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    • 7 hours, 3 minutes ago
      KarenM6 likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 8 hours, 50 minutes ago
      Kristi Warmecke likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 8 hours, 51 minutes ago
      Laurie B likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 8 hours, 51 minutes ago
      Kristi Warmecke likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I answered slightly. I'm absolutely certain supplies and medication will be available. However, I'm doubtful they will be affordable. If I can't afford them, I can't access them.
    • 9 hours, 49 minutes ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 9 hours, 50 minutes ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 9 hours, 51 minutes ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I answered slightly. I'm absolutely certain supplies and medication will be available. However, I'm doubtful they will be affordable. If I can't afford them, I can't access them.
    • 9 hours, 54 minutes ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am worried about the changes to Medicare making no provision for getting an immediate replacement if a pump fails. It sounds like we will have to get these from the suppliers instead of a warranty replacement from Tandem themselves (or whatever brand you use). Pumps will be rented and will have to be returned so they can verify the problem before replacing them, which is ridiculous. Meanwhile, Medicare would not pay for us to get long acting insulin as a temporary replacement for the basal.
    • 9 hours, 56 minutes ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I broke down for the first time in 25 years and bought a bottle of insulin because I think I may have thrown a bottle out with the box. Medicare wouldn’t fill the prescription because it was too early. I just didn’t want the fight and worry. I’m not sure that’s what happened but it’s the only explanation. Also, I live in Florida and the threat of losing power is always there. I should get a generator but I’m a little afraid of them and you still can’t be sure you have access to propane. If my insulin goes bad, I’m not sure I could get refills. My back up plan is to leave before hurricane or go to a hospital. But it is all just causes concern.
    • 10 hours, 10 minutes ago
      Derek West likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Very! However, I wish I could use Fiasp insulin in the Tandem pumps.
    • 12 hours, 45 minutes ago
      Bruce Schnitzler likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I broke down for the first time in 25 years and bought a bottle of insulin because I think I may have thrown a bottle out with the box. Medicare wouldn’t fill the prescription because it was too early. I just didn’t want the fight and worry. I’m not sure that’s what happened but it’s the only explanation. Also, I live in Florida and the threat of losing power is always there. I should get a generator but I’m a little afraid of them and you still can’t be sure you have access to propane. If my insulin goes bad, I’m not sure I could get refills. My back up plan is to leave before hurricane or go to a hospital. But it is all just causes concern.
    • 13 hours, 17 minutes ago
      Karen Newe likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 13 hours, 34 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Very! However, I wish I could use Fiasp insulin in the Tandem pumps.
    • 13 hours, 35 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 13 hours, 35 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 15 hours, 3 minutes ago
      Patricia Dalrymple likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Try Uni-Solve Adhesive Remover (smith&nephew)- wipe it on wait a minute to let it work and it will come off easy. at least it works great for me and I've tried several different brands, I use it for CGM & Omnipod removal
    • 22 hours, 3 minutes ago
      Sandy Norman likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 5 hours ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      There are several conversations about this across social media. Many people chime in and vote for a new, more accurate name for type 1.. some of the popular alternatives- Pancreatic Autoimmune Disease, Beta Cell Destruction Disease, Autoimmune Diabetes, Autoimmune Insulin Failure, Autoimmune Absolute Insulin Deficiency (AAID)
    • 1 day, 5 hours ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 1 day, 5 hours ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 7 hours ago
      Kristi Warmecke likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 10 hours ago
      Lee Tincher likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      If I could get a CGM that is consistent and predictable I'd be very happy with the Twiist or the Tandem. The weak point with pumps used to be infusion sites, but now that we are relying on poor performing technology to support potentially great algorithms itis quite frustrating.
    • 1 day, 12 hours ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 1 day, 13 hours ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
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    Do you (or your loved one with T1D) typically eat gluten-free?

    Home > LC Polls > Do you (or your loved one with T1D) typically eat gluten-free?
    Previous

    If you were diagnosed with diabetes as a child or teen, when did you transfer your care to an adult diabetes provider (e.g., adult endocrinologist, adult diabetes specialist, adult primary care provider for your T1D)?

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    How long does it typically take for your durable medical equipment or pharmacy supplier to obtain prior authorization or chart notes from your T1D health care provider’s office?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    24 Comments

    1. Janice Bohn

      Most of the time I am gluten free because I typically do not eat bread or pastas. But only as a help to blood sugars.

      3
      4 years ago Log in to Reply
    2. Lena Selbrand

      No, why should I? I am not gluten intolerant, even been tested for it. I see no reason to omit more products from my diet.

      3
      4 years ago Log in to Reply
    3. Lawrence S.

      I have been diagnosed with Celiac disease for about 15 years. So, I have to eat gluten-free. I have not strayed from the diet.
      I DO NOT recommend that anyone eat a gluten-free diet unless they are diagnosed with Celiac disease or some gluten allergy. If it is not necessary, there is no reason to eat gluten free. I find the gluten free diet to be overly restrictive, and much, much more stressful than dealing with Type 1 Diabetes. There are so few foods that I can eat, further complicated by irritable bowel syndrome.

      2
      4 years ago Log in to Reply
    4. cynthia jaworski

      my husband is gluten-intolerant, so I eat the same gluten-free carbs as him. I eat carbs rather sparingly.

      4 years ago Log in to Reply
    5. Ms Cris

      I eat about 95% grain free, because I am so intolerant of carbs! I therefore, by default, eat gluten free. Gluten is a protein I tolerate just fine. I miss it.

      4 years ago Log in to Reply
    6. Patricia Kilwein

      Only if carbs, fiber content and protein are there. Otherwise it’s a pass.

