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    • 23 minutes ago
      Marty likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I were not feeling too bad, I would change my site, increase my insulin, drink more water and monitor closely
    • 23 minutes ago
      Marty likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      When I test positive, I increase my insulin dosage to a “sick day” level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out. Also, increase my water intake. I would not call my Endo unless I was unable to get my blood glucose down over a lengthy period of time. That has never been the case.
    • 31 minutes ago
      KSannie likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      None of the specialists I’ve seen have suggested, recommended or prescribed methods for doing this in the lovely 40 years I’ve been T1D. My 80th birthday is the summer. It will officially be half of my life.
    • 33 minutes ago
      Patricia Dalrymple likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      I'd most likely call my endocrinologist and ask their advice.
    • 46 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      I increase my basal and insulin ratios if I eat until I show no longer test positive. I do only test if I have been high for a longer than usual time.
    • 47 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I were not feeling too bad, I would change my site, increase my insulin, drink more water and monitor closely
    • 1 hour, 9 minutes ago
      Judith Halterman likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      I'd most likely call my endocrinologist and ask their advice.
    • 1 hour, 11 minutes ago
      Derek West likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I were not feeling too bad, I would change my site, increase my insulin, drink more water and monitor closely
    • 16 hours, 21 minutes ago
      KCR likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      None of the specialists I’ve seen have suggested, recommended or prescribed methods for doing this in the lovely 40 years I’ve been T1D. My 80th birthday is the summer. It will officially be half of my life.
    • 22 hours, 54 minutes ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I have a blood ketone monitor. It works just like a glucometer.
    • 1 day ago
      Kathy Hanavan likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 1 day, 1 hour ago
      Judith Halterman likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 1 day, 19 hours ago
      Anthony Harder likes your comment at
      Do you have ketone testing strips?
      Hi, Marty. Does your specialist have a source for that claim? It makes little sense that ketones would rise faster than BG since the metabolic pathway is much slower. If there's a source, however, I'd look further into the claim. FWIW, I've been a Type 1 for over 50 years; I can't remember the last time I tested for ketones. I possess no ketone testing strips.
    • 2 days, 22 hours ago
      Marty likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      Covers it with co pay
    • 2 days, 23 hours ago
      atr likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      It covers both. I prefer to have the the nasal version as I think it would be easier for someone else to administer.
    • 3 days, 1 hour ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I’ve been T1D for 60 years. As a child my mother didn’t like needles or injections so she just fed me when low. In college, explained use to dorm mates and classmates would’ve been a waste of time. Now married, my wife assumed the role of my mother and doesn’t like using needles on me either. I don’t have glucagon.
    • 3 days, 1 hour ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      Yes, always have one or two nasal glucagon kits (Baqsimi) at home in easy to reach locations (ie at bedside and special container in living area) and always keep one with me when I go out ( along with glucose tabs or other simple carbs for treating LBS.). I apparently required injectable glucagon several times as a child and needed injectable glucagon only twice as an adult, both more than 15 years ago . More recently I needed my husband to give me Baqsimi after eating a difficult to dose for, high fat meal. The experience was terrifying so I don’t go anywhere without it now.
    • 3 days, 1 hour ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I actually have 2 non-expired prescriptions. One for Baqsimi and one for Gvoke. I have not filled either of them because they’re $500-600 each.
    • 3 days, 1 hour ago
      Lawrence S. likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      My Medicare Part D essentially doesn't cover glucagon when any form is nearly $500!
    • 3 days, 16 hours ago
      Amanda Barras likes your comment at
      Do you have a non-expired glucagon prescription?
      Same here. Been as low as 19 (struggling with a vacuum cleaner bag and refused to let it win) but was still able to swallow food. I did used the “red needle” as my husband refers to it once when I went low but was scheduled for surgery and couldn’t eat or drink anything. Only once in 26 years. Fortunate.
    • 4 days, 10 hours ago
      Karen Newe likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 23 hours ago
      Natalie Daley likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 5 days ago
      atr likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 5 days, 1 hour ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 5 days, 1 hour ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
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    If you have ever used a CGM, in what year did you first begin using a CGM?

