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    • 1 hour, 20 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 1 hour, 21 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 1 hour, 36 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 1 hour, 37 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 3 hours, 57 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 11 hours, 6 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 11 hours, 7 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 13 hours, 3 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 13 hours, 19 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    Does your diabetes healthcare provider offer opportunities to meet with others impacted by T1D, or T1D support groups?

    Home > LC Polls > Does your diabetes healthcare provider offer opportunities to meet with others impacted by T1D, or T1D support groups?
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    32 Comments

    1. Wanacure

      I think KP offered a support group for people with diabetes which included Type ones and Type twos. Thru the UW Experimental College I offered a Type One support group in my home which was VERY rewarding. Maybe I could do that again by reserving the community room at my credit union or a Seattle Public Library community room or at University Unitarian Chirch.

      1 year ago Log in to Reply
    2. Ahh Life

      I said, “No,” thinking of actual groups named “diabetic support.” However, they do put on monthly cooking events. The food portions, while small, are quite delicious. Plus they offer occasional lectures by experts in fields like pancreas transplants. (¬‿¬)

      1 year ago Log in to Reply
    3. ConnieT1D62

      Not anymore due to COVID. The provider I see has referred women to the Diabetes Sisters PODS group that has been meeting regularly since 2010.

      During the pandemic, the PODS meetings are on Zoom, but several ladies meet up at local restaurants to have lunch together and every 3 months cook a meal together in a D sister’s home.

      1
      1 year ago Log in to Reply
    4. Annie Wall

      I answered ā€œotherā€ because I helped start a pump group that my endo sponsored by having us meet at the office with him and the nurses once a month. Pumps were really new then and we all got a lot out of it. He eventually stopped offering it at the office so I hosted it where I worked. We had guest speakers and it went on for a couple of years but slowly petered out. I miss being able to chat with other pumpers as I only have one friend nearby who has diabetes and pumps. I enjoy being on Facebook groups but my fingers do get tired of walking!

      1 year ago Log in to Reply
    5. Joan Fray

      Before Covid hit, they had monthly meetings with a speaker or company rep. After Covid hit, we all tried zooming but it didn’t work well. Lately I don’t think they have anything

      1
      1 year ago Log in to Reply
    6. Marina Kurkov

      I am quitting my endo because she handed over her job to a nurse practitioner and has never shown any interest in this patient — me. She had prescribed wrong size syringes— totally incompetent. My GP is sufficient for my diabetic care .

      1
      1 year ago Log in to Reply
    7. M Fedor

      I attended a pre-pandemic TCOYD conference where I saw other people with diabetes for the first time since I moved to California in 1997, apart from one CDE I saw for a while I was surprised by how much I appreciated the camaraderie. Since then I’ve participated in TCOYD conferences online, which are great but not quite the same.

      1
      1 year ago Log in to Reply
    8. Derek West

      I answered NO but thinking back my endo back in the 80’s did recommend a group to me and I benefited from that. Since then I have not felt the need.

      1 year ago Log in to Reply
    9. Mary Dexter

      Not my current ones. The HMO at which I was at when originally diagnosed T2 had meetings for T2s and it was at that meeting that I realized I had been misdiagnosed. I was struggling on Tab and pork rinds and they were eating smaller sundaes.
      At the next HMO they had meetings where we were supposed to help each other, while the staff held up the walls, but they (mis)used HIPAA regulations to limit the conversations and how much information we shared. Also, each of the wallholderuppers charged as if for an appointment.

      1
      1 year ago Log in to Reply
    10. Glenda Schuessler

      I don’t know. I travel 2 hours (4 roundtrip) to see my Endo. There may be groups that meet at the group practice, but it would not really be practical for me to participate – at least, not in person.

      1 year ago Log in to Reply
    11. Stephen Woodward

      I live in an area served by Adventist Healthcare and have receive no help setting up T1D meetings or supporting the needs of T1D vs T2D. I pushed at my endo the Diabetes ed center to set up or to support T1D meetings. Worse yet, the are very uninformed and unsupportive of implementing currently available. Moreover, when I asked that my endo needs access to pump data, I was tossed out of the Endo’s practice.

      1
      1 year ago Log in to Reply
    12. kflying1@yahoo.com

      To offer such advice would mean getting involved with patient care. At least here in the Portland, Oregon area the few remaining endo practices don’t get involved with the individual. (IMHO)

      1 year ago Log in to Reply
    13. Jeanne McMillan-Olson

      I also live 2 hours away from my endocrinologist. It would not be practical and I was an RD, CDE and have a good friend with Type 1 who is a nurse and also was a CDE. Don’t really need to get together with a group.

