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    • 4 hours, 45 minutes ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
    • 5 hours, 42 minutes ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      One nice thing about a watch for readings is that, while it is normally redundant, you can be separated from your phone. For example, when you are in water.
    • 5 hours, 49 minutes ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 6 hours, 49 minutes ago
      Kathy Hanavan likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 6 hours, 52 minutes ago
      John Barbuto likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 7 hours, 55 minutes ago
      Gerald Oefelein likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 7 hours, 56 minutes ago
      Laurie B likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I’m curious about the reasoning behind using a dedicated reader. Could someone please enlighten me?
    • 7 hours, 56 minutes ago
      Laurie B likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 7 hours, 57 minutes ago
      mojoseje likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      For Minimed, the dedicated reader is the pump.
    • 7 hours, 57 minutes ago
      mojoseje likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I chose "dedicated reader". That reader is my pump, a Minimed 780G.
    • 7 hours, 57 minutes ago
      Marthaeg likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 20 hours, 29 minutes ago
      KarenM6 likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Sorry. I'm not sold on AI. I don't trust the people making it. There are too many reasons it could go wrong and be disasterous (just read the above comments). I'm not opposed to computers helping with things such as Control IQ, but when the computer starts doing the thinking, I think we've crossed the line. An aside: I've listened to AI music, and I think it sounds impersonal. It lacks a humanness. I don't find it pleasant to listen to. I've heard horror stories about AI being used by the military, with the end result being nuclear holocaust. I am a hard NO to AI. I gave it a "5".
    • 20 hours, 30 minutes ago
      KarenM6 likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
    • 20 hours, 30 minutes ago
      KarenM6 likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 1 day, 2 hours ago
      D-connect likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day, 2 hours ago
      D-connect likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 1 day, 2 hours ago
      D-connect likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 1 day, 3 hours ago
      Ahh Life likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day, 3 hours ago
      Ahh Life likes your comment at
      How well do you understand the details of your health insurance coverage?
      Extremely. I have a certificate in Medical Billing & Coding.
    • 1 day, 6 hours ago
      Kathy Hanavan likes your comment at
      How well do you understand the details of your health insurance coverage?
      "Slightly," I think, maybe. Insurance companies change their policies, constantly. Prescription coverage changes every time I look at it. Medicare is a huge question mark. Honestly, Health insurance has become a big money making business, for them. I get different answers every time I call, depending upon whom I am talking with. I say it's time for socialized medicine.
    • 1 day, 6 hours ago
      atr likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 1 day, 7 hours ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Roughly half my lows are caused by my auto correct system now. I expect AI hallucinations to make it worse. I have enough hallucinations when I'm low and need non-hallucinatory help. We all need more info on this subject to make better decisions. As my favorite 80's AI robot (Johnny 5) said, "Need input."
    • 1 day, 7 hours ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I'm not comfortable for many reasons: 1) AI hasn't proven respects boundaries, quite the opposite, too many reports of AI tend to view its responsibilities and decisions as NOT mine; 2) the companies behind AI systems do likewise in not respecting my data as mine and jumble it in with their own; 3) AI systems haven't proven themselves as reliable parties regarding data and actions. There are many more; AI systems have a long way to go before I entrust one with dosing strategies while I'm awake, let alone while I'm asleep!
    • 1 day, 7 hours ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I’ve done a large 2 week focus group through Syracuse University on AI. I’ve also been watching shows on European news about AI and medical issues. AI still has too many glitches when it comes to medical issues.
    • 1 day, 7 hours ago
      TEH likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
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    At what age were you (or a loved one) diagnosed with T1D?

    Home > LC Polls > At what age were you (or a loved one) diagnosed with T1D?
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    If you’re at an event that asks guests to “silence devices,” do you adjust the alarms on your CGM and/or insulin pump?

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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    28 Comments

    1. rick phillips

      DX’d at Disney World, Itis not always the happiest place on earth.

      #DisneyGaveMeDiabetes
      #DIsneyOwesMeAVaacation

      4
      2 years ago Log in to Reply
    2. Annie Wall

      I was diagnosed at age 32 after several months of being thirsty and peeing all the time. It was a sudden weight drop that brought me to call my doctor for a physical. When the office said they were scheduling physicals in six months, I told them about the weight loss. They gave me an appointment for the next day and the rest is history, much to my shock. No diabetes in my family as far back through the generations as we could go. My doc was as surprised as I was. But it was an easy diagnosis for him. When I went to the lab for the glucose tolerance test, when they saw my blood glucose, they told me that test would make me sicker and the doctor had enough for his diagnosis. That was 42 years ago! How did that happen?

      1
      2 years ago Log in to Reply
    3. mojoseje

      At 7, 2 months after my mom died. My brother was diagnosed at 21 a couple of months after he had emergency gall bladder surgery.

      2 years ago Log in to Reply
    4. Bob Durstenfeld

      I was dx’ed at age 18 months, my eldest son at age 8 months and my eldest granddaughter at age 18 months. We have monogenic T1D

      2 years ago Log in to Reply
    5. Karen Tay

      Age 3 1/2 in 1960. I was diagnosed with German measles soon after from what I remember my mom saying

      2 years ago Log in to Reply
    6. Jane Cerullo

      Of course diagnosed with type 2 due to age. As an RN I knew was not type2. No metabolic syndrome. No weight problem. Took two years for correct diagnosis of LADA. Had already started insulin but my Endo was still clueless. Switched Endo’s due to insurance and she knew right away based on C-peptide. Was sort of a relief. At least for a little while. Then the fun began with pumps MDI and back and forth. Went back to MDI for three years. Now waiting for tandem x-2. Hope it is all they say it is.