    Home > LC Polls > If you have ever used a CGM, in what year did you first begin using a CGM?
    Previous

    Have you experienced any life transitions during which it has been particularly difficult to manage T1D? Select all that apply to you.

    Next

    Were you experiencing DKA (diabetes-related ketoacidosis) when you were diagnosed with T1D?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. 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    29 Comments

    1. Sharon Gerdik

      I was in the first couple of test groups for Dexcom.

      1
      3 years ago Log in to Reply
      1. KarenM6

        Thank you, Sharon, for being in a test group!! 🙂

        3 years ago Log in to Reply
    2. LizB

      I started using Medtronic’s original SofSensors when they integrated the receiver into the pump (I think it was the 522/722 models). I think it was around 2007.

      3 years ago Log in to Reply
    3. rick phillips

      I started with the Medtronic sofsense with a dumb little device. Thank good was MEDT is nsmin outstanding CHM products these days

      3 years ago Log in to Reply
    4. Richard Vaughn

      I made a mistake, I thought the question involved using a pump. I started using a CGM in 2015, not 2007.

      3 years ago Log in to Reply
    5. Nichole Pleisch

      I started using a cgm when I was diagnosed in October 2021

      1
      3 years ago Log in to Reply
    6. Jeanne McMillan-Olson

      I was in a test group for the Dexcom for a year back in 2009 and then wore another one in a kidney reseach project a couple times. My Medicare insurance finally started covering CGMs a few years ago. 😊

      2
      3 years ago Log in to Reply
      1. KarenM6

        Thank you, Jeanne, for being in a test group! 🙂

        3 years ago Log in to Reply
    7. Joan Fray

      Oddly enough, I can’t remember……best guess, 2016. Too late to help my memory, apparently!

      2
      3 years ago Log in to Reply
      1. pru barry

        I can relate!
        pru

        3 years ago Log in to Reply
    8. Lawrence S.

      Most of you have heard this story before, but it’s worth telling again.
      In 2006, I had a low blood glucose at work. It was around 8:00am after riding for 1 1/2 in a car pool to work. I stopped on the way to my office, collapsed like a marionette with the strings broken. I fell, breaking my right ankle.
      At the time, I was doing about a dozen blood tests daily. I had just heard about CGM’s from Medtronic, but my health insurance did not cover the cost for CGM’s.
      As I sat at home in a cast, I telephoned and wrote to my health insurance company. I told them that if I had a CGM, I probably would not be sitting at home for weeks, and the insurance company not paying all of the medical costs.
      Soon afterward, I was approved by my insurance company for a Medtronic CGM. I don’t know for sure, but I think I may have been the first T1D to be approved for a CGM by my insurance company.
      I am now using a Tandem X2 pump, with Control IQ, and a Dexcom G6 sensor.

      4
      3 years ago Log in to Reply
      1. Don (Lucky) Copps

        Excellent story, continue telling it. I started the G6 about the same time as you. When are you going to delve into the G7, I’m anxious to do it. But, I’d like to see how others like it/or not first.

        1
        3 years ago Log in to Reply
      2. Lawrence S.

        Thanks, Don. I have not heard much about the G7. But, I will have to wait until Medicare approves it. Also, I must make sure it is compatible with my current Tandem X2 pump, and has Control IQ.

        3 years ago Log in to Reply
    9. Kristen Clifford

      The first time I ever used a CGM was in 2010. I had a new endocrinologist and was in the process of switching from syringes to insulin pens. She wanted me to try out a CGM as a means of getting to know my condition better. I only had to wear it for a week. Three years later, at which point I had a pump, I did another CGM demo. I didn’t start using a CGM permanently until fall 2016.

      3 years ago Log in to Reply
    10. KCR

      I read Think Like a Pancreas a few months after diagnosis in 2014 and talked to my doctor about prescribing a CGM after that. I remember the first insertion: that gigantic syringe terrified me! 🙂

      3 years ago Log in to Reply
    11. Joan Benedetto

      Mid 2014 at age of 26mos. Would have been sooner, but very nasty insurance appeal!

