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    • 2 hours, 33 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 2 hours, 38 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 2 hours, 45 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 1 day, 21 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 21 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 21 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 23 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 3 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 3 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 4 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 5 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 5 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 5 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 5 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 5 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 6 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 6 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 21 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 21 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 1 hour ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 3 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 3 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    If you have ever gone through the process of getting a prescription for a GLP-1 agonist (e.g., semaglutide, exenatide, dulaglutide, liraglutide, lixisenatide, etc.), how easy or difficult was the process of getting a prescription and obtaining the medication?

    Home > LC Polls > If you have ever gone through the process of getting a prescription for a GLP-1 agonist (e.g., semaglutide, exenatide, dulaglutide, liraglutide, lixisenatide, etc.), how easy or difficult was the process of getting a prescription and obtaining the medication?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    15 Comments

    1. mojoseje

      I was able to get the prescription but because these are not approved for T1 diabetics, my insurance won’t cove4them, hence why I’m not on one.

      1
      3 years ago Log in to Reply
    2. lis be

      I haven’t tried to get a prescription for GLP’s,, but considering how heavily these drugs are being marketed- I almost expect to be approached with a free sample at my endo’s to increase sales.

      3 years ago Log in to Reply
    3. cynthia jaworski

      Slowing gastric emptying is one of the properties of this class of drugs. I don’t need any more uncertainty with gastric emptying.

      3
      3 years ago Log in to Reply
    4. Carrolyn Barloco

      I have taken Trulicity for a few years. My pharmacy used to provide 3 months’ supply. Now they say due to limited supply, I only get enough for 1 month. Also, I can’t see the benefits of taking this medicine!!

      3 years ago Log in to Reply
    5. Trina Blake

      I have tried and tried to get an Rx for these meds due to having developed insulin resistance – together with being scolded at the Endo practice for the 15 extra lbs I am carrying. Having to increase both meal and correction boluses only makes getting rid of the weight harder (yeah, I know insulin doesn’t “cause” weight gain – but having to “OD” on it makes things worse). I only eat when I am at target (around 80 bg) so it isn’t my eating habits that are at fault. The Endo is always talking about the side effect of DKA, but with ketone monitoring, I think I can handle/avoid it. Very frustrating.

      1
      3 years ago Log in to Reply
    6. Tracy Jean

      Victozia was easy for me to get but I couldn’t continue with it due to the price.

      3 years ago Log in to Reply
    7. Becky Hertz

      While my HMO MDs will not prescribe GLP-1 nor SGLT-2, they are covered without hassle if prescribed by an outside provider, in my case an Endo.

      3 years ago Log in to Reply
    8. Tina Roberts

      NA- I have no clue what any of that is. What are the brand names for them?

      3 years ago Log in to Reply
    9. Hadley Horton

      As a Type 1, my provider was very willing to prescribe me a GLP-1 to try, however, because I am not overweight, she told me it would be too difficult to have it covered by insurance.

      3 years ago Log in to Reply
    10. Lenora Ventura

      When first prescribed in March ‘22, it was seamless. Successfully obtained and took for 9 months. Health ins changed 1.1.23 and it was no longer covered because I’m not T2D 🤬. My Dr. tried appeal with no avail. All the benefits I gained have gone down the toilet.

      3 years ago Log in to Reply
    11. KIMBERELY SMITH

      It’s easy

      3 years ago Log in to Reply
    12. ConnieT1D62

      I started out on daily Amylin injections about 12 years ago, which worked very well as an appetite suppressant for stress eating tendencies, plus BG lowering. However I experienced too many unpredictable hypoglycemia episodes.

      My endo provider started me on a trial of Victoza with sample pens … the standard tapered dose was way too much for me and caused GI distress symptoms and side effects. So she had me start on a very low amount … basically one click of the pen at a time until after three months I reached tolerance at 10 clicks of the pen (0.6mg) which is the usual starting dose for most people. I have remained on that dose for several years now and it is a successful part of my overall control.

      It requires prior auth submitted by my endo provider. She is a warrior provider for her patients and steps up to bat for us to get what we need in spite of insurance coverage denials. I am very lucky to have excellent endocrine providers throughout my adult life with T1D.

      3 years ago Log in to Reply
      1. ConnieT1D62

        BTW – amylin is the other beta cell hormone our bodies don’t make. So not only are we insulin deficient, we are also amylin deficient.

        3 years ago Log in to Reply
      2. ConnieT1D62

        The amylin hormone replacement med is called Symlin.

        3 years ago Log in to Reply
    13. Brad Larson

      Only had to ask for it. It is “0ff-label,” so some out of pocket costs.

      3 years ago Log in to Reply

    If you have ever gone through the process of getting a prescription for a GLP-1 agonist (e.g., semaglutide, exenatide, dulaglutide, liraglutide, lixisenatide, etc.), how easy or difficult was the process of getting a prescription and obtaining the medication? Cancel reply

    You must be logged in to post a comment.




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