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    • 3 hours, 15 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      There are several conversations about this across social media. Many people chime in and vote for a new, more accurate name for type 1.. some of the popular alternatives- Pancreatic Autoimmune Disease, Beta Cell Destruction Disease, Autoimmune Diabetes, Autoimmune Insulin Failure, Autoimmune Absolute Insulin Deficiency (AAID)
    • 3 hours, 15 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 3 hours, 16 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 3 hours, 17 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 5 hours, 29 minutes ago
      Kristi Warmecke likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 8 hours, 1 minute ago
      Lee Tincher likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      If I could get a CGM that is consistent and predictable I'd be very happy with the Twiist or the Tandem. The weak point with pumps used to be infusion sites, but now that we are relying on poor performing technology to support potentially great algorithms itis quite frustrating.
    • 9 hours, 55 minutes ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 11 hours, 20 minutes ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 12 hours, 4 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 12 hours, 4 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 12 hours, 38 minutes ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 1 hour ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 5 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 1 day, 5 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 8 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 1 day, 8 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 8 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 1 day, 8 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 1 day, 8 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 1 day, 9 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 9 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 9 hours ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
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    Does proximity to your T1D health care provider impact where you choose to live?

    Home > LC Polls > Does proximity to your T1D health care provider impact where you choose to live?
    Previous

    CGM users: When you have a sensor that does not last for its full approved session duration, on average, how many days early does your sensor fail or fall off?

    Next

    If you use an insulin pump or CGM, has anyone ever mistaken your device(s) for any of the following? Select all that apply!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    30 Comments

    1. mbulzomi@optonline.net

      With Medicare Part “B” covering all my DEX and Tandem stuff, including Insulin. Along with my Federal Blue Cross Blue Shield, secondary Insurance. All’s well for me, nothing out of pocket.

      4 years ago Log in to Reply
    2. Pat Martin

      Since going on MEDICARE – I am told I must see my provider every 90 days or no supplies will be dispensed from my DME provider. I have been going to a provider that lives 5 hours from me & I have been seeing this provider since the early 1990’s..
      I may need to change now as since retired my income has changed anad i am unsure if I can afford
      the gas to make the 5 hour trip. I have moved several times since starting to see this excellent provider(s). The state that my provider lives in requires that he/she be licensed in the state where they provide telehealth. They are not licensed in the state where I reside. It would not be cost effective for them to obtain this license at this time. So I may be looking for a new provider in the near future with the cost of gas & inflation! Sad!

      4 years ago Log in to Reply
    3. pru barry

      I guess it’s age and diabetes going in tandem that led me to live in a city. I love being out in the country, but the time has come to be closer to providers and the drug store. Tomorrow is the 82nd birthday, and 68th anniversary since being diagnosed. Time sneaks up when you’re having fun!

      9
      4 years ago Log in to Reply
      1. AnitaS

        Happy birthday!

        4 years ago Log in to Reply
    4. Louise Robinson

      Sadly, it did not when we relocated from New England to Florida nearly 20 years ago. I had excellent access to board certified endocrinologists when I lived in New England. They were affiliated with University hospitals and located within a 30-minute drive. We relocated to a more rural county about 90 minutes north of Tampa. There are NO board -certified endos in my county. In general, unless I wish to travel over 1 hour (to either Tampa or Gainsville), I feel that the quality of health-care here is not up to the level I enjoyed up north….and, as we age, access to quality health-care becomes even more critical.

      4 years ago Log in to Reply
    5. Ernie Richmann

      I live near Cleveland Ohio. This area has world class medical services along with wonderful parks, sports, cultural events, and more not to mention we have the worlds largest fresh water reserve- the Great Lakes.

      4 years ago Log in to Reply
    6. Dennis Dacey

      OTHER: I do insist on finding the best medical providers, including people who know diabetes, but that didn’t prevent me from leaving the world’s leading diabetes professionals [decades at Joslin Clinic in Boston] and move 1,700 miles away. After moving, I did seek out and find good medical care including two who understand T1D.