      4 years ago Log in to Reply
    7. Eva

      My antibodies to gluten were tested a few years back due to 23andme saying I was at risk for Celiac disease. But it was negative. Yet, I tend to stay away from bread, pasta and other processed forms of food cause my blood sugar is much easier to manage without having so many carbs. I’m happy eating plain whole foods.

      1
      4 years ago Log in to Reply
    8. E24murph@gmail.com

      My 5 year old was just diagnosed with celiac disease last week. Our household is going mostly gluten-free but not entirely. He is not the one with T1D. I am.

      4 years ago Log in to Reply
    9. Carolann Hunt

      We ate gluten free for a year and it made no difference so we’re eating gluten again. No celiac dx

      2
      4 years ago Log in to Reply
    10. MARIE

      Yes, by default, because we eat a very low carb diet to control blood sugar and maintain a high time-in-range.

      4 years ago Log in to Reply
    11. kflying1@yahoo.com

      Being a t1D carries many diet restrictions – thank God that for me gluten isn’t one of them.

      4 years ago Log in to Reply
    12. Jeff Balbirnie

      Yup But not for me. There a whole bunch of allergies in the house

      4 years ago Log in to Reply
    13. Toddrich

      I answered No, but I do avoid bread since most commercially made bread has so much sugar, right Subway?

      4 years ago Log in to Reply
    14. kristina blake

      No. I avoid most starchy carbs (trying to be low carb to lose weight in addition to my T1D). When I read the nutrition info on gluten free items, they often have more carbs than I like to ingest. Substituting rice for wheat doesn’t work for me.

      4 years ago Log in to Reply
    15. Mig Vascos

      I’m gluten intolerant. I normally don’t eat pasta because of the amount of carbs in them, but I do love all kind of breads and pastries. Unfortunately, every time I indulge in these items, the gluten messes up my stomach. Its not really worthy.
      I’m also dairy intolerant so the variety of foods I eat without either increasing my sugar or messing up my stomach is limited.
      Preparing a meal is difficult and discouraging.

      1
      4 years ago Log in to Reply
    16. Carol Meares

      I generally eat grain free but not always. I find that I feel better when I eat no grains and it is easier to manage BS. I don’t have to worry so much about hidden gluten so I am sure I get gluten when I don’t even know it. On special occasions I will enjoy something that is not grain free. I am not a purist:) and luckily, don’t have to be.

      4 years ago Log in to Reply
    17. Becky Hertz

      Typically gluten free because typically I don’t eat bread products, pastas, etc because of the effect on my bg levels.

      1
      4 years ago Log in to Reply
    18. sdimond

      I eat 40 grams or less of carbs a day. The only grain product I eat is three corn taco shells once a week.

      1
      4 years ago Log in to Reply
    19. Wanacure

      I thought “gluten-free” was just another bourgeoisie food fad diet like the zen macrobiotic diet that turned out to be a hoax. Then my brother claimed he was gluten free years ago and tried to warn me. Still, I thought it was just another hoax, because he didn’t show me any western medicine lab test. This year my doctors ordered an endoscopy for me. The results convinced my doctors to recommend I go gluten free. I’d already cut out a lot of carbs to maintain better glucose control, to cut down insulin doses, and to reduce hypoglycemia risk as recommended in Dr. Richard K. Bernstein’s books, himself a T1D. I’m not on a full ketogenic diet…yet. But I’m very low carb, and don’t feel deprived at all. Nuts, seeds, butter, cream, plain unsweetened full fat yoghurt, veggies, sardines, salmon, and cheeses are very satisfying. I want to thank the people on ketogenic diets who’ve provided us with so much info in their replies on this website. I understand that the first month on a ketogenic diet I’ll pee copiously and may lose vitamins or minerals. I might have to take vitamin-mineral supplements, at least during one month transition period. Can blood tests reveal if continued dietary supplements are needed? I guess I should get a complete blood work up to find my present baseline. My present lab bloodwork doesn’t test for vitamins and minerals, just for cholesterol, HbA1c, and IGA. If I go fully ketogenic, ketones will show up in my blood and urine causing possibly causing lab techs and my doctors to freak out. They may not be very supportive. I’m pretty sure they’ll try to dissuade me. They don’t even like my low carb diet! Do ketogenic diets require vitamin and mineral supplements beyond the one month transition period?

      1
      4 years ago Log in to Reply
    20. Jane Cerullo

      Don’t have a gluten allergy that I am aware of

      4 years ago Log in to Reply
    21. Joan Fray

      Diagnosed with celiac four years ago. Probably had it most of my life. Damn internist kept saying “you’ve had Type1 for so long, of course you’re going to have problems with your stomach. Neuropathy probably. “. Got so I couldn’t eat anything but cottage cheese. Lost 15 pounds in six weeks. Finally got referred to Gastroenterologist. Grrrr!

      2
      4 years ago Log in to Reply
    22. PamK

      Our son was diagnosed with Celiac, so when he is joining us for a meal it is gluten free. We do not eat gluten free all of the time though.

      1
      3 years ago Log in to Reply
    23. Velika Peterson

      I answered “no”because we do not TYPICALLY avoid gluten. However, I have noticed that our T1D daughter’s blood glucose levels ususally do not spike when eating gluten-free food, so I occationally try to buy that.

      3 years ago Log in to Reply
    24. Mary Ann Sayers

      My GRANDDAUGHTER has celiac disease! (She was asked if any relatives had it or diabetes) She kiddingly? blamed me for getting it. I’ve had T1D since I was 7, her grandfather was dx at 70 with type 2 about 10 years ago. She knows no one is to blame.

      3 years ago Log in to Reply

    Do you (or your loved one with T1D) typically eat gluten-free? Cancel reply

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