      2 years ago Log in to Reply
      1. JuJuB

        I have been on the x2 for a decade and love it, but (and as an RN, you already know this, I’m sure!) the best technology in the world is rendered useless by bad user behavior.

        2 years ago Log in to Reply
    7. Kristi Warmecke

      I was 11 when diagnosed, almost 12. My brother was 7 months old and his daughter was 23 months old when diagnosed.

      2 years ago Log in to Reply
    8. Sue Martin

      My dad, a DO, diagnosed me when I was 18, on his birthday (six days ago plus 39 years). I had been thirsty and peeing for a month. Finally, he got me a blood test, it was ~450 two hours after lunch.

      2 years ago Log in to Reply
    9. William Ervin

      I am “celebrating” my 38 year anniversary of my diagnosis today. I was 18 and came home from school to find my mother and her friends all crying while celebrating her birthday. I asked what was wrong and she told me I had T1D. Good times.

      2 years ago Log in to Reply
    10. Scott Doerner

      I was 13, on a camping trip with parents.

      2 years ago Log in to Reply
    11. Janis Senungetuk

      I was 8. There’s a history of auto-immune disease on both sides of my family. My maternal grandfather had T1D and my paternal grandfather had lupus.

      2 years ago Log in to Reply
    12. Bruce Schnitzler

      Diagnosed in Dec 1951 at age 6.
      I am now 78.

      2 years ago Log in to Reply
    13. Margaret Moscrop

      I was diagnosed T1d at 19 years old.
      52 years ago now.
      My older sister at 7 or 11 not sure.

      2 years ago Log in to Reply
    14. JuJuB

      I imagine there are some of us here who already know this, but for the others who who were diagnosed 50 years ago or more, did you know there’s a Facebook group for us? It’s called (not surprisingly) “Type 1 Diabetics for 50years+”

      1
      2 years ago Log in to Reply
      1. Lynda Finch

        i didn’t know that!
        i was diagnosed at 53yo

        1
        2 years ago Log in to Reply
    15. Joan Benedetto

      My son was diagnosed at 18 months of age over ten years ago.

      1
      2 years ago Log in to Reply
      1. Jneticdiabetic

        @Joan Benedetto – Shout out and respect to you and all supportive T1D parents! Managing the BG of a toddler must be extra challenging. Good job!

        2 years ago Log in to Reply
    16. Patricia Dalrymple

      Diagnosed at 42 as type 2. I knew I was before diagnosed, all the classic symptoms plus the weight loss. My primary however diagnosed T2. A year later I told him I needed insulin because his pills were doing nothing and I was going to an Endo. He told me HE could prescribe insulin. I said then why didn’t you and left, never going back to him. That was 2000. Got my pump in 2009. My health is better for being a diabetic. My eating habits were terrible and I’m pretty sure I had IBS. After cleaning up my diet, I am much happier not having IBS. That’s a life wrecker. Afraid to go anywhere. Now I only avoid salt water. 😂

      2 years ago Log in to Reply
    17. William Bennett

      Came on just as I turned 28. Unlike a lot of adult onset T1s, it was pretty sudden. Started noticing weird symptoms in mid-late October, dx’d in mid-December. Had no trouble about the dx. Doc told my wife she probably would not have been able to wake me up the next morning. This was 1983, so still called “juvenile type” on my record, but the Doc knew his stuff, even told me about the upcoming change of terminology to the “Type” thing because you could get the auto-immune kind at any age. Still flips me out how many people, including medicos, haven’t absorbed that point. “You’re too old, must be Type 2!”

      3
      2 years ago Log in to Reply
    18. ConnieT1D62

      I was 8 years old when I was officially diagnosed on 12/26/1962.

      2 years ago Log in to Reply
      1. Ahh Life

        Merry day-after Christmas! ⛄

        2 years ago Log in to Reply
    19. Annie Simon

      Sadly my diagnoses at age 55 was a total shock and even my dr was surprised. My body surely went into some kind of shock or state of stress as months prior I had lost quite a bit of weight and was experiencing tremendous thirst. At first my family dr. Diagnosed me with T2D and prescribed 500mg of Metformin before leaving on an already scheduales cruise. Needless to say I did return home with symptoms of ketoacidosis and rushed to emergency where I ultimately was diagnosed as a T1D and met my now amazing endocrinologist. I’m doing extremely well have adapted late in life to my diagnosis and am under control with a daily dose now of 12-14 units of ADMELOG and 21 units of TRESIBA. I eat very healthy as I did before being diagnosed and exercise at least 3-5 days weekly. We are all given a challenge in life so this is now my new reality yet I have always been and continue to be a good patient and follow the advise of my medical team and believe in living a healthy lifestyle always as I’m a grandmother of 2 beautiful little girls and want to always be in good health and keep a positive attitude in life 🌈

      2 years ago Log in to Reply
    20. John McHenery

      I was initially diagnosed at 14 when I was recovering from jaundice, Hep A, but went on to insulin at 15

      2 years ago Log in to Reply
    21. Kristen Clifford

      This has been asked at least once, maybe twice, before. I was eight days shy of my 24th birthday

      2 years ago Log in to Reply
    22. mbulzomi@optonline.net

      I was 21 years and two years out or the US Navy in 1968.

      2 years ago Log in to Reply
      1. mbulzomi@optonline.net

        Make that 23 years old.

        2 years ago Log in to Reply
    23. KarenM6

      5 and it was traumatic.

      2 years ago Log in to Reply

    At what age were you (or a loved one) diagnosed with T1D? Cancel reply

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