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    • 5 hours, 38 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 7 hours, 5 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 7 hours, 5 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 7 hours, 5 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 9 hours, 18 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 9 hours, 18 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 9 hours, 19 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 10 hours, 1 minute ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 11 hours, 24 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 13 hours, 21 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 4 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 4 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 4 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 4 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 4 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 6 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 6 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 6 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 10 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 12 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 13 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    For how many years have you been going to the health care practice where you currently receive your T1D care?

    Home > LC Polls > For how many years have you been going to the health care practice where you currently receive your T1D care?
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    If you were diagnosed with T1D as an adult, for how long did you notice symptoms before getting a T1D diagnosis?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    31 Comments

    1. LizB

      I was forced by insurance to switch in 2021. The hospital where my previous team was went out of network. In 2022 they went back in network but my old endo retired. I didn’t feel like switching back because it would be a new doctor all over.

      2 years ago Log in to Reply
    2. Molly Jones

      I have been going to a University hospital for neurological care for about thirty years and decided to move all of my doctors to this location about fifteen years ago.

      2 years ago Log in to Reply
      1. Teresa Schnoor

        I’m also constantly trying to get all of my doctors in one place. I’d get that done and then my Endo would move. 🙄

        2 years ago Log in to Reply
    3. Mary Ann Sayers

      My mom recognized something wasn’t right because I was constantly thirsty. I was only 7years old when DX.

      3
      2 years ago Log in to Reply
      1. mojoseje

        Me too!

        2 years ago Log in to Reply
    4. Mick Martin

      I’ve been using the same hospital, which is local to myself, for the past 43 years, ever since I was diagnosed. I will add, however, that it’s not the same endocrinologist/diabetes consultant/Diabetes Specialist Nurse(s)/dietitians, etc. as many have changed over the years.

      1
      2 years ago Log in to Reply
    5. Teresa Schnoor

      Not the same clinic but I’ve followed my endocrinologist across four different practices over the years.

      2 years ago Log in to Reply
    6. Mark Schweim

      First 5 years post diagnosis, from 1991 to almost the end of 1996. Then I lived in southern Alabama for 22 years, and am now back in my home town and going to the same practice I was seeing 22 years before I returned to this area almost 5 years ago.

      Same practice for 10+ years, with a 22 year gap between years 5 and 6.

      2 years ago Log in to Reply
    7. Annie Wall

      Too bad you didn’t ask this one year ago. I would have answered 21-30 years with same practice but my benevolent endo retired so I moved to a new practice. So far so good I’m happy to say.

      2 years ago Log in to Reply
    8. Jane Cerullo

      I always say it took me six years to train my Endo. He listens to my opinions and we discuss treatment options. I try to keep up with latest diabetes news.

      2 years ago Log in to Reply
    9. Tina Roberts

      3-5 but she schedules 6 months out so I’m looking again!!

      1
      2 years ago Log in to Reply
    10. Bob Durstenfeld

      I said more than 30 years and I dread the
      Day he decides to retire. He has been both progressive and comprehensive in his treatment. I have visited other Endo’s in the area and I would not like to be their patient.

      1
      2 years ago Log in to Reply
    11. Abigail Elias

      I started with this practice in 1996, but went to a different practice for about 4 years when my endocrinologist left. However, when my new endocrinologist left her practice to join the practice I’d been with, I came back.

      2 years ago Log in to Reply
    12. mbulzomi@optonline.net

      About 5 years, my original Endo. retired.

      2 years ago Log in to Reply
    13. Karen DeVeaux

      Less than a year because I moved last August.

      2 years ago Log in to Reply
    14. Amanda Barras

      I finally stopped moving every 2 -3 years and now have been with the same provider 6 years.

      2 years ago Log in to Reply
    15. KIMBERELY SMITH

      Long time

      1
      2 years ago Log in to Reply
    16. Vicki Andersen

      Before retiring I went to Dr. Cathcart for more than 23 years. After retiring we moved to another area of the country. Now I’ve gone to the same provider for over a year.