      1 year ago Log in to Reply
    14. Mary Halverson

      They didn’t “offer”, I had to ask. I attended a couple times, but felt almost like an imposter because everyone was a lot younger and I was in my mid-sixties, and only diagnosed at age 61. To be clear, they were all welcoming, but since I had had to deal with it only a few years, felt embarrassed to speak of my issues.

      1 year ago Log in to Reply
    15. Chris Albright

      My provider might offer opportunities like this, but she has never mentioned that opportunity with me.

      1 year ago Log in to Reply
    16. Clearblueskynm

      No, and with all of my online communities, coupled with the time of covid, I wouldn’t expect her to. If someone asked her to help them connect, she definitely would on a very private basis.

      1 year ago Log in to Reply
    17. LizB

      As far as I know the hospital where my endo is doesn’t offer anything like this. Back in 2005 when I got my first pump, Medtronic offered local classes and I would go to those. It was nice meeting other Type 1s in person who were also pumping. The building that provided space for the classes was sold and as far as I know the classes stopped.

      There is a local Meetup group but their meetings are usually not convenient for me.

      1 year ago Log in to Reply
    18. Janis Senungetuk

      Seven years ago my Diabetes Educator spent her own time and energy to establish a monthly T1 peer support group. Her employer, my HMO, offered zero support. She was not allowed to publicize the monthly meeting or given clinic space to hold them and my endo never mentioned they were even available. I was looking for a T1 support group. The only scheduled support groups available in Madison were specifically for T2. I asked about attending one of the groups and was told I had to be referred by my physician. After two years of effort the T1 monthly meetings were no longer offered. By that time I had “discovered” online support groups, but it’s definitely NOT the same.

      1 year ago Log in to Reply
    19. Pauline M Reynolds

      I put “Don’t Know” because I’ve only had one in person visit with my new endocrinologist. Although I’ve been offered an appointment with the pump rep and diabetes educator, no one mentioned a support group. That doesn’t mean they don’t have one.

      1 year ago Log in to Reply
    20. Pauline M Reynolds

      Looking at these comments, we need to start our own DA (Diabetics Anonymous) meetings!!

      4
      1 year ago Log in to Reply
    21. Sahran Holiday

      Don’t know, don’t care. If I run into someone who needs assistance I offer it. If I need any I know how and where to get it. It’s not this site.

      1
      1 year ago Log in to Reply
    22. Christina Trudo

      At one time they had a very rare gathering for diabetics, offered by the health system not the office itself. I don’t think they have had any such gatherings for a long time- years, maybe a long time pre-covid even.

      1 year ago Log in to Reply
    23. Kristine Warmecke

      She used to offer a pump support group & a Diabetes support group. They have since been dismissed. I am in a local group for Type 1 women, age 18 and above. We’ve been having Zoom meetings for over a year now.

      1 year ago Log in to Reply
    24. Dave Akers

      The results of this question are very surprising. And feels extremely disappointing to learn. T1D is a major Lifestyle disease state requiring patients to adjust all the time. It helps to speak with others who truly understand and can provide real solutions outside of an office setting.

      1 year ago Log in to Reply
    25. Tracy Jean

      I belong to a wonderful support group. It is so nice to be with people who understand life with Diabetes.

      1 year ago Log in to Reply
    26. StPetie

      I chose other because my endo himself doesn’t. But he medically oversees the hospital’s diabetes center which does.

      1 year ago Log in to Reply
    27. Molly Jones

      I don’t know, I have never asked. I attend a monthly support group for epilepsy that I had to ask my neurologist about a few decades ago. It’s possible there are T1D groups available.

      1 year ago Log in to Reply
    28. brettsmith115

      Yes, they had just planned to begin this and then the pandemic hit. Hasn’t picked up again.

      1 year ago Log in to Reply
    29. Rex Franklin

      I have asked, there are no support groups for adults with T1D available.

      1 year ago Log in to Reply
    30. lis be

      would love if they did!

      1 year ago Log in to Reply
    31. Cheryl Seibert

      No, not at the present time. Over the past 30 years, the CDE at the endo’s office held a quarterly diabetes support group meeting but those stopped after the CDE retired.

      1 year ago Log in to Reply
    32. ermcmullin

      I think this is an under-utilized support and educational opportunity. Some of the best “one off” experiences have been organized by pump vendors or diabetes tech vendors. Why is this so overlooked? I would pay a small fee or club fee if that’s what’s needed.

      1 year ago Log in to Reply

    Does your diabetes healthcare provider offer opportunities to meet with others impacted by T1D, or T1D support groups? Cancel reply

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