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    • 12 hours, 55 minutes ago
      Greg Felton likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 13 hours, 26 minutes ago
      ConnieT1D62 likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      One time I was explaining that a new pump would be too expensive at the time because my deductible had just started over.. and she asked if I had insurance and I said yes….. then she said “then it should be free with insurance.” 🤦‍♀️ She may know a little about the challenges of living with diabetes, but she knows nothing about how insurance works or how costly T1D supplies are.
    • 13 hours, 45 minutes ago
      Steve Rumble likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 14 hours, 15 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I am an RN. Been going to same doctor for about ten years. Took me six years to train him. I am very well read when it comes to my LADA. He trusts my judgement and gives me excellent parameters to make decisions. Recently had a bad case of Covid. Insulin needs changed dramatically. Getting back to normal but he made sure I had scripts to cover my ups and downs with insulin needs.
    • 14 hours, 16 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Mine acknowledges the struggles and challenges that go along with managing T1D in my daily life. She gives suggestions as to what may or may not help and has often asked me I how I handle situations so she can give suggestions to other T1D patient's.
    • 14 hours, 17 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 14 hours, 42 minutes ago
      Jubin Veera likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      The hard spots are fairly frequent with the pump infusion sets. Especially if I go past 3 days which I try to avoid! I don’t think I ever got one from injections. I try heat and massaging to treat them and they normally go away after a day or so. Once I had a large area that I had to treat with antibiotics.
    • 14 hours, 44 minutes ago
      Magnus Hiis likes your comment at
      Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes, or having diabetes-related complications?
      I’m 79. My last orgasm was springtime about 3 or 4 years ago. When I complained of ED, my PCP Rxd 3 to 5 (60-100 mg) sildenafil tablets by mouth about one hour prior to sexual activity. This alone hasn’t worked to bring me up to former sexual capacity that I had 10 years years ago. I’m still considering consulting finding a doctor who’ll prescribe a safe but effective way of administering testosterone or an anabolic steroid in a dose low enough to avoid causing cardiovascular problems but high enough to restore normal ability that I had up to my sixties. My present doctors say it can’t be done, but there are doctors who advertise otherwise. Analogs of the hormone insulin can be delivered in small safe doses, why not testosterone?
    • 1 day, 6 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      We are all so very different, and trying to say that all of us with T1 understand what it's like for another who has the same hill to climb is unproductive. Having a health care provider with T1 may often be helpful just because there's apt to be more knowledge about the specifics. How we respond to the disease is such a personal matter, that I really don't think there are any guaranteed benefits beyond the grasp of the factual. Finding a doc with the same general attitude about the disease does feel good, and sometimes that's all I hope for after working hard to make peace with the disease for 70 years. Asking my doc to "get it" used to be almost my mantra, but I've come to realize that the ones who don't just see us as unruly childrenchildren
    • 1 day, 6 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Both my endocrinologist and my nurse practitioner are great. They compliment me on the way I take care of my life and health and make aure I get all the supplies I need managing all the paperwork Medicare and insurance requires. My nurse practitioner who works with me on managing the pump has her own opinion about the pump settings based on her technical knowledge which is different than what I do with my settings based on living with them. She has thru the years learned to respect what I do and is surprised with how my settings work. So we are now at peace. Both very supportive.
    • 1 day, 9 hours ago
      pru barry likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 9 hours ago
      mojoseje likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I said yes but that refers to my nurse practitioner who sees me every other visit, if not more often. The doctor may know how hard I try but perhaps takes my efforts for granted.
    • 1 day, 12 hours ago
      Anneyun likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      How can someone without the disease really understand what it is to live with it? I have never had a doctor with T1D in 60 years.
    • 1 day, 12 hours ago
      Bruce Schnitzler likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 13 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My endo is young, very empathetic, thorough, always asks for my input, and does research. I am blessed too. have him, and the one before for over 25 yrs.
    • 1 day, 13 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 13 hours ago
      lis be likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 1 day, 13 hours ago
      Daniel Bestvater likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 14 hours ago
      TEH likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I have no clue what my T1D health care provider understands about my daily challenges and I don’t know about his daily challenges either. Not sure why I should care as long as I have access to information how to best take care of myself.
    • 1 day, 14 hours ago
      Jeff Marvel likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 14 hours ago
      Richard Wiener likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 2 days, 5 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Hi Connie, I still have my glass syringe and show it off occasionally. We boiled the needle and syringe every morning and sharpened the needle with a file. I was diagnosed at age 6 in 1963. Life is so different now! Then, my diet was extremely limited as was my exercise. Now, I am very active and eat pretty much as I please. I maintain an A1C in the low 6s (6.2 was my last).
    • 2 days, 5 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Connie and Beth, I was diagnosed in Nov 1962, age 10. During the early years I developed lumps and indentations on my upper thighs from my injections. In fact, I was able t o spot other t1 kids in my junior high school based upon the lumps in their upper arms.. (I eventually met up with them and learned that I was correct.) By the time I reached my twenties, these indentations had more or less disappeared, but I still have remnants of the lumps. I wish I could say that the layers of tissue now deposited on my legs disguises them, but they don't. I think the changes in insulin have been responsible for this improvement: the isolation and purification of animal insulins were refined, and then the various human clones were game changers in many ways.
    • 2 days, 5 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Yes in my upper arms when I was a petite and skinny child in the 1960s with T1D. In those days we used glass syringes with stainless steel 1/2 inch long heavy gauge needles. My mother would jab me in the upper arms, it hurt like the dickens, and I developed several hard nodules. I was diagnosed at age 8 in December 1962 and after the initial two months of her jabbing me in the upper arms, I took over giving my own "shots" and started self injecting via site rotation in my thighs for several years. Eventually the lipohypertrophy in my upper arms resolved and I never injected there again until many years later as an adult on MDI using disposable syringes with very short and fine gauge needle tips. Periodically I would give my tired pin cushion thighs a rest and take a break for a few months or a couple of years and rotate injections in my abdomen or upper arms. Have been using a pump for over 20 years now and rarely use MDI unless I am taking a pump break for a short period of time. Happily, I no longer have lumpy sites.
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    If you use an insulin pump, does your T1D healthcare provider typically examine your pump sites during your appointments?

