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    • 3 hours, 16 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 14 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 14 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 14 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 14 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 16 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 22 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 22 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 23 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 23 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 15 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 17 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 17 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 20 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 20 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 22 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 22 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Do you (or your loved one with T1D) typically eat gluten-free?

    Home > LC Polls > Do you (or your loved one with T1D) typically eat gluten-free?
    Previous

    If you were diagnosed with diabetes as a child or teen, when did you transfer your care to an adult diabetes provider (e.g., adult endocrinologist, adult diabetes specialist, adult primary care provider for your T1D)?

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    How long does it typically take for your durable medical equipment or pharmacy supplier to obtain prior authorization or chart notes from your T1D health care provider’s office?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    24 Comments

    1. Janice Bohn

      Most of the time I am gluten free because I typically do not eat bread or pastas. But only as a help to blood sugars.

      3
      4 years ago Log in to Reply
    2. Lena Selbrand

      No, why should I? I am not gluten intolerant, even been tested for it. I see no reason to omit more products from my diet.

      3
      4 years ago Log in to Reply
    3. Lawrence S.

      I have been diagnosed with Celiac disease for about 15 years. So, I have to eat gluten-free. I have not strayed from the diet.
      I DO NOT recommend that anyone eat a gluten-free diet unless they are diagnosed with Celiac disease or some gluten allergy. If it is not necessary, there is no reason to eat gluten free. I find the gluten free diet to be overly restrictive, and much, much more stressful than dealing with Type 1 Diabetes. There are so few foods that I can eat, further complicated by irritable bowel syndrome.

      2
      4 years ago Log in to Reply
    4. cynthia jaworski

      my husband is gluten-intolerant, so I eat the same gluten-free carbs as him. I eat carbs rather sparingly.

      4 years ago Log in to Reply
    5. Ms Cris

      I eat about 95% grain free, because I am so intolerant of carbs! I therefore, by default, eat gluten free. Gluten is a protein I tolerate just fine. I miss it.

      4 years ago Log in to Reply
    6. Patricia Kilwein

      Only if carbs, fiber content and protein are there. Otherwise it’s a pass.

      4 years ago Log in to Reply
    7. Eva

      My antibodies to gluten were tested a few years back due to 23andme saying I was at risk for Celiac disease. But it was negative. Yet, I tend to stay away from bread, pasta and other processed forms of food cause my blood sugar is much easier to manage without having so many carbs. I’m happy eating plain whole foods.

      1
      4 years ago Log in to Reply
    8. E24murph@gmail.com

      My 5 year old was just diagnosed with celiac disease last week. Our household is going mostly gluten-free but not entirely. He is not the one with T1D. I am.

      4 years ago Log in to Reply
    9. Carolann Hunt

      We ate gluten free for a year and it made no difference so we’re eating gluten again. No celiac dx

      2
      4 years ago Log in to Reply
    10. MARIE

      Yes, by default, because we eat a very low carb diet to control blood sugar and maintain a high time-in-range.

      4 years ago Log in to Reply
    11. kflying1@yahoo.com

      Being a t1D carries many diet restrictions – thank God that for me gluten isn’t one of them.

      4 years ago Log in to Reply
    12. Jeff Balbirnie

      Yup But not for me. There a whole bunch of allergies in the house

      4 years ago Log in to Reply
    13. Toddrich

      I answered No, but I do avoid bread since most commercially made bread has so much sugar, right Subway?

      4 years ago Log in to Reply
    14. kristina blake

      No. I avoid most starchy carbs (trying to be low carb to lose weight in addition to my T1D). When I read the nutrition info on gluten free items, they often have more carbs than I like to ingest. Substituting rice for wheat doesn’t work for me.

      4 years ago Log in to Reply
    15. Mig Vascos

      I’m gluten intolerant. I normally don’t eat pasta because of the amount of carbs in them, but I do love all kind of breads and pastries. Unfortunately, every time I indulge in these items, the gluten messes up my stomach. Its not really worthy.
      I’m also dairy intolerant so the variety of foods I eat without either increasing my sugar or messing up my stomach is limited.
      Preparing a meal is difficult and discouraging.

