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    • 1 hour, 38 minutes ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      not for those of moderate income.
    • 1 hour, 39 minutes ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 hour, 40 minutes ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 3 hours, 21 minutes ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 3 hours, 21 minutes ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 4 hours ago
      Bruce Schnitzler likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 4 hours, 42 minutes ago
      Steve Rumble likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I think that a functional cure is the most viable scenario as far as a "cure" is concerned. It seems like the most progress is being made with islet cell therapies.
    • 4 hours, 49 minutes ago
      Natalie Daley likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 5 hours, 19 minutes ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 5 hours, 19 minutes ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 5 hours, 29 minutes ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 5 hours, 29 minutes ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 5 hours, 29 minutes ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      I was going to comment that there's always a trade off. Am I trading insulin replacement with some other daily treatment? If so, what's the difference? Is the new daily grind more harmful than the old?
    • 5 hours, 31 minutes ago
      Kathy Hanavan likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 6 hours ago
      John Barbuto likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 6 hours, 26 minutes ago
      KCR likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 6 hours, 26 minutes ago
      KCR likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I said, "Unsure." I do not have enough information to state an opinion.
    • 6 hours, 26 minutes ago
      KCR likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 6 hours, 41 minutes ago
      Katrina Mundinger likes your comment at
      How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
      Scylla and Charybdis being perhaps more apt.
    • 7 hours, 8 minutes ago
      TEH likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I think that a functional cure is the most viable scenario as far as a "cure" is concerned. It seems like the most progress is being made with islet cell therapies.
    • 9 hours, 49 minutes ago
      Ahh Life likes your comment at
      How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
      After 70 years with T1d and some reduced kidney function and seeing my dad's poor recovery after a kidney transplant, I have no desire to be subjected to chemicals that would further accelerate the demise of my kidneys.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
      Nope, T1D is a manageable thing with today's technology. I'll keep the devil I know.
    • 1 day, 2 hours ago
      dako likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      Agreed, and there are plenty of issues aging with T1D.
    • 1 day, 7 hours ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day, 7 hours ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
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    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2022?

    Home > LC Polls > How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2022?
    Previous

    After how many hours of high blood glucose levels would you change your pump site or open a new insulin pen?

    Next

    For insulin pump users: When traveling to a time zone that is 1 hour different than your home time zone, do you change the time on your pump? (For example, traveling from Eastern Time to Central Time, or traveling from Pacific Time to Mountain Time)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. LizB

      $170

      4 years ago Log in to Reply
    2. Ahh Life

      Admitting full confirmation bias . . . the diabetic condition is not a poor man’s disease. Sigh! ◕︵◕

      2
      4 years ago Log in to Reply
    3. Lawrence S.

      Insulin $220, Supplies 0, Gvoke Hypo Pen $60, Telephone to use Dexcom G6 transmitter/sensor (which did not work btw) $110, plus trade in. I didn’t count Endocinologist visits $120. Luckily, I have a supplemental insurance program that covers supplies. However, the supplemental insurance costs several thousand dollars per year.

      4 years ago Log in to Reply
    4. Sherolyn Newell

      Met my $3500 deductible and it was at least 95% diabetes meds and supplies.

      1
      4 years ago Log in to Reply
    5. Sherolyn Newell

      Luckily, insurance pays 100% for the rest of the year.

      4 years ago Log in to Reply
    6. Joan Fray

      250. , but that doesn’t include the $3000 fir the am ulance, and $2000 co pay for the ER when I slipped doen a steep slippery driveway in January and broke my ankle. Three bones. Just read an article that said long term diabetics are more prone to bone fractures. 72 years old, almost 60 years T1d. Yet another consideration to add to the ever growing list of benefits!

      4 years ago Log in to Reply
    7. Jane Cerullo

      Since I went to MDI I pay $210 every three months for insulin. Also pay $9 a box for pen needles. Glucose tabs. Frio packs. Adds up. Would be 0 on pump but am in pump fatigue. Just went on vacation and the pens were so much more portable. Usually tons of pump supplies for “just in case”

      4 years ago Log in to Reply
    8. KCR

      I bought extra test strips and syringes this quarter plus the usual copays for pods and meds.

      4 years ago Log in to Reply
    9. Steve Rumble

      I answered 1500 – 2000 but that cost covered CGM supplies for several months into the future.

      4 years ago Log in to Reply
    10. mbulzomi@optonline.net

      Spent $6 dollars on the large size Glucose tablets. Thats it!

      4 years ago Log in to Reply
    11. Mick Martin

      $0, which MAY be misleading to SOME folks on here, but I live in the UK (United Kingdom of Great Britain and Northern Ireland) where diabetes supplies are paid for by our NHS (National Health Service), which is financed via direct taxation of all working people.

      3
      4 years ago Log in to Reply
    12. Kristine Warmecke

      OptumRX tried charing me $900 for my Novolog then it changed to $5,086, no way could I afford either. After much help from my endocrinologist office I am now able to receive my Novolog from my local pharmacy for $9 and change every month. My Pump and Dexcom supplies are $150 every 90 day’s, I just got the supplies.

      4 years ago Log in to Reply
    13. KarenM6

      I said 2k – 3k, but it could have been more than 3k. My deductible is 6k, so there is no insurance help for the first 3 or 4 months of the year.

      4 years ago Log in to Reply
    14. Kathleen Juzenas

      Relatively speaking, very little, just for alcohol swabs, pump batteries, and glucose tabs. I did not include Medicare and costly supplemental insurance premiums, which cover other health problems as well.

      4 years ago Log in to Reply
    15. Mig Vascos

      All my diabetes needs including pump supplies, sensors and insulin go under Part B and my secondary covers the copayments .

      4 years ago Log in to Reply
    16. Bill Williams

      Insulin is free under the Part D plan I’m on. Omnipod and insulin put me into the donut hole already, so I paid $354 for pods last week. It’s irritating that I could be on a tubed pump for nothing or MDIs for nothing, but the solution I like the best (Omnipod) is poorly covered by Medicare.

      4 years ago Log in to Reply
    17. Becky Hertz

      Unfortunate question as I have a build up of supplies and haven’t had to order much the first 3 months of 2022

      1
      4 years ago Log in to Reply
    18. PamK

      Just to clarify, I started on a new insurance plan in Feb. and am still working on getting Prior Authorizations for my CGM and Pump supplies. So, I have not been able to purchase any of these. Thankfully, I have been able to get some samples from my doctor’s office to hold me for several weeks. These are running out though, and I am hoping the approvals come soon!

      4 years ago Log in to Reply
    19. stillarobyn

      $1500+ to reach my insurance deductible.

      4 years ago Log in to Reply

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2022? Cancel reply

    You must be logged in to post a comment.




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