      If I make any future move of residence, diabetes specific medical care will not be a primary deterrent as long as there is a relatively closeby facility with a physician who is open and able to listen.

      1
      4 years ago Log in to Reply
    7. Sue Herflicker

      I thought I hit no and when I hit the submit button I saw yes! I do not worry about the proximity of my health care provider. I will travel as far as I need to for good medical care.

      4 years ago Log in to Reply
    8. Linda Zottoli

      I know that I considered it 50 years ago, more specifically public transportation access, when I was moving while pregnant. And now, no longer driving and considering moving closer to one of my children, available health care is certainly a consideration.

      4 years ago Log in to Reply
    9. Lawrence S.

      I said “other”. When I was young, and working, “no”. I used to drive 10 hours, round trip to see my Endocrinologist at Joslin in Syracuse, NY. I’m sure there were other Endo’s closer to me. I chose where to live based upon where my employment was located.
      Since retirement, we moved to a warmer climate, and living near access to an Endocrinologist was an important part of where we chose to live.

      4 years ago Log in to Reply
    10. megwood805@yahoo.com

      I travel 75 miles each way to continue care since he moved. Absolutely worth it!

      4 years ago Log in to Reply
    11. TEH

      We had chosen a location that had 2 medium sized medical complex 30 miles a way, where my Endo’s office is located. UVA is 90 minutes away….

      4 years ago Log in to Reply
    12. Hieromonk Alexis

      Usually that was not a problem, since I have lived mostly in urban areas with plenty of endocrinologists. But I did live for 12 years in a rural area where the nearest sizable town was an hour away, and it had only one endocrinologist for that county and a few surrounding ones. Boy, was he ever busy! That town, Redding CA, with its population of around 100,000, could certainly use another endocrinologist.

      4 years ago Log in to Reply
    13. Sue Martin

      Definitely. We have been considering moving to a different state. I live in the Seattle area and have had world-class care through the University of Washington Medical center. Proximity to health care is very high on the list of criteria. I have other health issues, kidney transplant, and a meningioma in the brain, which was benign; so a high-class health complex is important where we move next.

      4
      4 years ago Log in to Reply
    14. Natalie Daley

      I’m willing to drive 170 every 3-4 months. When he retires, this may be a different story.

      4 years ago Log in to Reply
    15. Janis Senungetuk

      Yes, it certainly does now, it didn’t as much when I was younger. Transportation to/from medical appointments has become a major consideration now that I’m no longer driving and the pandemic eliminated the volunteer transportation assistance organization I had previously used. Even living in this urban environment with a relativity large number of physicians it’s still difficult to get consistent knowledgeable care on a timely basis. It requires making appointment far in advance and then being able to keep them.

      4 years ago Log in to Reply
    16. Chris Albright

      I live in a small city about 65 miles north of Austin Tx. The town I live in does not have an endo so I prefer to just go to the endo that I used when living in the Austin area. If I could find a good endo closer to me, I would consider switching (i.e., $5.00 / gal gas……)

      1
      4 years ago Log in to Reply
    17. Beckett Nelson

      I chose “other” because I changed endos after relocating. I haven’t stayed in a location because of an endo

      4 years ago Log in to Reply
    18. Molly Jones

      Most definitely. I have a multitude of health concerns one of which causes me not to drive and that need specialists, not GPs. We live in a city with many hospitals less than twenty minutes away that I can use buses for whose transportation keep improving.

      1
      4 years ago Log in to Reply
    19. Amanda Barras

      No! We live where the work and good schools are for our son. I will commute to an Endo as necessary since I only see mine 1x a year.