      1
      4 years ago Log in to Reply
    16. Carol Meares

      I generally eat grain free but not always. I find that I feel better when I eat no grains and it is easier to manage BS. I don’t have to worry so much about hidden gluten so I am sure I get gluten when I don’t even know it. On special occasions I will enjoy something that is not grain free. I am not a purist:) and luckily, don’t have to be.

      4 years ago Log in to Reply
    17. Becky Hertz

      Typically gluten free because typically I don’t eat bread products, pastas, etc because of the effect on my bg levels.

      1
      4 years ago Log in to Reply
    18. sdimond

      I eat 40 grams or less of carbs a day. The only grain product I eat is three corn taco shells once a week.

      1
      4 years ago Log in to Reply
    19. Wanacure

      I thought “gluten-free” was just another bourgeoisie food fad diet like the zen macrobiotic diet that turned out to be a hoax. Then my brother claimed he was gluten free years ago and tried to warn me. Still, I thought it was just another hoax, because he didn’t show me any western medicine lab test. This year my doctors ordered an endoscopy for me. The results convinced my doctors to recommend I go gluten free. I’d already cut out a lot of carbs to maintain better glucose control, to cut down insulin doses, and to reduce hypoglycemia risk as recommended in Dr. Richard K. Bernstein’s books, himself a T1D. I’m not on a full ketogenic diet…yet. But I’m very low carb, and don’t feel deprived at all. Nuts, seeds, butter, cream, plain unsweetened full fat yoghurt, veggies, sardines, salmon, and cheeses are very satisfying. I want to thank the people on ketogenic diets who’ve provided us with so much info in their replies on this website. I understand that the first month on a ketogenic diet I’ll pee copiously and may lose vitamins or minerals. I might have to take vitamin-mineral supplements, at least during one month transition period. Can blood tests reveal if continued dietary supplements are needed? I guess I should get a complete blood work up to find my present baseline. My present lab bloodwork doesn’t test for vitamins and minerals, just for cholesterol, HbA1c, and IGA. If I go fully ketogenic, ketones will show up in my blood and urine causing possibly causing lab techs and my doctors to freak out. They may not be very supportive. I’m pretty sure they’ll try to dissuade me. They don’t even like my low carb diet! Do ketogenic diets require vitamin and mineral supplements beyond the one month transition period?

      1
      4 years ago Log in to Reply
    20. Jane Cerullo

      Don’t have a gluten allergy that I am aware of

      4 years ago Log in to Reply
    21. Joan Fray

      Diagnosed with celiac four years ago. Probably had it most of my life. Damn internist kept saying “you’ve had Type1 for so long, of course you’re going to have problems with your stomach. Neuropathy probably. “. Got so I couldn’t eat anything but cottage cheese. Lost 15 pounds in six weeks. Finally got referred to Gastroenterologist. Grrrr!

      2
      4 years ago Log in to Reply
    22. PamK

      Our son was diagnosed with Celiac, so when he is joining us for a meal it is gluten free. We do not eat gluten free all of the time though.

      1
      4 years ago Log in to Reply
    23. Velika Peterson

      I answered “no”because we do not TYPICALLY avoid gluten. However, I have noticed that our T1D daughter’s blood glucose levels ususally do not spike when eating gluten-free food, so I occationally try to buy that.

      4 years ago Log in to Reply
    24. Mary Ann Sayers

      My GRANDDAUGHTER has celiac disease! (She was asked if any relatives had it or diabetes) She kiddingly? blamed me for getting it. I’ve had T1D since I was 7, her grandfather was dx at 70 with type 2 about 10 years ago. She knows no one is to blame.

      4 years ago Log in to Reply

    Do you (or your loved one with T1D) typically eat gluten-free? Cancel reply

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