      2 years ago Log in to Reply
    17. Kristine Warmecke

      Other – I began seeing my current endocrinologist in the summer of 1989. Due to positions in different healthcare systems I’ve been forced to see other’s because of the health insurance through them. This would have been okay if I would have been able to find ONE of all the other’s I’ve seen, that would have been a team member and not my way or the highway. So I’ve always gone back to that one from 1989; when I was made to move to an adult endocrinologist from my pediatric team.

      2 years ago Log in to Reply
    18. lis be

      I may have to switch again.. Due to the high number of people that are now seeing endocrinologists to try out a Libre or Dexcom as a non-diabetics, but just out of curiosity to achieve better fitness.. , and also the number of people trying to get an Ozempic/ Wegovy prescription for weight loss, My Endo cannot see me for 8 months. (Though I need to go every 3 to qualify for durable medical supplies).
      My cardiologist said the same, he has had a surge of people that don’t actually need to see him, but they are concerned because their smart watches show something that makes them (perhaps irrationally) nervous.

      2 years ago Log in to Reply
    19. Gary Rind

      have been with the same endo since diagnosis 20 years ago. he’s frustrating me some lately, like not approving Afrezza. we’ll see what happens.

      2 years ago Log in to Reply
    20. KarenM6

      I’ve been going to my health care practice for diabetes issues for 27 years! They treat me well and as a person and I truly appreciate their help.

      2 years ago Log in to Reply
    21. Georgina Sokol

      Moved to Florida four years ago and can’t find a knowledgeable doctor anywhere. Had one ask me what interstitial fluid was and no ability to read pumps. This state is very scarey and sad.

      2 years ago Log in to Reply
      1. Eve Rabbiner

        I’m in Florida too and have found some great docs. Guess it depends where you are in this big state.

        2 years ago Log in to Reply
    22. Eve Rabbiner

      Same doc, though he’s been part of five different practices. Finally found a good fit. Happy for him and for me.

      2 years ago Log in to Reply
    23. sweetcharlie

      I currently do not see any one for T1D care….

      2 years ago Log in to Reply
    24. Zziwa Ashraf

      for 16years

      2 years ago Log in to Reply
    25. Wanacure

      I was with Group Health a local non-profit HMO that emphasized preventative health care, like the Cleveland Clinic and Mayo. By a close vote members decided to merge with Kaiser Permanente, a for-profit that does not provide original Medicare, only Medicare Advantage plans. Sadly I’ve learned that for-profit so-called “advantage” plans charge the Social Security Administration exorbitant rates way above Original Medicare. Every year I think of opting for Original Medicare, but this would mean new doctors, new pharmacy, new specialists. I’m in a quandary. Fortunately there are at least 2 other choices nearby offering as good or better care that do accept Original Medicare.

      2 years ago Log in to Reply
    26. Melissa Childers

      I have been with the same provider for 20-25 years, however, my procider has changed practices.

      2 years ago Log in to Reply
    27. ChrisW

      The minute my insurance plan adds a 3rd endo to my “in network” list I’m changing.

      2 years ago Log in to Reply
    28. Jeff Balbirnie

      Endo suddenly retired. Primary literally left town, without warning. The “white coats” I now see are literally brand new, but the practice(s) I attended for a while. In TRUTH I have absolutely ZERO usage for any medical doctor at this point, they have nothing of value to offer. I do not consider being blackmailed 4 times a year for a mandatory medications check a medication I have taken for decades and decades A-N-Y value, merely a forced business transaction of which I am NOT a “voluntary” participant. The nurse practitioner at the endo, I would gladly walk through fire for… her slightest whisper is my immediate command

      2 years ago Log in to Reply

    For how many years have you been going to the health care practice where you currently receive your T1D care? Cancel reply

    You must be logged in to post a comment.




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