      3 years ago Log in to Reply
    12. Marty

      My earliest experience with CGM was wearing a device that stored data for my doctor to analyze later without giving me information in real time. I can’t remember exactly when that was but I do remember getting my own Medtronic CGM as soon as possible after meeting a student at a conference who was using the first Dexcom CGM system. It was a life changer!

      3 years ago Log in to Reply
    13. E24murph@gmail.com

      I got a cgm shortly after being diagnosed which was a year ago.

      3 years ago Log in to Reply
    14. Mark Schweim

      Dexcom released their first CGM system in Late Summer/Early Fall 2007 and I started using CGM (Dexcom) soon after initial release but don’t remember if I started using CGM in late Fall/early Winter (October – December) 2007 or mid Winter (January – March) 2008.

      3 years ago Log in to Reply
    15. qachemist

      I started within a month of diagnosis of LADA.

      3 years ago Log in to Reply
    16. Trina Blake

      I think it was around 2007. It was the Dexcom Seven (not the G7!). I was doing 15-20 fingersticks and loved having the data in an easier way (of course back then it was still fingersticks). I found it to be such a useful tool, that after moving and having to change insurance, I continued using Dexcom (in it’s various iterations) paying out of pocket. SO glad my insurance finally got with the program

      1
      3 years ago Log in to Reply
    17. Don (Lucky) Copps

      I intentionally waited for the Dexcom G6 as the improvements in MARD were important to me. Diabetes is hard enough, and until the MARD became less of an issue, that’s when I did it. Fall of 2016. FDA approved the G7, looks like worthwhile update, we’ll see?

      3 years ago Log in to Reply
    18. beth nelson

      Vanity kept me from begging to use a pump, and boy do I regret it! I was diagnosed in 1963. I’m not sure when pumps first hit the market. Luckily, my first pump, Medtronic with a Dexcom sensor, didn’t stick out like a sore thumb. Bt when the Tandem closed loop system was released, I jumped on it quickly! So easy, and my health is improved vastly [for my age, at least 🙂 ]

      1
      3 years ago Log in to Reply
    19. Becky Hertz

      I actually don’t remember when I started. Mid-2010’s. I was tardy to the party. Resisted wearing another thing in my body and was on Medicare by then so when my endo first started mentioning it to me it was SOP in Medicare’s mind. Now, I wouldn’t live without it. Not the best as far as accuracy for me, but love being able to track trends, and have an idea of where my bg is at a glance. Started with the G5.

      1
      3 years ago Log in to Reply
    20. Bob Durstenfeld

      I used an experimental CGM in 1977 at UCLA. It then took 30 years to achieve a commercial product.

      2
      3 years ago Log in to Reply
      1. KarenM6

        Thank you, Bob, for being the participant who helped CGMs come to fruition!! 🙂

        3 years ago Log in to Reply
    21. KarenM6

      I have 2 or 3 “start” dates because I had two false starts. My first experiences with the CGM were not positive and I hated it.
      BUT, around 2012-ish (I really don’t remember the exact year, but it was around then), I had a Physician’s Assistant who reeeeeeeaaaalllyyyyy helped me and the 3rd one stayed up! (Didn’t have to get to the 4th one… sorry… silly joke… Monty Python reference… my brain is all over the board right now.)
      Anyway, CGM is SO awesome. It is not a perfect tool for me, but it is better for me than not having it. 🙂

      3 years ago Log in to Reply
    22. Jneticdiabetic

      I put 2005-2007, but don’t remember exactly. I recall trying an early Medtronic CGM for a short period then trying again in 2008 during my first pregnancy. These earlier versions didn’t work very well for me, so didn’t stick with it until reliability improved with the Dexcom 4, then Medtronic guardian with 670g pump and now Dexcom 6 with Tandem.

      3 years ago Log in to Reply
    23. PamK

      I chose “other,” because I don’t remember what year it was. I know I started on Medtronic, but didn’t use their CGM for long. I then started on Dexcom about 6 months later. This was the G4, with a free upgrade to the then soon to be released G5.

      3 years ago Log in to Reply

    If you have ever used a CGM, in what year did you first begin using a CGM? Cancel reply

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