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    • 3 hours, 34 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 3 hours, 35 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 5 hours, 31 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 5 hours, 47 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 16 hours, 58 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 20 hours, 46 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 20 hours, 49 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 31 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 21 hours, 31 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 21 hours, 33 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 21 hours, 38 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 39 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 21 hours, 40 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 41 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 21 hours, 41 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 22 hours, 17 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 22 hours, 28 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 22 hours, 40 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 22 hours, 41 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 23 hours, 56 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 1 hour ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
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    Do you experience differences in your pain tolerance when your BG levels are high?

    Home > LC Polls > Do you experience differences in your pain tolerance when your BG levels are high?
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    Sarah Howard

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    34 Comments

    1. Britni

      I answered “other” because I’m not sure. I’ve never paid attention.

      3
      1 year ago Log in to Reply
    2. Ahh Life

      In a kind of perverse non-answer to this question, when you get older your pain gets more constant and comes seems to come from every which direction, while the BG levels sometimes follow along and sometimes don’t . . . ( Ķ”ā›ā€ÆĶœŹ– Ķ”ā›)šŸ’Ø

      3
      1 year ago Log in to Reply
      1. n6jax@scinternet.net

        I [sweet charlie] agree.. I am 89 yrs old, so I hurt !!

        1 year ago Log in to Reply
    3. Joan McGinnis

      I have never noticed this if possible. I have had back pain for long time

      1 year ago Log in to Reply
    4. Tb-well

      To me it isn’t a matter of sensitivity to the pain as much as it is more frustrating and therefore more noticeable to me.

      1 year ago Log in to Reply
    5. Vicki Breckenridge

      I don’t know as I don’t really experience much pain and I’m 67. I put no.

      1 year ago Log in to Reply
    6. Sherolyn Newell

      I think when my arthritis is hurting more than usual, by BG levels tend to be a bit higher. Never noticed the other way around.

      1
      1 year ago Log in to Reply
    7. Lawrence Stearns

      I answered “No” for pain tolerance with high BG. I have never notice a difference.
      However, I have often noticed much more pain when my BG is low. Significantly more pain with hypoglycemia.

      1
      1 year ago Log in to Reply
    8. connie ker

      Never thought about it so answered OTHER. Before I was diagnosed I had a frozen shoulder and the pain was unbearable. Then when I needed more insulin I had a 2nd frozen shoulder with the other side. Both were very painful episodes signaling high blood sugars.

      1 year ago Log in to Reply
    9. kflying1@yahoo.com

      It’s not one of the things I’ve tracked, and to me it’s a chicken and egg question – is the pain greater because BG is higher or is BG higher because of the pain? I dunno.

      4
      1 year ago Log in to Reply
    10. Jneticdiabetic

      I put “other” because I have not noticed an association between pain and my BG.

      3
      1 year ago Log in to Reply
    11. Tina Roberts

      I have no idea? Never thought to notice.

      3
      1 year ago Log in to Reply
      1. Sahran Holiday

        Some of these questions are getting very dumb cause they can’t think of anything to ask.

        2
        1 year ago Log in to Reply
      2. n6jax@scinternet.net

        Yes Sahran, maybe we should ask the questions !!

        1 year ago Log in to Reply
    12. Melinda Lipe

      Never thought about it. Probably if I’m irritable because of hi or lo blood glucose, it might make a difference.

      1
      1 year ago Log in to Reply
    13. Jodi Greenfield

      I have not been paying attention to my glucose levels when in pain. I am curious now, so I will pay attention in the future!

      1 year ago Log in to Reply
    14. Becky Hertz

      I’ve never noticed, so probably no.

      2
      1 year ago Log in to Reply
    15. Carol Meares

      I don’t know the answer to this question in regards to the correlation of pain levels and my BG levels.

