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  • Activity
    • 3 hours, 22 minutes ago
      ConnieT1D62 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 4 hours, 4 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I always bring extra infusion sets and CGM sensors in case of accidental tear out. With Tandem pump, a charger is also essential. I forgot mine in my last weekend away. I use a Dexcom G6, so don't need to finger stick, but always bring my meter & strips just in case, and extra lancets as sometimes my non-diabetic family members like me to check their BG. I always take a vial and syringes in case of pump failure. For overnight trips also bring juice boxes/ glucose tabs and glucagon in case for lows. Hard to travel light as a T1D, especially with those GIANT Dexcom sensor inserters! 🧳🧳🧳
    • 4 hours, 21 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 4 hours, 21 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 4 hours, 37 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 4 hours, 38 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 4 hours, 38 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 4 hours, 40 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 6 hours ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 6 hours ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 6 hours, 2 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
    • 6 hours, 3 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 6 hours, 3 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 6 hours, 4 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      A while back I went to the UK for a choir tour. I had just acquired a CGM, a G4 Platinum, specifically as a safety measure for the trip. I don't bring second meter any more, but this was before the Dexcom was trusted for bolusing, so I was still meter-dependent and felt I needed an extra just in case. As it turned out I DID need it, but not for myself. There was another, newly dx'd, T1 on the trip and she lost her meter when she left her bag on the bus or some such. So I was able to come to the rescue. It was possible to buy a replacement of course but European/Brit ones are calibrated in moles rather than mL so that was still a glitch--she used mine for the remainder of the trip.
    • 6 hours, 4 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 6 hours, 6 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 9 hours, 2 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Skin prep pads.
    • 9 hours, 2 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 9 hours, 2 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Additional (i.e. beyond what I usually carry with me) glucose tablets and a dose of Baqsimi.
    • 9 hours, 3 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 9 hours, 49 minutes ago
      Flo Bachrach likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 10 hours, 17 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 10 hours, 18 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 10 hours, 19 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I agree that it depends on where the trip is. My decision point is how long would it take to get replacement supplies and what are the effects of a delay. I’m MDI Tresiba which lasts >24 hours, which significantly reduces the urgency to replace background insulin. For NYC, I brought nothing extra. For my trip to a third world country- I brought one, and only one, extra of each supply including a CGM receiver. Dexcom wasn’t available where I went and I worried if something happened to my phone, I wouldn’t be able to download the software if I bought a replacement phone.
    • 10 hours, 19 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
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    After how many hours of high blood glucose levels would you change your pump site or open a new insulin pen?

    Home > LC Polls > After how many hours of high blood glucose levels would you change your pump site or open a new insulin pen?
    Previous

    If you were diagnosed before age 26 or if you have a child with T1D who is now an adult, at what age did you or your child become financially responsible for the entire financial cost of diabetes supplies?

    Next

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2022?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    32 Comments

    1. ConnieT1D62

      Currently? I answered Never because sustained high BG levels rarely happen anymore since being on the Tandem X2 with CIQ. However, if I were to run sustained high BGs for hours I would (1) check & trouble shoot pump gear to ensure everything is working properly and (2) check for ketones.

      1 year ago Log in to Reply
    2. Mary Dexter

      Lately, the last 50 units of Novolog in the cartridge have been relatively ineffective, so I’ve been changing them at that point.

      2
      1 year ago Log in to Reply
      1. cynthia jaworski

        I have recently seen a post in a facebook group stating that the novolog at the end of a vial is booth less effective and also more viscous.

        1 year ago Log in to Reply
    3. M C

      If there is no ‘logical’ reason for the high bg, then I begin trying to figure out the ‘why’ – Sometimes it can be as simple as a kink in the line, so I just make adjustments to it. I have found it is the rare time that it is actually a problem with the site. If necessary, until all is sorted out, I will supplement with the pen needle, and continue monitoring.

      3
      1 year ago Log in to Reply
    4. Larry Martin

      It really depends on if I know the cause. If I have eaten out and did not guess carbs correctly, that is not a reason to change sites. If I forgot to bolus, which is very rare, that is also not a reason.