      4 years ago Log in to Reply
    20. Lori Lehnen

      Interesting question. I recently switched from a local endo to one in NYC, about an 8 hour drive or short flight away.
      When I was first diagnosed, I used the endo assigned to me at the hospital. They were good, but not a good fit for me. When a bad snowstorm forced me to use telehealth, it got me thinking… why am I using an okay doctor when telehealth works for most appointments and my insurance covers any doctor in the state. So, I found an endo that is perfect for me. I’ve been incredibly pleased with my teleheath appointments with her and her staff is amazing. Although she’s not requiring it, I’m having my first face-to-face visit with her in July, followed by a long NYC weekend. Finally, T1D is an excuse to do something fun!
      p. s. My local primary care doctor approved that this set up is medically sound before I transitioned to the new endo.

      4 years ago Log in to Reply
    21. Jillmarie61

      No it doesn’t. My Endo is an hour and a half away. BUT, it does have an impact on how close to a hospital I am, in case of an emergency.

      4 years ago Log in to Reply
    22. Marcia Pulleyblank

      I would say yes in principle, but I does take me at least 90 minutes in order to get to see him. I can however communicate via phone or email if necessary.

      4 years ago Log in to Reply
    23. Drina Nicole Jewell

      It does and it doesn’t. I moved to a huge area with tons of endo’s and couldn’t find one I could tolerate. So I drive 6 hours round trip to see my Endo once a year and the rest are video or phone call appts. 💯 Worth it.

      4 years ago Log in to Reply
    24. Ahh Life

      I’ve lived in areas where the closest endocrinologist was a 140-mile drive to Reno, Nevada with few towns, people or even cacti in between. Easy-peezie in the good ol’ days.

      Then as the ravages of age take their toll – diminished eyesight, diminished public transport, diminished cognitive abilities – and guess what? Proximity matters.

      So now, the answer becomes, Yes. Talis est via mundi. ╭ (o ㅇ‿ o#)ᕗ

      4 years ago Log in to Reply
    25. PamK

      While I have not let this affect where I live, I do miss my old doctors. It is very difficult to find new doctors in my current area that “measure up.”

      4 years ago Log in to Reply
    26. Steven Gill

      From what I’m reading I’ve only seen one “good” endocrinologist in 24 years, and the lone knowledgeable primary physician died during first year of diabetic care. I’ve seen 5 specialists, the only one I’d consider efficient was during those medical trials when my diagnosed mysteriously changed from TYPE 2 to TYPE 1.

      These two stressed never let anyone dictate my diet, meds, exercise, or life because they don’t work my hours, cook my meals, nor live my life. I had two specialists before those medical trials, two afterwards; but at least the last got me to consider the pump with a CGM.

      I now see a GP 5 minutes from my home for convenience, altho he offered to send me to the local hospital to see a specialist (his first visit said he doesn’t see TYPE 1 patients because of their needs, until we talked and he saw my a1C, he agrees to all my requests including my last to add metformin to my care). I’ve since found the end~ that refused my request to start insulin 21 years ago saying I was too old to be a TYPE 1, with instructions to lose more weight (already 20 lbs underweight) is considered a top board certified endocrinologist. I follow the instructions of those two doctors and read everything on diabetes: now listen to various podcasts and blogs on TYPE 1. Thanks to the internet I visit boards from the ADA, I read literature and periodicals, and news releases. With UAB and the Babtist Health system Birmingham I’d considered a top tiered medical community but results vary, sometime I feel better educated than those educated.

      4 years ago Log in to Reply
    27. Lyn McQuaid

      I’ve had the same endo for 30 years and he has changed practices more times than I can remember but has always stayed in the same general vicinity.

      4 years ago Log in to Reply
    28. Wanacure

      Just the opposite. I choose the facility closed to me, but actually now there are three different providers within the same 20’ walking distance.

      4 years ago Log in to Reply
    29. Cheryl Seibert

      40 years ago, yes it did. But now, with Telehealth and CGM/Pump data available via websites, proximity is not a requirement. I am blessed that the community I moved to after college had one of the best endos in the state.

      4 years ago Log in to Reply

    Does proximity to your T1D health care provider impact where you choose to live? Cancel reply

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