      1 year ago Log in to Reply
    16. Sahran Holiday

      Can see by the responses that this is not a valid question. Bllod gludcose needs to be managed and pain needs to be managed, separately. Thirst and dehydration may be related to high blood glucose, headaches can come from lows, Yes we can drink water or take a pain killer as a stop gap, doesn’t resolve the cause. Control is imprerative. T1D Exchange has to start thinking of better questions or lose subscribers.

      1
      1 year ago Log in to Reply
      1. ConnieT1D62

        The questions on T1D Exchange are meant to generate real life responses from real people who live with T1D for valid research purposes to benefit all of us. They are are not meant to give advice nor is this a social media platform site.

        5
        1 year ago Log in to Reply
      2. T1D Exchange

        Hi there! We’re working on a suggestion form for community members to suggest Questions of the Day. In the meantime, you are welcome to email question suggestions to admin@t1dexchange.org.

        All Questions of the Day are inspired by the real experiences of people with T1D because every person at T1D Exchange who writes the questions lives with T1D. We know our community includes people with a wide variety of experiences with T1D – from newly diagnosed to living with T1D 70+ years, parents of young children and seniors with T1D, and people who are thriving along with people who are struggling with T1D. Because of this, not all questions will apply to all people.

        Again, please feel free to send suggestions for Question of the Day to admin@t1dexchange.org, and stay tuned for a future suggestion form!

        5
        1 year ago Log in to Reply
    17. M C

      Unless one hurts themselves frequently, or has a chronic condition that causes pain (eg. arthritis, etc.), how in the world would a person know the answer to this question?

      1
      1 year ago Log in to Reply
      1. n6jax@scinternet.net

        I agree..

        1 year ago Log in to Reply
      2. Ahh Life

        May I suggest empirical verification at the least and a prolonged double-blind longitudinal study at the most?

        1 year ago Log in to Reply
    18. Molly Jones

      Other.
      A medication I take for epilepsy reduces pain in general, nor have I kept track of high BG and pain correlations to answer this question.

      1
      1 year ago Log in to Reply
    19. Jennifer Wilson

      Unsure

      1 year ago Log in to Reply
    20. ConnieT1D62

      No, not that I ever noticed.

      1 year ago Log in to Reply
    21. Chris Deutsch

      I have never noticed whether my sensitivity to pain is different when my blood sugar is high.

      1 year ago Log in to Reply
    22. Marina Kurkov

      Life is better, easier, less pain at the time the sugar is high — although I know it is dangerous, and do not go there deliberately.

      1
      1 year ago Log in to Reply
    23. KCR

      I really do not know because I have never paid attention to this. Usually when my BG is high I feel more anxious, for sure.

      1 year ago Log in to Reply
    24. Wanacure

      When bg levels are high I’m impervious. When bg levels are low, I’m susceptible to itchy skin, very sensitive to ambient temperatures, loss of balance. When really low I’m also impervious to pain which is dangerous.

      1
      1 year ago Log in to Reply
    25. ConnieT1D62

      I found this question to be very interesting and reading the responses I agree with Ahh Life who stated in a reply he made above:
      “May I suggest empirical verification at the least and a prolonged double-blind longitudinal study at the most?” to determine whether it is true or not.

      1 year ago Log in to Reply
    26. Lynn Smith

      From the time I was diagnosed at age 12 when my blood sugar, I am sure, was off the charts, I have had painful cramping in my calves when my blood sugar is high. Fortunately, now 54 years later, that’s not very often. But, if my blood sugar does get over 200, for whatever reason, my calves hurt. I think I have noticed my arthritic joints hurting worse during those times also.
      Just a short note about some of the negative comments about the questions discussed on this forum. I want to say thank you to whoever comes up with the questions. While some of the questions interest me and some don’t, I appreciate the effort. I think it is a good idea to allow members of the exchange to send in questions they are interested in hearing answers to, so thank you for that also.

      1
      1 year ago Log in to Reply
    27. PamK

      I’ve never noticed, or thought about this. Interesting question though! I answered N/A as I really don’t have an answer right now.

      1 year ago Log in to Reply

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