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  • Activity
    • 10 hours, 4 minutes ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 15 hours, 4 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 15 hours, 5 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 15 hours, 6 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 1 day, 11 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day, 11 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day, 12 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day, 12 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 15 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 10 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 12 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 12 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 13 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 13 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 14 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 15 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 15 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 3 days, 2 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 3 days, 2 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 3 days, 2 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 3 days, 7 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 3 days, 7 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 4 days ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 4 days ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 4 days, 7 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
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    Does proximity to your T1D health care provider impact where you choose to live?

    Home > LC Polls > Does proximity to your T1D health care provider impact where you choose to live?
    Previous

    If you have ever gone through the process of getting a prescription for a GLP-1 agonist (e.g., semaglutide, exenatide, dulaglutide, liraglutide, lixisenatide, etc.), how easy or difficult was the process of getting a prescription and obtaining the medication?

    Next

    Do you currently use any of the following insulin pumps?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    24 Comments

    1. ChrisW

      No but that was due to ignorance. I assumed living 30 minutes outside of a city of 220K people would provide adequate healthcare options. I was wrong. Next time I move I will absolutely be checking for endos accepting new patients.

      3
      1 month ago Log in to Reply
    2. mbulzomi@optonline.net

      NO was my answer. Living in a large Metropolitan area, many Endos to pick from. Actually, my Endo is in walking distance.

      1
      1 month ago Log in to Reply
    3. Jane Cerullo

      My T1D is under control. If I had to change Endo it would not be difficult

      1 month ago Log in to Reply
    4. Lawrence S.

      I answered “No”. But, really, “Yes.” Where I lived most of my life was a five hours, each way, drive to my Endocrinologist. Location to employment, housing, family and healthcare all play a part. As the saying go, it’s location, location, location.

      1
      1 month ago Log in to Reply
    5. Lori Lehnen

      With telemedicine, there’s a lot more options for finding an endocrinologist that’s a good fit.

      1
      1 month ago Log in to Reply
    6. beth nelson

      Yes, I wouldn’t move to a small town if there wasn’t a great endo I could easily relate to nearby. And with the amazing endo team I have now, I’d prefer to stay close to them. If I was to look for a new house, it would be within a 20 minute drive to my team!

      1
      1 month ago Log in to Reply
    7. Jen Farley

      My husband and I had conversations of when we retired moving to a Caribbean island. After looking at pharmacies and doctors we decided that would not be an option. A diabetic has to have healthcare nearby or it maybe a challenge.

      1
      1 month ago Log in to Reply
    8. Henry Renn

      I answered “no” bc we live in portion of PA where medical services are highly competitive. Availability of medical services for Type 1’s would be a consideration in the unlikely event that we would move.

      1 month ago Log in to Reply
    9. Trina Blake

      I’m a big city girl (an urban rat I guess) have been all my life. As has been said above – lots of Endo’s to choose from. Of course knowing who the good Endo’s are (and who the Endorks are) is important. When I’ve moved it’s been an arduous search. I’m doing well with my T1D mgt (great A1C – in the normal range, and high TIR, so telehealth works very well for me. If we didn’t need Rx’s for insulin and the prior authroization for just about everything, distance wouldn’t be the issue it is for many of us with T1D.

      0
      1 month ago Log in to Reply
    10. Marthaeg

      I said no because I moved from CT to Dallas a year ago. Unfortunately, I still haven’t found an endo in Dallas. Anyone have any recommendations? My endo back east is wonderful and I’ve been traveling back to see her quarterly but I really need to find someone in the Dallas area.

      1 month ago Log in to Reply
    11. Eva

      With zoom, it doesn’t as much. However, I do travel to see my endo. I just don’t trust anyone else. And, after 30 years, I know no one cares as much as his office about maintain and improving my health.

      1
      1 month ago Log in to Reply
    12. Becky Hertz

      It hasn’t in the past, but I’ve always lived in the suburbs close to abundant healthcare.

      0
      1 month ago Log in to Reply
    13. terrih57@msn.com

      I would not move to be close to my endo. I live in a rural area so it was years before I found one close. So I only saw my primary and my diabetes educator nurse until I found my current endo. I still have to drive a bit but it’s worth it and happy to have one in the ‘area’!

      1
      1 month ago Log in to Reply
    14. KIMBERELY SMITH

      She make sure Dietetic is on track

      1 month ago Log in to Reply
    15. Sue Martin

      We were considering moving from the Puget Sound to a warmer state. Proximity to health care was in the top three items of consideration. We decided not to move yet. I have excellent care at the University of Washington Medical Center and its clinics and would need that world-class care anywhere I might move to later. Besides T1D, I have had a kidney transplant, and have had a brain tumor removed. I would need care for all those aspects of my health.

      1
      1 month ago Log in to Reply
    16. Bob Durstenfeld

      I live 20 miles from my endo’s office. If I moved, I would want equivalent access to my doctor and other specialists.

      1 month ago Log in to Reply
      1. Stuart Pelcyger

        I am considering moving over 2 hours away from my Endo. Will travel to keep seeing her.

        1
        1 month ago Log in to Reply
    17. Sheri Marcus

      I have to drive an hour there and an hour back every three months because there is not one available in my area, Seneca, SC.

      1 month ago Log in to Reply
    18. NANCY NECIA

      My biggest consideration in deciding to move from a large urban area to a small city/rural area is availability of diabetes care. We have a second home two plus hours from my diabetes clinic. There is no diabetes clinics nor endos closer. Gives me pause to think of moving here full time.

      1 month ago Log in to Reply
    19. T1diabetic

      I have lived in rural areas most of the 51 years I have been T1D.
      I have never had optimal diabetes care due to there being no such thing as an endocrinologist or none close enough or none taking new patients.
      So I just do the best I can with my Primary Care Physician and my own research.

      1
      1 month ago Log in to Reply
    20. Janis Senungetuk

      I chose “no” because it hasn’t in the past…but, the times are changing. As my spouse and I age our dependence on healthcare has definitely increased. We live in an urban environment that includes several large medical/research centers with clinics. Even with the number of endos, finding one accepting new patients is now very difficult. If I had to rely on my GP, I’d be basically on my own with any pump/glucose management questions. So…it will be a consideration with our next move.

      1 month ago Log in to Reply
    21. Kristine Warmecke

      They somewhat do. While working as a travel nurse, I couldn’t find an endocrinologist who worked with insulin pumps in the good size city I was in. So I drove back to St. Louis, MO to see mine. After that I made sure that there would be one who worked with pumps before accepting an out of state assignment. This was 2015, so there should have been.

      1 month ago Log in to Reply
    22. AnitaS

      The opposite is true for me. I choose an endo who is relatively close to where I live. Will this be the case in the future? I really don’t know.

      1
      1 month ago Log in to Reply
    23. T1D4LongTime

      I answered “Other”. I was blessed that when I moved away from home after college, I married and moved to a city that had one of the top endocrinologists in the region. I’ve lived the same place for over 40 years. Proximity to a new healthcare provider would be a factor in choosing a retirement location.

      1 month ago Log in to Reply

    Does proximity to your T1D health care provider impact where you choose to live? Cancel reply

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