      4
      1 year ago Log in to Reply
    5. Jane Cerullo

      Have high glucose level set at 150 so if it alarms and I cover it usually goes right down. If not would change pens.

      1 year ago Log in to Reply
    6. kflying1@yahoo.com

      A closed answer question – similar to asking “when did you stop beating your domestic partner.” The question assumes an answer of only 2 choices, displaying a bias of the questioner that totally negates not only the particular questioner, but all T1D surveys as well.

      1 year ago Log in to Reply
    7. John McHenery

      Would depend on whether ther were issues with bubbles in line or other factors e.g. health. Would probably initially increase basal.

      1 year ago Log in to Reply
    8. Patricia Dalrymple

      One question I would like posed: how many people who use pumps supplement with a Pen or Syringe? I have never done that by I see others do. When I am on a sustained high it is usually because I ate out, like a pig, had dessert, fell off the wagon and have to wait for my body to recover from the abuse and get right back on. It’s a marathon not a sprint.

      5
      1 year ago Log in to Reply
      1. Steven Gill

        I carry a syringe with me to work because I’ve had my insert pull loose a time or three, and odd levels. I’ve also screwed up with the insert in the first place, AND I’ve used a syringe at work so I don’t waste what’s left in the cartridge and switch out in the morning (I can get by on 12-15 units in an average day at work so if I wake with 10 will bring a spare cartridge and draw it with a syringe if it’s not easy to just change cartridges. That way I waste little)

        1 year ago Log in to Reply
    9. Lawrence S.

      I still have to change my cannulas from time to time. Sometimes the site just doesn’t work. I will usually make several attempts to get my BG levels where they belong. But, considering the possible reasons for the high BG’s I will usually change the cannula and in injection site as a first step in the process.

      1 year ago Log in to Reply
    10. Natalie Daley

      Considering what insulin costs, I would not be throwing it out. At $50 a pen, I would check the carbs and adjust accordingly.

      1 year ago Log in to Reply
    11. Dave Akers

      Secret option C: I’m off liquid meal time insulin…

      I inhale and don’t have to trouble shoot those issues anymore👍🏼

      2
      1 year ago Log in to Reply
    12. Stephen Woodward

      Question should have read “…hours of un explained high blood glucose…”. Correction using an injection is tge easiest test to ID a bad site in addition to awareness.

      2
      1 year ago Log in to Reply
    13. Andrew Stewart

      As with most questions here on t1dexchange.org the answer is it DEPENDS. I don’t have additional detail as the other commenters have covered it.

      Wouldn’t it be great if the number of variables in your T1D management were limited to your number of answer options in these questions?

      #BeWell

      3
      1 year ago Log in to Reply
    14. Ken Raiche

      Never ever have I ever had to do that and to top it off the expense of the infusion kits would make it highly unlikely that I would. Although now that I think of it I actually have but this was due to the excruciating pain at the infusion site fortunately my kit was a 90 degree steel and I removed and set at a new location. So this was a totally differently scenario but could be done if I ever ran into the situation asked.

      1 year ago Log in to Reply
      1. AnitaS

        I have only changed my sight maybe two times in years. That is what I like about the steel cannulas, —-that you can place them in a different area without wasting a cannula set.

        1 year ago Log in to Reply
    15. Mark Schweim

      The KEY word is missing from the question!!!

      I wouldn’t consider changing sites just because of high BG’s. Only because of sustained UNEXPLAINED high BG readings.

      Without the word “unexplained” in the question, that entire question is pretty much meaningless, pointless, useless.

      3
      1 year ago Log in to Reply
    16. Sherolyn Newell

      I’ve only had sustained high glucose levels once, and by high I mean over 250. I did multiple adjustments, but nothing worked. On the second day, I was thinking bad insulin or site. It turned out to be the effects of a cortizone shot from my rheumatologist. She forgot to tell me it might make my BG go up.

      1 year ago Log in to Reply
    17. Steve Rumble

      I don’t use either a pump or pen, rather MDI. I change my vials at the first of every month, so regularly more than 28 days use but that doesn’t seem to cause problems over an extra 3 days use.