    Home > LC Polls > If you use an insulin pump, does your T1D healthcare provider typically examine your pump sites during your appointments?
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    On a scale of 1-5, how much do you think T1D impacts decisions you make in other areas of your life? (1 = the least possible impact, 5 = the most possible impact)

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    27 Comments

    1. Kristine Warmecke

      They only time she has examined my site’s is when I had a question about one. She does ask if I have any issues with them.

      3
      2 years ago Log in to Reply
    2. Sahran Holiday

      Misunderstood the question. I’m already on a more frequent change from bleeding and hematomas so unless I say something it’s understood that I’ll have marks.

      2 years ago Log in to Reply
    3. Daniel Bestvater

      I answered no. As a health care provider I must say that I seldom check patients infusion sites. I believe subcutaneous infusion of insulin is one of the most problematic issues with insulin delivery. Tissue damage, site placement, movement, circulation……all effect insulin absorption. If insulin could be delivered in a highly consistent manor tighter BG control could be achieved far more easily!

      7
      2 years ago Log in to Reply
    4. Abigail Elias

      I answered “yes” but it isn’t a very thorough look. But she’ll check a site more closely if I raise a possible issue.

      2 years ago Log in to Reply
    5. Greg Felton

      Always, before telehealth visits began.

      2 years ago Log in to Reply
    6. M Fedor

      I remember this happening once. It seemed rather awkward.

      2 years ago Log in to Reply
    7. Patricia Kilwein

      I answered sometimes. Sites are examined only if there’s a problem, like redness and swelling. Had a couple of infected ones. No biggie, it happens very seldom.

      2 years ago Log in to Reply
    8. Todd Thedell

      I last physically visited with my Diabetes Nurse 3 years ago before I had a pump. We do have phone visits about once a year and she checks my Tandem uploaded data.

