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    • 5 hours, 26 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 16 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 16 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 17 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 19 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 23 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 1 hour ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 1 hour ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 1 hour ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 1 hour ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 1 hour ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 1 hour ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 17 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 17 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 19 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 19 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 21 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 23 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 23 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 3 days ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 3 days ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Have you ever seen a mental health provider with expertise in diabetes management?

    Home > LC Polls > Have you ever seen a mental health provider with expertise in diabetes management?
    Previous

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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. Tom Rintelmann

      This is Tom R

      1
      3 years ago Log in to Reply
    2. Lauren Carey

      I have participated in a diabetes focused research study on mental health and diabetes management.

      1
      3 years ago Log in to Reply
    3. anj1832

      My endocrinologist mentioned it to me once, but it was never followed up on.

      3 years ago Log in to Reply
    4. Jana Venditte

      No, but I am a Professional Counselor and have a few clients with T1D or children with it. What a difference it makes when someone completely understands.

      5
      3 years ago Log in to Reply
    5. lis be

      An endo recommended one, but they were way too expensive.

      1
      3 years ago Log in to Reply
    6. Robin Melen

      I haven’t yet, but one year since diagnosis I am starting to think maybe I ought to talk to someone …

      1
      3 years ago Log in to Reply
    7. KCR

      There are no therapists with expertise in T1D where I live. The book “Diabetes Sucks…and You Can Handle It” by T1D psychologist Mark Heyman has been an excellent resource for me during a very stressful time this year.

      4
      3 years ago Log in to Reply
      1. Ahh Life

        KCR–Thanks for citing useful references. 😇

        1
        3 years ago Log in to Reply
    8. AimmcG

      I live in the NY Metro area where you can just about find specialists on any subject and haven’t found one yet. I have been shocked to meet doctors who don’t understand T1D. You would think with the number of people who have Diabetes doctors would at least know the difference between 1 & 2. So a therapist who knows anything about T1D is near to impossible.

      5
      3 years ago Log in to Reply
    9. Mary Dexter

      Yes, I was referred to the therapist associated with the diabetes team. However, she commented that she understood what living with diabetes is like because she has to stand in line at the grocery and drive behind others on the beltline. She is now working with cancer patients. Too many look upon diabetes as a lucrative business opportunity.

      3 years ago Log in to Reply
      1. Modee

        Huh? What?

        3 years ago Log in to Reply
    10. Mig Vascos

      There have been times when I’ve felt it would have been nice to talk to someone, but has never found anyway that specializes in T1D. I really feel like that specialization doesn’t exist.
      No one seems to know everything about T1D. I’ve found a lot of my questions answered by reading the daily Q&A in this forum.
      Otherwise do your own research and figure it out. Don’t forget to tell your diabetes team what you find out to help them increase their knowledge. Lol.

      2
      3 years ago Log in to Reply
    11. Beckett Nelson

      My last year in the pediatric program they started with having a social worker. Then I moved to adult care and have been with a few programs—none have this type of resource

      3 years ago Log in to Reply
    12. Lori Lehnen

      There have been a few times when a diabetes mental health professional would have been incredibly helpful, but no I haven’t seen one. To all the young people- this could be a lucrative career opportunity, especially with telehealth the geographic market could be limitless.

      4
      3 years ago Log in to Reply
    13. Tom Caesar

      The closest professional who understood my situation as a type 1 was a certified diabetes educator who also is a diabetic herself. Unfortunately she represented a pump manufacturer that I’ve moved on from. Find great understanding and support from Diabetes groups.

      3 years ago Log in to Reply
    14. mojoseje

      My answer is no but I have wanted to!

      3 years ago Log in to Reply
    15. rick phillips

      I have seen a provider off and on for over 20 years. However they do not have diabetes experience.

      3 years ago Log in to Reply
    16. Bob Durstenfeld

      But, I wish I had.

      3 years ago Log in to Reply
    17. Joan McGinnis

      I have but my diabetes was not the real issue, it was situational depression. It helped that he knew so much about diabetes. I also have a good friend who is a mental health care provider who is a mother of a person with type 1 and she is great. We are both health care providers and share lots of knowledge and strategies for mental health with diabetes.

      3 years ago Log in to Reply
    18. Janis Senungetuk

      No, but it would definitely be helpful. My adolescent years would have been far less stressful.

      3 years ago Log in to Reply
    19. Denise Wilkes

      Didn’t know they existed.

      3 years ago Log in to Reply
    20. Ms Cris

      No, but I did see someone who specializes in the mental impact of chronic illness and disability.

      3 years ago Log in to Reply
    21. Ernie Richmann

      I have participated in online sessions with Dr. Mark who is a diabetes psychologist.

      1
      3 years ago Log in to Reply
    22. Kristine Warmecke

      In the Women’s T1D group I belong to, we’ve had a speaker who’s come a couple times, that does.

      3 years ago Log in to Reply
    23. mbulzomi@optonline.net

      Haven’t reached that level yet to see a Mental Health Provider. However, I’m tired of T1D and all the B/S that surrounds it.

      1
      3 years ago Log in to Reply

    Have you ever seen a mental health provider with expertise in diabetes management? Cancel reply

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