      1 year ago Log in to Reply
      1. AnitaS

        A pen can be considered MDI as I am taking a guess that most diabetics who use pens inject more than once a day.

        1 year ago Log in to Reply
    18. Diana L.

      When this happens and there is no reasonable explanation, the culprit is usually the canula at the infusion site has come loose and/or it is flattened against my skin.
      I wish I could tell when my canula is not delivering insulin to my body.

      1 year ago Log in to Reply
    19. Ahh Life

      Alas and alack, another bell-shaped curve around 3-6 hours with me being, again, a 3 sigma deviant at the tail end with >24 hours. Guess, I am just too greedy, stingy, parsimonious, tight (choose your adjective) to abandon perfectly good overly exorbitant pricey insulin. Funny, must be my bad habits – sacrificing health to the god of money. Must be an angel somewhere saying, “Tsk, tsk.” (゚⊿゚)

      2
      1 year ago Log in to Reply
    20. Molly Jones

      I chose 6-12 hrs. This is only if it looks like my glucose levels were not reacting to my pumps insulin even at an increased delivery and I have tested multiple variables.
      My BG can stay high for a few hours after fatty or hard to digest meals along with many other reasons.

      1
      1 year ago Log in to Reply
    21. mbulzomi@optonline.net

      My glucose usually goes up after a site Chage most of time I get it under control within 3 hours.

      1
      1 year ago Log in to Reply
    22. Vicki Breckenridge

      I always try an injection before I would change a site. That works 99% of the time.

      1 year ago Log in to Reply
    23. KCR

      This question needed an “It depends” response, since the conditions for high blood sugars were not specified, for example, in the absence of illness or stress. If I rule out illness, stress, or carb miscount, and have given a bolus correction that is not working, then I will likely change out my pump right away.

      “When in doubt, change it out!”

      1
      1 year ago Log in to Reply
    24. Chris Albright

      My response might change if the last meal was a heavy fat/protein meal. Expect an extended higher BG when a heavy fat/protein meal is on board.

      1
      1 year ago Log in to Reply
    25. Louise Robinson

      Because Medicare limits me to 10 infusion sets and cartridges every 30 days, I cannot change sites more frequently (even when running higher) because I would run out of supplies. (Unless I wish to pay for an extra box of supplies out-of-pocket.) For 9 months, I have had increasingly higher glucose levels once I get into Day 3 of a site. I am in the process of changing endo because my old endo (I’ve been with him 13 years) has been unable (since July last year to provide the documentation needed by Medicare to approve a site change every 2.5 days rather than every 3 days. I’ve provided him with additional documentation over and above my CGM and pump reports to show that Day 3 readings and insulin usage exceeds the other 2 days.) On Day 3 of my site, while keeping the site in, I often resort to supplementing my pumped insulin with an injection until my full 3 days are up. This is SOOOO frustrating!

      1 year ago Log in to Reply
      1. Louise Robinson

        Just additional info. I am a Type 1 diagnosed in 1976 and have religiously rotated my sites from upper and lower abdomen to thighs to arms to avoid development of scar tissue but after 46 years, diabetes may have taken its toll.

        1
        1 year ago Log in to Reply
    26. Wanacure

      I go with a (>130) high bg or go intermittently for 2 days with unusually higher bgs, before I realize something is out of wack. If I can’t figure out what caused them, I might try increasing my morning fast acting lispro, or getting up earlier or adjusting the overnight room temperature, or maybe realize I might have an infection and to expect other symptoms will soon follow. But sometimes I’m just baffled and bgs go to normal range without doing anything.

      1 year ago Log in to Reply
    27. Cheryl Seibert

      Tricky question as my BGs go up and stay up with stress, so a site change doesn’t help. Once, boluses do not bring down BG in 1-2 hours, then I start debugging the problem. “Fill Cannula” while not connected to be sure the tubing delivery is working, look for blood, soreness around the site. I even will moderately exercise to get the BG down and then see if the site again fails. At that point, I’m into 4-6 hours and will change the site.

      1 year ago Log in to Reply

    After how many hours of high blood glucose levels would you change your pump site or open a new insulin pen? Cancel reply

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