years, with a 22 year gap between years 5 and 6.

      3 years ago Log in to Reply
    7. Annie Wall

      Too bad you didn’t ask this one year ago. I would have answered 21-30 years with same practice but my benevolent endo retired so I moved to a new practice. So far so good I’m happy to say.

      3 years ago Log in to Reply
    8. Jane Cerullo

      I always say it took me six years to train my Endo. He listens to my opinions and we discuss treatment options. I try to keep up with latest diabetes news.

      3 years ago Log in to Reply
    9. Tina Roberts

      3-5 but she schedules 6 months out so I’m looking again!!

      1
      3 years ago Log in to Reply
    10. Bob Durstenfeld

      I said more than 30 years and I dread the
      Day he decides to retire. He has been both progressive and comprehensive in his treatment. I have visited other Endo’s in the area and I would not like to be their patient.

      1
      3 years ago Log in to Reply
    11. Abigail Elias

      I started with this practice in 1996, but went to a different practice for about 4 years when my endocrinologist left. However, when my new endocrinologist left her practice to join the practice I’d been with, I came back.

      3 years ago Log in to Reply
    12. mbulzomi@optonline.net

      About 5 years, my original Endo. retired.

      3 years ago Log in to Reply
    13. Karen DeVeaux

      Less than a year because I moved last August.

      3 years ago Log in to Reply
    14. Amanda Barras

      I finally stopped moving every 2 -3 years and now have been with the same provider 6 years.

      3 years ago Log in to Reply
    15. KIMBERELY SMITH

      Long time

      1
      3 years ago Log in to Reply
    16. Vicki Andersen

      Before retiring I went to Dr. Cathcart for more than 23 years. After retiring we moved to another area of the country. Now I’ve gone to the same provider for over a year.

      3 years ago Log in to Reply
    17. Kristine Warmecke

      Other – I began seeing my current endocrinologist in the summer of 1989. Due to positions in different healthcare systems I’ve been forced to see other’s because of the health insurance through them. This would have been okay if I would have been able to find ONE of all the other’s I’ve seen, that would have been a team member and not my way or the highway. So I’ve always gone back to that one from 1989; when I was made to move to an adult endocrinologist from my pediatric team.

      3 years ago Log in to Reply
    18. lis be

      I may have to switch again.. Due to the high number of people that are now seeing endocrinologists to try out a Libre or Dexcom as a non-diabetics, but just out of curiosity to achieve better fitness.. , and also the number of people trying to get an Ozempic/ Wegovy prescription for weight loss, My Endo cannot see me for 8 months. (Though I need to go every 3 to qualify for durable medical supplies).
      My cardiologist said the same, he has had a surge of people that don’t actually need to see him, but they are concerned because their smart watches show something that makes them (perhaps irrationally) nervous.

      3 years ago Log in to Reply
    19. Gary Rind

      have been with the same endo since diagnosis 20 years ago. he’s frustrating me some lately, like not approving Afrezza. we’ll see what happens.

      3 years ago Log in to Reply
    20. KarenM6

      I’ve been going to my health care practice for diabetes issues for 27 years! They treat me well and as a person and I truly appreciate their help.

      3 years ago Log in to Reply
    21. Georgina Sokol

      Moved to Florida four years ago and can’t find a knowledgeable doctor anywhere. Had one ask me what interstitial fluid was and no ability to read pumps. This state is very scarey and sad.

      3 years ago Log in to Reply
      1. Eve Rabbiner

        I’m in Florida too and have found some great docs. Guess it depends where you are in this big state.

        3 years ago Log in to Reply
    22. Eve Rabbiner

      Same doc, though he’s been part of five different practices. Finally found a good fit. Happy for him and for me.

      3 years ago Log in to Reply
    23. sweetcharlie

      I currently do not see any one for T1D care….

      3 years ago Log in to Reply
    24. Zziwa Ashraf

      for 16years

      3 years ago Log in to Reply
    25. Wanacure

      I was with Group Health a local non-profit HMO that emphasized preventative health care, like the Cleveland Clinic and Mayo. By a close vote members decided to merge with Kaiser Permanente, a for-profit that does not provide original Medicare, only Medicare Advantage plans. Sadly I’ve learned that for-profit so-called “advantage” plans charge the Social Security Administration exorbitant rates way above Original Medicare. Every year I think of opting for Original Medicare, but this would mean new doctors, new pharmacy, new specialists. I’m in a quandary. Fortunately there are at least 2 other choices nearby offering as good or better care that do accept Original Medicare.

      3 years ago Log in to Reply
    26. Melissa Childers

      I have been with the same provider for 20-25 years, however, my procider has changed practices.

      3 years ago Log in to Reply
    27. ChrisW

      The minute my insurance plan adds a 3rd endo to my “in network” list I’m changing.

      3 years ago Log in to Reply
    28. Jeff Balbirnie

      Endo suddenly retired. Primary literally left town, without warning. The “white coats” I now see are literally brand new, but the practice(s) I attended for a while. In TRUTH I have absolutely ZERO usage for any medical doctor at this point, they have nothing of value to offer. I do not consider being blackmailed 4 times a year for a mandatory medications check a medication I have taken for decades and decades A-N-Y value, merely a forced business transaction of which I am NOT a “voluntary” participant. The nurse practitioner at the endo, I would gladly walk through fire for… her slightest whisper is my immediate command

      3 years ago Log in to Reply

    For how many years have you been going to the health care practice where you currently receive your T1D care? Cancel reply

    You must be logged in to post a comment.




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