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  • Activity
    • 15 hours, 7 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 15 hours, 8 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 15 hours, 10 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 16 hours, 23 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 16 hours, 29 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 16 hours, 29 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 16 hours, 29 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 16 hours, 29 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 16 hours, 34 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 16 hours, 34 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 16 hours, 34 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 16 hours, 34 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 16 hours, 34 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 16 hours, 35 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 16 hours, 35 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 16 hours, 55 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 16 hours, 56 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 17 hours, 16 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 17 hours, 25 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 17 hours, 25 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 17 hours, 25 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 17 hours, 25 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 17 hours, 25 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 17 hours, 26 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 17 hours, 26 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
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    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2022?

    Home > LC Polls > How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2022?
    Previous

    After how many hours of high blood glucose levels would you change your pump site or open a new insulin pen?

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    For insulin pump users: When traveling to a time zone that is 1 hour different than your home time zone, do you change the time on your pump? (For example, traveling from Eastern Time to Central Time, or traveling from Pacific Time to Mountain Time)

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    19 Comments

    1. LizB

      $170

      1 year ago Log in to Reply
    2. Ahh Life

      Admitting full confirmation bias . . . the diabetic condition is not a poor man’s disease. Sigh! ◕︵◕

      2
      1 year ago Log in to Reply
    3. Lawrence S.

      Insulin $220, Supplies 0, Gvoke Hypo Pen $60, Telephone to use Dexcom G6 transmitter/sensor (which did not work btw) $110, plus trade in. I didn’t count Endocinologist visits $120. Luckily, I have a supplemental insurance program that covers supplies. However, the supplemental insurance costs several thousand dollars per year.

      1 year ago Log in to Reply
    4. Sherolyn Newell

      Met my $3500 deductible and it was at least 95% diabetes meds and supplies.

      1
      1 year ago Log in to Reply
    5. Sherolyn Newell

      Luckily, insurance pays 100% for the rest of the year.

      1 year ago Log in to Reply
    6. Joan Fray

      250. , but that doesn’t include the $3000 fir the am ulance, and $2000 co pay for the ER when I slipped doen a steep slippery driveway in January and broke my ankle. Three bones. Just read an article that said long term diabetics are more prone to bone fractures. 72 years old, almost 60 years T1d. Yet another consideration to add to the ever growing list of benefits!

      1 year ago Log in to Reply
    7. Jane Cerullo

      Since I went to MDI I pay $210 every three months for insulin. Also pay $9 a box for pen needles. Glucose tabs. Frio packs. Adds up. Would be 0 on pump but am in pump fatigue. Just went on vacation and the pens were so much more portable. Usually tons of pump supplies for “just in case”

      1 year ago Log in to Reply
    8. KCR

      I bought extra test strips and syringes this quarter plus the usual copays for pods and meds.

      1 year ago Log in to Reply
    9. Steve Rumble

      I answered 1500 – 2000 but that cost covered CGM supplies for several months into the future.

      1 year ago Log in to Reply
    10. mbulzomi@optonline.net

      Spent $6 dollars on the large size Glucose tablets. Thats it!

      1 year ago Log in to Reply
    11. Mick Martin

      $0, which MAY be misleading to SOME folks on here, but I live in the UK (United Kingdom of Great Britain and Northern Ireland) where diabetes supplies are paid for by our NHS (National Health Service), which is financed via direct taxation of all working people.

      3
      1 year ago Log in to Reply
    12. Kristine Warmecke

      OptumRX tried charing me $900 for my Novolog then it changed to $5,086, no way could I afford either. After much help from my endocrinologist office I am now able to receive my Novolog from my local pharmacy for $9 and change every month. My Pump and Dexcom supplies are $150 every 90 day’s, I just got the supplies.

      1 year ago Log in to Reply
    13. KarenM6

      I said 2k – 3k, but it could have been more than 3k. My deductible is 6k, so there is no insurance help for the first 3 or 4 months of the year.

      1 year ago Log in to Reply
    14. Kathleen Juzenas

      Relatively speaking, very little, just for alcohol swabs, pump batteries, and glucose tabs. I did not include Medicare and costly supplemental insurance premiums, which cover other health problems as well.

      1 year ago Log in to Reply
    15. Mig Vascos

      All my diabetes needs including pump supplies, sensors and insulin go under Part B and my secondary covers the copayments .

      1 year ago Log in to Reply
    16. Bill Williams

      Insulin is free under the Part D plan I’m on. Omnipod and insulin put me into the donut hole already, so I paid $354 for pods last week. It’s irritating that I could be on a tubed pump for nothing or MDIs for nothing, but the solution I like the best (Omnipod) is poorly covered by Medicare.

      1 year ago Log in to Reply
    17. Becky Hertz

      Unfortunate question as I have a build up of supplies and haven’t had to order much the first 3 months of 2022

      1
      1 year ago Log in to Reply
    18. PamK

      Just to clarify, I started on a new insurance plan in Feb. and am still working on getting Prior Authorizations for my CGM and Pump supplies. So, I have not been able to purchase any of these. Thankfully, I have been able to get some samples from my doctor’s office to hold me for several weeks. These are running out though, and I am hoping the approvals come soon!

      1 year ago Log in to Reply
    19. stillarobyn

      $1500+ to reach my insurance deductible.

      1 year ago Log in to Reply

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2022? Cancel reply

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