      2 years ago Log in to Reply
    9. Carol Meares

      Never. He only looks at the lab reports and downloads of Dexcom. I suppose if I asked him to look at my sites, he would, but he does not initiate it.

      2 years ago Log in to Reply
    10. Michelle Saunders

      My endocrinologist always palpitated my stomach. I know he was checking for a few things, but scar tissue was one of them. Sadly he has moved and I am getting ready to move out of country for a couple years, so I’m not sure what my healthcare journey is going to look like.

      1
      2 years ago Log in to Reply
      1. Ahh Life

        Name the country you’re going to. Many of us have experience and advice for a slew of countries.

        2 years ago Log in to Reply
    11. Bea Anderson

      Never. I know how to apply my pump and rotate sites. I have favorite sites and know what happens if overused or left in too long. Tissue changes and delivery problems. This is just one of the facets to my self- care. There are plenty of places that are stumbling blocks to managing T1, but I can see

      2 years ago Log in to Reply
      1. Bea Anderson

        Oops sent before finish sentence. Oh well.

        2 years ago Log in to Reply
    12. Mick Martin

      Extremely rarely. It’s not like when I was on multiple daily insulin injections (MDI) and I developed lypohypertrophy in different areas of my body where I used to inject.

      2 years ago Log in to Reply
    13. AnitaS

      My diabetes doctors and PAs never check the sites, but my diabetes educator did when I mentioned that I get dents in my skin (wasting away of fat) sometimes from the infusion sites. He said that is extremely rare as most people get lumps of fat where the infusion sites are. In the early 1970’s when I was first diagnosed and put on pork insulin, I would get the wasting away of fat but have never had wasting away of fat with multiple daily injections when put on regular and nph or when put on humalog and lantus years later. Only when put on a pump did the wasting away of fat occur again. Luckily it doesn’t happen often.

      2 years ago Log in to Reply
    14. Melinda Lipe

      I’m sure he would if I asked or complained about them.

      2 years ago Log in to Reply
    15. Janis Senungetuk

      No. If I have any concerns about infusion sites I contact the Diabetes Educator.

      2 years ago Log in to Reply
    16. Mig Vascos

      My precious Endo did. But the one that came after doesn’t. Anyway I’ve been having tele health for the last two years. So no way to check that through the computer screen. 😆. But I pretty much know the areas where the infusion cannula doesn’t work.

      2 years ago Log in to Reply
    17. Becky Hertz

      My previous endo (retired) checked then when I had issues with them. My new endo checked when I had my first appointment.

      2 years ago Log in to Reply
    18. M C

      Not necessary to check – If there is a problem (and, to date, there hasn’t been any issue with the ‘pump sites’) I’d bring it to their attention.

      2 years ago Log in to Reply
    19. Jennifer Wilson

      No, but I think he should. I will start recommending it. It seems as though the longer we are with the same physician, and if we are usually in good control, the less thorough they are and they rely more on us to inform them of issues and questions.

      4
      2 years ago Log in to Reply
    20. Ruth Chapman

      Don’t know as I haven’t had a face to face appointment since starting on the pump.

      2 years ago Log in to Reply
    21. Molly Jones

      No. The only time pump sites are checked are when I ask them to be. This has been by multiple Endos I have seen in 21 years, maybe around 6.

      2 years ago Log in to Reply
    22. Lawrence Stearns

      I’m not sure if I clearly understood this question. I interpreted it as, does my Endo check my pump, not my cannula sites. I answered “Yes, always” because my Endo downloads data from my pump and reviews the date with me.

      2 years ago Log in to Reply
      1. Lawrence Stearns

        “data” not “date.”

        2 years ago Log in to Reply
    23. Jneticdiabetic

      I put “yes, sometimes” but very rare.

      2 years ago Log in to Reply
    24. JuJuB

      Naah. I’ve been seeing my Endo for 25 years. She ASKS me if my sites are okay, and WARNS me about leaving a site in for too long. But she never examines them. She knows me, and knows that if I were having an issue I would stop using that specific site. Problem solved.

      2 years ago Log in to Reply

    If you use an insulin pump, does your T1D healthcare provider typically examine your pump sites during your appointments? Cancel reply

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