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    • 2 hours, 29 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 13 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 13 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 14 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 16 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 21 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 22 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 22 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 22 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 22 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 22 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 22 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 14 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 16 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 16 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 20 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 20 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 21 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 21 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    If you’re at an event that asks guests to “silence devices,” do you adjust the alarms on your CGM and/or insulin pump?

    Home > LC Polls > If you’re at an event that asks guests to “silence devices,” do you adjust the alarms on your CGM and/or insulin pump?
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    Have you ever run out of insulin and had issues getting more because of insurance? Share in the comments what you did.

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    At what age were you (or a loved one) diagnosed with T1D?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    22 Comments

    1. kilupx

      As we all know, once these alarms get going you can a dozen of them. In my case, I get input from 2 apps on the phone (pump and cgm) and the pump itself. By trial and error I have found it’s easiest to turn off my phone completely and set the pump alarms and alerts to vibrate. I would welcome other suggestions.

      2 years ago Log in to Reply
    2. Lawrence S.

      I have never been to an event that asked to silence devices. My pump is set on low alarms already. But, I would have no problems turning off my alarms on my pump and phone, if asked. I can look at my pump occasionally to check my blood glucose levels. Phones have those “Amber Alerts” that are very loud. I don’t know if those turn off.

      2 years ago Log in to Reply
    3. Kelly Wilhelm

      Honestly, I panic! I never know how to completely shut it down where I’m not going to get an alert! I usually set my range so that my alerts are not likely to get triggered. I was so panicked at my daughter’s wedding but it was fine! Phew.

      2 years ago Log in to Reply
    4. Patricia Kilwein

      I leave mine on….but I do silence my phone so the alert won’t be heard by anyone but me.

      1
      2 years ago Log in to Reply
      1. KCR

        And I check my BG on my watch (Bluejay GTS) more frequently.

        2 years ago Log in to Reply
    5. Katrina Mundinger

      I usually turn off bluetooth on my phone and set the pump to vibrate only. Then I check BG via my pump. I am a musician who performs frequently so it comes up often.

      2 years ago Log in to Reply
    6. David & Kaleo of Team Nani

      I wish I could silence my emergency warnings on the Tslim w/ Dexcom cgm, but I can’t

      1
      2 years ago Log in to Reply
    7. Grey Gray

      I guess I am an #$$hole but I never shut my low alarms off. I do try to make sure I am not going to go low but if it happens it happens and I can usually silence it before anyone can figure out its me. Glycemic unawareness can be dangerous. Just don’t feel it changing anymore.

      2 years ago Log in to Reply
    8. Bruce Schnitzler

      I silence my phone and set Tandem:tslim pump to vibrate, but the pump will still provide a loud alarm with low BG that I can’t silence. Advice is welcome! Thanks.

      1
      2 years ago Log in to Reply
    9. Bill Kast

      A new wrinkle for me… I switched to Omnipod 5 and the Pump now makes a warning alert when I go below 55 mg/dL. This is not a bad thing, but there seems to be no way to ‘comply’ and silence this alarm. Not complaining! I think it a good thing that the pump sees the Dexcom with no other electronics in the picture!

      1
      2 years ago Log in to Reply
    10. Yaffa Steubinger

      With the new Dexcom G7, I can silence or have them all vibrate. However, I can still monitor my sugar on my Apple watch

      2 years ago Log in to Reply
    11. Eve Rabbiner

      I turn off my phone. I can go without GGM for an hour or so with no problem.

      2 years ago Log in to Reply
    12. Jneticdiabetic

      I TRY to silence my alarms (vibrate or off) on my pump and phone, but they still sneak through they do, too often tend the annoying repetitive ones. Most recently during my son’s band performance and parent teacher conferences. It’s disruptive.

      2 years ago Log in to Reply
    13. mbulzomi@optonline.net

      I turnoff my Cell, but you can’t silence a Tandem X2 Pump.

      2 years ago Log in to Reply
    14. KarenM6

      I make sure _as best as I can_ (it’s a good but not foolproof method) to not need an alarm during an event that needs silence.

      2 years ago Log in to Reply
    15. Anita Stokar

      I can turn off my phone, but I put my pump on vibrate

      2 years ago Log in to Reply
    16. A Montalbano

      It’s impossible to turn off alarms for very lows, otherwise would just leave on vibrate.

      2 years ago Log in to Reply
    17. A Montalbano

      This is also a huge concern for me if my kid was ever in an active shooter situation at school. Can’t completely silence his pump and CGM alarms.

      2 years ago Log in to Reply
    18. Steve Rumble

      I set my phone to airplane mode, so I will not receive calls or messages, but alarms will still work

      2 years ago Log in to Reply
    19. Jeff Balbirnie

      Never. My need for the alarm SUPERCEEDS by 10,000% anyone’s need for “silence”. So no, if it goes off, I cannot afford to miss it doing so not ever! I would prefer it violently pulse and flash franky such that I cannot even ignore it

      2 years ago Log in to Reply
    20. T1D4LongTime

      I cannot silence the pump’s low alarm, but can make it vibrate. I set the number of alerts to a minimum, but prefer to keep vibrate mode active to avoid a severe low. I am now on the Dexcom G7 CGM which now includes a ‘Quiet Mode’, so I can silence those alarms and just use the pump alarms.

      2 years ago Log in to Reply
    21. Vicki Andersen

      I also wear an Apple Watch that vibrates if I have a problem.

      2 years ago Log in to Reply

    If you’re at an event that asks guests to “silence devices,” do you adjust the alarms on your CGM and/or insulin pump? Cancel reply

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